Adriana_Long Covid Canada Profile
Adriana_Long Covid Canada

@longcovid_adri

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NEW LEAD OF LONG COVID CANADA FB. Sick w/ #longcovid since Xmas 2020. #FBLC Former competitive swimmer, metalhead, intense living. #MECFS #LongCovid ADVOCATE.

Vancouver, BC
Joined August 2023
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@longcovid_adri
Adriana_Long Covid Canada
1 year
I've written a PEM Guide, from my own experience as a patient & learnings from my specialists. My goal is that even if you are familiar with some of the concepts, that you learn something new, that "AHA!" that helps you tie it all together and practice it better. feedback welcome
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@longcovid_adri
Adriana_Long Covid Canada
4 months
Partner tested ++!! I AM FURIOUS! he doesn’t understand why I’m so mad!! I’ve been struggling for 3.5yrs with BAD #LongCovid he’s SEEN me almost die a handful of times! FFS! 🤬 I feel so numb right now. I fucking love this man to pieces but I just can’t help but feel betrayed.
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@longcovid_adri
Adriana_Long Covid Canada
5 months
A dear friend of mine passed away yesterday after a 3yr fight with Covid. We never met face to face, only online, but we were very supportive of e other. Last I talked to her was literally 3 days ago. Her passing hit me, but she’s not suffering. #RIP Lisa, I love you warrior!🖤💔
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@longcovid_adri
Adriana_Long Covid Canada
7 months
What angers me to my core “you are obsessed/traumatized by this virus, you need to stop.” Oh, you mean the virus that almost killed me several times? The virus that completely disabled me and stole my ENTIRE life overnight!? Wouldn’t you be traumatized and be warning EVERYONE!?
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@longcovid_adri
Adriana_Long Covid Canada
8 months
@arianek @Protect_BC @DrFiliatrault @drDavidKeegan @jvipondmd @keetmuise @BarryHunt008 @DoNoHarmBC @frozen @markroseman @amandalhu @littleann4ever @Mark_Ungrin @suerobinsyvr @bad_batch_rex @BCampbellDuke @nicktsergas @jheighton3 This is exactly why my team are getting ready to file a human rights action across provinces as it is a HR violation that we don’t feel safe in a place that should be providing us care. If anyone wants to jump in this boat feel free to contact me.
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@longcovid_adri
Adriana_Long Covid Canada
1 year
I am reposting this as the first link apparently expired? I am now attaching a new link to Google docs please let me know if you can open it:
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@longcovid_adri
Adriana_Long Covid Canada
9 months
@dysclinic If you read the latest research that came out of @NatureComms on PEM it tells you one of the MANY reasons why we CANNOT move much. I used to be an athlete, and now I can’t even do light yoga for seniors without crashing. I WISH I could move more, even lightly. And I’m not alone.
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@longcovid_adri
Adriana_Long Covid Canada
1 year
@ErinAPN1 There’s no words to describe how much I hate what a lot of people/ society as a whole have become. Complete lack of empathy, understanding and love. It’s horrible. I am so sorry about ur daughter, I don’t know her, but I truly wish her better health. A hug full of light to both.
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@longcovid_adri
Adriana_Long Covid Canada
1 year
@CovidSolidarit1 @MeowVT My friend’s wife’s developed palpitations/irregular HR after her Covid infection. I tried to educate that most likely Covid related and turning to Long Covid, response? “She’s been too stressed at work trying to catch up, that’s it. Stop trying to make everything about covid.
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@longcovid_adri
Adriana_Long Covid Canada
8 months
@Yes_IhaveME @alexandrite113 What type of response is this? If someone has kids with the sole idea that once they’re legal age they can wash their hands off of their kids and “get their life back” then they shouldn’t have kids. Your comment is beyond gaslighting,this is not how to express concern for her mom
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@longcovid_adri
Adriana_Long Covid Canada
10 months
@RobWust @PutrinoLab @NatureComms I really can’t thank you enough for this paper. As a former Int. Competitive swimmer, it’s been HELL trying to explain that I am NOT deconditioned, and that this is very different and conplex. Much more research needs to be done on PEM incl. cognitive exertion. But we THANK YOU!!
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@longcovid_adri
Adriana_Long Covid Canada
10 months
This needs to be shared far & wide, I’ve requested Canadian Media outlets to cover this story. Whilst this is not the first PEM research article, it’s significant due to the level of exposure and reach @NatureComms has. It will undoubtedly trigger further much needed research.
@RobWust
Rob Wüst
10 months
After a long wait, our longitudinal long COVID study is finally published in @NatureComms : . We find a skeletal muscle alterations in patients with #longcovid , which worsen with exercise. 1/n
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@longcovid_adri
Adriana_Long Covid Canada
7 months
@FriedmanJas And this is why medical people who doesn’t matter how many yrs they’ve been practicing, if they’re not fam w COVID they should NOT have an opinion about it. This is exactly why we are fighting tsunamis of misinformation, because “experts” are talking w-out reading the research.
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@longcovid_adri
Adriana_Long Covid Canada
6 months
CANADA! Help spread the word about this incredible event FULL of spectacular speakers! Share them with fellow patients, health care professionals, EVERYONE! #UniteToFight2024 @SimonDecary @StanKutcher @NS_Beachbum @Ninjazz636 @SusieChant_nvs @GovCanHealth
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@longcovid_adri
Adriana_Long Covid Canada
4 months
@ArlettePoolen Thank you so much! You may be right, these are highly contagious variants…it still feels like maybe he didn’t try enough. I don’t know, I just hate everything right now, I’ve worked SO hard to be at this point in my recovery, going backwards I don’t know I can bear.
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@longcovid_adri
Adriana_Long Covid Canada
2 months
@farid__jalali @Stanford This crap just gets increasingly more surreal and unbelievable at how senseless and ridiculous things are now. Common sense and logic are dead for most 🤦‍♀️ so frustrating. 🖤🤘
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@longcovid_adri
Adriana_Long Covid Canada
3 months
Day 4 since I tested positive, and I’m having symptoms I haven’t had in over a yr. This is horrible! Still doing everything in the toolbox to keep viral load down, and we’re both on Metformin too. THANK YOU to those who’ve been supportive!! I love you.🖤🤘 #LongCovid #Maskup
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@longcovid_adri
Adriana_Long Covid Canada
8 months
@drseanmullen I love how my neurologist said “Well, the good news is that there’s no SERIOUS brain damage so you should be fine…” after my MRI 🤦‍♀️ so there IS damage but we’re both even caring enough to tell me what? How does it affect me? What to do about it? Just ridiculous.
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@longcovid_adri
Adriana_Long Covid Canada
9 months
@Silas33 Pacing has really been the biggest help for my ME. It’s helped me go from 100% bedbound to maybe 50%. I can’t do much still, but whatever little I can do it’s stuff I couldn’t do before. I don’t have POTS but have dysautonomia and yeah, nothing for that. Ivabradine semi helps.
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@longcovid_adri
Adriana_Long Covid Canada
9 months
@Bhavik0880 @UNGeneva @mvankerkhove @WHO A good fitted N95 or better mask and invest in clean air for indoor spaces. You don’t need to stay home 24/7 just be smart with your precautions, mask, and individual HEPA air purifier and that alone will protect you pretty well. You can do your life as usual, it’s not hard!
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@longcovid_adri
Adriana_Long Covid Canada
10 months
@sunsopeningband Oh PLEASE make them understand!! They’ll believe a respected academic like yourself WAY more than a million patients put together with their tracked data of how PEM destroys us.
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@longcovid_adri
Adriana_Long Covid Canada
1 year
@LexsWorld @Vancity1999 You do realize that masks have been used in hospitals and medical settings for Several DECADES right!? My God people, you are seriously psychologically damaged🤦‍♀️🤦‍♀️🤦‍♀️
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@longcovid_adri
Adriana_Long Covid Canada
1 month
@CanCovSoc
Canadian Covid Society/Société canad. de la covid
2 months
Your Support Matters! It's been nearly six months since we launched the Canadian Covid Society in March, and we’ve made great progress in this short time.From hiring a coordinator and engaging teams of volunteers, to setting key priorities, we've laid the foundation for (1/13)
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@longcovid_adri
Adriana_Long Covid Canada
6 months
@unstopable_you @bhanlon15 WHAT!? With 50% of #pwLC who develop ME/CFS you absolutely MUST include it in the conversation, in the research in everything. It would be useless not to. If anything they need to increase the $$$, but at least we have to start somewhere. This is the ONLY way to help everyone.
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@longcovid_adri
Adriana_Long Covid Canada
3 months
@MeetJess As a former athlete I’ll agree w/her statement. We’re programmed to always push thru, keep going no matter what, and ESPECIALLY at the Olympics where it’s a dream come true, even more so. It’s EXACTLY what NOT to do w Covid, but lack of education brings us here. My 💔 for them.
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@longcovid_adri
Adriana_Long Covid Canada
6 months
@TheActualJasonM Can you take an individual portable HEPA with you? There are some pretty decent ones going for about $50🤷‍♀️. I am so sorry, I can completely understand your anxiety, maybe also bring a mask for the Dr and kindly ask him to wear one? Fantastic job @adriandix causing stress!
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@longcovid_adri
Adriana_Long Covid Canada
4 months
@CovidCanada1 Thank you, I’m still negative, so he’s isolating in the other room and will wear mask on common areas. I don’t want to take off my mask AT ALL, I don’t care if I don’t eat/water. He still has the nerve to tell me he been masking even more and being careful. I just don’t believe.
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@longcovid_adri
Adriana_Long Covid Canada
1 year
@LasagneWest @healingfromlc You are being rude by gaslighting and downplaying a serious and very hurtful situation. Your comment is not appropriate nor welcome.
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@longcovid_adri
Adriana_Long Covid Canada
5 months
@U2Fight_World PLEASE KEEP RESTING! We’re still here with you guys, we’re not going anywhere. We all know what a crash is, and for the amount of work you did is expected you need to let your bodies, brains and everything rest and heal a little. Please be gentle with yourselves. Healing hugs🖤🤘
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@longcovid_adri
Adriana_Long Covid Canada
8 months
Rocking my terrorist look to go get blood work done. At least it’s a bit of a relief I’m not the only one masked, there’s a couple of people with baggies blue, but it’s something? #represent #MaskUp #LongCovid #CovidIsNotOver 🖤🤘
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@longcovid_adri
Adriana_Long Covid Canada
9 months
@CaseyFlux @dysclinic @NatureComms SO incredibly tough. Thru logging I’ve found my energy envelope, it’s SO limited it’s insane. I can only do the basics for myself, but no house chores, barely ANY cooking, showering AND washing my hair is a treat. No wonder muscles and everything go down, in order to avoid PEM.
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@longcovid_adri
Adriana_Long Covid Canada
1 year
@lilsistweets @AlisaValdesRod1 @ChristelJGW @lizditz Of course, why would there be any different? Covid hits w/out discrimination of age, and health status. It’s a Russian roulette to develop #LongCovid which increases w/ each infection. But the vascular damage and damage to the brain/heart etc after each infection has been proven
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@longcovid_adri
Adriana_Long Covid Canada
7 months
@LCawarenessInt
International Long Covid Awareness
7 months
International Long Covid Awareness actions and ways for you to get involved! #LongCovidAwarenessDay Friday, March 15th, 2024 #LongCovid groups/orgs/individuals hosting events/actions-- Please add your plan for the day & be sure to share this thread. THANK YOU!
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@longcovid_adri
Adriana_Long Covid Canada
1 year
I got our new masks! And I LOVE the packaging! Thanks @canadastrong !
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@longcovid_adri
Adriana_Long Covid Canada
8 months
@alexandrite113 @Yes_IhaveME I know, I had so many issues w my mom up until recently. Still, some people just shouldn’t be parents, period. I’m sorry you’re experiencing this gaslighting from the one person who’s supposed to protect and care for you. My inbox is always open if you want to chat. 🖤🤘
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@longcovid_adri
Adriana_Long Covid Canada
5 months
@AnciraBecky Thank you🖤 I miss her so much already. It was heartbreaking, she felt like a burden to her family and had no friends left. She was in/out of the hospital constantly, but had the best attitude always. She truly was a warrior. It’s so unfair. #FuckCovid #MaskUp #CovidIsNotOver
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@longcovid_adri
Adriana_Long Covid Canada
4 months
@BobundDaisy Thanks so much! masks are not perfect, but I feel like he may have losen his precautions a bit. I don’t know, I’m really confused/angry. I’m 100% housebound due to my condition other than medical appmts. I was a sitting duck trusting he would keep us safe. You’re right though.
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@longcovid_adri
Adriana_Long Covid Canada
6 months
@K_Bishof All these people mocking you without realizing the millions there are suffering of #LongCovid who have never been vaccinated lol 🤦‍♀️🤦‍♀️🤦‍♀️ ridiculous.
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@longcovid_adri
Adriana_Long Covid Canada
1 year
@Rockawaytheday @dockevinmcleod Why? Because COVID now triggers people?? Other than that, there’s NO controversy, if you’re sick, you don’t spread it, period. ESPECIALLY if it’s Covid, that’s not up for discussion.
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@longcovid_adri
Adriana_Long Covid Canada
2 months
People in #Vancouver should attend this!! Support Covid-safe events especially those that raise education and awareness.🖤🤘 #CleanAirNow #CleanAirFestival #CovidIsIAirborne #CovidIsNotOver #LongCovid
@DoNoHarmBC
DoNoHarm BC
2 months
Exciting news: we're joining forces with a huge coalition of community organizations to present Vancouver's second annual #CleanAirFestival : an immuno-inclusive hybrid event that celebrates clean air and community care 💕
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@longcovid_adri
Adriana_Long Covid Canada
1 year
@healingfromlc As a former intl. competitive swimmer I’m constantly AMAZED at the BS that comes out of so-called “Drs” mouths. Really makes u wonder what on earth are they on to make such claims. What’s worse, these are the ppl we go to for advice, and those who don’t know will actually listen.
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@longcovid_adri
Adriana_Long Covid Canada
6 months
@NorthIslandCHC Thank you so much for doing the right thing!!! You are a clear example for everyone to follow. 🖤🤘
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@longcovid_adri
Adriana_Long Covid Canada
4 months
@KSchnickelfritz Definitely angry at PH and the government for lack of proper public education on the hazard of this virus and preventative measures. I’ve been fighting and advocating for the past 3.5yrs.
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@longcovid_adri
Adriana_Long Covid Canada
1 year
@LasagneWest @healingfromlc Truthfully that means nothing. It’s not “a handful” of people. It’s over 100M in the world rn. There’s SEVERAL studies showing the internal damage a single Covid infection can do, even if you don’t develop #LongCovid , let alone 3.
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@longcovid_adri
Adriana_Long Covid Canada
1 month
@seekthesun @PutrinoLab @ClareWilsonMed 100%. I used to be an international lvl comp swimmer, extremely healthy & active also a BEAST at my job, lived my life to the fullest. It took ONE infection almost 4yrs ago, been completely disabled with a list of damage ever since. I’ve always said it’s hell inside a nightmare.
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@longcovid_adri
Adriana_Long Covid Canada
9 months
@CochraneCanada Please add Long Covid Canada as collaborator. We don’t have Twitter account, but we have worked on this project as well.
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@longcovid_adri
Adriana_Long Covid Canada
2 months
@MeetJess I was very surprised to see him the Medley relay Final this morning. He lost steam on the last 50 and that never happens to him. My heart aches for the consequences of pushing that hard while still so fresh w COVID, this is what increases chances of bad PEM later on too💔💔
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@longcovid_adri
Adriana_Long Covid Canada
9 months
My hair was mid-back long, washing it took literally all my energy for that day. My scalp’s always in pain from having a bun all the time. So I chopped it all off (well, my partner had fun w that lol) this will be quite the energy saver. What things have you done to save energy?
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@longcovid_adri
Adriana_Long Covid Canada
8 months
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@longcovid_adri
Adriana_Long Covid Canada
1 year
@LexsWorld Not wasting my little energy on you, no matter what scientific data anyone shows you, your pride and denial will win. I’ll be seeing you in the #LongCovid hell when you join the club. Enjoy your health while you have it.
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@longcovid_adri
Adriana_Long Covid Canada
9 months
@Amal4Solutions This is what baffles me! Masks have been around for DECADES, always seen as a protective tool, not a violation to freedom and “human rights” 🤦‍♀️🤦‍♀️ I really do not understand medical professionals suddenly not WANTING to wear masks because of fucking stupid tantrums!
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@longcovid_adri
Adriana_Long Covid Canada
8 months
@jackwhitehall @NetflixUK I was having a shitty day and your special had me laughing to the point my lungs hurt. This is your best one yet for sure, THANK YOU!! You rule!! Congrats on mini human coming, can’t wait for the stories. Cheers sir🍺🖤🤘
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@longcovid_adri
Adriana_Long Covid Canada
11 months
@loscharlos Until we see trials for #Longcovid that considers PEM into their results, I fear that a lot research will be useless, since over 50% of Long Haulers suffer from it and it’s one of the worst things to suffer from.
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@longcovid_adri
Adriana_Long Covid Canada
9 months
@beansprouts_mom This makes me beyond angry because she knows EXACTLY what she’s doing with all that ambiguous word diarrhea, because people don’t want to think, all they see is “ aahh that makes sense…no test = no masks = pretend we’re still normal - hurray!” When they have ZERO clue.
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@longcovid_adri
Adriana_Long Covid Canada
5 months
@EthanCh34267924 She had Covid 3yrs ago, left her with a number of lung/heart issues. She was often in/out of the hospital, with oxygen. This last time was in the hospital since April as her lungs were collapsing and was told she didn’t have much to live. She was a warrior and fought to the end.
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@longcovid_adri
Adriana_Long Covid Canada
2 months
@CovidSolidarit1 I just want to give up and leave this shitshow of a planet. I’ve worked very hard to try to raise awareness and each day is harder and harder. Plus enduring the hell of #LongCovid . Ready to check out and go💔🥺
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@longcovid_adri
Adriana_Long Covid Canada
4 months
@beansprouts_mom I have a small HEPA in my room, I got Vicks defence nose spray and mouthwash with CPC. I’ll be spraying Lysol when I go to the bathroom as he takes off his mask there to blow his nose, brush teeth, etc.
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@longcovid_adri
Adriana_Long Covid Canada
2 months
@EmJayNabuurs I am so sorry, that’s awful! I’d add an anti-histamine as there’s research that shows it helps lower the viral load, & saline nasal rinses on too of the Betadine. I used the NeilMed nasal rinses did them a few times a day. Of course REST and good food. Sending good vibes! 🖤🤘
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@longcovid_adri
Adriana_Long Covid Canada
9 months
@dysclinic @NatureComms I’m not bedbound or immobile, but I can’t be outside much less drive or be in a car due to neurological issues. I try to move around at home but I can’t do much, and I’d be lucky if I hit 1-1.5K steps on a good day…
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@longcovid_adri
Adriana_Long Covid Canada
6 months
@keetmuise I’m so tired of everyone pretending like nothing is going on, especially the authorities keeping their mouth shut watching people drop like flies. They are dead inside. It’s absurd we cannot trust not only authorities but most experts anymore, and people are blinded by denial.
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@longcovid_adri
Adriana_Long Covid Canada
1 year
@KeithQiColey @KashPrime 🤦‍♀️🤦‍♀️🤦‍♀️🤦‍♀️🤦‍♀️
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@longcovid_adri
Adriana_Long Covid Canada
8 months
@jvmlost @arianek @Protect_BC @DrFiliatrault @drDavidKeegan @jvipondmd @keetmuise @BarryHunt008 @DoNoHarmBC @frozen @markroseman @amandalhu @littleann4ever @Mark_Ungrin @suerobinsyvr @bad_batch_rex @BCampbellDuke @nicktsergas @jheighton3 That’s insane, I am so sorry. We want to start by looking at ALL the policies they have in place for airborne pathogens especially of this level (which they have a few) and are choosing to actively ignore. Also, like others have said, have them mention in writing the lack of
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@longcovid_adri
Adriana_Long Covid Canada
9 months
@luckytran I know people who keep saying “it’s mild” and yet they keep getting super sick at least once a month, and still can’t connect the dots🤦‍♀️🤦‍♀️
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@longcovid_adri
Adriana_Long Covid Canada
1 year
@JasonM98282978 Señorita Miau sends your little guy all the best healing vibes🥰🥰 get better soon Beamer!
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@longcovid_adri
Adriana_Long Covid Canada
7 months
@Earl_R_Robinson @drseanmullen Avoiding the actual Covid virus is priority #1 since that’s the cause of all this mayhem, and each reinfection makes things worse. Vaccine or not, if you’re infected by the virus, especially multiple times, you’ll see the same fate as the tens of millions of us, guaranteed.
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@longcovid_adri
Adriana_Long Covid Canada
7 months
In bed with my floofs🥰🥰 señorita Miau and my two boys. Look at them! How can you not smile with such adorable little souls, full of light and love? I love them with all my being. 🖤🤘
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@longcovid_adri
Adriana_Long Covid Canada
1 year
@SabineG04696236 Thank you, that’s true. I guess what I meant to say was that I’ve found many patients trying medications to target fatigue and a lot of the symptoms that get worse as a result of living outside of their EE, which wouldn’t work well if they keep crashing. I’ll modify that, thanks!
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@longcovid_adri
Adriana_Long Covid Canada
4 months
@useless_priest @LauraLeslieF1 I used to go to SO MANY shows, festivals, etc. and now I don’t think I’ll ever be able to go to one ever again. That’s soul crushing.
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@longcovid_adri
Adriana_Long Covid Canada
3 months
AMAZING!!
@SenSanders
Bernie Sanders
3 months
For too long, millions of Americans suffering from long COVID have had their symptoms dismissed or ignored – by the medical community, by the media, and by Congress. Unacceptable. Congress must act now. Yes. It is time for a Long Covid Moonshot.
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@longcovid_adri
Adriana_Long Covid Canada
9 months
@alexandrite113 Oh wow!!! This is what I absolutely HATE about this condition, the unpredictability of everything. We are in total darkness on how our bodies will react to previously normal things because it’s all out of whack. I am so sorry to hear this! 🖤🤘
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@longcovid_adri
Adriana_Long Covid Canada
1 year
@amymitchellart That’s horrible, I’m sorry! Can you get it even w/out insurance? At least get Metformin as well, it should help.
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@longcovid_adri
Adriana_Long Covid Canada
1 year
@LasagneWest @healingfromlc 🤦‍♀️🤦‍♀️ shut up.
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@longcovid_adri
Adriana_Long Covid Canada
1 year
@GhostOfSocrates @lithohedron @PennyDaflos @Northern_Health @CTVVancouver And this is EXACTLY why we’re in the chaos we’re in. Her and all other gov/health officials have been picking and choosing what and how to say it, full of contradictions, w/out educating people on the REAL dangers. No wonder no one believes anymore, but it’s ridiculous!!!
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@longcovid_adri
Adriana_Long Covid Canada
8 months
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@longcovid_adri
Adriana_Long Covid Canada
1 year
@SarahOC_MECFS I thought it was just me, because I drink A LOT of water. So I stopped drinking water after 7pm and I STILL get up a couple of times during the night. Nice to know it’s part of the #LongCovid care package😩😞
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@longcovid_adri
Adriana_Long Covid Canada
1 year
@simmian42 @loscharlos @PlanetEarth_HD I got sick in Dec2020 my dr told me that if anything to go to the ER. She didn’t know anything about Covid and didn’t want to know anything about it. She later told me I had anxiety& heartburn when my HR would shoot to 200 for no reason and having mini hrt attacks from low O2.
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@longcovid_adri
Adriana_Long Covid Canada
10 months
@sunsopeningband 1000% ! But apparently millions of us just suddenly decided to all go crazy paranoid hyper negative with our lives, drop everything and live off of handouts because that’s what’s “In” LOL Sadly, unless it comes from all experts mouth, we the patients will continue to be lost.
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@longcovid_adri
Adriana_Long Covid Canada
10 months
@sthar93 @TheActualJasonM Novavax unfortunately was JUST approved in Canada, but we don’t know yet when it will be available 😓😓 it sucks because I’ve been holding off getting my booster waiting for Novavax to get here.
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@longcovid_adri
Adriana_Long Covid Canada
3 months
@NietzscheKant2 @elisaperego78 The pool depth thing is true, and that particular pool is not known to be as fast as others (I raced there a couple of times and my times weren’t what I expected). BUT Covid absolutely 100% has way more impact and has a lot more weight for the poor performances of the swimmers.
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@longcovid_adri
Adriana_Long Covid Canada
5 months
@surf4children My deepest condolences to you, his family and friends. This illness is living hell inside a nightmare. Thank you & all the researchers around the world working tirelessly trying to help us & understand that give us hope to hang on. @PutrinoLab @RobWust @sunsopeningband etc 🖤🤘
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@longcovid_adri
Adriana_Long Covid Canada
7 months
@TheActualJasonM @randsco Terrifying to think they are even considering to replace Dr. Tam with her to run Canada’s health care. We would be completely doomed.
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@longcovid_adri
Adriana_Long Covid Canada
2 months
I had a chat w Dr Okonula, she is FANTASTIC and this website is an incredible resource for patients and clinicians alike. Not limited to Canada, and clinicians can get credits for their license while learning science-based reliable information about our hell. CHECK IT OUT!🖤🤘
@longcovidanswer
@longcovidtheanswers
3 months
Discover the inspiration for   Reliable > Evidence-based > Credible information Thank you for being part of our vision to create a free resource to help understand and treat Long COVID. #longcovid #longhaulers #credible #clinician #longhauler
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@longcovid_adri
Adriana_Long Covid Canada
1 year
@I_need_a_razor I am 100% sure many more than we think are suffering from #LongCovid and don’t know it. Either because of lack of awareness, or don’t believe it exists, or feel embarrassed to admit it. I know a few ppl who’ve gotten VERY sick and are convinced it’s something else still pushing.
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@longcovid_adri
Adriana_Long Covid Canada
9 months
@Alina_MSN_RN On phone calls I also verbalize when I am feeling confused and need this to be explained again, or if I forgot something and I describe how I’m feeling at the moment. I make sure to mention how much help I needed to complete the forms and how long it took me.
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@longcovid_adri
Adriana_Long Covid Canada
8 months
@drkamikaze @arianek @Protect_BC @DrFiliatrault @drDavidKeegan @jvipondmd @keetmuise @BarryHunt008 @DoNoHarmBC @frozen @markroseman @amandalhu @littleann4ever @Mark_Ungrin @suerobinsyvr @bad_batch_rex @BCampbellDuke @nicktsergas @jheighton3 Thank you so much!! Will definitely do!! A claim has just been sent to NL by a team member, we are just starting to work on the other provinces, at least BC and ON to start. Can you please PM me to remind me when we start putting things together to poke you? THANK YOU!
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@longcovid_adri
Adriana_Long Covid Canada
6 months
@adriandix at lower levels!? You ARE aware that BC has the highest #’s of COVID infections according to waste water data, promoting COVID protection on vaccinations is 100% irresponsible & useless since we know transmission still happens. The virus is AIRBORNE. #Maskup #CleanAir
@adriandix
Adrian Dix
6 months
While the peak of the respiratory illness season has passed, the SARS CoV-2 virus continues to circulate at lower levels. As the protection from infection that COVID-19 vaccines provide decreases over time, it’s a good idea to get your spring booster #BC .
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@longcovid_adri
Adriana_Long Covid Canada
4 months
@b_steve36b Thank you, yes, I’ll try not to blame him, I know how contagious these variants are for sure. It just hit me hard. I appreciate the ivermectin suggestion but I won’t take that, too much bad data and negative anecdotes..hopefully I can get Paxlovid and Metformin from my Dr.
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@longcovid_adri
Adriana_Long Covid Canada
4 months
THANK YOU @PutrinoLab for this interview and such valuable information as always!! Even though I am not a fan of Chris Cuomo, this is a must watch. #LongCovid #MaskUp #CovidIsNotOver #COVIDisAirborne 🖤🤘
@ChrisCuomo
Christopher C. Cuomo
4 months
What’s behind the post covid sickness surge? The vaccine? Immunity suppression? Long Covid? The answer is there is not one answer. It’s complicated and we have to keep the conversation going. Dr. David Putrino, Dir. of Rehabilitation Innovation of Mt Sinai Health System joins me
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@longcovid_adri
Adriana_Long Covid Canada
7 months
I had the honour of sharing my story with this wonderful host. Please follow and support this patient-led initiative to bring awareness to wide spectrum of ppl suffering of this hell that is #LongCovid . #LongCovidAwareness #MaskUp #WeNeedAnswers
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@longcovid_adri
Adriana_Long Covid Canada
5 months
@janeinvll @U2Fight_World It truly is incredible what they have achieved. I really hope that this now historic event not only keeps going as a place for our whole community to be represented, but keep this huge momentum created to keep going and fight united, TOGETHER we are STRONG! THANK YOU guys!
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@longcovid_adri
Adriana_Long Covid Canada
3 months
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@longcovid_adri
Adriana_Long Covid Canada
1 year
WHY would I or the millions in my condition FAKE this? WHY would we let go such a fulfilling life where we were working HARD on our goals/ dreams? I will never understand what society has turned into. I just try to help all of those in the same hell as I am. We only have e/other.
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@longcovid_adri
Adriana_Long Covid Canada
5 months
@poetricus2 Lo siento mucho!! Si pueden hacer gargaras con enjuague bucal que tenga CPC como Crest total care 3-4 veces al dia, usen Enovid o Betadine cold spray nasal 2-3 veces al dia, ayudara a reducir el viral load. Y MUCHO descanso, fisico y cognitivo!
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@longcovid_adri
Adriana_Long Covid Canada
7 months
@alexandrite113 @onionstalk As a precaution, I would clean it thoroughly with peroxide to disinfect anything that may be there, but otherwise, I think you should be ok. ☺️
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@longcovid_adri
Adriana_Long Covid Canada
3 months
@JesusIs91940818 Literally what happened to a former colleague of mine. One very close friend of his called me in absolute secrecy to ask me if I thought (because I know the research data) it was related to his 3rd infection. When I sd yes, she cried and said “I knew it, don’t tell anyone!” 😓
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@longcovid_adri
Adriana_Long Covid Canada
7 months
@chelseacuzzocr4 Right? I watch episodes of shows and when someone got sick (cold or whatever) and everyone got worried, took precautions and care of themselves. And I think… wtf happened to those times!? It’s absolutely insane!
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@longcovid_adri
Adriana_Long Covid Canada
1 year
@peaksandwaves00 @Dakota_150 I feel your pain. I was a competitive swimmer since I was 7 until I got sick 32mo ago… open water swimmer too. It was my therapy, my drug my everything and every day I’m devastated thinking I may never swim again😭 I truly wish you are able to get back to it.
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@longcovid_adri
Adriana_Long Covid Canada
4 months
@jvipondmd
𝙹𝚘𝚎 𝚅𝚒𝚙𝚘𝚗𝚍 [email protected]
4 months
Hey all! Time for a quick @CanCovSoc Canadian Covid Society update. Specifically: introducing our new website! And boy is it beautiful, and getting to be the resource we are striving for! 1/
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@longcovid_adri
Adriana_Long Covid Canada
1 year
@GeoEduOne I was a high level competitive swimmer up until I got sick. I know when I’m deconditioned…I mean, yes, there’s no doubt I’m completely deconditioned now, but that is NOT the problem. I know my body and there’s 10001 things fucked up that’s never happened before. INCLUDING not
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