Billy Hanlon
@bhanlon15
Followers
13K
Following
219K
Media
6K
Statuses
197K
ME/CFS | Long COVID
Minneapolis, MN
Joined November 2018
University of Chicago: “A new type of vaccine developed by researchers at the Univ. of Chicago Pritzker School of Molecular Engineering (PME) has shown it can completely reverse autoimmune diseases—all without shutting down the rest of the immune system’.
214
2K
6K
Nat Geo: "Long COVID can destroy your ability to exercise. Now we know why.". "As a new study shows, the answer lies in some long COVID sufferers’ muscle damage and their bodies’ ability to make energy.". By the brilliant @rachel_fairbank .
36
1K
4K
Mother Jones: 'Rep. Ilhan Omar to Introduce Major Long Covid Bill'. 'On Friday, MN Rep. Ilhan Omar (D-Minn.) will introduce a potentially groundbreaking piece of federal legislation in the House — one allocating $10 billion in funding to fight Long Covid'.
36
714
3K
Science Alert: “We May Have Found a Target For Treating The Fatigue of Long COVID”. “Of long COVID's numerous symptoms, an intolerance to exertion could be considered one of the more debilitating”.
34
756
3K
KXAN: 'UT-Austin researchers say they found an antibody that protects against all COVID-19 variants'. 'The team of researchers were able to ” isolated a broadly neutralizing plasma antibody, called SC27, from a single patient,” the university said.'.
23
552
3K
TIME: 'Did the Pandemic Break Our Brains?'. 'COVID-19 has been linked to serious cognitive problems, including dementia and suicidal thinking. And brain fog, a common symptom of Long COVID, can be so profound that people are unable to live the lives. '.
94
839
3K
Glam: 'Violet Affleck Is Growing Up Fast'. 'To confront the long Covid crisis, I demand mask availability, air filtration and far-UVC lights in government facilities, including jails and detention centers, and mask mandates in county medical facilities'.
18
394
3K
"Long COVID stemmed from mild cases of COVID-19 in most people, according to a new multicountry study". "We found that a staggering 90% of people living with long COVID initially experienced only mild illness with COVID-19.".
56
1K
2K
Forbes: 'Denial: The Hidden Link Connecting Mpox, COVID-19, HIV/AIDS'. 'Throughout modern medical history, Americans have underestimated or dismissed emerging health threats until the consequences became impossible to ignore'.
28
743
2K
Psychology Today: 'Long COVID Looks Like Acute Infection in the Brain'. 'A research team from Rutgers has isolated the molecular makeup of the immune system’s response to Long COVID in the brain by extensively testing cerebral spinal fluid (CSF).'.
31
955
2K
National Geographic: "Now we know how COVID attacks your arteries". 'Even patients with mild COVID symptoms could face a higher risk of developing heart disease and stroke'.
55
867
2K
Bloomberg: “Yes, Everyone Really Is Sick a Lot More Often After Covid”. “The state of constant illness already is taking a toll on businesses and the economy”.
35
711
2K
"In Cleveland and beyond researchers begin to unravel the mystery of long COVID-19". McComsey, who has spent the last two decades studying HIV, said that the data they have found so far paints a picture that is eerily familiar. ". it’s like a déjà vu".
31
627
2K
Science Alert: 'We Just Got More Evidence That Long COVID Is a Brain Injury'. 'The exact nature of long COVID is still coming to light, but we just got some of the best evidence yet that this debilitating condition stems from a brain injury.'.
21
624
2K
The Sick Times: “As a doctor, I’m disappointed in my colleagues for ignoring Long COVID. I made a resource to educate them and the public”. “Long COVID has emerged from the pandemic as the single biggest disaster to afflict humanity. ”.
26
559
2K
“Epidemiological evidence that Alzheimer's and Parkinson's could be caused by viral infections”
28
454
2K
The Hill: 'The medical gaslighting of long COVID patients could be nearing its end'. 'As Sen. Ed Markey (D-Mass.) put it, “It is unacceptable to require people to fight their chronic illness and a health care system that doesn’t recognize it.”.
26
359
2K
Axios: 'The cure for long COVID may come from Ohio State'. 'Ohio State researchers are working toward a cure for long COVID, supported by the school's largest grant ever received for an infectious diseases study'.
22
291
1K
'Scientists Just Discovered a Possible Cause of Long COVID'. 'Researchers at the University of Manchester believe that they have found the cause of the mysterious phenomenon of ‘long COVID,’ special immune cells called monocytes'.
54
406
1K
Yale News: "Study helps explain post-COVID exercise intolerance". "Exercise intolerance is one symptom associated with long COVID. A new study helps explain its cause.". 'The study was published Dec. 15 in the journal ERJ Open Research'.
44
432
1K
The Times: 'Long Covid nearly broke me.'. 'Dr Ben Sinclair. became so ill after contracting coronavirus he could barely move or talk. Now he has opened pioneering clinics fighting a disease that afflicts more than two million people in the UK'.
26
340
1K
“Study of 500,000 Medical Records Links Viruses to Alzheimer's Again And Again”
19
456
1K
VICE: 'If You’ve Had COVID-19, Chronic Fatigue Syndrome Could Be Next'. A new study by researcher Suzanne Vernon from the Bateman Home Center has discovered some new information indicating that SARS-CoV-2 infections may be contributing to a rise of ME/CFS.
13
419
1K
ABC Net News: "Long COVID will take your health, your wealth — then it will come for your marriage". '. I'd rather have died than get long COVID," says Sarah, who caught the virus from her husband in May 2022.".
131
418
1K
National Geographic: "Why does COVID-19 cause brain fog? Scientists may finally have an answer.". 'Nearly 40 percent of long COVID patients suffer from the disorienting condition. Destroyed connections between brain cells may be to blame'.
45
490
1K
“Why Experts Say You Shouldn’t Run With COVID-19”. ‘While it’s often fine to exercise with a cold, experts say you should avoid intense activity when it comes to the coronavirus.’.
26
429
1K
Scientific American: "How Risky Are Repeat COVID Infections? What We Know So Far". “Every time you get infected [with COVID], it does harm to the body in some way" - Avindra Nath, NIH neurologist who has led research on long COVID & postviral conditions.
16
570
1K
'Study finds that a 100-year-old treatment inhibits COVID-19 infection'. The team found that suramin, a 100-year-old drug still used for human sleeping sickness that has many other potential applications, inhibits the infection of SARS-CoV-2.
40
307
1K
News Medical: "Study identifies mitochondrial dysfunction as cause of long-COVID fatigue". 'This discovery means we can now start to research an appropriate treatment for those with long-COVID," adds van Vugt'.
73
288
1K
NPR: "Long COVID research goes private". 'Advocates say the federal government is no longer viewing long COVID with the urgency it deserves. Private donors are now funding research bringing an unprecedented level of collaboration'.
13
366
1K
"New study suggests people who tested negative for Covid-19 can still develop long Covid". ". some of these people went on to develop post-viral syndrome symptoms that were consistent with those of Covid-19 long haulers, said Koralnik. '".
75
352
1K
The Mirror: ''Silent' organ damage found in more than half of long Covid patients, warns new study'. 'A recent study has found that organ damage persists in long Covid patients, even in those initially not severely affected, raising serious concerns. '.
25
488
1K
"Peter Hotez on new COVID XBB1.5 variant: 'People are saying this will be mild. It's not mild'. "There’s long COVID, which can occur after any COVID infection, even mild or asymptomatic COVID. There will be generations dealing with long COVID. The impact.
24
438
1K
HealthCentral: “It’s Official: Long COVID is a Chronic Disease” . Dr. Al-Aly: “We really have to do more because people are hurting. They want answers yesterday! We have to get to the bottom of this.” .
6
453
1K
In May '23, MN became the first state in the US to pass dedicated funding for Long COVID & related conditions (ME & POTS), w/Gov. Walz instrumental in this legislation. 'Gov. Walz budget proposal seeks $6.3M for emerging long COVID crisis' [March '23]..
The Hill: “Harris picks Walz for VP”. “Vice President Harris has chosen Minnesota Gov. Tim Walz (D) to be her running mate as she heads toward a November faceoff against Donald Trump. ”.
11
319
1K
Chicago Business: 'Long COVID's brain fog doesn't lift for years'. 'Neurological symptoms can linger even two or three years following a COVID-19 infection for more than 60% of those who contract the disease. '.
32
470
1K
'Researchers find long COVID is more than respiratory disease'. “A lot of patients are actually having strokes and we found that people are having brain inflammation," Al-Aly said'.
39
426
1K
'Long Covid impacts cognitive performance'. 'A long-term study finds the possibility that the effects of COVID-induced cognitive decline are permanent'.
34
481
1K
IFL Science: 'Long COVID Fatigue May Be Down To A Protein That We Could Target With Drugs'. 'A protein released when there’s inflammation in the brain could be behind the severe muscle fatigue in people with long COVID. potential target for new treatments'.
19
320
1K
'Long Covid, the cause of ‘brain fog’ discovered: less blood in the brain'.
38
366
1K
"Testing for long COVID: Eye exam as a new approach". "Blood vessels in the eye could offer a clue to the condition of small blood vessels in the whole body," Schmaderer says.
14
401
1K
Sen. Sanders: "We have a full house here today. There is a sense that something is going on that we are not addressing. We hear what you are experiencing, we take it seriously, we think as a Congress we have not done nearly enough to help turn that around.". #HELPLongCovid
15
231
1K
HuffPost: 'Solange Says She’s Living With This ‘Debilitating’ Condition — And Diagnoses Are Rising'. 'Researchers and medical experts are also currently researching the links between COVID-19, long COVID and POTS'.
4
308
1K
Was informed by my Senator’s staff today (@SenTinaSmith) that Congress has called for a HELP Committee hearing next week (Full Committee) to address Long COVID. They also noted to me that patient advocacy has been vital in raising the issue to them. 🗣️
70
282
1K
Boulder Weekly: 'Staying alive: Meet Colorado’s COVID-cautious community'. “Masking is a workers rights issue,” Dreamer said. “So many workers are getting long COVID — they lose basically everything.”.
15
296
1K
MSN: "Doctors fear new Covid strain could trigger 'heart failure pandemic' across the globe". 'Scientists from Japan's top research institute, Riken, have issued a new report.'.
250
403
1K
Kaiser Permanente: 'COVID may trigger chronic fatigue syndrome'. “Our results offer a snapshot in time, and find that in 2022, 14% of people who had ME/CFS-like illness developed it after COVID,” said senior author Jacek Skarbinski, MD.
24
330
1K
'Infected Immune Cells In Brain Could Be Causing Long COVID Symptoms'. 'Scientists may have finally found an explanation for what has been causing neurological symptoms in long COVID patients'.
20
422
1K
Ireland Live: 'Information about long Covid was deliberately suppressed, probe hears'. The mother of a schoolgirl who is too ill to leave the house after developing long Covid has accused officials of deliberately withholding information about the illness.
16
449
1K
"Sophia Bush Thought She 'Was Going to Die' Due to Scary Long COVID Symptoms". 'This summer I had to leave a job for the first time in my entire life because my post-viral syndrome was so bad that I thought I was going to die. '.
44
281
999
CIDRAP: 'Study puts understanding of long COVID and vaccination into question'. 'A new study from researchers at the Mayo Clinic suggests that being vaccinated against COVID-19 does little to prevent long COVID'.
63
277
1K
“Long Covid teachers join forces to sue ministers”. ‘Scores of teachers with “catastrophic” long Covid plan to launch a group legal challenge against the government. ’.
16
358
988
WTVR: 'This Virginia father with Long COVID has cardiovascular capacity of 94-year-old, study shows'. 'My body just slowly shut down. I got so weak that I could barely walk from by bed to the bathroom'. 'we need treatment. millions of people suffering'.
11
365
988
Salon: Can nasal Neosporin fight COVID? Surprising new research suggests it works. A potential treatment for COVID-19 may have been hiding in our medicine cabinets, a new study in PNAS has found.
29
226
990
"Sudden cardiac deaths could be tied to long Covid, say doctors".
21
306
942
Vaccine against Epstein-Barr virus may enter clinical trial next year. German startup plans to test EBV-001 in preventing mononucleosis, MS risk factor.
12
191
934
Science Alert: 'Long COVID Seems to Be a Brain Injury, Scientists Discover'. "This suggests the possibility of ongoing inflammation and injury inside the brain itself which may not be detected by blood tests for inflammation.".
33
368
945
WRIC: 'Arthritis drugs may relieve long COVID symptoms'. 'New research done led by Jie Sun, PhD (UVA) & his colleagues shows that a class of drugs used to treat rheumatoid arthritis — including baricitinib — might be able to halt the chronic inflammation'.
8
277
967
TIME: 'Long COVID Looks Different in Kids'. 'Intense fatigue, crashes after mental or physical effort, brain fog, shortness of breath or coughing that won’t go away, and the loss of smell or taste are some of Long COVID’s hallmarks.'.
24
418
944
Medical News Bulletin: 'Prevalence of long COVID rises to nearly 7% of population'. '. the number of Americans laid low with long COVID could rise to 40 million in the coming years'.
15
426
943
KFOR: “Study finds Oklahoma leads the nation in long Covid”. ‘According to the study, 34% of adults in Oklahoma are suffering from long Covid‘.
60
354
942
STAT: '‘Visionary’ study finds inflammation, evidence of Covid virus years after infection'. 'In people with long Covid symptoms, like brain fog and fatigue, the study found the gut wall and spinal cord lit up. '. “The data are striking" - Akiko Iwasaki.
13
460
935
Spectrum News: 'Risk of brain, gut and lung issues remains elevated three years after COVID-19 infection, study says'. '. researchers looked at 135,161 U.S. veterans who had been infected with COVID-19. '.
10
415
944
Earth: "Cause of fatigue in long Covid patients has finally been revealed". 'The experts have identified a biological cause for this debilitating symptom: reduced energy production by mitochondria in muscle cells.'.
81
257
907
Ron Davis today at the Santa Clara County ME hearing: “. we think this disease is initiated when you initiate innate immunity…you can turn it back off by JAK-STAT Inhibitor…we have seen 1 patient in Australia who took it. within 3 days of taking the drug was completely cured. ”
Tuning in to Santa Clara County's hearing on ME/CFS & Long COVID. Panelists include: Bela Chheda, John Chia, Melanie Hoppers (Bateman Horne Center), Supriya Narasimhana (SCVMC), Angela Suarez, MD, Medical Director of Primary Care at Santa Clara Valley Medical Center
49
251
947
"Akiko Iwasaki and the fight against COVID". 'How a leading Yale immunologist reworked her entire lab at the beginning of the pandemic--and became one of the most prolific and visible COVID researchers'. "The problem with ME/CFS was you couldn’t.
5
231
914
Dr. Nancy Klimas: “I mean the Long COVID people - we're only a couple years into this and the science is staggering. What we've learned in Long COVID - it's just extraordinary, that's because I’m gonna say it again - advocates went to Congress and said this 17 million people.
11
195
922
"Chronic fatigue syndrome linked to lower levels of some gut bacteria". "People with chronic fatigue syndrome have less of a kind of gut bacteria that produces inflammation-fighting molecules, suggesting a possible target for new treatments".
24
188
934
"Turning back the clock on brains aged by COVID-19". 'University of Queensland researchers have found a way to reverse a cellular process triggered by COVID-19 that contributes to premature ageing of the brain'.
17
229
920
"Research review suggests long COVID may last indefinitely for some people and mimic other ailments". "They also found that in many cases, the symptoms of long COVID become nearly indistinguishable from several other conditions, such as chronic.
9
327
914
Forbes: 'InnovationRx: COVID May Be Causing Mental Illness—And Rewiring Our Brains'. New findings in JAMA Psychiatry find that levels of mental illness such as depression, anxiety and self-harm are elevated after a COVID-19 diagnosis.
17
398
899
'14-year-old Kent boy left bedridden from Long Covid told to 'stop making it up' by doctors'. '. they were saying it was all in my head and to stop making it up.".
26
274
884
'I went from squatting 350 pounds to completely paralyzed at 26 in a matter of weeks. Doctors told me it was a herniated disk, but it was Guillain-Barré'. 'Hively said he developed Guillain-Barré weeks after testing positive for COVID-19'.
40
231
865
Newsday: 'An estimated 5.8 million children have had symptoms of long COVID, study shows'. 'The Columbia study indicates that fatigue and malaise are the most common manifestations of pediatric long COVID. '.
17
369
848
10/27/20, Science: 'Every minute counts.' This immunologist rapidly reshaped her lab to tackle COVID-19. Iwasaki's latest passion is long-haulers who can't shake symptoms like fatigue and brain fog. '"We really want to get to the bottom of what's going on".
9
166
871
Yahoo News NZ: 'Violet Affleck calls for action on long COVID'. 'Jennifer Garner and Ben Affleck's teenage daughter Violet has made a passionate plea for long COVID to be taken seriously.'.
9
191
828
The Guardian: "Long Covid is so debilitating that a study in the British Medical Journal (BMJ) this year found many who suffer it reported a lower quality of life than people with stage 4 lung cancer.".
16
354
804
The Mystery of Long COVID Is Just the Beginning. At Yale’s clinic, medical sleuth Lisa Sanders is trying almost everything. Long-COVID patients, generally speaking, have been very miserable for a very long time. they bounce from specialist to specialist.
38
271
821
'Working Sick: Americans With Long COVID Struggle to Make a Living'. 'Paid sick leave for COVID dwindles, impacting the most vulnerable employees'.
16
302
813
Ehlers-Danlos News: "Long COVID symptoms lead to hEDS diagnosis in small study". 'Virus may trigger immune response in patients with preexisting hypermobility'.
20
243
828
"Disabled people have been demanding remote work for decades. Here’s what happened when the pandemic made it possible". 'The benefits of remote work for people with disabilities bear particular relevance due to the impact of long COVID.'.
5
273
789
Salon: “Long COVID is a "public health crisis for kids," experts say”. “New research sheds light on the growing burden of pediatric long COVID while it continues to be ignored”.
17
419
811
King’s College of London: “Long COVID symptoms prevalent among healthcare workers”. New research has found that 33.6% of surveyed healthcare workers in England report symptoms consistent with post-COVID syndrome .
35
362
828
Scientific American: 'Long COVID Is Harming Too Many Kids'. 'Pediatric long COVID is more common than many thought, and we keep letting kids be reinfected with new variants'.
10
375
817
Northwestern: New research shows younger & middle-aged adults have worse long COVID symptoms than older adults. These findings have an immense public health impact, given that long COVID significantly contributes to the leading global burden of disability.
14
325
869
"“Long COVID” Caused by Hidden Viral Reservoirs". “The persistence of high numbers of virus-specific T cells in individuals with long COVID suggests that there may be hidden viral reservoirs that are maintaining and leading to long-term symptoms".
28
268
783
'Going long: Viruses linger with lasting impact'. 'Herpes, HIV, Epstein-Barr and other viruses hang around, causing potential long-term health woes. Should ‘long COVID’ surprise us?'.
11
230
782
"He’d finished a PhD. Then long COVID hit and he couldn’t make dinner". 'An academic, suddenly struggling to prepare a simple meal. A once-athletic teen, crippled by fatigue. A half-marathon hopeful, now relying on a wheelchair. More than three years.
12
262
780
'New COVID variant causes allergy-like symptoms'. Doctors here in New York City and around the world are looking into the new Omicron subvariant, Arcturus, that's spreading fast.
15
339
769
"Does Long COVID Lead to Alzheimer’s? A New Study Took an Unexpected Turn". 'A study into whether long COVID patients were more prone to Alzheimer's instead opened the door to new treatments for long COVID itself'.
13
239
775
New Scientist: "Chronic fatigue syndrome could be quickly diagnosed via a blood test". “It is vital to get biomarkers for ME, so Ponting’s major study is extremely important,” says Douglas Kell at the University of Liverpool in the UK.
7
182
789
University of Cambridge: 'Low iron levels resulting from infection could be key trigger of long COVID'. 'if this goes on for a long time, there is less iron for red blood cells, so oxygen is transported less efficiently affecting metabolism and energy. '.
42
227
787
Elmo I ain’t gonna lie, we need funding for Long COVID & infectious-associated diseases like ME/CFS asap.
Elmo is just checking in! How is everybody doing?.
9
97
750
LA Times: 'Positive test not needed for long COVID diagnosis, experts conclude' . 'People do not need to have tested positive for the coronavirus to be considered for a diagnosis of long COVID, a new report from NASEM concludes'.
8
253
764
'WHO: 36 million Europeans have developed Long Covid'. Hans Henri P. Kluge, director of the WHO European Region, underlining how hard it will be for these citizens to return to normal life. “They suffer in silence – he specified – left behind. ".
22
388
741
New Atlas: "Exercise makes long COVID worse, and researchers may now know why". “Impaired pEO2 can be attributable to failure of non-exercising vascular beds. or capillary-to-mitochondrial diffusion inadequacy,” the authors speculate in the study.
23
281
759
“Danish study finds sharp rise in extended sick leave after COVID infection”. As part of an effort to better flesh out the burden of long COVID, Danish researchers reported a threefold increase in extended sick leave, defined as lasting longer than 30 days.
16
262
718
Opinion: Study shows ‘long COVID’ likely to cause mass misery if treatments can’t be developed. The findings strongly suggest that barring the emergence of new treatments for long COVID, it will be a daunting health threat going forward to many Americans.
29
265
742
"Long COVID breakthrough: Taurine levels may play a key role". 'Experts at the University of Alberta have discovered that taurine may hold the key to predicting and possibly treating long COVID. The research offers new insights into the biological basis. '.
31
187
740
“How a neuroscientist solved the mystery of his own long COVID”. “More tests revealed the identity of the antibody causing Jeff’s symptoms: an antibody that binds to neurofascin 155…”.
16
222
815