ArianeK 💜 #Care4Complex (she/her)
@arianek
Followers
4K
Following
105K
Statuses
54K
Co-founder @Textillia! ✂️💕 • SFU Geog • Public health/urban planning/web nerd • #NeuroSjogrens • #Dysautonomia #Care4ComplexCanada ♿️🌈🇦🇲🦆🐶📚🖖💌🌿
East Van (Vancouver, Canada)
Joined August 2012
I don’t know where to begin to explain where I’ve been for the last year + a half. I’ve been approved for #MAID after a nightmare of medical malpractice/negligence + severe medication/iatrogenic injuries. I don’t want to die, but can’t live like this or get adequate medical care.
114
313
1K
RT @DrAndrewGWood: To my psych colleagues - pls be mindful. The BioPsychoSocial model has a horrendous reputation in the chronically ill…
0
81
0
RT @DaniAtomicus: All this "it's not about disability/why do those people make everything about COVID" is so reminiscent of furious everyda…
0
50
0
🔥🔥🔥
🔥😡 I am literally pulling my hair out today and angry!! I only saw 3 patients in clinic (snow today) ... BUT... here is its PM and still doing a ridiculous amount of paperwork, most of it preauth denials! I have NEVER seen so many problems, difficulties, ridiculous amount of work, denials than I have seen than the last few months. the one I am working on now is asking for a ridiculous amount of stupid information ... you should trust the docs!!!! @AnthemBCBS ... have your CEO read this!! I really hate to even mention this, BUT... I can totally see why an angry patient would take things in their own hands and do an unlawful act against an insurance company. They are putting lives at risk and making patients suffer. ( I was told by someone I should remove this sentence ... but relooking at it, it is true... these are millions of patients' lives and qualities of life that are being impacted by this problem. To be clear, I do NOT condone any violence whatsoever) So sad... though I am angry and tired and frustrated, it is the patient who is truly affected @CareFirst @MedicareGov @UHC @BCBSAssociation @Cigna But... the military... @TRICARE ... I love you. As a veteran, I am proud of how well you take care of patients. We rarely have a problem with you. The other insurance companies should take lessons from you
0
0
0
RT @NeurologistMom: COVID-related conditions should be integrated into medical education rather than being left to so-called ‘Long COVID cl…
0
24
0
Lol not me getting absolutely shat on, on an NDP MP’s Insta post, when I criticise the Canadian medical system and its failing complex pts. Grown ass men basically telling me to FOAD if the medical care here isn’t good enough for me. What the hell has happened to “leftists”??? 🫠
0
0
3
@chriswillmorris @tink_ina It came on slowly post viral from a childhood illness, and was worsened by various other viruses, etc. over decades until I was finally so severely ill I was diagnosed and put on IVIG. (Things have gone sideways since then so I'm not well, but it took 30 years to be diagnosed.)
0
0
0
@SurvivingCFS Except dirt smell is almost always mold, so y’all are probably being exposed to mold too (not a surprise I’m sure), making more people have respiratory and skin issues. It’s so messed up how unhealthy an environment it is there, for people who are already medically vulnerable.
1
0
16
Maybe if I had an end date in sight where I would be finally taken seriously and treated with some humanity. But forever? I cannot and will not keep doing this. This is no way to exist, it’s not a life.
0
0
2
@AshleyBillam @ThePOTSPostman The fact that virtually no ME patients are able to get access to interventions like IVIG or Plex early enough in the disease process to see if it helps, really makes it impossible to know for sure.
0
0
0
RT @alexandrite113: If you can’t stand the stigma of wearing a mask, I’ve got something to tell you about the stigma that comes with using…
0
8
0