Neurologist Mom
@NeurologistMom
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A neurologist, M.D. a mother of a 15-year-old girl with severe neuroCOVID/ME/CFS who has been managing her daughter's treatment at home since October2022
Redmond, WA
Joined March 2023
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I have devoted my entire life and career to advocating on behalf of Alzheimer's patients, their families, and their caregivers. I've managed treatment plans for thousands of patients and conducted hundreds of social initiatives. Now I am the mother of a 14-year-old with
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- My daughter learned how to read at 2 years old.
- At 6, she was accepted into a prestigious conservatory for piano as the most talented applicant.
- She played complex pieces by Chopin, Liszt, Mozart, Rachmaninoff, and others with ease from a young age.
- When they tested her,
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It's been a while since I've been active here. I recently traveled to Turkey to obtain a list of medicines for my daughter, as per the prescribed regimen that I and some colleagues arranged. I took all the necessary precautions, including using nasal protective spray. I was
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I came to the Starbucks drive-thru as I always do every morning. Since November 2022, I have been coming here because my daughter cannot tolerate the scent of coffee at home. The girl at the store, who sees me daily, asked how I was doing and noticed that I looked very tired. It
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We have a neurologist (me), a neuroradiologist, an interventional radiologist, and an emergency radiologist (my husband, who has 3 specialties) at home, yet we still can't manage the symptoms of a child with
#longcovid
#longcovidkids
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Today is
#LongCovidAwareness
Day. As a mom of a 15-year-old with severe ME/CFS type Long COVID, and as both physician parents, we’ve diligently pursued every possible treatment option in this overlooked and uncharted territory, where no approved medication is available.
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"Can you see it now?" This is a very striking illustration of how
#mecfs
#neurocovid
#longcovid
patients feel every second of their lives. Reward comes of being gaslighted by the others, including their own families.
Watch the video in fullscreen.
Video credit: Trugrace Artistry
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Are you teasing us? I have a bedbound child with severe long COVID. As physician parents with a vast network of colleagues worldwide working on my child's case, we still haven't found anything to alleviate her suffering. And you claim that you can solve the problem with those
My prescription for Long COVID:
1) AM Sunlight (outside)
2) Hearty Breakfast (fiber for gut microbiome)
3) Medium Lunch
4) Skip dinner (nothing except water after 5:30PM)
5) 7 hours of sleep
6) Hydrotherapy (hot/cold for interferon)
See
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I cannot express my sadness when I read tweets about how parents ignore their children's misery in
#longcovid
. I organize my entire schedule around my daughter, who is still my little girl even at 15. I personally prepare every meal for her, bathe and comb her hair daily, and
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Happy Mother's Day to all the mothers who have to witness the pain in their child's eyes as a result of a preventable disease, and who also work tirelessly to protect their children from being gaslighted by others. Happy Mother's Day to everyone who possesses a heart with the
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Dr. Avindra Nath, a neuroimmunologist who has long studied postviral neurological syndromes at the NIH, and a few others summarize what we "know" about the long covid and brain in the last issue of Scientific American.
#longcovid
#LongCovidKids
#MECFS
1/2
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Neurologist here: These are clear epileptic seizures triggered by reduced blood volume because you forced a patient with neurovascular irregularities due to her dysautonomia to sit! We need help to
#SaveAllegra
. She is at
@RUMCSI
in NY. Please share this message
#MECFS
i was gonna wait until after breakfast to post these but since its hard to breathe and my bp is undetectable this morning i present!
chair, a memoir of GET from two days ago:
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“Why can't we use encephalomyelitis? That means inflammation of the brain and spinal cord. When will we be able to use the name ME instead of ME/CFS and get rid of CFS? That's my main comment." Dr. Maureen Hanson, from today’s NIH meeting
#MECFS
#longcovid
#longcovidkids
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Please be careful when considering any actions based on the findings of this study. SSRIs significantly worsened my daughter's symptoms. While it is possible that serotonin levels are reduced in long COVID patients, there may be other factors that we have overlooked. SSRIs would
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Due to my role as the primary caregiver for my 15-year-old child, who has been bedridden and in constant pain since contracting a mild case of COVID from Lake Washington School District, I've been unable to compose a detailed letter to our senate. It would mean a lot to have our
Long COVID doesn’t get nearly enough attention — it’s upended lives and the health of millions.
These advocates have been pushing hard for more action and I’m looking forward to a productive hearing.
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"This is a curse where you can neither die nor live," said by a 15-year-old girl. Imagine if she were your child. but you can all breathe a sigh of relief because it’s mine, not yours. If you keep ignoring them, this curse will be upon you all. Save our children!
#LongCovidKids
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During my neurology residency, we often encountered patients with cases so complex that they were beyond our immediate understanding. We admitted these patients for research, conducting every possible test and consulting with specialists to find answers. We had weekly meetings in
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“ME/CFS patients are similar to a critically ill patient 24 hours before they die, except they live like that for years and years.” Dr. Ron Davis, Stanford University
#MECFS
#mecfsawarenessmonth
#longcovid
#longcovidkids
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I have seen criticism about
#MECFS
#LongCovid
patients making their condition their identity. I'm curious what these critics think having ME/CFS involves—do they see it as some kind of hobby?
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There shouldn’t be any hypocrisy in practicing medicine. I, myself, am a neurologist who has been studying dementia patients for over two decades. Dementia diagnoses mostly rely on clinical assessments rather than biomarkers. No one has questioned my diagnoses of Alzheimer’s. Why
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They did this to my daughter, even though I am a neurologist well-versed in treating epileptic seizures! I ordered a mobile EEG, showed them all the spikes (epileptic activities), and they had to prescribe antiepileptics. None of them worked on her, and they were proven right
theyre claiming that my convulsions or whatever they are are psychological and only happen “when im asked something i dont like” because they keep happening in front of them…?
so because i have them in front of them they’re psychological, and when i have them when they’re not
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Here's a little excerpt from my daughter's talk yesterday:
"I'm just a teenager. I was supposed to be doing silly teenager stuff, not enduring suffering that most people can't even fathom in their lifetimes. Life expects too much from me. They say suffering brings maturity, but
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Why! Can't! I! Find! Anything! To! Solve! My! Child's! Suffering!? It! Kills! Me!
#LongCovidKids
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When HHV6 was detected in my daughter's CSF, although I had doubts, I chose to believe my "colleagues" who claimed it only has significance for immunocompromised individuals. They attempted various antiepileptic medications to control her focal seizures. Since they were
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Potential causes of Long COVID Symptoms
- Viral Persistence
- Immune dysregulation
- Ongoing activation/inflammation
- Autoimmune mechanisms
- Reactivation of latent viruses (e.g., EBV)
- Microclots leading to endothelial damage
- Dysfunctional Neurologic Signaling:
-
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@ErinAPN1
We face similar issues during hospital visits. My daughter is in constant, unbearable pain, suffers from severe GI issues and POTS, and is entirely bedridden. The last time we were there, a nurse casually asked about her school, which made her burst into tears; she's unable to
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Dear World,
As a mother of a child with covid-induced severe
#mecfs
#longcovid
, you're failing us. Feeling this deeply on
#mothersday
and
#WorldMEday
is extremely disappointing. Over the past 1.5 years, since my daughter caught this preventable yet extremely debilitating
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I would love for you
@Starbucks
to know this story and extend my gratitude to baristas like her as well
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@AlissaMitche11
Good luck with that! They will never change, even after you've practiced for over 20 years. I know this from firsthand experience. 🤣
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“A Potential Mechanism Underlying ME/CFS Development, Aggravation and Comorbidities. Mast cells, present in nearly all human tissues, and eosinophils, found in the gastrointestinal tract, secondary lymphoid tissues, adipose tissue, thymus, mammary gland, and uterus, are
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Woman, 30, Dies After Blood Clot Symptoms Were Dismissed Twice as 'Long COVID and Anxiety' via
@people
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Why do ME/CFS patients feel better when they are re-infected with another virus?
“That’s interferon, that’s your natural interferon driving the hell out of every virus in your system including the one you’re trying to get rid of at the time. That’s pretty exciting. And it would
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Dr. Hanson
@DrMaureenHanson
made a really important point at today's
@NIH_NINDS
meeting that needs to be considered for further studies: We use certain drugs for T-cell exhaustion in cancer patients; why don't we study them for
#MECFS
and
#LongCOVID
patients who we know also
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I feel ashamed of being human, let alone a physician, when I see what’s happening to
#ME
patients in hospitals. Please, we need to do something. While efforts are organized for people in England, this is America. She lives in New York. We should organize better here in America.
some people have said since my weight loss has been mentioned a fair few to post some evidence so i present:
my current weight. hope it comes across well?
ive been inpatient 3 times now post weight loss —
not one gastro has taken any interest.
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I don't know if any of you use soundproof blankets for the walls/windows, but I just bought some. My daughter's sleep schedule is all messed up; she sleeps during the day. And since our neighbors are very fond of landscaping, the noise was all in her room. It worked.
#MECFS
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Remember that just two months after my daughter fell ill, one of the pulmonologists, seeing her unable to sit upright in bed, said, "Come on! I see young girls like you every day. You're in a great room! You have nothing to do but enjoy walking around your room!
#LongCovidKids
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STOP showing the long COVID kids who miss a few days of school.
SHOW the ones who can't walk, can't eat, can't tolerate light/sound, and never get a break from their unbearable pain. Show those kids whose situations are way worse than cancer kids!
#LongCovidKids
This reporting on only the very mild Long Covid cases needs to stop.
STOP showing the people who can still work and get dressed and sit up and talk easily for half an hour.
START showing the sufferers who have severe PEM, who use commodes, who need eyemasks & earplugs
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@ParentMishmash
I caught it on the flight. I was the only one who wore a mask. The two around me were coughing. But they seemed “fine” outside!
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My Notes from Dr. Ronald W. Davis's Insightful Discourse on ME/CFS at NDUCI 2023
Is ME/CFS Curable?
- A number of patients report a spontaneous cure
- Block the production of interferon alpha (Filgotinib)
- There are a number of JAK-STAT signaling pathway inhibitors that could
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I'm curious about how many moms of long COVID children are being treated as if they have Munchausen syndrome by proxy in hospitals. I've heard some stories about it, and it really breaks my heart for them :(
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What is PEM and What is NOT PEM?
***From today's presentation by
@LBatemanMD
PEM is:
✔️PEM is a distinctive exacerbation of the patient’s symptoms and a further reduction in functioning after physical, cognitive, orthostatic, emotional, or sensory stress.
✔️PEM is diagnostic in
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This is not seizure-like; it’s an actual seizure! Clonic activity is clear, marking a neurological emergency. Simple, basic interventions can suppress this activity, which every neurologist is trained for. Where is your neurologist?
@WestMidHospital
You’re committing a crime!
We need to share this as widely as possible
#SaveCarlasLife
Carla has now been having seizure-like events for over FIVE DAYS yet
@WestMidHospital
has STILL not sent a neurologist to see her, as of 10am today. She had NEVER had them before being admitted there
#ExposeMENow
WATCH
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Senator Marshall
@RogerMarshallMD
, I finally managed to listen to
@BernieSanders
the long COVID hearing , a rare moment away from caring 24/7 for my 15-year-old daughter, now bedridden and in constant pain for over a year since contracting mild COVID at school. I deeply wished
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Tough night with severe abdominal cramps again, as with every other night. The pain never ever leaves her alone! Just a very small bite of anything triggers this. It's always pain, always suffering. As a mom, it's heartbreaking to hear your 15-year-old say, 'How can you call this
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This is my daughter’s backpack, untouched since the last day she could attend school on Oct31,2022 as if she will return at any moment. This is the last thing a mother wants to feel on
#MothersDay
which coincidentally falls on the same day as World
#MEAwarenessDay
#LongCovidKids
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@AnciraBecky
You are so sweet, and you are a great mom, Becky🥹 Being your child's only support sometimes hurts. But I know we're not alone; at least we have each other🙏🏻
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This is just one example of how I manage her diet despite her stomach issues according to her disrupted sleep schedule:
- 11:00 PM: She wakes up.
- 11:30 PM: Apple juice (made from six apples and a bit of water, blended in a Vitamix and filtered through cheesecloth) - 310
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“ME/CFS patients feel effectively the same every day as an AIDS patient feels two months before death; the only difference is that the symptoms can go on for never-ending decades.”
Prof. Mark Loveless, Head of the AIDS and ME/CFS Clinic at Oregon Health Sciences
#MECFS
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OK, I started reading this recent review about PASC/Long Covid. I stopped when I saw a diagram labeling insomnia, fatigue, muscle weakness, and OCD as psychosomatic symptoms, even though they clearly have neuropathological mechanisms behind them.
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Key takeaways from Dr. Akiko Iwasaki's
@VirusesImmunity
comprehensive analysis of her research on Long COVID
1-Patient Reported Outcomes alone are sufficient to identify long COVID patients with 94% accuracy.
2-Immunophenotyping reveals increases in exhausted T cells,
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If this doesn't provide you with any perspective on what ME/CFS patients endure, to the point where they consider euthanasia despite once being full of life, then there is little hope for your sense of humanity… Rest in peace, Lauren; we will never forget about you🙏🏻
#MECFS
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My approach to my daughter's insomnia includes:
✔️ Never making her anxious about it. I reassure her that it's totally okay to just listen to her body, reminding her that I am always with her, right next to her.
✔️ Arranging her nutrition plan around her sleep cycle. I feed her
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I'm amazed to see people attempting to teach a seasoned neurologist about epileptic seizures while I'm advocating for someone in desperate need of support. Sorry for the block; I'm avoiding unnecessary noise to focus on essential advocacy.
#MECFS
#SaveAllegra
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WARNING AND OUR EXPERIENCE WITH VAGUS STIMULATION DEVICE (tVNS):
I have been seeing some posts in the
#longcovid
and
#mecfs
community discussing and willing to try one of these devices. We purchased one (just the device was €4000, with all equipment it was €5000. I know there
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Gastrointestinal symptoms, which can be the most debilitating aspect of Long Covid, are understudied and have led to patients needing gastrojejunostomy. I believe there is a way to prevent this. Ultimately, they cannot tolerate solid foods, and commercial nutrition shakes cause
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Fiqah died from long COVID today😔Long COVID KILLS. And yet, we have plenty of children suffering from long COVID too.
#longcovid
#longcovidkids
I'm going to say, again, that when long COVID effects kill me - sooner than later - I need y'all to recognize and say LOUDLY what it was.
Long COVID is keeping my blood pressure at 230/128, in spite of taking an elaborate cocktail of meds.
Long COVID is shredding my kidneys.
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"Considering the small sample size of the study, characterizing fatigue—one of the most debilitating symptoms of ME/CFS—as an alteration in 'effort preferences' instead of attributing it to physical damage or central fatigue, as one of the key conclusions without sufficient
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“I diagnose
#POTS
every emergency shift, a condition that I didn’t know existed before two years ago.”
#longCOVID
I diagnose
#POTS
every emergency shift, a condition that I didn’t know existed before two years ago.
MDs/PAs/NPs: do orthostatic HR for everyone with unexplained tachycardia.
#POTS
#LongCOVID
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Have you tried this? Have you considered it? Yes, certainly. We, as both M.D.s and parents, have exhausted every possible treatment option available worldwide that you can or cannot think of. None has worked so far Because There! Is! No! Treatment! Available! For! Kids!
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Prevalence of Symptoms in Pediatric Long COVID Cases
Heart palpitations 40.2%
Coughing 29.6%
Rash 52.4%
Red cracked lips 39.4%
Peeling skin on hands and feet 28%
Stomach pain 75.9%
Nausea 45.7%
Diarrhea and vomiting 42.4%
Red eyes 40.4%
Sore throat 45.1%
Swollen neck glands 25.1%
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@Carolyn40911932
@snoozeq1
Yes, she did as a 9-year-old child. However, there is no need to worry because she is currently bedridden and unable to do such things anymore.
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@dbdugger
@CounsellingSam
No, I haven't yet. Due to the possibility of adverse effects, I am implementing my regimen with extreme caution. However, I read the literature and intend to attempt the ones that have the potential to help her.
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For the sake of the children who are suffering from long COVID, please donate 10 minutes of your time to watch this video🙏🏻 My daughter is one of them, with a case more severe than those depicted in the video.
#LongCovidKids
NEW VIDEO:
I put together this compilation of children telling us what long covid is doing to them.
Many children are being unnecessarily disabled and brain damaged. Clean air and respirators are needed in schools URGENTLY.
#CDCkills
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It concerns me when research focuses more on identifying who is prone to long COVID rather than investing in finding a cure for current patients.
#LongCovid
#LongCovidKids
#MECFS
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A word of caution regarding LDN: While it helps many, it led to extreme distress and suic…. thoughts in my daughter. We slowly titrated from 0.05 to 0.3, but these issues resolved two days after stopping the medication. Sharing this because I haven't seen it widely discussed. If
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My daughter recently befriended someone from the Netherlands online. This friend, who's 14, has been exhibiting long COVID symptoms for almost two months. Initially, her doctor labeled it as “stomach flu.” She's been unable to attend school for one and a half months and is due to
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There are children who are bedridden and suffer all the time for over a year, like mine, because of long COVID. She had to leave all her dreams but just praying for one single moment without pain. Is it fair? We need immediate action/funds for research.
#LongCovidKids
There is a hidden public health crisis in America that we can no longer ignore. And that is the crisis of long COVID-19.
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Important notice on the so-called "Effort Preferences" in ME/CFS patients, as mentioned in the latest publication in Nature Communications: Because my scientific feedback on this paper was officially declined for publication in the Matters Arising section, I have placed it in the
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Allegra is still in the hospital. She needs a feeding tube but has been ignored. She has
#MECFS
and is currently at
@RUMCSI
. We need advocates in New York. Please support the hashtag
#SaveAllegra
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@SenSanders
Dear Senator
@SenSanders
I cannot thank you enough for bringing up this issue. As a mother bound to the bedside of my 15-year-old daughter, who has been severely bedridden since contracting COVID-19 at school in December 2022, I am writing from a place of profound personal
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Well, those are the ones you can interview with. There are ones completely bedbound, in unbearable pain 24/7, cannot tolerate even a bit of light and sound, cannot eat or drink. Examples? My daughter,
@ErinAPN1
‘s daughter, so on…
#LongCovidKids
#LongCovid
Good Morning America: '12-year-old boy describes 4-year battle with invisible disease of long COVID'
'Theo Huot de Saint-Albin was just 9 when he first contracted COVID-19 in 2020'
'Theo was also diagnosed with postural orthostatic tachycardia syndrome'
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Dr. Petersen, no family should endure what we have. I was a successful academic, my husband
@basarsarikayamd
equally busy, and our daughter a lively teen. We were happy. Now, I wish 'moving on' were as easy for her, bedbound and in constant pain This post is extremely insensitive
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The conclusion that 'The results suggest the impact of effort preference in ME/CFS patients,' based on a study with only 17 participants and centered around the hypothesis that the temporoparietal junction plays a role in coding mismatches, stands on very shaky ground. It is
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My daughter had a similar experience. The doctor who performed the procedure in the ICU said, "I have never seen plasma that dark and thick in all my years of practice."
"Your Blood is Black”: My ME/CFS Experience with HELP Apheresis in Germany"
“Your blood is black”, said the nurse. “And thick, very thick. We see this with all our Long Covid and ME patients, their blood is very dark and thick."
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I imagine if the same question were asked about a child with cancer, the public reaction would be overwhelming support for the family and the child. Where is our public support instead of being gaslit?
#LongCovidKids
@ZebraLoveCo
My daughter was asked to make a list of what things were good about being sick by a hospital psychologist. She was 13, and so confused. I had no idea - as I wasn’t present.
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@DesAMowadeng
@ValHopeHanna1
If you have unresolved issues with your mother, please work on them outside of my presence and that of my daughter. You have no right to speak on my daughter's behalf. You could have politely asked me if my daughter allowed me to be her advocate, and I would have responded, "Yes,
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Happy Mother’s Day to you too, who have had to witness their child suffer...
Have you ever pulled your child back from the brink of death and felt the same indescribable desperation each time, with the same intensity? I have.
Have you ever had to answer your child’s question,
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My sun is up now 🙏🏻. The same piano notes are always up; she never uses them. She effortlessly memorizes any piece, from Chopin to Rachmaninoff, astonishing her conservatory professors. Now, we're lucky if she plays for even 5 minutes. 😔
#LongCovidKids
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Please sign and share this petition to help us reach a wider audience. As a neurologist, I advocate for the reclassification of ME/CFS in medical textbooks from psychiatry to neurology. I'm confident that my psychiatrist friend
@maryaalexand1
will agree as well.
ME/CFS:
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This is how I spend my
#ValentinesDay
as a mom to a child with severe long COVID. After a sleepless night, now crocheting a Snoopy sweater to bring her a smile amidst suffering and sharing ME/CFS webinar insights with
@NIH_NINDS
@NIH
#ValentIllness
#LongCovidKids
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That type of news is harmful to patients. It appears as though every drug company is seeking to profit from the long COVID patient population.
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As a neurologist and dementia specialist who has devoted her life and work to Alzheimer's and other forms of dementia, I always feel elated to hear about new developments in this challenging field. My entire practice and social initiatives in this area were put on hold over a
Researchers have identified short strands of toxic RNAs that contribute to brain cell death and DNA damage and may play a role in Alzheimer’s disease, suggesting a possible target for new treatments for neurodegenerative diseases.
@NorthwesternU
#NIH
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I really appreciate this slide shown by
@MichaelPelusoMD
from their study published in Nature in 2023. It powerfully illustrates that long COVID could become the predominant health issue in the near future.
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My daughter's Achilles clonus is positive. I'm curious about yours. This is a neurological sign detectable through a neurological exam, indicating abnormalities, like MS, etc. Spoiler alert! It cannot be faked. In my next post, I'll explain how to check it.
Yes
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See results
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📌
#LongCovidKids
Study Announcement
Here is some information about the hypothesis behind the study led by
@LaelYonker
:
Zonulin is a protein that regulates intestinal permeability by controlling tight junctions in the intestines. When zonulin levels are higher than usual,
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There is a strange symptom, likely neurological, that my daughter describes. She says she feels every movement of her bowels as if they are swollen and intertwined. It’s a mix of a tickling sensation and pain, and she describes it as feeling her bowels the way she feels her legs
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I'm continually inspired by Dr. Ronald Davis's contributions to ME/CFS research. His approach is laser-focused on unraveling the mysteries of this disease and finding effective treatments. His latest study, published yesterday, offers groundbreaking insights. It reveals how
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Michael, an ME/CFS specialist (M.D., neurologist) with extensive clinical experience in Austria, shared his experiences with Amantadine: “The basic problem is that fatigue and PEM are not the same thing. That's why it would be important in such studies to know whether it was the
@ingomar_gutmann
@kahryn_hoffmann
@C_Scheibenbogen
Grundproblem ist halt, dass Fatigue und PEM nicht das gleiche sind. Darum wäre es bei solchen Studien wichtig zu wissen, ob es der ME/CFS-Typ war.
Gerade bei ME/CFS habe ich einige Pat gesehen, wo Amantadin versucht wurde, Erfolg hier anekdotisch gering.
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Patients with ME/CFS-severe post-acute sequelae of COVID-19 should exercise caution when taking certain medications frequently administered in ERs due to potential side effects. It is important to be aware of the following:
1. Metoclopramide (Reglan): This medication can trigger
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"We need to talk about longvax too. This has been seen a lot lately, unfortunately."
Susan Levine, M.D. 1st International Conference on Clinical and Scientific Advances in ME/CFS and Long COVID, April 3rd, 2024, Lisbon.
#longcovid
#longvax
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You will need more neurologists soon. Unfortunately, some of them have had to quit practicing despite decades of experience in the field because they have to take care of their kids with Long COVID!
#LongCovidAwarenesDay
#LongCovidKids
#CureLongCovid
Neurological conditions now leading cause of ill-health worldwide, finds study
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Mast Cell Cytokine Mediators
Mast cells produce inflammatory changes in connective tissues, affecting multiple organ systems:
a.) Localized to peripheral nerve epineurium, perineurium, and endoneurium, releasing mediators that may active nociceptive symptoms like peripheral
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"ME-like Long COVID should be considered COVID-related ME, but attribution to COVID important since infectious trigger is known"
*From Michael Peluso's speech at the NIH meeting yesterday.
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I am sick of seeing incompetent people who have no experience with epileptic patients throw around their precious ideas of what is and what is not a seizure. Epilepsy can manifest in any form; it might even present as amnesia. Tonic-clonic seizures are the type everyone knows,
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Dear
@DrTedros
, I understand you are incredibly busy, but there is an ongoing emergency that has yet to be addressed by
@WHO
. As a mother of a severely bedridden Long COVID child, who endures more suffering than many cancer patients, I am deeply concerned. She was once a bright
2024 will be a defining year for global health, and for
@WHO
. This year, the Member States are shaping:
- the world’s global health strategy for the next four years
- the future of health emergencies
- the future of WHO, through the Investment Round
As the Executive Board
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@AndrewG76201347
Yes, HHV-7 was positive in her cerebrospinal fluid, so I decided to add Valtrex to her regimen even though “her team” at the hospital didn’t agree with me.
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