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Amanda Crist
@ZebraLoveCo
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Following
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Writing about #hEDS š¦, #muscle, healthāļø, genetics, and how Iām trying to walk againš± #bedbound #homebound #calfproblems #zoology
Ohio, USA
Joined September 2023
@chydorina I feel like there's definitely not enough said about off target reactions of both medications and supplements
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@LepantoInst @LifeSite @JamesMartinSJ And I hope that would include the people that were so happy about it disappearingāthat they wouldn't just want USAID gone, but would want to fill the gap
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@LifeSite @LepantoInst @JamesMartinSJ So if Usaid is cut off to all orphans will you plan to help them? What are your plans.
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@adcock_brett As a disabled person I can't wait I just can't wait! It's going to change my life incredibly and give me the power I need to accomplish so many things I want to do
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@DeryaTR_ Thank you so much āI can't wait to have access to it āI might pay for it just to run everything through on my health and try to figure out more!
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@DeryaTR_ @dmh2_2021 Thank you so much for doing this āand I don't know if AI will pick this up but some of the most recent research showed KLK mutations in 1/3 of hEDS patients. They cannot get this seem to get this research published even though it's top notch so it's out as a pre-print
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@Omid_HopeUni Don't forget to look for genetic and auto immune problems and ME. These were left out of the equation for me for years by doctors. Sometimes also exercise is contraindicated in some of these diseases
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@DeryaTR_ We need something to draw all the threads together of these millions of processes going on in the human body. Something to pull research together in complex webs
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