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Amanda Crist Profile
Amanda Crist

@ZebraLoveCo

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702
Following
7K
Statuses
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Writing about #hEDS šŸ¦“, #muscle, healthā˜•ļø, genetics, and how Iā€™m trying to walk againšŸŒ± #bedbound #homebound #calfproblems #zoology

Ohio, USA
Joined September 2023
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@ZebraLoveCo
Amanda Crist
1 year
My best top 20 tips for walking again. I've done it twice and now a third. Shoesā€”make sure you can move your big toe up and press it down as this signals the entire walking chain up through the adductor magnus, pelvic floor, and then abdominals and glutes.
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@ZebraLoveCo
Amanda Crist
5 days
@rhirhiarhii šŸ˜¬
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@ZebraLoveCo
Amanda Crist
6 days
@resiapretorius Excellent this is really good news
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@ZebraLoveCo
Amanda Crist
7 days
@Naomi_D_Harvey Thank you so much I'm gonna start slow!
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@ZebraLoveCo
Amanda Crist
7 days
@kahlua057 Thank youšŸ’›
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@ZebraLoveCo
Amanda Crist
7 days
Not sure if this was the right decision as I never know how the recovery will be if at all. I was doing really well also and starting to walk a few steps again so this was a very hard decision to make.
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@ZebraLoveCo
Amanda Crist
8 days
@DeryaTR_ @ZetaLabsAI I could really use this!
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@ZebraLoveCo
Amanda Crist
8 days
@chydorina I feel like there's definitely not enough said about off target reactions of both medications and supplements
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@ZebraLoveCo
Amanda Crist
9 days
@LepantoInst @LifeSite @JamesMartinSJ And I hope that would include the people that were so happy about it disappearingā€”that they wouldn't just want USAID gone, but would want to fill the gap
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@ZebraLoveCo
Amanda Crist
9 days
@LepantoInst @LifeSite @JamesMartinSJ My vote would be to keep USAID and reform it if needed.
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@ZebraLoveCo
Amanda Crist
9 days
@LifeSite @LepantoInst @JamesMartinSJ So if Usaid is cut off to all orphans will you plan to help them? What are your plans.
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@ZebraLoveCo
Amanda Crist
9 days
Is anyone keeping physical copies of all the ME/CFS, EDS, etc. papers that have been put out? We are seeing the US pull papers on HIV already from the web. We need to have back ups
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@ZebraLoveCo
Amanda Crist
9 days
@adcock_brett As a disabled person I can't wait I just can't wait! It's going to change my life incredibly and give me the power I need to accomplish so many things I want to do
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@ZebraLoveCo
Amanda Crist
10 days
@DeryaTR_ Thank you so much ā€“I can't wait to have access to it ā€“I might pay for it just to run everything through on my health and try to figure out more!
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@ZebraLoveCo
Amanda Crist
10 days
@DeryaTR_ @dmh2_2021 Thank you so much for doing this ā€“and I don't know if AI will pick this up but some of the most recent research showed KLK mutations in 1/3 of hEDS patients. They cannot get this seem to get this research published even though it's top notch so it's out as a pre-print
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@ZebraLoveCo
Amanda Crist
11 days
@Omid_HopeUni Don't forget to look for genetic and auto immune problems and ME. These were left out of the equation for me for years by doctors. Sometimes also exercise is contraindicated in some of these diseases
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@ZebraLoveCo
Amanda Crist
12 days
@DeryaTR_ We need something to draw all the threads together of these millions of processes going on in the human body. Something to pull research together in complex webs
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