I am incredibly honored to have been invited to talk about #LongCovid and #Dysautonomia by the brilliant @EricTopol on his Ground Truths podcast. It's amazing to achieve this despite all of the obstacles in my life. 🙏🧠👩‍🔬 @Jacobs_Med_UB @AANmember @DrABrashear #BrainHealth

#POTS 🧠🫀

Absolutely, #FND is valid, real and disabling. I have patients with FND. The issue is that many patients with #Dysautonomia who do not satisfy the diagnostic criteria for FND get diagnosed with it anyway while their dysautonomia remains undiagnosed and untreated.

While working on a new paper, I've been re-reading old papers on #POTS: one is from Dr. Low et al of Mayo Clinic who was one of the first to describe it. Years later we have crazy debates on what POTS is, with one senior researcher recently saying in a meeting that "it's a controversial diagnosis" while some other physicians attempt to lump it with functional neurologic disorders. This paragraph should be re-read by all of us in this field to remind ourselves what POTS really is: a restricted form of autonomic #neuropathy in at least 50% of patients.

RT @evelio_prieto: 🟦🟦🟦NEUROINFLAMACIÓN EN EL BULBO RAQUÍDEO: POSIBLE CAUSA DEL SÍNDROME DE TAQUICARDIA POSTURAL ORTOSTÁTICA Y NEUROCOVID PE…

Right, but I am hoping we can change that eventually. :) The more we acknowledge that it's a dysfunction of the autonomic nervous system, the less doctors will think that one can restore the tolerance simply by drinking more fluids, eating more salt or exercising - while temporarily helpful, these are not solutions.

The problem with academic #medicine and #science is that many people don't want to admit that they were wrong so they keep the outdated notions and practices alive despite evidence to the contrary. The losers are the patients who are stuck in a system that refuses to change.

@nervensystemck It's interesting how you connect therapies to pathophysiology. By that line of thinking, if psychotherapy doesn't work, then it's not psychological. :) In my experience, psychotherapy almost never works for my patients. :)

Let's be honest: many things we thought we knew about the brain were wrong, like the blood-brain barrier that's supposed to protect the brain from toxins. Turns out, that's not the case at all, whether it's microplastics or spike protein from SARS-CoV-2 infection. #NeuroTwitter

RT @OligoclonalBand: Happy National Women Physicians Day! I'll be posting about important women from history and topics related to #BlackH…

@DeryaTR_ Yes, that's what I need. Is this OpenAI Deep Research free or worth paying for? My experience with ChatGPT was horrible: it hallucinated references that never existed. Good thing I checked them on PubMed before inserting them in my paper. :)

Haha here she is: Queen of Vagus! She has the nerve to control EVERYTHING. 🤣🧠💃

RT @NormaJones4370: @dysclinic My daughter is so glad that you don't do that as well! You have been very helpful with her pots and dysauton…

This happened to me during residency. I was on call at the hospital when a man coded. There was a sign on the door that he was TB positive so I masked. While I was doing CPR on him, my attending came in who happened to be a pulmonologist. He said the man was no longer positive for TB, his sputum cultures were negative, masks can be removed so I did... because I trusted my attending. The man did not survive. Months later I was working in a different hospital attending a citi-wide mortality and morbidity conference where an autopsy case was being presented: a man who died from disseminated TB that was found in every organ - same man I coded, without a mask! Fortunately, I did not convert to a positive TB test, but nevertheless....

RT @JRBneuropsiq: Cognitive disorders in patients with neuroimmunological disease 🧐 A new paper by @MiguelR17645049, @vaughanbell and myse…

There was a lot wrong with research, clinical trials and money allocation, but destroying the system is not the answer.

I am glad I DON'T do my appointments that way.