Tiri Hughes
@tizzie_claire_x
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Academic foundation doctor🧬🩺. Visually impaired wheelchair user👩🏻🦯🦽. @TrinityOxford, @GreenTempleton + @RNC_Hereford alumna. 🏳️🌈🌺🏴
Oxford, England
Joined September 2013
Incredibly proud of this!!! 🧬🩺
New research: The emergence of Fanconi anaemia type S: a phenotypic spectrum of biallelic BRCA1 mutations: BRCA1 is involved in the Fanconi anaemia (FA) pathway, which coordinates repair of DNA interstrand cross-links. FA is a rare genetic… #oncology
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@ProfMarkTaubert I would say 75% of the time I’m asked to do an MCA the request contains misunderstandings about its application - most commonly not understanding that it is decision- and time-specific. I.e not being able to ‘MCA in advance’
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RT @BarbaraRich_law: I’m ever more conscious of a culture divide in the assisted dying debate, between people without disabilities, used to…
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Stories like this demonstrate why assisted dying is unsafe for disabled people - including some of those with terminal conditions. If you can’t access basic care and AD is an alternative, how is that not coercion …
“I’m having to spend the last days of my life fighting for the right to live” Read Rosy's story If assisted suicide became UK law how many dying people would choose it because of the difficulty in accessing scarce NHS, social care & end of life support?
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RT @RachelCDailey: Tom Shakespeare saying most disabled people support assisted dying is rich when only one of the 350 DDPOs that oppose AD…
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RT @Lucy_Webster_: Mencap are brilliant but it's absolutely shameful that they're the only disability group invited to give evidence Whe…
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@stomababe Exactly! Had a patient today complaining (rightly) that they were supposed to be on soft and easy foods, and was given leafy greens, lots of meat and crispy wedges!
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RT @SaulStaniforth: "Why are we still, in 2025, having disabled people come on TV to justify wanting the same rights... disabled people are…
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And has failed to invite any of the 350+ disabled persons organisations (who all oppose) - despite that this will exclusively affect disabled people, by definition.
I’m still stunned that the committee for a Bill that quite literally rewrites the Suicide Act of 1961 voted against inviting the Royal College of Psychiatrists to give oral evidence 🤯
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RT @Medic11358726: So #AssistedDying gets funded 100% while palliative care and social care have to beg for basic support?
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RT @ddhitchens: Extraordinary opening to the assisted suicide committee, so testy that the chair had to intervene. Before the committee was…
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RT @Lucy_Webster_: Rage-inducing piece on the care crisis for young disabled adults "If you are not disabled and you regularly go to a yog…
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@AmyClukey @dowellml Obviously not for blind/visually impaired people. Screen reader/braille input devices/enlarged screens cannot be achieved without computer technology. No version on pen/paper. (Technically manual braillers exist but they are archaic - incredibly loud and no ability to edit).
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@juliaisobela So angry to hear this. I had a similar ish issue last year being rejected for disability-related pre-allocation, and really hoped some lessons had been learned…. Will keep fingers crossed things go right for you in the main pool 🤞
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RT @AmyFairbrother7: There is always a tweet. In 2017 they called disability cuts a human catastrophe and now in 2024 they want to cut disa…
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@iDrSunny @UMAPsUK @gmcuk @DHSCgovuk @NHSEngland @NHSE_WTE @AoMRC Shameful to see it co-opted as if discrimination is just a throwaway term to be used in argument, when there are those of us (doctors) constantly fighting against actual discrimination in medicine.
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Is it a universal FY1 experience (or at least for first gen doctors) to have to spend visits home explaining repeatedly to parents that yes, I’m a doctor working in a surgical department, but no I’m not *doing* the surgery
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@ProfMarkTaubert @DrNShastriHurst Very concerned that despite all disabled-led disability organisations being against, only a pro-AD disabled MP is included. Partly due to a lack of disabled MPs, but not entirely.
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@ProfMarkTaubert @bmj_latest Thank you for sharing, I’m just hoping to share a perspective that isn’t usually seen much from the doctor side of things.
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