It's publication day!
I'm so proud of this book. Everything I have and everything I've experienced as a disabled woman is in these pages
I hope you love her
I can't drink without plastic straws. For years I've bought clear ones online (look a bit nicer than kids' ones). Since the straw ban they've got more expensive and now they've disappeared
If your environmentalism only affects disabled people, it's not as progressive as you think
Next time a disabled person tries to talk to you about ableism, please remember that it's not just frustrating things like a lack of ramps. It's stuff like this, that hurts more than I can say
Disabled people look away now, the following tweet involves some really hurtful
#ableism
. Non-disabled people, I don't really want to share this here but I think you need to see it.
I just received this email from a 'professional' dating service. I have been crying for an hour. When I spoke to them on the phone they said that my disability was fine, but when I clarified that I was a wheelchair user, this:
It's been a month since I was turned down from a dating agency for being too disabled. I can't seem to stop thinking about it. I really don't want anyone's sympathy, I just wanted to say ableism has very real mental health consequences and it's exhausting
Fascinated by the people in the replies who think you can just "claim to be disabled" and get money. As if the real problem isn't that actually lots of people who are entitled to disability benefits aren't getting them because the process is so awful
Oh to be so naive
Just a reminder that today the UK govt is having to give evidence to the UN, having been found to be in violation of the UN convention on the rights of disabled people
No other economically developed nation has ever been found in breach of the convention
I did create that goofy Straw Chart so if you've seen my name around, it could be from my dope straw facts. Disability advocacy is so friggin important to me, and was never MORE important than when we hit a panorama.
But here! Have a freshie with no jpeg rot!
Also. I get that people are trying to help but it's kind of wild to think a disabled person in this position won't have thought about and tried alternatives
Once I'm in bed I can't get back into my wheelchair without help
I have a buzzer to let my (also asleep) PA know I need help (loo, a drink, etc) and always have my phone just in case
Tonight I dropped my phone, and then discovered the buzzer wasn't working
What would you do?
Hi
@Waterstones
- I've just noticed your disability section of your website comes under 'coping with personal problems' which is a bit icky. Disability is neither personal nor, indeed, a problem
Signed, a disabled gal who routinely gives you all their money
"Taking benefits from disabled people who can’t work is not really some misguided attempt to help us... it’s just another way to punish and demonise us, to push us further into poverty"
My response to the
#AutumnStatement
in today's
@guardianopinion
panel
Hi, if you are surprised about wheelchair inaccessibility at Cop, you have not been paying attention.
Access is bad everywhere, all the time. And no, it is not 'illegal'
@hippychicky55
These are similar to the ones I had been buying, which were also biodegradable but have disappeared. But £34 for 250 straws isn't really plausible!
It's publication day!
I'm so proud of this book. Everything I have and everything I've experienced as a disabled woman is in these pages
I hope you love her
@thisislaurent
Lauren didn't you know disabled people are only allowed to date each other??
Also not that there's anything wrong with that, disabled people are clearly superior, but smells like segregation to me
Just landed back in the UK to see Rishi is coming for the only benefit that makes this country liveable for millions of disabled people and I'm caught between thinking what the hell is the point and wanting to start a riot
Absolutely delighted to now be permanent staff at BBC News. Even happier to be staying with my ace team at BBC Politics. And super excited that I've been selected for the
@JSchofieldTrust
mentoring scheme! Bring on 2021 🎉🎉
if he calls the sodding election I hope we don't forget that the Tory DWP is now being investigated by the Equality and Human Rights Commission over its treatment of disabled people
Every MP at every hustings should be asked about it
.
@SW_Help
need to retrain your staff. Guard on the 22:41 from Twickenham to Waterloo last night was extremely rude re ramp
Said we'd held up the train and made his job harder by not booking. Talked over my PA as she explained legal right to Turn Up And Go and wouldn't talk to me
Why am I tweeting this? I don't know. I think these realities of disability - a 29 year old woman sat on the floor in the dark, shouting for help - are hidden. We experience these things and then we move on. We trust that the buzzer will work tomorrow. But the stress accumulates
For Christ's sake
@BBCNews
at Ten, I can't believe you just described a disabled woman as "having special needs" and disabled people as "people with special needs". The woman's mother used "learning disabled" - why can't you listen to that?
While it's true that you should never assume a disabled person's needs, the government's new
#AskDontAssume
campaign is completely misguided
Disabled people already face intrusive questioning ('what's wrong with you?' etc). Encouraging this is just opening the ableism floodgates
Hey disabled pals! I'm writing another piece about language and disability. So...
Tell me your most hated phrases! C'mon, do your worst
#DisabilityTwitter
#journorequest
when I tell people that the Tories are letting disabled people die, they look at me like I've lost the plot
just going to show them this front page from now on
honestly not sure how much more I can argue for my community's right to be alive
I’ve reported on a lot of terrible Tory ‘welfare reforms’ over the years but withholding sick people’s medicines to force them to get a job is genuinely a new low.
Somewhat unbelievably, an extract of my book is in tomorrow's Sunday Times News Review
It's about the ableist bullying I endured at school and what it did to me
I'm very nervous sharing this - it still really affects me - but also quite proud
Green Park station will have no step-free access to the Piccadilly line for over 6 months while the lift is replaced.
GP is one of the very few accessible interchanges in central, making it indispensable for disabled people.
Effectively this means 6 months of no Tube travel.
Your annual
#InternationalWheelchairDay
reminder that wheelchairs are great
They're freedom and fun and power and life. Keep ya pity in ya pants
I bloody love mine
Update: my fab BBC colleague Katie Wright asked
@Aquum
for a response and they have offered an apology and are going to retrain their third-party staff
Luckily I have a pretty good set of lungs on me and after what I think was about ten minutes of yelling my PA heard me
I'm safe and back in bed but honestly pretty shaken
I have a lot of anxiety/literal nightmares about these exact scenarios so this is really hard to process
Absolutely can't-keep-the-smile-off-my-face delighted to say that I am officially moving to
@BBCPolitics
online full-time from January. This is a dream come true and I can't believe my own luck, working with the best in the business.
I'm not reading the Matthew Parris piece because I have frankly seen enough ableism this week and I can guess what it says
But I will say: this is where 14 years of extreme govt rhetoric about disabled people takes us - a 'moderate' encouraging sick people to kill themselves
Stephen Timms will hopefully make a good DWP minister with responsibility for disabled people
But I would really like to see a minister for disabled people not only focused on work and benefits but on all the ways policy affects our lives
Some *personal news* (am I doing this right?)
After four fab years I'll be leaving the Beeb in August to try my hand and freelancing and (hopefully) writing a book!
Will pop into Millbank a few times before I go but today saw my last NBH trip so I took the obligatory photo
@Lucy_Webster_
Hi Lucy, thanks for raising this excellent point. Some categorisation is driven by the industry database, Nielsen, but we're going to change it so that Disability sits within 'Personal, Social & Health Topics'. That should take effect later today. Thanks again.
In surreal life moments, tonight I watched the Last Leg's brilliant
@alex_brooker
address my dating agency shenanigans by saying it all better than I ever could. It hasn't been a great week but I'm really glad we're finally having this conversation
If you are shocked that disabled people, including *children*, have had blanket
#DoNotResuscitate
orders imposed on them, you have not been paying attention
Firstly, disabled people have been shouting about this since spring 2020. Secondly, medicine has been ableist forever
Does it bother you that the UK government treats disabled people like children? Why not?
They want to turn disability benefits into pocket money, to be given or withheld depending on whether they approve of what we buy
Just your regular reminder that the disability benefits system is literally designed to stop disabled people getting the benefits they're legally entitled to
5th of april - got a letter from the DWP saying my PIP review had started and to expect a letter in 2 weeks.
20th April - hadnt come so I spent 45 minutes on hold and got cut off.
It finally arrived 25th April, deadline was 4th May. I sent it 30th.
Just had a letter today a
Right. I have had enough today. So I just want to say being disabled during this pandemic is really hard. And if you, like me, are suddenly exhausted and stressed when you thought you were ok, and the whole disability situation is getting to you, I just want to say I see you.
I have spent a lifetime subconsciously and consciously making plan Bs and plan Cs for how to reach help. Already tonight I've attached string to my door handle so I could open it from the floor, making it more likely a PA would hear me shout. I'm calming down now
Here's what I did: crawled down to the floor to retrieve my phone
But in the dark I couldn't find it
How do I turn the light on? With my phone
This was when I started to panic because I was now not only unable to get help but also stranded on a wooden floor
Hi
@BBCNews
why are you uncritically repeating Simon Steven's claim that no decisions were made about who would live and who would die during covid?
People with learning disabilities had Do Not Resuscitate notices imposed on them - deciding they would die - as you have reported
Due to my disability needs, I can't do my NCTJ exams via their remote portal in April. Will have to wait until me (and my PAs) get the vaccine to do it in the office in May/June. I have paid nearly a grand to do the course. And people wonder why journalism has a diversity issue
The PM is now pushing ahead with a consultation on Personal Independence Payments that was almost published previously (but was considered too controversial). It has some pretty radical ideas including replacing cash payments with access to treatment 1/
Accessibility in Japan is so good I don't know what to do with all the spare anxiety I use up just getting around in Europe
It's genuinely a different world. I just used a wheelchair accessible escalator in a train station
Hi
@Se_Railway
@networkrail
why aren't there any staff at Deptford station to put a wheelchair user on the train? Now have to wait half an hour for the next one, provided the staff arrive. You are in breach of your legal Turn Up And Go obligations
Tomorrow is International Day of Disabled People and I have a few things to post
But the truth is I'm not feeling very celebratory at the moment. Both professionally and personally, it feels like a difficult time to be a disabled person and especially a disability activist
There are more failsafes to implement. If I do end up stuck it'll only be until the morning or the start of the next PA shift. It'll probably never happen. But the possibility that it could is always in the back of my mind. I wonder what else I could do with all that brain space
@SW_Help
@sw_train
@TransportForAll
@SW_Help
your staff need to know that there is no obligation to book a ramp
They also need to treat disabled people like people
If you're struggling to train them, give me a call
The thing is, I'm unlikely to see this exact confluence of problems again. But there'll be another time when my options fail and I have to swallow my panic and find an answer. So far I've always found one. But I worry that one day I'll just be stuck on the floor, needing the loo
I poured my heart and soul into a memoir of disabled womanhood and now...
IT HAS A COVER! AND YOU CAN PRE-ORDER IT!
The View From Down Here, out 7 September with
@dkbooks
Reminder ahead of the autumn statement: sick and disabled people are not the enemy
We are not the cause of this dire economy. The Tories are
Don't let them shift the blame by demonising us
"It can’t be right that going on holiday as a disabled person so often involves public humiliation"
Disabled people keep being left on planes and trains. It needs to stop
Me for
@guardian
@guardiang2
I understand the horror here but I can't help but feel that if you "can't get your head around" this you have absolutely no idea what society is like for disabled people
'It makes me feel sick.'
'Every day I hit a new level of shock.'
@Matthew_Wright
hears from a mother, whose daughter's class were given the option to edit her child out of a school photo because she has additional needs.
All my life, people have pitied me because I need full time care. And yeah, managing a care team is uniquely stressful
But the reality is that my care is my freedom: to work, to travel, to enjoy my flat and make memories with my friends
Me for
@guardian
My old school, where I experienced the worst ableism of my life and which I pay significant money to reprocess in therapy, wants to use me in their list of alumnae to watch and honestly sometimes I wonder if I'm existing in a satirical play and I just can't see the audience
A member of the UN committee has just accused our government of fuelling hate speech towards disabled people
Of course, we know this. But it should still sober and horrify us that the UN is alarmed by the UK govt's rhetoric towards disabled people
it's not accessible if there's no disabled loo it's not accessible if there's no disabled loo it's not accessible if there's no disabled loo it's not accessible if there's no disabled loo it's not accessible if there's no disabled loo it's not accessible if there's no disabled l
Talk of blackouts is especially terrifying for disabled people who can't keep themselves warm and get sick easily. But don't count on the government doing anything at all to protect us
The absolute SHAMBLES of delivering a budget that didn't mention the 16 MILLION disabled people in the country
Don't worry though, only a whopping 27% of disabled people live in poverty
#Budget
#Budget24
Hello TV and radio editors working this weekend!
Did you know Sunday is International Disabled People's Day?
1 in 5 people are disabled. It'd be really great if you could mark this day for and with us!
I'd love to help you do so
#IDPWD
#InternationalDisabledPeoplesDay
#IDPD
Literally wouldn't let her finish a sentence or even look at me
When she asked for his name said "I think you mean thank you for helping even though you hadn't booked"
Other passengers commented on how rude he'd been
#DisabledByTheRailway
@SW_Help
@sw_train
@TransportForAll
🚨 EXC: A generation of children left permanently disabled by epilepsy drug sodium valproate, are being hauled in front of degrading and barbaric DWP tribunals that has left some traumatised 1/8
Aside from the horrendous ableism involved in the 'how much of your taxes go to those lazy disabled people?', I find it wild that people think they should choose where their taxes go
Quite a lot of us don't like the Home Office. We still fund it. It's called the law
NEW from me: A quarter of disabled people fear losing their jobs because their employers can't make their workplace safe for them to return.
Campaigners want disabled people put at the heart of the Covid recovery plan
NEW from me: Working age disabled women are 11x more likely to die from coronavirus than their peers. Disabled men are 6.5 times more at risk. I spoke to disabled women, public health experts and charities about fear, inequality and calls for an inquiry
To cap a brilliant week, my new book, The View From Down Here, is featured in
@GdnSaturday
today!
I wrote about how being disabled led me to love my body, and the lessons the disabled community has for everyone else
Really proud of this essay