Jo D 😷💙
@JoD66
Followers
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Following
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47
Statuses
3,152
Trustee of Long Covid Support @long_covid , Walk Wandsworth Walk Leader (on hold due to LC), Mason Bee Guardian, #FBLC #LongCovid #TreatLongCovid
London, England
Joined August 2011
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@rickygervais
So you decided to share your unspecified germs with your audience. So thoughtful!
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My 92 yr old mum just tested positive for Covid.
Why the hell aren't there any mitigations out there? Why is there no awareness campaign? I now have to worry about her, my 93 yr old dad, my sister, a friend w/MND, my vulnerable partner & myself
#CovidIsNotOver
#COVIDisAirborne
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This is the second time this tennis player has collapsed. He's put it down to food he ate the night before .... at Wimbledon when he collapsed his HR was 187!
🤔
#LongCovid
?
@elisaperego78
one for you.
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@MichaelRosenYes
@KirstieMAllsopp
@KirstieMAllsopp
Irresponsible, inconsiderate, thoughtless. I could go on but I won't as I have brain fog plus other scary and debilitating
#LongCovid
symptoms. 1,000s of us are dealing with this. 22k+ in the
@long_covid
Facebook group alone. Wouldn't wish this on anyone.
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Dear
@robbiewilliams
Were you aware that there are more people in the UK living with
#LongCovid
than there are following you on Twitter?
We thought you were one of them and we originally reached out because we care but you were just 'having a laugh'.
Long Covid is no joke.
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My pose says it all. Exhausted but determined. Kudos to everyone involved today.
#CovidIsntOver
#MaskUp
#CleanAir
#LongCovid
Right, time to lie down in a darkened room and rest, rest, rest.
❤️ Big thanks to our Founding Trustee
@JoD66
for getting to St. Thomas’ Hospital to help highlight dangers of continuing disregard for patient & staff safety in healthcare settings due to the absence of
#Covid19
preventative measures.
#LongCovid
#CovidIsntOver
#StopTheSpread
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I got Covid before lockdown was implemented.
I have
#LongCovid
.
If
@BorisJohnson
had done what he was meant to do - 'safeguarding the life and health of UK citizens' - 10s of 1,000s wouldn't have died or become disabled.
Despicable. Callous. Repulsive. Ignorant. Selfish.
Today we found out that
@BorisJohnson
scrawled 'BOLLOCKS’ across a
@DHSCgovuk
document about
#LongCovid
He admitted in his witness statement that he didn’t believe that
#LongCovid
‘truly existed’
We now know that he thought it should be dismissed as a form of ‘Gulf War Syndrome’
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#LongCovidAwarenessDay
#ConfrontLongCovid
It's going to be an emotional day.
Love and hugs to everyone
🫂💙🖤🤍
#LongCovid
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@Mersey_Care
@BenEndCOVID19
@Patrici15311724
@liverpoolccg
@StHelensCCG
@Knowsley_CCG
@NHSSSCCG
So will you all be going back to your jobs, seeing patients, some of which may be vulnerable? Seeing your family and friends, some of which may be vulnerable...? Whatever the 'guidance' it may be worth reading up on the reality and the stats and using common sense. 😷
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There is a treatment for
#LongCovid
& all long-term health conditions.
Everyone gets the benefits they deserve from the government.
Covid is eradicated through proper mitigations, indoor ventilation systems, masking, awareness.
Oh it's April the 1st. More fool me!
@long_covid
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What about children?
@BorisJohnson
@CMO_England
@nadhimzahawi
The numbers are increasing in the younger age groups. No further mandatory measures in schools?
#LongCovidKids
@LongCovidKids
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Big shout out to the incredible
#LongCovid
advocates & community. I'm in awe, amazed, proud every single day. Your determination, strength & drive is immense. It's tough to advocate & push for action when we are also ill. We are not on our own. Together we are stronger.
#Kudos
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Last week I 'celebrated' 7 months of
#LongCovid
. I'm one of 1,000s dealing with debilitating and life changing symptoms that can affect people of all ages. Not just 'starting to show'!
#CountLongCovid
@long_covid
@LongCovidScot
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@BBCMorningLive
@xandvt
V confusing and v wrong messaging. One day you talk about Covid being less dangerous (which it isn't) and the next, and on many occasions, you talk about
#LongCovid
and the debilitating longterm symptoms. Covid is still dangerous. It's not guaranteed that you will fully recover.
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#1YrOfLongCovidSupport
A year ago
@long_covid
Fb group was set up by
@ClaireHastie1
. 40k members admin'd by dedicated and amazing long haulers in India, UK and US.
@SavingBooks
@adinagerver
@hopestayshere
@lesleymacniven
@keyeri
@kelmarll
@tess_gobbi
@christinaloubee
@Know_HG
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Not new news to us.
#LongCovid
strips away the ability to do the majority of normal life 'stuff'. The burden of it all is exhausting, demoralising, debilitating, never-ending.
Hugs to all in the Long Covid community.
Thank you to
@RobWust
& team for this
#LongCovid
study 🙏
Lower exercise capacity is not surprising news as we've known this as long as we have all been Long Covid aware but none the less good to see validation & more in this study.
Full details below.
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@rickygervais
@SweetBCBoi
Metallica thoughtfully cancelled some concerts this week due to James being ill. The decent thing would be to protect your fans and your crew from any infections, Covid or other. Hope you feel better soon.
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Most people with
#LongCovid
after
#LongCovidAwarenessDay
will relate to this....
@long_covid
@LongCovidKids
@LongCovidSOS
@LongCOVIDPhysio
@LongCovidAP
@LC_UK_Action
@LongCovidScot
@SupportingHH_UK
@LongCovidScot
@rebslogan
@LCawarenessInt
@LCDCmarch15
@LongCovidAdvoc
New born giraffe isn't sure what to do with his neck while taking a nap
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I am a carer. I also have
#LongCovid
Definitely not the best mix and it's a bit of a rollercoaster at times.
Grateful to all the carers around the world for everything you do. Thank you 🙏
Please look after yourselves 🫂💜
#CarersWeek
💖In
#CarersWeek
we are putting carers on the map 🌍
🙏 Thank you to all the amazing caregivers around the world. We recognise the work you do & your incredible dedication.
🔔 Did you know we also run a support group for Carers of p/w
#LongCovid
?
Link:
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@keyeri
@tess_gobbi
@LisaPinkyWard
@james__glen
@jakesuett
@moonies2019
@JamieScotto
@Em46823172
@SavingBooks
@ClaireHastie1
@lesleymacniven
@TalyaVarga
@long_covid
@KitKennedyMA
@JoPlattLeigh
@james_glen
Six months ago I was walking 15 miles a day and was a full time carer. Now I am the one being cared for.
#CountLongCovid
@gaathoni
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So angry with this Downing Street briefing
@sajidjavid
- it is unacceptable to have so many cases, so many deaths and no mention of
#LongCovid
when all are avoidable. 'Do your bit'! We have 'done our bit' but clearly it is not enough. Mandate measures. They work!
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Incredibly proud to be part of this
#LongCovid
charity. Without the support group I really don't know where I would be.
Being a trustee is an honour and privilege.
Love you all
@long_covid
💜
📣One aspect of our work is our international Long Covid Support Group with 60k+members.
“Long Covid Support got me through my darkest days”
- support group member
We are a Charity run by volunteers with
#LongCovid
. Please help us continue our work.
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A truly inspiring bunch of people doing incredible things on behalf of so many.
#LongCovidAwarenessDay
#LongCovid
And... It's a wrap from us. Thank you so much to everyone that came to support
@LCMEBillboards
#LongCovidAwarenessDay
action in Westminster today. We gave out thousands of leaflets, got a trending hashtag, & SW1 heard & saw just how horrendous long Covid is. Great team work 💚
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@SamMc413
We're in
#dontlookup
territory unfortunately, but we will continue to advocate and campaign for treatment and awareness and public health messaging to reflect the seriousness of this unfolding crisis.
#LongCovid
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Over 3 years of living with
#LongCovid
.
For me it is made up of highs & lows. Never quite knowing how my day will pan out. Will I do too much even if the 'too much' in my former life would be considered easy?
Grateful for the community we have
@long_covid
.
#LongCovidAwareness
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I didn't know much about Mast Cells until I contracted Covid resulting in having
#LongCovid
.
Grateful to
@MastCellAction
for all the work they do.
Let's all be more
#mcasaware
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An incredible team of dedicated advocates across all the Long Covid Groups working night and day to support everyone with
#LongCovid
. Absolutely fantastic. A big thank you to all involved.
Please support them too by signing the petition in the post below.
#ItCouldHappenToYou
There is NO CURE for Long Covid.
We urgently need more investment into RESEARCH for Long Covid.
Please sign the petition:
#ItCouldHappenToYou
#NoCure
#ResearchLongCovid
#TreatLongCovid
#LongCovid
#LongCovidKids
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So let me get this straight. The Delta variant is much more transmissible but we are doing away with masks and everything else to boot. Why? Why? Why? Reckless beyond belief
@BorisJohnson
@sajidjavid
@CMO_England
@uksciencechief
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Last year I completed the Couch to 5k challenge 😊
This year, thanks to
#LongCovid
I've achieved the 5k to Couch ☹
@LongCovidSOS
@long_covid
#RehabResearchRecognition
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@SavingBooks
@guardian
This article makes no sense. No 'traumatic childhood' or 'catastrophic' thinking for me.
#LongCovid
is real - not in our heads, real symptoms, real issues from head to toe. For months and months. For 1,000s of people.
@guardian
looks like you have unjustifiably labelled us.
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@iandonald_psych
And let's not forget the 1,000s that will have to deal with
#LongCovid
as a result of this. Plus all those who are immunocompromised and vulnerable having their 'freedom' restricted further.
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With the scary, weird and erratic nature of symptoms, 'recoveries' and relapses during my
#LongCovid
journey I totally agree. Thank you
@ClaireHastie1
and
@long_covid
I've cried, laughed and empathised with this group of amazing
#LongCovid
superhumans! 💪👊
@ClaireHastie1
@long_covid
Likewise! Your group is the best one on fb. There's no arguing, discrimination and trouble causers. It's a safe place to go to get solidarity and advice xxx
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I've met lots of inspirational women personally & through a career in the entertainments industry. Now I find myself in awe of so many in the charity sector ⬇️.
@oonagh_cousins
& I were at the Houses of Parliament this week celebrating
#InternationalWomensDay
#InvestInWomen
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Reflecting on
#MEAwarenessDay
on the amazing support given by the M.E. community and organisations and giving thanks for their continual support for people with Long Covid. It is very much appreciated🙏
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@trishgreenhalgh
Could I give you the name of my GP so that you can pass this valuable
#LongCovid
message on please... I can't get past the 'you'll get over it' bit...
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@sajidjavid
The best way to express gratitude is give them a decent well deserved payrise and rethink plans for the 19th. They think it's all over has a different meaning at the moment.
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No two days are the same with
#LongCovid
. The same goes for many conditions and chronic illnesses.
I change my words to express how I feel daily, if not hourly.
It's exhausting and demoralising.
We must prevent more people joining our every increasing numbers.
💔Our word cloud made from words p/w
#LongCovid
used to describe their condition includes:
⚠️Life changing
⚠️Exhausting
⚠️Pain
⚠️Debilitating
⚠️Unrelenting
⚠️Destroyed
⚠️Devastating
#ThisIsLongCovid
#ItCouldHappenToYou
#CureLongCovid
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@carolvorders
@BAFTA
@long_covid
Absolutely agree. Great to meet you and thanks for your continued advocacy and engagement. We really appreciate it 🙏💜
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Very grateful to have some incredible humans like
@BinitaKane
@PutrinoLab
supporting us and very proud to be a part of the
@long_covid
team bringing these sessions to the community with
@Helen_Oakleigh
and team LCS!
📢 Save the date! Wednesday 22 May - 7pm BST
Dr Binita Kane & Helen Oakleigh present "The Long Covid Clinic - What You CAN Do". In partnership with Long Covid Support.
Dr Binita Kane talks with David Putrino
Link here:
#LongCovid
#MECFS
#LCCWYCDnd
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Just watched a
@KateBushMusic
documentary. The duet w/
@itspetergabriel
resonates. The incredible peer support our
@long_covid
FB group gives is amazing.
Don't give up
'cause you have friends
Don't give up
You're not the only one
Don't give up
You still have us
#LongCovid
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Thank you
@trishgreenhalgh
for making the individual patient the centre of the
#longcovid
story. We turn to our GPs for their expertise and need urgent and consistent help.
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@TheChronicColab
@WestMidHospital
What the ....!!!! No-one deserves to be denied urgent medical help.
@WestMidHospital
- what are you doing about it?
#SaveCarlasLife
#ExposeMENow
#MedicalNeglect
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@Geraint6Jones
@ImperialInfect
@ChelwestFT
It is very difficult to comprehend how this got through ethics approval. Vast numbers of people are dealing with
#LongCovid
. There is potential long-term, disabling, life-changing consequences. And the plan to 'control' this study within an immunocompromised patient area?😟
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@LennyHenry
I have been ill since early March. Still suffering from debilitating symptoms - chest tightness, pins & needles, headaches, throat pain, ear pain, fatigue, brain fog ... the list goes on.
#CountLongCovid
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@NikkiS_MCSFS
"We're all a bit pandemic fatigued, you need to get out more and socialise" .... ugh!
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Thank you
@oonagh_cousins
Spot on presentation at
#UniteToFight2024
At
#UniteToFight2024
our Ambassador
@oonagh_cousins
is knocking it out the park!
“PEM is nothing like the feeling of deconditioning… Rowers train for 25 hours a week, 49 weeks a year. I was sick NOT deconditioned.”
#LongCovid
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The total eclipse is still trending but the
#BringMillieHome
#DontLetMEDie
campaign must be brought into the light and we must not eclipse chronic illness and the devastation it causes.
Please sign the petition.
@TheChronicColab
Please sign this petition to
#BringMillieHome
- we must get it to at least 15,000 signatures before the end of today's Twitterstorm. PLEASE -
#DontLetMEDie
Sign, sign, sign
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Community and friendships have been key to my LC journey and
@long_covid
has led the way for being part of a like minded community. Thanks Callum for your wise words of advice.
Oh and if you are struggling with long Covid, I really recommend the support groups
@long_covid
,
@LongCovidScot
and
@itsbodypolitic
to speak to others and become part of the community, full of some of the finest people you will ever meet
#LongCovid
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@cyp_wellbeing
@Parents_Utd
Welcome home Caroline x
So tragic. I am so sorry. Covid is vicious. Education of the potential life-changing consequences of this virus is key, whether it be critically ill patients in hospital or those dealing
#LongCovid
.
@long_covid
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@MichaelRosenYes
@TheRepairShop
One of my favourite episodes. Michael, you are a true inspiration & you always have a cheeky tinker glint in your eyes. The GP case also fascinated me as my father was a GP in the same era & has the same case tucked away in the loft which he is gifting to me, inc the ear syringe!
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So many lives lost. So many bereaved. So many with long term consequences.
@BorisJohnson
&
@GOVUK
didn't listen to the scientific experts & certainlydidn't take action when they should have done.
The outcome would have been different for so many.
#WeNeedAnswers
@covidinquiryuk
Now Prof. John Edmunds at
#CovidInquiry
:
Q. It was clear by mid Jan [2020] that this virus had capacity to kill, seriously harm, hospitalise, that people were becoming infected by human to human transmission
A. That was very clear certainly by end of the 3rd, 4th week of January
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@SepsisUK
It's great news re the low hospital admissions for critically ill patients. What about the numerous A&E visits, doctors calls and all the investigations going on for the people of all ages with
#LongCovid
?
20k+ and rising in our Facebook group
@long_covid
#CountLongCovid
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@MattHancock
finally talking about the ‘prevalence’ of
#LongCovid
. This needs to be reflected in public health messaging. When will he
#CountLongCovid
? Our
@long_covid
Facebook group has 20,000+ members of all ages who have been incapacitated for months
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@j_b_kennedy
Could we all club together and do a
#LongCovid
job lot at a special reduced bulk buy offer or a buy one get one free scheme?
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Great to be joining
#bmjcovid
webinar discussing all things relating to
#longcovid
. We need
#RehabResearchRecognition
@bmj_latest
Thank you
@FionaGodley
@Dr2NisreenAlwan
@trishgreenhalgh
@timspector
@v_puntmann
@PaulGarnerWoof
@DocOfHearts
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@RobertLindsay
It can really knock the stuffing out of you. Please rest, rest, rest to avoid long term debilitating symptoms 🙏💜
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#LongCovid
has sadly brought us together.
@SammieFMc
@Know_HG
@ClaireHastie1
@NikkiS_MCSFS
@RogersNat70
@selkieO
@DaviesLunt
@HextRachel
@ahillslegal
@alitwy
@VosperSioux
@JCeoltaSmith
@ScribblerPen
@HelenMMGoss
@merelpianist
@Drjohouse
@HextRachel
to name a few!
🙏
@long_covid
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@RogersNat70
#LongCovid
challenges even the most positive of mindsets when it is so unpredictable in how it presents itself. Just when you thought it was safe to go out for a stroll ....
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Received my lovely
#LongCovidAwareness
goodies from
@Starseeker1986
- thank you 🙏
So wonderful to know that a donation is going to
#LongCovid
charities who work incredibly hard to support and advocate for our community.
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Mmmmm, mysterious illness and more 'falling by the wayside'.
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@JCeoltaSmith
@SteveBarclay
Absolutely tragic & unnecessary. I just went in for my mammogram & there was not a mask in sight apart from mine. The radiographer put a mask only because I had one on.
It doesn't take much does it? A mask to avoid picking up airborne viruses. Let's protect each other.
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I can't even begin to express the anger of a reckless and thoughtless decision
@BorisJohnson
@sajidjavid
. There are reasonable measures like masks/distancing that can stay in place whilst leading a normal life. For the vulnerable and scared this will drive them into isolation.
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@mikepanayi
Rest, rest, rest. Avoid stress. Consider taking electrolytes and a good probiotic. Tell family and friends how you feel. Call your GP about your concerns and push for tests if symptoms persist. This virus moves in mysterious ways and our
#LongCovid
community is here to support.
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@ClaireHastie1
@long_covid
Totally agree. Glad we have our amazing support group who help each other so much. The minute a new post gets approved there are always members guiding, affirming, giving comfort and validating their experiences of
#LongCovid
.
So grateful 🙏
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@timspector
How many of those children are identified as
#LongCovid
with long term symptoms? The 20k+ members of our
@long_covid
Facebook group are often posting about their childrens ongoing illness.
We urgently need
#RehabResearchRecognition
and need to
#CountLongCovid
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@long_covid
@ClaireHastie1
@Daltmann10
@Tim_R_Nicholson
@cazd45
@zalaly
@DrMark_Faghy
@DrGrahamLJ
@crr7310
@Doctor_IMF
Very grateful that Claire started this group. Not sure where a lot of us would be without it. Thank you 🙏
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So proud of my
@long_covid
buddy
@NikkiS_MCSFS
for this and everything she does for the
#LongCovid
community. Her dedication is incredible and inspiring 💜
Paper out from
@LOCOMOTIONstudy
(including our Founding Member
@NikkiS_MCSFS
as co-author): ‘Pathophysiological Mechanisms in
#LongCovid
: A Mixed Method Systematic Review’.
Thanks to all involved in the hard work!
#TreatLongCovid
#CureLongCovid
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@DrSarahJarvis
@JeremyVineOn5
Agree. With 20k+ (and rising) people with
#LongCovid
in our Facebook group of all ages, suffering from scary, debilitating and life changing health issues for months on end we need to be vigilant at all times.
This virus has not gone away.
@long_covid
#CountLongCovid
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Thank you
@oonagh_cousins
for your continued advocacy on behalf of the
#LongCovid
community. It is very much appreciated 🙏💜
Last week Jon Key (Key & Co.) held a networking event and nominated Long Covid Support as their chosen charity! 🎉
Our brilliant ambassador
@oonagh_cousin
gave a talk on her experiences of
#LongCovid
.
(Photos by James Waller.)
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@TheChronicColab
Thank you so much for everything you do for the chronic illness community 💪🫂🙏
#BringMillieHome
#DontLetMEDie
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@TalyaVarga
What exactly is the definition of *worse* in this case?
#CountLongCovid
is imperative. Recognise and treat
#LongCovid
is critical.
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@1goodtern
Our lives are much richer with you in them. Thank you for your faith, trust, respect, support and continual engagement in all communities. You are amazing. Hope you are looking after yourself while looking after and looking out for all of us 💜🙏
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I'm not the best at baking but couldn't resist joining the
@bake4mecfs
#bake4mecfs
#cakes4longcovid
Great Outer Space Bake Off.
I've donated to
@long_covid
and call my creation 'Space in My Heart'.
Please join in and donate to .
Thank you!
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@CounsellingSam
@ChirpyChet
@LoxyFlo
@GyllKing
@lorrainemking
@natalieben
@clairebubblepop
@Saffiya_Khan1
@_CatintheHat
@ClareQ12
@Charles83230639
@SusieFlintham
@Sandyboots2020
@dodgson_sally
@SallyBourliakas
@destinysharles
Thanks Sam. This is where my focus is!
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@preshitorian
We are just ending up self diagnosing ourselves here and in support groups and giving hints and tips on remedies and recovery techniques... Will we ever get anything more concrete from the professionals?
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@lesleymacniven
@long_covid
@ClaireHastie1
@amyismall
@ellie_merton
@long_recovery
@SavingBooks
@PaulGarnerWoof
@callumjodwyer
@r2ph
@RobinGorna
@BBCPolitics
@BorisJohnson
The watching and caring I got was from my partner who I was meant to be caring for. I stayed at home to
#SavetheNHS
. I didn't think I'd still be staying at home 7 months later still being cared for due to
#LongCovid
@long_covid
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Our
#LongCovid
reinfection survey with
@long_covid
and
@LongCovidKids
is published.
@Daltmann10
@WesElyMD
@EricTopol
@gail_carson
@maxwele2
@elisaperego78
Launched today, in partnership with
@LongCovidKids
Covid Reinfections in people with
#LongCovid
Initial findings from our survey of almost 600 adults and children asking how
#pwLC
are affected when they get Covid again
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@BootstrapCook
Low histamine and anti inflammatory foods and drinks. Reduce sugar and carb intake. Plenty of water. Tart cherry juice is helping some of us. Electrolytes helping others.
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@JAMA_current
Given that the article posted was dated 10 July I think you need to do a bit of
#LongCovid
research to bring yourself up to date with what 1,000s are going through and your very dangerous, out of date guidance!
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@PaulGarnerWoof
Agree 100% on managing expectations. Having taken the sound advice from
@SepsisUK
and
@DrRobCopeland
I am now in a much better place mentally for a well paced
#LongCovid
recovery mindset lasting well into 2021. Couldn't do it without the wonderful
@long_covid
Facebook group.
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Thank you
@KayBurley
1,000s of
#LongCovid
sufferers dealing with scary and debilitating symptoms with very few answers or solutions
#RehabResearchRecognition
@LongCovidSOS
"It's now 5 months and I still have persistent and residual symptoms".
Former Professional Athlete Dr Tamsin Lewis says she's been "reduced to her knees" for months by COVID-19, saying there's "thousands" of people just like her. JJ
#KayBurley
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@BootstrapCook
The
#LongCovid
community really wish they had been given the following advice at the start of their journeys - even if you feel better, whatever you do, rest, rest and rest some more. Recover well and reach out to
@long_covid
if you need support x
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@j_b_kennedy
Blocked from our group a long, long time ago. Horrendous that he is able to get in to and stay in others. Let's hope he isn't data mining ....
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On point opinion piece by
@selkieO
@LongCovidSOS
Thank you.
UK policy decisions throughout the pandemic were not informed by the prevalence and risk of
#LongCovid
.
Did Hancock's evidence at the
#UKCovidInquiry
give any insight into what went wrong?
@selkieO
@LongCovidSOS
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@DrMark_Faghy
No words! Not polite ones anyway!!!
Good grief, how did the BMJ even accept this nonsense?!
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@JoshuaPribanic
@POTUS
Didn't you know 41 is the new 91? (Or should that read old?).
Happy birthday from another wrinkly crinkly
#LongCovid
.
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@PaulGarnerWoof
Another great explanation of life with
#LongCovid
. Living with it for 6 months ... not sure I like this partnership but acceptance is key. Ready to split up whenever it is!
@long_covid
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@long_covid
Rest, rest and rest some more. Listen to your body and reduce the stress you put on yourself to get back to your old healthy self quickly. It will happen just not at the speed you want it to 😔. Oh and join an amazing and comforting support group 💜
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We say this every day. Banging the drum. Advocating and fighting for our
#LongCovid
community.
Grateful to everyone who stands with us and supports us.
#ConfrontLongCovid
#LongCovidAwarenessDay
📣🚨 From our charity Advisor
@zalaly
:
“The world must not turn its back on people suffering from
#LongCovid
.
Long Covid is a global health crisis.
Addressing Long Covid is not only a moral imperative, it is an economic imperative.”
#ConfrontLongCovid
#LongCovidAwarenessDay
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This is how people with
#LongCovid
describe it.
We can't leave people with such a life-changing illness untreated
Clinics were announced a year ago but provision is patchy and often inadequate, not due to lack of will, but lack of resourcing
It's time to properly
#TreatLongCovid
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@CM_7505
@long_covid
@LCNMUK
@EHRC
@somceo
@CIPDpolicy
@helenh49
@ScribblerPen
@lesleymacniven
@RogersNat70
@Know_HG
@longcovidwork
@LongCovidScot
@LongCovidSOS
@IndependentSage
Kudos goes to the amazing team of advocates who collaborated to produce it.
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@TalyaVarga
I'm 54, I first got symptoms at the beginning of March and I live in London.
#LongCovid
for nearly 8 months
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Hi everyone, our next two billboards (digital) are up in Leicester (left) and Bradford (right) for
#MECFS
awareness week. These boards are placed closely to NIH buildings and will be up from 6th-20th May. The boards are part of a wider campaign that I will explain below.
🧵
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