Supporting Healthcare Heroes UK
@SupportingHH_UK
Followers
776
Following
783
Media
1,098
Statuses
10,685
UK charity set up to advocate for and support UK healthcare workers living with Long Covid. Email: info @shh -uk.org
United Kingdom
Joined April 2023
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🚀 We’re expanding our social media team! If you're passionate about content creation, social engagement, and making an impact, we want YOU! Volunteer with us and let’s make magic happen. For more info visit: or email volunteer
@shh
-uk.org
#Volunteer
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Today we are launching Supporting Healthcare Heroes UK - a charity set up to stand shoulder to shoulder with UK healthcare workers living with Long Covid. In this video our Chair,
@alitwy
, provides details of what to look out over the next 11 days
#CareForThoseWhoCared
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We are looking for
#uk
based
#healhcareworkers
#hcw
who are suffering or suffered from
#longcovid
acquired following a
#covid19
infection at work. We’d like to share your story (without names if you prefer) to help drive our profile and
#fundraising
. Email mystory
@shh
-uk.org
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Every time we read or hear
@RishiSunak
,
@Jeremy_Hunt
and others talking about getting sick people back to work we think about the thousands of healthcare workers now disabled and unable to work due to Long Covid because of the lack of RPE and HEPA filters.
#NHSHeroToZero
We wholly reject the idea that it is the public duty of sick and disabled people to work when they're unable to do so. It's the public duty of *the Government* to look after people when they're sick and disabled.
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We are in the process of forming a charity to help and support U.K. healthcare workers who have lost their job or are having to work reduced hours, due to long covid. Visit our website and support us on our journey
United Kingdom ·
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A must read article from Dr Clare Rayner about the seriousness of Long Covid:
@rogerkline
@JCeoltaSmith
@ScribblerPen
@LCNMUK
@LCD4A
@long_covid
@LongCovidSOS
@LongCovidKids
@SheilaSobrany
@AnnKeen11
@ProfEmer
@ProfSarahCowley
@MichaelRosenYes
@microlabdoc
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@CIDRAP
@theRCN
@TheBMA
@KimSunley
@unitetheunion
@The_TUC
@MidwivesRCM
@PMarquisRCN
what lobbying are you going to do to ensure (appropriate) masks are used in health care settings?
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Good to see we get a mention in this article in Daily Mail today.
Should the NHS pay damages to frontline medics crippled by long Covid?
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Have you read this week's blog yet? It provides a list of resources about returning to work with Long Covid. Designed for people with Long Covid, their colleagues, managers and HR.
@rogerkline
@nurseswift
@bjgw
@shirtyphil
@1goodtern
@deeokelly1
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In today’s blog we set out some of the things we are doing for healthcare workers living with Long Covid in the UK. We're committed to providing comprehensive support and resources–read the blog to find out more!
#CareForThoseWhoCared
#ConfrontLongCovid
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Are you a healthcare worker living with Long Covid in the UK? Would you like to share your story as a blog, vlog or a short statement? If yes, please email us at: mystory
@shh
-uk.org
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#LongCovidAwarenessDay
is on 15th March. It would be great if you got involved.
See below for details.
#ConfrontLongCovid
#LongCovid
#CareForThoseWhoCared
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Let’s make sure the
@covidinquiryuk
hears from lots of healthcare workers with Long Covid.
@LCNMUK
@LCD4A
@LongCOVIDPhysio
@long_covid
@LongCovidSOS
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@alitwy
Supporting Healthcare Heroes UK is a charity set up to help UK healthcare workers living with Long Covid. We are officially launching the charity today. The attached press release provides details about what we are aiming to do.
#CareForThoseWhoCared
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Important 🧵⬇️⬇️
NHS covid data can’t be trusted.
I feel like this might be one of those slightly weird tern graphs that people misunderstand...
Let me explain.
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We're looking for volunteers. Can you help us?
In this video
@alitwy
discusses the skills and expertise we are looking for.
#CareForThoseWhoCared
More info at: or email us at volunteer
@shh
-uk.org.
We look forward to hearing from you soon.
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We've just published our latest SHH-UK News - How will we help UK healthcare workers living with Long Covid? Part 1 - Click the link to read all the detail
#LongCovid
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We are delighted to let you all know that we have just submitted our application for charity status to the Charity Commission. This takes us one step nearer being able to provide healthcare workers with Long Covid the support they need.
@rogerkline
@annkeen11
@lcnmuk
@LCD4A
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Want to know more about what Long Covid is? Why not watch this
@longcovidphysio
video describes what Long Covid is:
#CareForThoseWhoCared
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We’re into day 2 of the opening weekend of our shop and products are flying off the shelves! Don’t forget, until midnight on Monday, there’s free shipping too! Make a purchase and show your support whilst raising funds for our healthcare heroes
#longcovid
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Have you read the
@TheBMA
report on the impact of Long Covid on medical staff yet? If not why not? Access it here:
It sets out all the reasons we are working to set up a charity to support healthcare workers with Long Covid.
@ProfEmer
@rogerkline
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Definitely worth reading this 🧵on covid and the brain.
As you read it reflect on the stupidity of the UK Government’s ongoing policy of “living with Covid”.
COVID + THE BRAIN 🧠
There’s been a flurry of new studies published in recent weeks about Covid’s detrimental impact on the brain.
This is the aspect of Covid which concerns me most, but which many people seem to be blissfully unaware of.
So let’s dig into what we know… 🧵
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HEPA filters in healthcare setting reduce covid-19 infections in staff and patients. This demonstrated they effectively removed covid-19 particles from the air. Read this paper to find out more:
#CareForThoseWhoCared
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Can you help? We're looking for some feedback on our logo. Please complete our poll by clicking on this link:
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Interesting quiz here by
@1goodtern
- why not give it a go.
Quiz time:
Do you think there are viruses that can cause serious long term health problems even after a mild infection?
Please feel free to retweet if you find it interesting.
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We definitely need module 3 to look at Long Covid in more depth.
🚨More from
#CovidInquiry
:
“Some Core Participants repeat their request for module 3 to look at whether
#LongCovid
should be designated as a disability or occupational disease…you have already ruled this is not within the scope of module 3”
😔
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Please complete this important survey if you live in England and are living with Long Covid.
In 2020 we ran a GP survey to help inform
@NHSEngland
about
#LongCovid
We are running a new survey this month & are particularly interested in hearing from people who've had recent interaction with their GP
UK residents only - click here:
Please share!
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Important 🧵 here from
@RebeccaOwen13_
about the lived experience of people living with Long Covid. We'd love you to write a blog for us.
@ScribblerPen
@long_covid
@LongCovidSOS
@LongCovidKids
@LCNMUK
@LongCovidKids
@LongCOVIDPhysio
(1/13) As we hear evidence at the
@covidinquiryuk
about how the emerging pandemic was handled, it is important that the words of those who were affected are also shared.
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Have you read the
@SOMnews
revised guide for managers supporting people with Long Covid back to work? We highly recommend it:
#CareForThoseWhoCared
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Yesterday
@alitwy
had an appointment with a neuropsychologist - 3 years into her
#LongCovid
journey. She feels fortunate to have had this opportunity. Others haven’t been so lucky. If you have Long Covid please indicate below whether you have had a cognitive assessment or not.
Yes
33
Waiting for appointment
13
No
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We are virtually speechless and thinking of the thousands of healthcare workers who have had their lives changed for either due to Long Covid.
#NHSHeroToZero
Today we found out that
@BorisJohnson
scrawled 'BOLLOCKS’ across a
@DHSCgovuk
document about
#LongCovid
He admitted in his witness statement that he didn’t believe
#LongCovid
‘truly existed’
We now know that he thought it should be dismissed as "Gulf War Syndrome stuff"
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HEPA filters in healthcare setting reduce covid-19 infections in staff and patients. This demonstrated they effectively removed covid-19 particles from the air.
#CareForThoseWhoCared
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Watch out for our new blog out tomorrow. It provides a list of resources for
#pwLC
trying to return to work and those supporting them to do so.
It's going live at 1300 UK time to coincide with the fringe event "Returning to Work with Long Covid: What works?" at
#RCNCongress2023
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6
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Long Covid symptoms create a greater burden of disability than heart disease or cancer, new study shows
#NHSHeroToZero
@long_covid
@LongCovidSOS
@LongCovidKids
@LongCOVIDPhysio
@JCeoltaSmith
@ScribblerPen
More evidence of the devastating impact of Long Covid on people's lives.
Long Covid symptoms create a greater burden of disability than heart disease or cancer, new study shows | CNN
@SupportingHH_UK
@JCeoltaSmith
@ScribblerPen
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We've just published our latest blog by Dr Evonne T Curran - Decreasing your risk of being infected with Covid: Non pharmacological interventions - Click the link to read all the detail
#LongCovid
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Lots of evidence is available demonstrating how Government inaction has left healthcare professionals vulnerable to Long Covid.
This was highlighted in a recent article by
@NurseinPractice
:
@LCNMUK
@LCD4A
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Want to know about Long Covid breathlessness? Why not have a look at this
@longcovidphysio
resource:
#CareForThoseWhoCared
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Exciting news! We have launched our forums. We hope will become a safe space for the exchange of information, advice and support for the healthcare community living with Long Covid. These forums are private so you will need to register to access them.
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Watched
#Breathtaking
? Appalled by what you saw? Some NHS workers never recovered from the infections caught due to non-existent/suboptimal PPE and now have Long Covid. In this vlog
@BrendaEadie
talks about loosing her job :
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Have you read the latest blog by our Infection Prevention and Control Advocate
@EvonneTCurran
. In the blog she challenges the terminology used by politicians and policy makers.,
#CovidIsAirborne
#CovidIsNotOver
@VictoriaMAtkins
@RishiSunak
0
7
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Our latest blog has gone live. It's by
@EvonneTCurran
and outlines why she doesn't like hand hygiene day! Why not read it now?
@JCeoltaSmith
@penscribbler
@LCNMUK
@longcovidphysio
@Long_Covid
@LongCovidSOS
@ProfEmer
@SafeDavid3
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Great to see this advocacy from
@theBMA
. Have you signed
@CovidPledge
?
@theRCN
@PMarquisRCN
@KimSunley
@RehanaAzam
@EBNursingBMJ
Today we and the Covid Airborne Protection Alliance have written to NHSE to highlight the urgent need for their Infection Protection Control guidance to be updated to better protect staff and patients.
Read the full letter below.
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#Breathtaking
tells the story of the nightmare faced by NHS workers during the pandemic. Thousands of those healthcare workers never recovered and are living with Long Covid which has had a huge impact on their lives - personally and professionally.
#CareForThoseWhoCared
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Recently our chair had an email from someone asking why pwLC weren’t entitled to antivirals. We suspect the reason for this is the
@_Government_UK
apparent refusal to accept the reality of Long Covid. (Thanks to
@long_covid
and
@LongCovidSOS
for this graphic.)
💊Antivirals access💊
PLEASE contact your MP to ask for antivirals access to be opened up to more people and improved for all people.
This exceptional treatment of this NICE decision could set a dangerous precedent too.
More information below...
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Reflecting today on how badly people with
#LongCovid
seem to be treated by their employers. Not just healthcare workers.
The report by
@The_TUC
@long_covid
published last month suggests things are getting worse.
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6
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Our new blog will be out at 1300. It's going live at 1300 to coincide with the fringe event "Returning to Work with Long Covid: What works?" at
#RCNCongress2023
If you're in Brighton why not go along - it's in Room 1D
@Leona_Cameron01
@RCNMandLForum
@RehanaAzam
@LCNMUK
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Calling all healthcare workers with Long Covid in the UK. If you’re interested in group litigation read this blog by
@LCD4A
now.
@LCNMUK
@ScotHWCoalition
@LongCOVIDPhysio
@darrenabrown
@KeyWorkerPetUK
Graphic by
@LongCovidSOS
and
@long_covid
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Passionate about making a difference? We're seeking a volunteer social media manager to promote our mission of supporting healthcare workers with Long Covid. If you're creative, compassionate & committed, we want you! Apply now:
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We'd like to hear your story. Either as a brief testimonial or a longer blog (or vlog). Help us get the word out there.
#NHSHeroToZero
@JCeoltaSmith
@long_covid
@LongCovidSOS
@LongCOVIDPhysio
@LCNMUK
@LCD4A
@rogerkline
@AnnKeen11
@EmmaSamms1
0
8
13
@BuDs_UK
@alitwy
This is unbelievable
@1goodtern
@EvonneTCurran
@SafeDavid3
@LongCovidSOS
@long_covid
@LCNMUK
@LongCovidKids
0
2
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Our second Cognitive Dysfunction Support Group meeting for UK
#HealthCare
workers will be held online at 1230 on June 12th! Sign up today and get involved-post your questions in advance on our dedicated forum.
#LongCovidshh
-uk.org/event/cd1/
#CareForThoseWhoCared
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10
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Are you are healthcare worker living with Long Covid in the UK? If so we'd love to hear your story. Please email a short statement, a blog or a vlog to: mystory
@shh
-uk.org
1
11
14
A really useful summary by
@WesElyMD
about the cognitive impact of Long Covid and other symptoms that prevent people returning to work. This includes 1000s of healthcare workers. Where is the support for them?
#NHSHeroToZero
@JCeoltaSmith
@ScribblerPen
@RehanaAzam
@longcovidwork
“They are left with tremendous inability to process things cognitively”
#LongCovid
“Listen to them, show them mercy, and that means being willing to dive into the chaos of their lives”
@WesElyMD
🧵 1/2
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Have you read (watched) this week's blog yet? In this video
@WesElyMD
summarizes the results of a study about the impact of Long Covid 2 years down the line.
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Exciting news!
We now have a limited number of Long Covid Awareness pins available for purchase via our shop. These will be sent out on or after 11th March. Go to: to purchase yours. Cost £6 for one or 4 for £20.
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Despite the claps in 2020, NHS workers with Long Covid have been abandoned by the Government. Many of them have lost their jobs and are facing financial destitution.
@SupportingHH_UK
is a charity set up to advocate and support these healthcare workers.
#CareForThoseWhoCared
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Long Covid course is ‘exploiting people’, says ex-GB rower - worth a read ⬇️⬇️⬇️
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NHS and healthcare staff - we’ve been asked to find out how prevalent the following practices were/are: (2 tweets)
1. FFP3s or FRSMs being withdrawn from the 'PPE stockpile' and which had been allowed to go way beyond their expiry date being relabelled and issued.
Yes
19
Not aware of this
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This is heart breaking, but could have been written by so many
#healthcareworkers
. They gave their all through the
#pandemic
, and have now been left with nothing, unable to work. We're here to help those with
#LongCovid
- show your support by following us as we become a charity
'My worst day was losing eight patients in one shift. I cried for two days'
Heart-breaking testimony from NHS staff at the Covid Inquiry.
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Is it any wonder that so many
#healthcareworkers
are left to fend for themselves by the government when they are thought of in the same way as the once vilified
#gulfwarsyndrome
sufferers?
#longcovid
The
@covidinquiryuk
is shown proof that Boris Johnson wrote “Bollocks” on a document explaining
#LongCovid
in October 2020.
His dismissal of “
#GulfWarSyndrome
stuff” is offensive to the brave servicemen & women who had their lives ruined by exposure to sarin gas.
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Calling all Volunteers!
Join us at SHH-UK in supporting UK healthcare workers living withLong Covid. From fundraising to social media support, there's a role for everyone. Let's make a difference together!
#CareForThoseWhoCared
0
13
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UK healthcare worker living with Long Covid? Share your story to raise awareness! Whether it's a brief testimonial or a longer blog/vlog, your voice matters. Email us at: story
@shh
-uk.org
#CareForThoseWhoCared
0
11
13
I dare you to read this thread and not feel anger at how our
#healthcareworkers
were treated during the pandemic. So many were left broken. Thank you
@doctor_oxford
for putting what you went through into words. We hope to be able to help those left in need of assistance soon
#nhs
1/ The sheer depths of Downing Street’s wretched incompetence, arrogance, narcissism & macho posturing revealed this week shock precisely no-one who worked in the NHS during Covid.
Let me remind you (as I did at the time) what those early hellish days of Covid were like for us.
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Happy International Nurses Day to all the RNs out there with Long Covid. We are thinking of you all especially today.
@LCNMUK
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Are you a member of
@thercn
? If yes, please complete this survey:
There is a link within the survey taking you to a survey specifically about
#LongCovid
. Completing this will mean the RCN are better able to campaign on members' behalf.
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In yesterday's Long Covid story Steven tells his story . He describes a lack of PPE available, returning to work & catching covid again. Life is a relentless battle: terminated contracts, health complications, dwindling social circles.
#CareForThoseWhoCared
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So why are we forming a
#charity
? There is no national data detailing how many
#NHS
staff have
#LongCovid
in the UK. The DHSC has confirmed they do not hold this data, nor do they intend to collect it… 1/n
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Long Covid – What can we learn about the cause and management from ME/CFS? - Evidence-Based Nursing blog
This
@EBNursingBMJ
blog is definitely worth a read.
@MEAssociation
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5
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Thinking of returning to work with Long Covid? Supporting someone living with Long Covid to return to work? Why not watch Clare Rayner’s
@SOMnews
webinar:
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4
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Happy International Women's Day to all the women healthcare workers out there with Long Covid. Remember you are awesome and we stand alongside you.
#CareForThoseWhoCared
1
6
12
Want to know more about what Long Covid is? Why not watch this
@longcovidphysio
video describes what Long Covid is:
@rogerkline
@nurseswift
@bjgw
@shirtyphil
@ProfEmer
@DianaKloss3
@FeliciaJCox
@maxwele2
@alisonleary1
@AlexHeffron20
1
8
12
We're pleased to announce our first Cognitive Dysfunction Support Group meeting for UK
#HealthCareworkers
, to be held online on March 20th. Sign up today and get involved - post your questions in advance on our dedicated forum.
#LongCovid
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8
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We are almost ready to submit the initial paperwork to the Charity Commission.
One of the things we need to do is show we can raise money. We've set up a JustGiving page. Please donate if you can:
We are grateful to people who have already donated.
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We've just published our latest post/link - A call to action from the Long Covid Doctors for Action (LCD4A) - Click the link to read all the detail
#LongCovid
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This week's blog is now live. “Forgotten Heroes” – The sequel ….
In the blog
@SafeDavid3
provides some important resources for healthcare workers with Long Covid. Thank you
@SafeDavid3
for all the work you have done pulling these resources together.
1
8
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Missed
#Breathtaking
? Dive into our latest 'Long Covid Story' with Brenda for a first hand account of NHS frontline struggles. Discover her journey in her vlog:
#CareForThoseWhoCared
0
13
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It's
#LongCovidAwarenessDay
. Why not listen to the latest
@EBNursingBMJ
podcast by two of our trustees -
@MichaelaBarnard
and
@alitwy
:
#ConfrontLongCovid
#CareForThoseWhoCared
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@doctor_oxford
@ITVX
Our Chair
@alitwy
recorded this video after watching
#Breathtaking
last week. Many of the healthcare workers who caught covid didn’t get better.
#LongCovid
#CareForThoseWhoCared
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Important paper here from
@RebeccaOwen13_
(1/6) Very proud to share that the second paper from my PhD has been published highlighting the lived experience of
#longcovid
, and the significant reduction that long COVID has on QoL, as well as healthcare experiences of those seeking help in the UK.
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Our chair
@alitwy
is in the extremely clinically vulnerable group. Please sign this petition for her and people in a similar position. Thank you.
If you 💕💕💕
your elderly relatives
If you 💕💕💕
someone with an 'underlying condition'
If you care for the safety of others
SIGN and SHARE our
#MasksInHealthcare
petition
🚨Today is the final day!🚨
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Whilst we wait a response from the Charities Commission we continue to fundraise so we can hit the ground running once we're approved. Support us now so we can get on with supporting those
#healthcareworkers
#nhs
who are struggling to cope with
#longcovid
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9
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Great 🧵on what Covid can do to your brain. More than enough evidence to show Covid causes lots of ongoing problems.
1/🧵Your brain “on COVID”🧠
Let’s integrate >20 studies on
#LongCOVID
neuropathology
My 24 y/o patient explained: “I don’t have a future because I can’t think anymore.”
Let’s talk:
Autopsy Studies
Viral persistence
Brain Size & Disability
Recovery & Hope
H/T pic 👁��� tw 13
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UK healthcare worker living with Long Covid? Share your story to raise awareness! Whether it's a brief testimonial or a longer blog/vlog, your voice matters. Email us at: story
@shh
-uk.org
#CareForThoseWhoCared
0
6
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@KeyWorkerPetUK
It shouldn't have come to this but we are one step away from becoming a charity who'll offer financial assistance and support to
#healthcareworkers
with
#longcovid
who've been abandoned by their employers. Please follow and support us where you can.
1
6
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We'd like to hear your story. Either as a brief testimonial or a longer blog (or vlog). Help us get the word out there.
#NHSHeroToZero
@JCeoltaSmith
@long_covid
@LongCovidSOS
@LongCOVIDPhysio
@LCNMUK
2
4
10
The German health minister here giving an update on the situation regarding long Covid in Germany - something the uk government could learn a lot from
#LongCovid
#nhs
German Health Minister Karl Lauterbach provides a crucial update on the ongoing Long COVID situation, as Germany faces a new wave amidst the holiday season.
(with English subtitles)
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@Saffiya_Khan1
@helenessex2
This blog by our chair
@alitwy
discusses the need for healthcare professionals to have appropriate RPE: .
1
5
10
HEPA filters in healthcare settings reduce covid-19 infections in staff and patients. This demonstrates they effectively removed covid-19 particles from the air. Find out more here:
#CareForThoseWhoCared
0
6
10
Have you read it yet? Don't forget to read this week's blog by
@SafeDavid3
. If you're a healthcare worker with Long Covid this blog is for you:
@thercn
@RehanaAzam
@pauljebb1
@MidwivesRCM
@UniBham_Nursing
@nursesunited
@KimSunley
@LCNMUK
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7
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#Breathtaking
tells the story of the nightmare faced by NHS workers during the pandemic. Thousands of those healthcare workers never recovered and are living with Long Covid which has had a huge impact on their lives - personally and professionally.
#CareForThoseWhoCared
1
7
10
We'd like to hear your story. Either as a brief testimonial or a longer blog (or vlog). Help us get the word out there.
#NHSHeroToZero
@JCeoltaSmith
@long_covid
@LongCovidSOS
@LongCOVIDPhysio
@LCNMUK
@LCD4A
@rogerkline
@AnnKeen11
@EmmaSamms1
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We are delighted to see that
@theRCN
resource for managers on supporting staff with Long Covid is now live:
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Are you are healthcare worker living with Long Covid in the UK? If so we'd love to hear your story. Please email a short statement, a blog or a vlog to: mystory
@shh
-uk.org
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@alitwy
@theipaper
@TimesRadio
@kaitborsay
@FYI_SkyTV
@SkyNews
@BBCFergusWalsh
@Ruth5News
@BBCMorningLive
@GMB
@5_News
@Rebeccasmt
@BBCNews
@BBCHughPym
@guardian
@thetimes
@ShaunLintern
@Telegraph
@SummerBG
@LindaGeddes
@mimilaunder
@HSJAnnabelle
@journo_kituno
@Alibaabra
@mimilaunder
@FayeMDeSilva
@samueljlovett
@HSJEditor
@Megan_Ford97
@SteveJFord
@ella_devereux
@vsmacdonald
@ShelaghFogarty
@JenWilliamsMEN
@rowlsmanthorpe
@_ShrutiST
@NurseinPractice
@NursingNotesUK
@EBNursingBMJ
@RCNi_Richard
@rcni
@RcniJ
@RCNijournals
@IndyNurseMag
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Opportunity!
@SupportingHH_UK
needs your help. Scan the QR code below or go to for more info about how you can support our vital work supporting healthcare workers living with Long Covid in the UK..
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@LongCovidSOS
Cognitive dysfunction post-covid is very real and scary. It means many people aren’t fit enough to go back to work. It’s a patient safety issue in healthcare
#NHSHeroToZero
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Have you read this week's blog yet? It provides a list of resources relating to returning to work with Long Covid. Why not read it now?
@LongTiredRoad
@octoberpoppy
@KellyMMeiners
@MEAssociation
@runrobinrun73
@BuDS_UK
@SGriffin_Lab
@Saffiya_Khan1
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You can donate via our website using a credit card or your PayPal account-as a one off, or as a monthly donation. Your donation will go straight toward our efforts to supporting those healthcare workers living with Long Covid.
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This is a really important paper by
@trishgreenhalgh
and colleagues. Masks and respirators for prevention of respiratory infections: a state of the science review
#MasksWork
#CleanAirInHealthcarwNow
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UK healthcare worker living with Long Covid? Share your story to raise awareness! Whether it's a brief testimonial or a longer blog/vlog, your voice matters. Email us at: story
@shh
-uk.org
#CareForThoseWhoCared
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