Oonagh Cousins
@oonagh_cousins
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Oxford University @long_covid #ThereForME 'Anti-Recovery Activist'
Joined September 2015
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Pinned Tweet
My interview on sky this evening.
Wasn't expecting so many of the questions to be about the historical context - it was brilliant to have the opportunity to talk about that!
Thank you so much
@skysarahjane
#ThereForME
Sky News segment
@oonagh_cousins
from the
#ThereForME
campaign talks about the debilitating effects of
#LongCovid
, similarities with
#MECFS
, the debunked psychological approach, and lack of biomedical research.
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I spoke to
@BBCSport
recently about my experience with Long Covid. I feel very grateful to be able to tell my story - so many people are suffering without a voice or the support they need. Progress is happening but *so* much more needs to be done.
#LongCovid
@oonagh_cousins
was left wondering what might have been after being forced to prematurely end her rowing career.
She spoke to
@BBCSport
about her story 💬 ⤵️
#BBCRowing
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I recently spoke to
@thetimes
about my experience with Long Covid,
#ThereForME
campaign and the extremely damaging stigma surrounding chronic illnesses.
Thank you very much
@eleanorhayward
for this piece and your work covering this issue.
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1/ Having long Covid made me so aware of the expectations we have of what a "good ill person" looks like. I consistently felt pressure to be falsely positive about my illness in order to make people around me feel less awkward.
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Massive thanks to
@rachelschraer
and
@Paul_Grant1
for this, and to everyone who contributed. Very grateful for the care that was taken and to be given the space to properly explain my point of view. Think I should add 'anti-recovery activist' to my bio?!
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Feeling a bit emotional after the BBC coverage of
#ThereForME
this morning!
A heartfelt thank you to
@KarenLHargrave
and
@GoreLloyd
cofounders of
#ThereForME
, whose efforts made this coverage possible
Thank you also to
@BinitaKane
and Dr Weir for their brilliant live interviews
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1/ Thank you very much
@bbc5live
for talking about Long Covid and inviting me on to share my experience.
(I did say many people don't recover even with rest, but didn't make the clip)
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Feel so fortunate to have spoken at
#UniteToFight2024
earlier today. I had a fair amount of get off my chest about GET/CBT! Thank you very much to everyone who listened and the Unite to Fight team who have done an incredible job pulling this event together.
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Just a heads up - I'm going to be on
@SkyNews
speaking to
@skysarahjane
(in studio!) this evening (between 8 - 9pm) about Long Covid, ME and the
#ThereForME
campaign.
Looking forward to it!
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Feels like there is a bit of media momentum at the moment!
#ThereForME
campaign will be on BBC breakfast at 7am tomorrow.
@BinitaKane
will be giving a live interview as well as a pre record with
@KarenLHargrave
and me.
For our
#ThereForME
supporters - a heads up that we’re hoping to have a segment going out on
@BBCBreakfast
tomorrow.
Expected to go out circa 7am - pre-record with me &
@oonagh_cousins
+
@BinitaKane
live in the studio.
We’ll let you know any scheduling changes!
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1/ The most severe ME patients are receiving the lowest quality of care. Many fear a hospital stay will make them worse.
🏥 Led by
@BinitaKane
, 202 healthcare professionals and
#ThereForME
have written to the
@DHSCgovuk
on
#WorldPatientSafetyDay
urging action.
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This!! One of the reasons I am grateful I was a professional athlete when I got LC is that I knew to stop training at signs of illness. When I heard about GET I was horrified - it flies in the face of basic principles of health and recovery
Exercise isn't good for sick people, regardless of the illness. It isn't good for colds, flu, or any other type of infection. The only reason physicians recommend exercise for ME/CFS (or long covid) is that they don't believe it is an ongoing physical illness.
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Doing this 🧵again because I didn't make myself clear:
1/ I've always felt a bit torn about my media interviews—they often focus on losing the Olympics, which is obviously hard, but not the hardest part of LC. The stories also very rarely explain the historical context.
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My presentation for
#UniteToFight2024
has changed: as well as participatory research methods, I have added a section about rest and how the GET/CBT paradigm is both useless and extremely harmful. Really looking forward to speaking - the conference is this Wed/Thurs.
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Media coverage is great, but what we really need is action. There are hundreds of thousands suffering, just in the UK. We need an NHS that's
#ThereforME
and Long Covid.
We are waiting for a response to our letter to
@wesstreeting
.
I can’t say enough that we are the tip of the iceberg. There are so many others who need an NHS that’s
#ThereForME
.
3 weeks ago we sent a letter to
@wesstreeting
signed by over 2,600 patients & carers. We believe this government can create change - but so far, no response.
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After a crazy day I just want to say a massive thank you to the brilliant
@KarenLHargrave
and
@GoreLloyd
A huge amount of work has gone in behind the scenes to launch this campaign and get it in the media. So pleased for them to see the brilliant coverage today
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✍️Due to the influx of support from healthcare professionals after the
#ThereForME
open letter was published, we're compiling a second list of signatories!
Follow the link to add your signature here:
Please note we are looking for *UK-based HCPs*
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1/ I recently started work at Oxford University, on a Long Covid research project as a patient representative from
@long_covid
. It's a fantastic project, that is being run according to the 'participatory research' method - where patients are engaged as equal partners.
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My Unite to Fight presentation is up on YouTube!
Structured in three parts:
1. My illness timeline
2. Why GET/CBT is useless and harmful
3. The Oxford research project I am currently part of.
📢 New video online!
Oonagh Cousins (
@oonagh_cousins
) discusses her
#LongCovid
journey, Pacing, the harmful role of GET, and participatory research at
#UniteToFight2024
. Discover her insights and experiences!
📽️ Watch now:
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@GeorgeMonbiot
"ME is the Greatest Medical Scandal of 21st century"
Who is going to cover it?
@jonstewart
@iamjohnoliver
@TheDailyShow
@LastWeekTonight
#JohnVsJonVsME
#GreatestMEdicalScandal
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This. It has been deeply disappointing to realise that there are far far too many doctors/healthcare professionals who would rather tell a patient their disease is in their heads, than say "I don't know".
Yet another thing that’s ‘all in people’s minds’ until the real cause is found. We had it with MS, we had it with HG pregnancy sickness. Perhaps a little more room in doctors’ minds for ‘I might not know the answer/ have right test yet’ is warranted
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"We psychologise illnesses we don't understand. We project this ignorance onto patients. This must stop."
@zalaly
🗣️🗣️🗣️🗣️🗣️🗣️🗣️
As Physician and Scientist Dr. Ziyad Al-Aly told me tonight, we must initiate the conversation to solve the problem of long covid despite pandemic fatigue. I’m going to stay on this as long as it takes until we get answers.
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1/ In August, 2,600
#ME
&
#LongCovid
patients and carers signed a letter from
#ThereForME
to
@wesstreeting
.
We received a response last week, but we're disappointed he didn’t reply personally or agree to meet. Patients deserve respect and real engagement.
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“We must accelerate research into ME. Had there been investment at an earlier stage, we would have had greater scientific knowledge and perhaps even treatments available which could have prevented many more people suffering with ME-like symptoms following Covid-19 infection."
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Hi Twitter hive mind - I'm looking for the most reliable statistics on the economic impact of LC in the UK. Any recommendations or trusted sources you can point me to? Thanks in advance!
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Wow.. being aware of Long Covid and seeing it get so little of the attention it deserves can be a disorientating experience. Seeing a government minister lay it out in plain terms is very refreshing.
German Health Minister Karl Lauterbach provides a crucial update on the ongoing Long COVID situation, as Germany faces a new wave amidst the holiday season.
(with English subtitles)
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Just scrolled through the
#ThereForME
hashtag and feeling incredibly grateful for the LC/ME community. From 200+ healthcare professionals' signatories, national broadsheet coverage of NHS's systemic failures for pwME, to the overwhelming response on social media—thank you!
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Dr. Becky Williams and
#ThereForME
on BBC2 this morning 🙏
#ThereForMe
campaign gets national TV coverage.
Highlights from today's BBC Breakfast. Features previous segment of Dr Becky Williams and the letter signed by over 200 other healthcare workers calling on the government to provide better support.
#MECFS
#LongCovid
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I can't believe it's only been 2 months of
#ThereForME
!
It's been amazing to join
@GoreLloyd
and
@KarenLHargrave
and see it grow so quickly.
💥 Thrilled to welcome
@BinitaKane
as our
#ThereForME
ambassador - so looking forward to what's next and continuing our collaboration!
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"Looking after the lives of the nation is the basic responsibility of our leaders and he [Boris Johnson] consistently put his ego and self interest ahead of that."
Felt v good to say that on TV.
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@wesstreeting
we hope you saw the coverage on
@BBCBreakfast
today! We are calling for an NHS that is
#ThereForME
and
#LongCovid
. We would love a response to our letter and to arrange a meeting.
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Hey long Covid twitter (/anyone else!) I would really like to understand more about how the chronic effects of viruses have historically been ignored. If anyone has any reading recommendations could you possibly drop them below please? Many thanks!
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6/ I think any coverage is better than none, especially if the 'athletes can get Long Covid too' angle helps to dispel misconceptions. That said, I completely agree with Valerie that addressing these broader issues is crucial.
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We've added another 60+ signatures to our World Patient Safety Day letter. 🙌 Past or present HCPs, there's still time to sign – the deadline is today! Thank you all for your incredible support and for sharing. Link below.
#ThereForME
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Fantastic interview with Karen Hargrave, co-founder of
#ThereForME
, about the lack of care for ME patients in the NHS.
Huge thank you to
@_NatashaDevon
for taking the time to talk about this important issue.
Today I spoke to Natasha Devon on
@LBC
about the inquest into the death of Maeve Boothby-O’Neill and the need for safe NHS care for ME.
The biggest thanks from
#ThereForME
to Natasha for continuing to cover this and for helping our voices to be heard.
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2/ What I found truly devastating about Long Covid was losing my ability to perform basic tasks for months/years and the uncertainty of recovery.
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You can see the whole clip here:
Thank you very much
@ABrokenBattery
for getting this video up so quickly.
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@WoollerEmma
This is one of my favourite parts of this whole thing. I spoke about mental health in the original article that led them to contact me and they mentioned that in their initial emails. I think they thought I was an easy target.
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It looks like the twitter campaign had an effect!? Amazing! 👏🏼👏🏼👏🏼 Hope they cover the decades of gaslighting and harm to ME patients (interviewing
@exceedhergrasp1
would be a brilliant place to start!)
#GreatestMEdicalScandal
Weekly Pod w/Jon Stewart, 6/27: "..the long COVID community...we're talking about millions of people residual effects from getting these infections & have been debilitated..progress and research, glacially slow..that'll be really interesting to get into.."
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“There’s this stigma and discrimination that it only affects people who are lazy or don’t look after their health. But I trained 25 hours a week. My whole world revolved around my body and my health. And that didn’t stop me from being completely debilitated by long Covid."
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Hi
@RuthCadbury
, just following up on the email I sent about our campaign for an NHS that's
#ThereForME
and Long Covid. As my local MP, your support in addressing these health issues would mean a lot to us. Looking forward to your response.
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Latest
#ThereForME
blog out today!
It discusses the (sometimes overwhelming) media requests we've received and the noticeable shift in the quality of questions from journalists who seem to be very open to learning about the issues around LC and ME.
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@RobertHMcMullen
@TheNewsQuiz
Hi
@TheSimonEvans
Can I invite you to complete a day of Olympic rowing training? Meet at the club at 6am with 40k of rowing and a heavy weights session. This was my everyday before I got Long Covid. Let me know if I am the type of person who gets this illness.
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3/ I just needed to pragmatically explain the affects of the illness and that I was no longer living life as healthy Oonagh, in order to manage expectations of me - but a lot of people were uncomfortable with the conversation.
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4/ I was really pleased to see the historical context point made in the recent Times article. It seems campaigning for both ME and LC through the
#ThereForME
campaign means there is more space for it. There is also a BBC piece coming up that should hopefully explain this more.
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2/ Combine that with the fact that most people have no idea how severe long Covid can be / how long term it is and a lot of people had no idea how different my life looked and that I had no idea when normality might return. I didn't want/need sympathy.
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👋 Tomorrow at 9am UK time,
#ThereForMe
is launching something new for
#WorldPatientSafetyDay
in collaboration with
@BinitaKane
Follow
@KarenLHargrave
@GoreLloyd
and me for updates!
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5/ More recently I have also tried to center severely ill patients, as I have learnt more from the community. But again I have yet to see these quotes make the story.
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Covid is in all of these countries, but it is only in the UK that the share of working age people out of employment has risen post pandemic. I would predict that LC is contributing to this UK trend but these graphs would suggest there are also other factors at play.
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Really honoured to participate in this patient led conference and so looking forward to sharing the benefits of participatory research. Thank you
@U2Fight_World
for all the work organising this event.
New speaker announcement 📢
In March 2020, Oonagh Cousins (
@oonagh_cousins
) was preselected for the Olympics as part of the GB rowing team.
#LongCOVID
forced an early retirement from professional sport and now she is completing a Social Sciences Fellowship at Oxford University,
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3/ I have tried to highlight this and the historical context (biopsychosocial theory, graded exercise therapy, lack of biomedical research etc), but that rarely makes the story.
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It's incredibly difficult to understand this decision.
@LongCovidKids
have extensive expertise and experience that would greatly benefit the inquiry. Children and families deserve a voice and the opportunity to hold decision-makers accountable. Please support their letter below.
Support our Open Letter to get Children and Young People Living with
#LongCovidKids
heard at
@covidinquiryuk
. With
@LCKScotland
and our Wales and Northern Ireland reps we need to be able to ask the hard questions, that the answers to will affect change!
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“I still have symptoms every day that I’m managing. It’s not something you can push through, because you just make yourself more and more sick. I can’t work full-time. I can’t do any exercise, apart from maybe a gentle 15 minutes. Anything beyond that triggers symptoms.”
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I am receiving lots of supportive messages in response to the interviews - thank you, really appreciate it.
I just also want to shout out the many other volunteers who have done an immense amount of work around the campaign and the inquiry, which is often a bit more invisible.
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@ABrokenBattery
Thank you to
@BBCBreakfast
and
@BBCSophie
for highlighting this issue.
We hope
@wesstreeting
and
@GwynneMP
were also watching this morning!
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Every time I'm stuck in the long, slow non-EU passport queue, I relive the grief and frustration of Brexit. I find it so embarrassing that Britain thought we would be better off alone instead of united with Europe.
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In the most recent blog for
#ThereForMe
@JennyWi04810918
shares her experiences from decades of living with and supporting people with ME.
"I remember a nurse hissing in my ear: “It is better to be dead than to have what you have.” I was trapped in a nightmare."
Link below
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1/ My friend
@EllaBarnard
has tonsillitis. She went to the doctors and received more care and understanding than she has in her entire 5 year experience of post-viral illnesses (glandular fever and then long Covid).
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2/ This may be optimistic, but l felt like Long Covid was a bit more on the map than it has been.
For the full interview, I start at around 2:11 into the program:
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6/ Collecting all the signatures the past few days has been very uplifting. The letter doesn't hold back, and seeing so many healthcare professionals add their names has meant the world. Thank you all so much.
And a special shout out to
@BinitaKane
for leading the change.
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This is so fantastic!! 👏🏼🙏🏼🇩🇪
Thank you for the explainer
@useless_priest
This video about Long COVID and ME/CFS is now trending
#5
on YouTube 🇩🇪
Below I'll do a summary of the piece for those who don't have the energy to go through it 👇
🧵
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Good to see
@GwynneMP
responding to the patient community's feedback and is working to get this cross-government delivery plan published. Building an NHS that is
#ThereForME
can't happen soon enough.
@KatyBruce108
It isn’t being delayed again… I’ve asked my officials to publish the plan, which they will now do. The last government sadly stalled the process. Officials are now putting everything together and I should have something to see very soon pending publication.
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Long admired the work David has done, so it was really cool to have the opportunity to meet him. We spoke about the lightning process 👇🏼
I recently interviewed Oonagh Cousins, the world-class rower who had discussed her negative assessment of the Lightning Process with the BBC. I wanted to hear more about her LP experience and find out what she is up to now.
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This was brilliant! Huge thank you to all involved.
A fantastic segment on the
#GreatestMedicalScandal
Full segment (44 mins edited)
LBC call in with Natasha Devon discussing
#MECFS
, Simon Wessely, George Monbiot's recent article, the history of ME and the impact of Graded Exercise and CBT.
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7/
#ThereForMe
believes that all patients deserve safe care from the NHS.
We urge
@wesstreeting
@andrewgwynnemp
@dhscgovuk
to take action today.
#WorldPatientSafetyDay
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Hi
@wesstreeting
and
@GwynneMP
🧑🏼⚕️ Over 200 healthcare professionals are asking for action & leadership from
@DHSCgovuk
to enable safe NHS care for
#pwME
.
Read our
#WorldPatientSafetyDay
open letter to
@wesstreeting
here:
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#ThereForME
has published a report, endorsed by 15 LC and ME organisations, asking the government to commit to an NHS that’s there for Long Covid & ME.
Go to to see how you can lend your support (if you are able!)
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3/ It's PPI in its fullest and most beneficial form. Our project's website launched today - and I have written a blog about the benefits of participatory research. Click the link to read.
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Karen doing a brilliant job on
@BBCLookNorth
👏🏼
Hope
@wesstreeting
and
@GwynneMP
were watching!
@DHSCgovuk
#ThereForME
BBC Look North clip of
@KarenLHargrave
talking about the
#ThereForME
campaign and the letter signed by over 200 healthcare calling for urgent action to improve care for people with severe
#ME
and
#LongCovid
.
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3/ “There probably is not a worse condition you can have as a patient in the NHS, because it is this unique situation where the more severely ill you are, the less care you get.”
@BinitaKane
Read the
@thetimes
piece covering our letter here:
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2/ I've only been there for 3 months but I am so inspired by the way
@BethJGreenhough
and Maaret Jokela-Pansini work. The participatory method should hopefully mean more representative research output, but it goes beyond that - it also empowers patients to drive positive change
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2/ Last month, over 2,600 patients and carers wrote to Wes Streeting and we recently received a disappointing response.
📢 Now healthcare workers are joining the call to action.
You can read the letter here:
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3/ This is just the beginning. Hopefully you’ll be pleased to hear that we have plans to ramp up our efforts and continue applying pressure. Stay tuned for updates as our campaign continues.
#ThereForME
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📧 Quick reminder that the best way to stay updated on the
#ThereForMe
campaign is by subscribing here:
Huge thanks to the LC/ME community for all the support this past week!
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Thank you to the brilliant team behind
#JohnVsJonVsME
campaign, this time with an Olympic twist! Get your memes/jokes/songs ready for this weekend! 📢🎉🏅
#GreatestMEdicalScandal
@ElizaCharley
@_diatoma
@PhillyPhile215
@emilyesfraser
Direct from Paris,
@oonagh_cousins
has a special announcement!📢📣📢
#JohnVsJonVsME
#GreatestMEdicalScandal
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We're off!!! Share your MEmes/songs/jokes
#GreatestMEdicalScandal
#JohnVsJonVsME
And we’re off!!!
#JohnVsJonVsME
Olympics Edition starts NOW! ⚽️🏀🏸🏑🏹🥋🥇🥈🥉
Like, RT, QT with which Jo(h)n you think will win
#JohnVsJonVsME
–John Oliver or Jon Stewart– and be the first to cover the
#GreatestMEdicalScandal
!!! 🧵
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4/ Becky Williams spoke to the BBC about her experiences with Long Covid and the letter here:
A *huge * thank you to Becky and who has done a massive shift over the past few days collecting so many of the signatures.
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Back from a week off and catching up with
#ThereForME
. In last week’s blog,
@BethJGreenhough
& Maaret Jokela-Pansini discussed how social science can support an NHS that’s
#ThereForME
& LC.
So grateful for the chance to work with them both this year on this project.
Link 👇🏼
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Opportunity for mainstream reporting on the many snake oil treatments exploiting ME patients. More info below.
.
@Telegraph
Media Request: Case Study needed: Negative experience of alternative therapies/healers for ME treatment
Deadline: End of the Week (preferably by the end of the day on Wednesday)
Journalist Sophie Wilkinson adds: "She would like to speak to people that have likely
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@campbellclaret
@RoryStewartUK
@RestIsPolitics
we would really love to speak to about our
#ThereForME
campaign - we are calling for a transformation in care and research funding for those with Long Covid and ME.
“We get a LOT of questions about Long Covid. We should probably come back to it and do it properly.”
@campbellclaret
to
@RoryStewartUK
on
@RestIsPolitics
Please do an episode on LC and ME/CFS.
Like, RT, comment to let TRiP know how important this is.
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5/ 📢 Help us amplify our campaign on social media!
Toolkit here:
Feel free to tweet anytime today, but a twitter storm at 16:00-17:00 UK time would really help catch the attention of the DHSC!
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It was brilliant to speak to
@Talmandaniel
on
@pempodcast23
Thank you very much for having me. This image is so good 😂🤣
I'm really excited about our next episode of
@pempodcast23
with
@oonagh_cousins
. We talk about her
#longcovid
journey, professional rowing, social sciences research and the dangers of the Lightning Process.
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A big thank you to
@dbkell
and
@resiapretorius
for their blog on
#ThereForME
, discussing potential uses for £100 million in research funding.
Click the link to read more:
Delighted to have
@dbkell
and
@resiapretorius
write for
#ThereForME
- kicking off our £100m challenge in style!
We asked them how they would spend £100m annual funding for biomedical research over a five year time horizon. They were not short of ideas!
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Thank you so much to everyone who responded to this question - it's now a really great thread of data on the economic impact of LC!
Hi Twitter hive mind - I'm looking for the most reliable statistics on the economic impact of LC in the UK. Any recommendations or trusted sources you can point me to? Thanks in advance!
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Agree with Gez. V unlikely that athletes would voluntarily sacrifice the chance to compete in the Olympics, even if it means risking long-term health consequences, whether related to COVID-19 or other health issues. The responsibility falls on the IOC/sporting bodies/govts
It’s probably unreasonable to blame someone for not following guidelines/rules that don’t exist - especially when the stakes are so high and it’s potentially a once in a lifetime opportunity.
My beef with this is with govts generally and the IOC for not talking about it.
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Huge thank you to everyone who has tweeted - let's keep going and get the attention of
@DHSCgovuk
(if you have the spoons!)
#ThereForME
#WorldPatientSafetyDay
@GwynneMP
@wesstreeting
@LaylaMoran
@PSCommissioner
If you can, join
#ThereForME
@oonagh_cousins
@GoreLloyd
on social media at 16:00-17:00 UK time today for a
#WorldPatientSafetyDay
social media storm.
Let's make
@DHSCgovuk
listen to our voices!
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Nice to see a constructive exchange on here 🙏 I do think we need to be careful on this point—I have seen some extreme takes circulating. Exaggerating the science only discredits us and looks like scaremongering. The burden of LC is horrifying without doing that.
This is a fair critique and correct. Could have done a much better job of communicating this point. Thanks for keeping me accountable for good sci comm and for contributing to our work!
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P.s. I am so wired now after be nervous all day about this. No sleep for me 😅
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@KarenLHargrave
and
@GoreLloyd
have put together a brilliant campaign calling for an NHS that is
#ThereForME
and Long Covid.
I wrote a piece about why I'm supporting the campaign 👇🏼 Link below.
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An article I co-authored with
@bethgreenhough
, Maaret Jokela-Pansini and
@JoD66
has recently been published. Our paper presents initial findings on the value of body mapping in supporting patients to communicate their experiences of Long Covid.
Thanks to our Ambassador
@oonagh_cousins
and Founding Trustee
@JoD66
for their hard work that went in to this paper. People can find it difficult to convey their
#LongCovid
symptoms and experiences in words. That’s where body mapping can really help.
➡️
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✍️I have just written a letter to my MP
@RuthCadbury
calling for an NHS that’s
#ThereForME
and Long Covid.
You can too. Template letter here:
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@cfs_research
If they genuinely cared about helping people they would engage with the feedback that this program has caused an immense amount of harm. Instead they accuse people of not wanting to get better - another very harmful thing to say to patients.
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#ThereForME
is collecting ideas for songs, books, poems, films or any other art that might help us communicate what it is like to have ME or Long Covid.
Fill out the form below. Really looking forward to seeing the responses!
ME & Long Covid community -
#ThereForME
wants to hear from you!
We're collecting ideas for a song, book, poem, film or piece of art that would help people understand what it's like to have ME or Long Covid.
FWIW a few on mine in the 🧵 below...
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1/ Recruiting for research! As part of my PPI work with the University of Oxford, I am looking for female participants to be involved in a bodymapping workshop. It's a social science project studying women's experiences of Long Covid.
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@RorPreston
@AlanCarson15
@RobWust
This is wild to me that I have to say this, but comparing DOMS to PEM is like comparing apples to oranges. Completely different bodily sensations.
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@cfs_research
I am not attacking their character - I'm attacking their business model of using me, who they thought may be vulnerable to this level of gaslighting, to reach other patients - and to continue to do harm. They gave it to me for free: this was a marketing strategy, nothing else.
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Brilliant documentary on the ME scandal. "The history of ME remains one of the worst examples of unacknowledged institutional abuse in modern times.” Valerie Eliot Smith 2019
I wish everybody covering or working on
#ME
#LongCovid
#IACC
watched 'The Tangled Story of
#MECFS
' (2021) by
@DialoguesMECFS
. It's a great introduction with a wide range of featurable clips on
#GreatestMEdicalScandal
. Here are some moments/examples (1/x):
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