Adam
@ABrokenBattery
Followers
6,965
Following
1,321
Media
1,158
Statuses
5,191
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
Joined September 2017
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Send us removal request.
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Pinned Tweet
New Video: Post Exertional Malaise is the hallmark symptom of
#MECFS
and is also common in
#LongCovid
.
Video explains the abnormal response to exertion, triggers, symptoms and management.
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468
964
Highlights Baroness Brinton speaking at the Long Covid debate in the House of Lords 17 Nov 2022. She describes a study that is only looking at psychological factors as "breathtaking".
#longcovid
#mecfs
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2K
4K
BBC Look North. Dr Becky Williams, who has long Covid, and meets the criteria for ME/CFS has joined over 200 other healthcare workers calling on the government to provide better support.
#ThereForME
campaign
BBC Look North segment on
#MECFS
and
#LongCovid
(3 mins)
A doctor from Leeds who developed long Covid and the debilitating effects of ME has said NHS patients like her have been “left to rot” and calls for better NHS care
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1K
"I spoke to the GP about it [Long Covid] & he advised me to do this thing called Graded Exercise... when I looked it up loads of people who had ME/CFS or anything like this was saying this is the worst idea, you must not do this"
Skys technology correspondent
@rowlsmanthorpe
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321
1K
Full article from today's Times
"The NHS has been told to stop dismissing and stigmatising patients with myalgic encephalomyelitis (ME) under a government plan to overhaul care for the debilitating illness."
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360
964
New video: What is ME/CFS?
A brief overview of symptoms, diagnosis and treatment based on the 2021 NICE guideline. Its not being tired all the time, patients have an energy impairment that dramatically limits their activity.
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395
899
Highlights segment about
#MECFS
on BBC Breakfast. Dr William Weir and
@BinitaKane
talk about the history of
#MECFS
how it has been psychologised and the frustrating lack of progress. There are now millions of patients with Long Covid and we have no treatments.
20
388
920
“It wasn’t science it was misogyny”
George Monbiot, talking about
#MECFS
and the influential 1970 McEvedy/Beard paper on Double Down News in 2021.
They didn’t interview any patients and concluded an outbreak of ME was mass hysteria because the majority of patients were women.
16
355
879
George Monbiot described the treatment of
#MECFS
as "one of the greatest medical scandals" & "this is about how the scientific and media establishment closed ranks around bad science, defending it from legitimate questioning and criticism."
#GreatestMEdicalScandal
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306
694
The
#MECFS
Community were the first people to say "there is a wave of disability coming [Long Covid] & these people will be told there is nothing we can do for you & their symptoms will be attributed to psychological causes.
#LongCovid
@oonagh_cousins
from
#ThereForMe
campaign
Highlights from tonight's Sky News segment on
#MECFS
and
#LongCovid
@oonagh_cousins
from the
#ThereForME
campaign talks about the obstructive influence of the theory that
#MECFS
is psychological. And how a generation of doctors have been trained on this outdated approach.
5
121
389
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698
New Video: Very Severe
#MECFS
is a debilitating condition causing profound suffering and life threatening symptoms. They are bedridden and dependent on care. Most doctors have had no training; leading to misdiagnosis, Inappropriate management and medical neglect.
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345
638
Highlights of
@ahandvanish
speaking at todays
@COVIDOversight
hearing.
"Over half of
#LongCovid
patients will develop
#MECFS
, dysautonomia or both. ME/CFS is one of the worlds most disabling Illnesses..."
Link to the start of the 5 min speech.
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290
611
🧵Gulf War Syndrome & Simon Wessely
"For 30 years they have been disowned, ignored and lied to by consecutive governments, with no positive answers to their questions about exposure to toxic substances and gases & the affect it had on them"
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265
595
Highlights of Dr Asad Khan talking about
#LongCovid
on AlJazeera.
"It is not psychological, just in the same way ME and Fibromyalgia and POTS are not psychological. What we do know is that exercise and talking therapies are not going to fix this."
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587
"You had your illness [ME/CFS] in the late 70s and 40 yrs later I've had something pretty much Identical [Long Covid] and in the intervening time span almost nothing has happened, we know almost nothing more about these diseases."
Skys technology correspondent
@rowlsmanthorpe
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#MECFS
is often referred to as neglected, under-researched and poorly understood. However this doesn't even scratch the surface when it has been described as one of the biggest medical scandals of this century.
#MEAwarenessDay
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585
🧵ME/CFS is often referred to as neglected, under-researched and poorly understood in the media. This is obviously welcome but feels like a disservice when it has also been described as one of the biggest medical scandals of this century.
- Explainer -
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Thank you
@krishgm
@JaneDodgeC4
Doctors have been taught to gaslight patients with
#ME
for decades. This video from the 90s teaches GPs that patients are frustrating to work with because they are mistaken about the cause of the illness and can often engage in arguments.
Myalgic encephalomyelitis: Lives devastated - and sufferers told it's made up
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2K
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Highlights from today’s Independent Sage on
#LongCovid
. Mentions overlaps with
#MECFS
, PEM, importance of pacing, lack of education & lack of acceptance of the underlying biology.
Long COVID clinics are not enough and not enough research looking at the underlying pathology.
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565
George Monbiot talking about ME/CFS on Owen Jones podcast, calling it "One of the greatest medical scandals of the last century" also mentions McEvedy and Beard, DWP, Insurance companies, Science Media Centre
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555
"We worship exercise, and exercise is good for most people, but when you have a post viral illness, it is the worst thing you can do... If you make people exercise they only get worse."
@doctorasadkhan
on Talk TV discussing
#LongCovid
, also mentions
#MECFS
.
Was interviewed by
@TrishaGoddard
about
#LongCovid
Listen from 1:26:00
#MECFS
#Lyme
#LongCovidKids
#WeAreNotATarget
#MedTwitter
#TeamGP
#POTS
#CleanAir
#Ventilation
#Schools
#COVIDisAirborne
#CovidIsNotOver
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Thread 🧵
After an extensive 3 year review NICE were going to stop recommending Graded Exercise for ME/CFS, due to lack of evidence and possible harm. The day before it was due NICE decided to halt publication after medical bodies were refusing to endorse it.
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495
Full article about
#MECFS
in today's Times
"Only 28 per cent of NHS trusts and integrated care boards (ICBs), the bodies responsible for health and care services in a local area, have implemented the Nice guidelines published two years ago."
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490
Highlights of
@DrSarahJarvis
on BBC Breakfast talking about Long Covid and it being "very like ME" also mentions the delay of the NICE Guidelines for ME/CFS.
Thank you for highlighting this.
23
110
445
A fantastic segment on the
#GreatestMedicalScandal
Full segment (44 mins edited)
LBC call in with Natasha Devon discussing
#MECFS
, Simon Wessely, George Monbiot's recent article, the history of ME and the impact of Graded Exercise and CBT.
35
215
446
Full article: My child died of ME’: a scandal waiting for its Post Office moment
Sean O’Neill is dreading his daughter’s inquest but hopes it will show the nation how people with the condition are routinely stigmatised and ignored by the NHS
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#LongCovid
"is not a psychological illness this is not a psychosomatic illness... the immune system has become very dysregulated as a result of the virus and its leading to these highly debilitating symptoms..."
@PutrinoLab
on PBS News Hour
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152
423
Long segment about
#MECFS
and
#LongCovid
on BBC Breakfast (15 mins) includes interviews with
@BinitaKane
Dr William Weir
@KarenLHargrave
@oonagh_cousins
Mentions symptoms, severity, history, Ramsay, NICE guidelines, problems accessing care and more
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196
433
#ThereForMe
campaign gets national TV coverage.
Highlights from today's BBC Breakfast. Features previous segment of Dr Becky Williams and the letter signed by over 200 other healthcare workers calling on the government to provide better support.
#MECFS
#LongCovid
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158
432
Trudie Chalder (PACE trial) is training health professionals on Long Covid. Describes Post Exertional Malaise as "Health anxiety" and an "Extreme behavioural response" states "Exercise is clearly not damaging" and recommends "Increasing exercise"
#LongCovid
#MECFS
150
176
408
Highlights of
@doctorasadkhan
talking about his experience of
#LongCovid
on BBC News "it is a myth that Long Covid and other invisible illnesses such as ME are psychological just because certain tests are normal."
17
125
404
Jonathan Ross gives an update on his daughter who has
#MECFS
,
#Fibromyalgia
and
#POTS
which she developed following COVID.
15
100
391
Sophia Mirza was wrongfully sectioned in 2003 because doctors didn't understand
#MECFS
. This caused a deterioration which ultimately led to her death. 20yrs later and it happened to Millie. It has been lifted but Millie continues to be mistreated.
#BringMillieHome
#DontLetMEDie
5
231
394
Highlights
@ahandvanish
talking about
#LongCovid
on CP24 News.
• causes significant number of cases of
#MECFS
• post viral research has not been funded
• there are no treatments for
#MECFS
• post viral illness not taught in med school
I spoke to
@CP24
about our paper, the vascular nature of LC, overlaps with ME/CFS & dysautonomia, & the need for immediate funding, clinical trials, & doctor education.
I truly believe within a few years, every family will have a member with
#LongCovid
.
23
291
719
10
158
383
Sky News segment
@oonagh_cousins
from the
#ThereForME
campaign talks about the debilitating effects of
#LongCovid
, similarities with
#MECFS
, the debunked psychological approach, and lack of biomedical research.
33
156
392
Highlights Baroness Scott speaking at the Long Covid debate in the House of Lords 17 Nov 2022.
Mentions similarities with ME, How ME has been ignored, the use of dangerous treatments, and how some Long Covid researchers are not using what has already been learnt from ME.
8
117
379
Highlights from tonight's Sky News segment on
#MECFS
and
#LongCovid
@oonagh_cousins
from the
#ThereForME
campaign talks about the obstructive influence of the theory that
#MECFS
is psychological. And how a generation of doctors have been trained on this outdated approach.
Sky News segment
@oonagh_cousins
from the
#ThereForME
campaign talks about the debilitating effects of
#LongCovid
, similarities with
#MECFS
, the debunked psychological approach, and lack of biomedical research.
33
156
392
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121
389
Hi
@ellapickover
,
@eblackburne
, I have put together a quick thread in response to your recent article 'New hope for 'incurable' disease that leaves sufferers shattered'. There may be some things you are not aware of.
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"Illness post viruses is not new its been around for decades we've got a condition called
#MECFS
... its been a very neglected area of research."
ITV Meridian Facebook discussion -
@StaceyPooleITV
interviewing
@BinitaKane
about
#LongCovid
in Children.
11
148
375
Clip from today's BBC Morning Live segment on
#LongCovid
Dr
@xandvt
talks about a new study that found
#LongCovid
has a greater impact on quality of life than some Cancers.
19
154
374
If you say something bad about the PACE trial three times in a mirror an author pops up to defend it.
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36
368
🧵 of clips from
#BBCBreakfast
about
#MECFS
@KarenLHargrave
's biggest fear is that her husband who has
#MECFS
following
#Covid
will deteriorate and need to go to hospital.
"I can't think of many other diseases where the more severe your symptoms are the worse your care is"
Long segment about
#MECFS
and
#LongCovid
on BBC Breakfast (15 mins) includes interviews with
@BinitaKane
Dr William Weir
@KarenLHargrave
@oonagh_cousins
Mentions symptoms, severity, history, Ramsay, NICE guidelines, problems accessing care and more
31
196
433
7
119
369
Andrew
@GwynneMP
at yesterday's
#MEdebate
talking about how half of people with
#LongCovid
have symptoms that mirror
#MECFS
and his personal experience of
#LongCovid
. "I was in bed for all of today, and I have only come in to give this speech."
16
115
363
Full segment (12 mins) Channel 4 News - Sean O'Neill (
@TimesONeill
) and Clare Norton discuss the death of their daughters from
#MyalgicEncephalomyelitis
and the negative culture and attitude from healthcare professionals that
#MECFS
doesn't exist.
11
145
358
Highlights of a
#DragonsDen
episode where
@dragonjones
explains why he didn't invest in a back pain reliever because there was no clinical research to back up their medical claims.
Would be interested to know if/why this level of scrutiny wasn't applied to acuseeds?
26
82
352
Highlights from today's BBC Points West segment on
#LongCovid
mentions overlaps with
#MECFS
, fatigue being a "misnomer", relapses aka symptom exacerbation from exertion, believing patients & how the government should have anticipated these post viral complications.
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347
The treatment of ME/CFS patients has been described as one of the biggest medical scandals of this century.
To understand why people are protesting today please read this thread including short explainer videos.
#ProtestNICE4ME
🧵⬇️
Thread 🧵
After an extensive 3 year review NICE were going to stop recommending Graded Exercise for ME/CFS, due to lack of evidence and possible harm. The day before it was due NICE decided to halt publication after medical bodies were refusing to endorse it.
24
220
495
4
207
337
Highlights from the
#LongCovid
debate in Parliament - Impact of
#LongCovid
on the workforce.
Mentions lessons from
#MECFS
, the importance of rest, setbacks from going back to work to early, don't exert yourself on a good day as you might be knocked out for a few days
#PEM
.
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106
331
Additional clip of Hannah responding to a question.
"Post viral illness happens after almost every virus from Mono to Ebola to West Nile... we should have expected this..."
5
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328
@LBC
@ME_Rogaland
This GP training video from the 90s highlights Wesselys model.
It downplays the severity dismisses a viral cause & claims that symptoms are due to a fear of activity and excessive rest.
It says patients are frustrating because they are mistaken and can get into in arguments.
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Shocked and saddened to hear of the horrific death of David Ammes MP. He attended the debate on ME in Jan 2019 and spoke compassionately on behalf of his constituents. He seemed such a gentle and genuinely caring man. May he Rest in Peace.
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Excellent article
- Long Covid, ME/CFS, and the Need for Allyship
"Imagine a chronic illness [ME/CFS] so horrific that a mild case might mean not being able to work ever again. A moderate case could mean rarely being able to leave your home for years at a time,"
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Today is
#SevereMEDay
Very severe patients “are similar to a critically ill patient 24 hours before they die, except they live like that for years and years,” - Professor Ron Davis of Stanford
Watch this video to learn more...
CW - New Video - Severe and Very Severe ME/CFS
Experts discuss PEM, pain, Orthostatic Intolerance, severity, relapses, poor access to services, lack of medical education, problems with nutrition and common psychological misdiagnosis like FII.
#SevereME
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Doctors who share “misleading” information on social media could face regulatory action, according to planned new guidelines.
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Letter from Prof. Jonathan Edwards (Expert Witness for the NICE ME/CFS Guideline) sent to Drs Flottorp, Brurberg, Knoop, Fink, Wyller and Garner about the "attempts to discredit NICE in the Comment on the ME/CFS Guideline in the Lancet and associated messages on social media".
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Trish Greenhalgh, Eric Topol and Julia Vogel discuss the claims that
#LongCovid
is in the mind at todays Independent Sage.
Julia Vogel said "this is building on decades and decades of dismissing disorders that are similar to this like chronic fatigue syndrome."
Alongside
@trishgreenhalgh
I’ll be hosting a discussion with
@EricTopol
and
@julialmv
about their Nature Review and the directionof
#longcovid
research and treatment. Also with us is
@dukester24
discussing health economic impact. Join us Friday ⬇️
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14
119
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ITV Granada reports segment about Millie who has Severe
#MECFS
and has been in hospital for 10 weeks waiting for a feeding tube because she has problems ingesting food.
#BringMillieHome
#DontLetMEDie
@gmcuk
@rcphysicians
@rcpsych
9
157
319
CW - New Video - Severe and Very Severe ME/CFS
Experts discuss PEM, pain, Orthostatic Intolerance, severity, relapses, poor access to services, lack of medical education, problems with nutrition and common psychological misdiagnosis like FII.
#SevereME
18
173
319
Dr Amy Small (
@amyismall
) on BBC Radio Scotland responding to a text from an anonymous GP that was sceptical about
#LongCovid
. Mentions
#MECFS
, the PACE trial, how exercise makes the majority of patients worse and how many doctors have been taught wrong information.
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🧵My top
#MECFS
&
#LongCovid
moments of 2021
February
Dr Strain appeared on BBC Horizon talking about the links between
#LongCovid
and
#MECFS
saying it was "A life changing physical illness that they've struggled to have accepted as a disease in its own right"
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320
My Severe and Very Severe
#MECFS
video has just gone over 100,000 views.
Thanks to everyone who continues to share, and to the YouTube algorithm which has started pushing it a lot more over the last month 🙏📈
8
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318
Margret Williams has written to Natasha Devon responding to Simon Wessely's claim that "he's never suggested that ME or Chronic Fatigue Syndrome are non diseases"
A fantastic segment on the
#GreatestMedicalScandal
Full segment (44 mins edited)
LBC call in with Natasha Devon discussing
#MECFS
, Simon Wessely, George Monbiot's recent article, the history of ME and the impact of Graded Exercise and CBT.
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446
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Outstanding new article by
@GeorgeMonbiot
"Despite an overwhelming weight of evidence, the old believers, including Sharpe and Wessely, have continued to try to justify their model, obliging Nice recently to publish a strong refutation."
It’s the greatest medical scandal of the 21st Century. Intransigent doctors and gullible journalists have made the lives of ME/CFS patients a living hell.
A massive and shocking story in this week’s column.
368
2K
5K
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Clip of Miriam Margoyles talking about her partner Heather's Chronic Fatigue Syndrome which she developed after a respiratory virus. "At one time in the 90s It got so bad she couldn't walk or stand and I had to feed her."
#MECFS
9
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305
"Sky News analysis found that in the 20 yrs before the pandemic, there were just 2,007 new scientific publications on ME/CFS.
Over the same period... there were nearly 45,000 publications investigating the skin condition psoriasis and 114,000 on the topic of Parkinson's."
7
75
305
Highlights Dr Sarah Mason-Whitfield, an NHS doctor with
#LongCovid
, speaking at todays
@APPGCoronaVirus
meeting. Sarah talks about gaslighting, the Long Covid clinics not being fit for purpose and "dubious research" being done in the UK.
14
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300
🧵of clips
@GeorgeMonbiot
talking to
@davidtuller1
about his recent article where he describes the psychologisation and treatment of
#MECFS
as "the greatest medical scandal of the 21st century."
12
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299
Happy new year! Especially to people with ME, Long Covid and other chronic illnesses.
Hoping 2023 will bring more understanding, more support and more research.
8
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Just because there are no biomarkers doesn't mean ME is driven by psychological factors.
This debate ended with the release of the IOM report in 2015.
They concluded that ME "is a medical-not a psychiatric or psychological — illness".
All else aside, insisting that science of Long Covid, ME/CFS & related diagnoses is settled is nonsense. There isn't a single established/replicated biomarker in either. Plenty of inconclusive findings, all over the map. Role of psychosocial factors raised in research frequently
1
6
66
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47
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Highlights from todays Covid Inquiry
"The possibility of long term post viral illness was well known... Long Covid was foreseeable why was it not forseen?"
And In October 2020 Boris Johnson wrote
#LongCovid
was "Bollocks" when it was well recognised by major health agencies.
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"There’s a major, major stumbling block and that’s that the medical profession still doesn’t know the difference between a post-viral multi-system disease and anxiety" - Dr Nina Muirhead
4
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ITV News: Karen Gordon from Polegate, suffering from
#MECFS
, has spent six months in Hospital. “she fears she will die unless health services do more to help her”.
She wants to return home requesting remote assistance so they can manage her feeding at home.
#MaeveInquest
7
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🧵
#BBCSaturdayLive
@RevRichardColes
after listening to your segment on ME/CFS, Parkinsons and faking illness today I thought you may be interested in a thread about ME being one of the most misunderstood illnesses.
18
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286
BBC Look North segment on
#MECFS
and
#LongCovid
(3 mins)
A doctor from Leeds who developed long Covid and the debilitating effects of ME has said NHS patients like her have been “left to rot” and calls for better NHS care
5
111
286
Fiona Fox director of the Science Media Centre has a new book out called Beyond The Hype - The Inside Story of Media's Biggest Controversies.
The chapter on ME/CFS "First they came for the communists" is biased, inaccurate and offensive.
#BeyondTheHype
🧵Thread
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@ITV
George Monbiot described ME/CFS as "one of the greatest medical scandals of this century" & "scientific and media establishment closed ranks around bad science, defending it from legitimate questioning and criticism."
Read his thread for more detail
1. There’s an aspect of this story that I didn’t have space for in the column. This is about how the scientific and media establishment closed ranks around bad science, defending it from legitimate questioning and criticism.
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1K
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276
🧵 Summary of the Countess of Mar's questions in parliament in 2004 about Simon Wessely, his clique of psychiatrists and their "dominance in the thinking about ME/CFS".
Explains why we don't have any treatments for ME/CFS that would probably help a subset of
#LongCovid
aswell.
17
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275
Highlights of segment on ITV This Morning about the
#DragonsDen
controversy over EarSeeds being sold as a cure for
#MECFS
"The way it seemed to be portrayed was that this was a cure for ME... A lot of my patients contacted me off the back of that"
Thank you
@DrNighatArif
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"At a certain point when you've shown up negative on enough tests suddenly the demeanor towards you changes. Suddenly you're not a gravely ill patient who they're worried is about to die. Suddenly you're a problem patient."
11
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271
TW Clip from ITV GMB Segment on the death Maeve Boothby O’Neill
A small number of people with
#MECFS
do die but they should not be dying of malnutrition.
Maeve's Death could have been avoided if there was a care plan in place and if they had taken advice of Dr William Weir.
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276
@ITV
Sophia Mirza was wrongfully sectioned for refusing to attend a clinic that treated patients with Graded Exercise (withdrawn by NICE in 2021 as research was flawed and patients reported it was harmful) She massively deteriorated and later died of Severe ME
2
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273
"Chronic Fatigue and Chronic Fatigue Syndrome are two different things. Chronic Fatigue is a symptom that occurs in virtually every illness. Chronic Fatigue Syndrome is a cluster of many many symptoms and it is a disease, its not being tired at the end of the day."
7
65
267
Highlights - Channel 4 News segment on
#MECFS
. "Its exhausting that every time you go into the doctors surgery you know that your talking to someone who thinks your illness is psychosomatic."
@therealmecfs
1
72
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STV News segment on
#MECFS
"You're lucky if you meet a doctor who's even had an hours training on ME. But when you go into a doctors office with any self education on your condition. That is almost taken as an affront to their time in medical school." -
@TheRealMECFS
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264
Caroline Kingdom - Research Nurse talking about the difference between depression and ME/CFS.
People with depression can't even think about doing an activity, where as people with ME/CFS would love to but their bodies just won't let them.
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If you’re reading anything that refers to ME/CFS as CFS/ME you may as well stop reading it.
29
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🧵 of clips from the LBC segment about
#MECFS
and Simon Wessely yesterday
Natasha Devon reading out
@GeorgeMonbiot
article about
#MECFS
and the
#GreatestMedicalScandal
mentiond Wessely, PACE, & the Science Media Centre that portrayed patients as abusive.
A fantastic segment on the
#GreatestMedicalScandal
Full segment (44 mins edited)
LBC call in with Natasha Devon discussing
#MECFS
, Simon Wessely, George Monbiot's recent article, the history of ME and the impact of Graded Exercise and CBT.
35
215
446
5
111
265
BBC Northwest Tonight Clip about Millie who has Severe
#MECFS
- "A family's campaign to have a teenager removed from Lancaster Hospital is attracting international attention". Millie has been there for 10 weeks unable to eat without a feeding tube and can barely move.
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261
@NICEComms
As someone who was made significantly more disabled by the 2007 guideline, I find this deeply upsetting. The science is clear and overwhelming, Graded Exercise doesn't work and can cause harm. NICE has a duty to publish the full details of this decision, including any lobbying.
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The aim of the 2001 'Malingering and illness deception meeting' (funded by the DWP) was to "work out how to frame chronically ill and disabled people as morally void scroungers and malingerers with no insight into their own health conditions" 1/2
For
#severeMEDay
I'm sharing a new blogpost summary looking at the political underbelly (structural dimensions) of the
#biopsychosocial
model - I believe this explains why severely
#disabled
people are left to rot by the health & social system.
#severeME
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In 2015 I was told that Graded Exercise would cure me & was not warned of the risks. I suffered a severe relapse & went from being able to work & walk 30 mins to being unable to shower or care for myself. I never regained any of that lost function. There are many similar stories.
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Health Education England have removed Trudie Chalder's training video on Long Covid where she dismissed a patient's relapse after an exercise test as health anxiety and recommend Graded Expercise therapy.
Thank you
@shaun_qureshi
for organising the open letter.
Health Education England removes Long Covid video after scientific evidence supports complaints
A thread ⬇️
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Full article:
Sajid Javid: patients with ME are being ‘dismissed’ by doctors
The former health secretary said care was being held back for sufferers of the neurological disorder because of a lack of specialist NHS services
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Some People with
#MECFS
can have problems tolerating food. Hannah describes her experience losing weight, not being believed and it being mistaken for an eating disorder. She was sent to psychologist and her care was cut off until she had an assessment.
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New article about people living with
#LongCovid
.
Excellent quote from
@BinitaKane
about the similarities in how
#MECFS
is perceived
I met brilliant Lucy Keighley, one of 2 million in the country living with long covid
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7NewsAustralia - TV segment covering research into the overlaps between
#LongCovid
and
#MECFS
.
"The pandemic has given ME/CFS a platform long denied to the 260,000 Australians who have it, there is no test, there is no cure but for the first time there is hope".
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