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Ror Preston
@RorPreston
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Founder @ CrunchME | Creating the evidence & insight base to help crunch IACCs ๐ | #MECFS #LongCovid
United Kingdom
Joined April 2022
Delighted to say my first batch of them has now officially sold out! ๐ But don't worry, given this has worked, we will be #backstronger with 'Cure Long Covid' and 'Cure POTS' too and different colours ๐ #CureMECFS #MECFS #LongCovid #POTS
'Cure ME/CFS' caps getting out there, and helping to spread awareness + spark conversation ๐ฅ Get yours in the link in comments (UK shipping only right now) ๐
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Chart from @wecrunchme showing just how low the NIH funding level is for ME/CFS & Long Covid compared to disease burden ๐ $14 and $62 per disability-adjusted life year (DALY) respectively
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RT @RorPreston: @hubermanlab @NIH ME/CFS, and more latterly Long Covid, funding is a disaster zone (not just at the NIH, but also globally)โฆ
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@hubermanlab @NIH And the suffering caused by ME/CFS can be unimaginable - really one of the most terrible diseases to live with out there
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RT @DanMissailidis: Have just finished the first draft of an ME/CFS cell metabolism paper thatโs been cooking for about 4 years. Relief!!
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RT @mediumwhite: The main priority for #pwME and #LongCovid in the UK right now is an effective ME/CFS delivery plan from @DHSCgovuk. Theโฆ
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RT @RorPreston: If you have Long Covid, do you also have MCAS (Mast Cell Activation Syndrome)? Would like to compare this to LC & MCAS resโฆ
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RT @ElkeAsen: @hubermanlab @NIH Definitely #MECFS & #LongCovid. CDC says ~1.3% of Americans have ME but NIH spends almost nothing researchiโฆ
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If you have Long Covid, do you also have MCAS (Mast Cell Activation Syndrome)? Would like to compare this to LC & MCAS research paper ratio! ๐ #LongCovid #MCAS
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RT @OxMEDiscovery: Seriously interested in setting up an ME/CFS, Long Covid cryotherapy trial in the UK. Our preliminary results with theโฆ
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RT @cstroeckw: For anyone considering fundraising for ME/CFS, hereโs a great "how-to" guide by Carmen, who recently raised $80k for bio-medโฆ
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