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Ror Preston

@RorPreston

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Founder @ CrunchME | Creating the evidence & insight base to help crunch IACCs ๐Ÿ’™ | #MECFS #LongCovid

United Kingdom
Joined April 2022
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@RorPreston
Ror Preston
4 days
Delighted to say my first batch of them has now officially sold out! ๐Ÿ™Œ But don't worry, given this has worked, we will be #backstronger with 'Cure Long Covid' and 'Cure POTS' too and different colours ๐Ÿ‘€ #CureMECFS #MECFS #LongCovid #POTS
@RorPreston
Ror Preston
4 days
'Cure ME/CFS' caps getting out there, and helping to spread awareness + spark conversation ๐Ÿ”ฅ Get yours in the link in comments (UK shipping only right now) ๐Ÿ”—
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@RorPreston
Ror Preston
12 hours
@gruenes_korn @cstroeckw Nice one, thank you!! ๐Ÿ’™
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@RorPreston
Ror Preston
12 hours
@cstroeckw Appreciate you both so much, thank you. Thinking of you Christoph
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@RorPreston
Ror Preston
12 hours
Chart from @wecrunchme showing just how low the NIH funding level is for ME/CFS & Long Covid compared to disease burden ๐Ÿ” $14 and $62 per disability-adjusted life year (DALY) respectively
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@RorPreston
Ror Preston
12 hours
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@RorPreston
Ror Preston
12 hours
RT @RorPreston: @hubermanlab @NIH ME/CFS, and more latterly Long Covid, funding is a disaster zone (not just at the NIH, but also globally)โ€ฆ
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@RorPreston
Ror Preston
12 hours
@hubermanlab @NIH And the suffering caused by ME/CFS can be unimaginable - really one of the most terrible diseases to live with out there
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@RorPreston
Ror Preston
13 hours
RT @DanMissailidis: Have just finished the first draft of an ME/CFS cell metabolism paper thatโ€™s been cooking for about 4 years. Relief!!
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@RorPreston
Ror Preston
22 hours
RT @mediumwhite: The main priority for #pwME and #LongCovid in the UK right now is an effective ME/CFS delivery plan from @DHSCgovuk. Theโ€ฆ
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@RorPreston
Ror Preston
22 hours
RT @RorPreston: If you have Long Covid, do you also have MCAS (Mast Cell Activation Syndrome)? Would like to compare this to LC & MCAS resโ€ฆ
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@RorPreston
Ror Preston
1 day
@KatyBruce108 @ThereForME_UK It's honestly a major win imo ๐Ÿ’ช
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@RorPreston
Ror Preston
1 day
RT @ElkeAsen: @hubermanlab @NIH Definitely #MECFS & #LongCovid. CDC says ~1.3% of Americans have ME but NIH spends almost nothing researchiโ€ฆ
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@RorPreston
Ror Preston
1 day
If you have Long Covid, do you also have MCAS (Mast Cell Activation Syndrome)? Would like to compare this to LC & MCAS research paper ratio! ๐Ÿ™ #LongCovid #MCAS
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@RorPreston
Ror Preston
3 days
RT @OxMEDiscovery: Seriously interested in setting up an ME/CFS, Long Covid cryotherapy trial in the UK. Our preliminary results with theโ€ฆ
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@RorPreston
Ror Preston
3 days
RT @cstroeckw: For anyone considering fundraising for ME/CFS, hereโ€™s a great "how-to" guide by Carmen, who recently raised $80k for bio-medโ€ฆ
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@RorPreston
Ror Preston
4 days
And thank you to my sis for her expert modelling work here ๐Ÿ™
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@RorPreston
Ror Preston
4 days
@CaroleBruce17 Thank you so much ๐Ÿ˜Š๐Ÿ’™
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@RorPreston
Ror Preston
4 days
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