Billboards for LC/MECFS
@LCMEBillboards
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Public awareness campaign. We need biomedical research and treatments for Long Covid/ME/CFS now.
Joined November 2023
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We want to keep fighting for research and treatment for both
#longcovid
and
#mecfs
. If you would like to support what we do, please consider donating to our gofundme.
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Hello everyone, we are excited to announce that the first four billboards have gone up, with the final board from this batch due to go up tomorrow.
5 Billboards for 2 weeks
Second 5 billboards go up from 18th
Please RT, share.
#longcovid
#MECFS
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We have finally received confirmation that our 5th board is up. We have been told that due to delays, our boards may stay up longer than the 2 weeks.
322 Tong Street, Bradford.
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Hi everyone. The billboard in Cardiff for the Covid inquiry has gone up. This board was put up by an independent and not directly by us. If you would like to support him, here is his GFM. Thanks to
@GarethEvans1977
for the great work.
#LongCovid
#MECFS
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Hi everyone, all the boards from the first batch are up. Donations are coming in and in the last 24 hours we have had £282, which is over half a board. Also a news article covering the board in Swindon. Please share so we can continue spreading awareness.
#LongCovid
#MECFS
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Hi everyone, we hope you had a great New Years. Looking back on 2023, we have achieved a lot. The campaign has raised £7288 and 10 billboards have gone up all around the country. None of this would have been possible without all of your support.
🧵
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Hi everyone, our next two billboards (digital) are up in Leicester (left) and Bradford (right) for
#MECFS
awareness week. These boards are placed closely to NIH buildings and will be up from 6th-20th May. The boards are part of a wider campaign that I will explain below.
🧵
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The 5th billboard has now been launched at 129 Rodbourne Road, Swindon.
This is 1.4 miles away from the Medical Research Council based in the UK Research and Innovation building at Polaris House, Swindon.
This will be up until 20th December.
#LongCovid
#mecfs
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Hi everyone, we have now signed the contract and confirmed the second batch of 5 billboards that will go up from 18th December for 2 weeks.
🧵
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Welcome to our new Twitter/X page for the Long Covid/ME/CFS Billboards project. Follow along with us for updates on the campaign and see how you can get involved!
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Hi everyone, today is the start of
#MEcfsawareness
week. Please quote tweet this post with your
#mecfs
story and use these hashtags. let's see if we can get these trending all week!
#dontforgetME
#NIHR
#MECFS
#MEcfsawareness
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Hi everyone, We now have confirmation of 4/5 boards so we are going to announce them.
Up from 18th - 1st Jan
Please RT and share
#mecfs
#longcovid
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Thank you to everyone who has donated so far. In the last 72 hours we have had enough donations for another billboard for our next campaign! We would love to keep this momentum going, so if you like what we do, please consider supporting us!
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Hi everyone,
We have now submitted our letter to the NIHR calling for more funding and research into
#MECFS
.
It's
#MEawareness
hour tomorrow at 8pm. We are going to try and get our
#DontForgetME
hashtag trending whilst tagging the NIHR and a list of other important people. Below
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Hi everyone, I am currently putting together a flyer for
#mecfs
awareness day/week. If you have any comments or suggestions about info that should be on there or word etc, please leave a comment.
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The billboard on Glasgow Street has had a great article written about it.
Thanks to
@Murray_Grayston
at the
@ardrossanherald
for the coverage!
#LongCovid
#MECFS
The billboard was place by Not Recovered UK - a group of people who all live with either long Covid or chronic fatigue syndrome. 🔗 Link below
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Thank you again to everyone who has supported us, we could not have done this without you. If you want us to keep doing this please consider support our GoFundMe.
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A fantastic article by
@MrTopple
about the campaign, highlighting the frustration from Long covid and me/cfs sufferers, and why the campaign was launched in the first place.
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For Long Covid Awareness Day on March 15th, we will be hiring a Digivan for 8 hours and will be covering a route that includes the Palace of Westminster, the DWP building and Downing Street in London. The van will be able to park in the streets around this area and drive as close
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Hi everyone, we have updated the gofundme to make clearer the position the campaign is at, and to set new targets for the future. Please consider donating if you like what we do and would like us to keep doing it.
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Hey guys.
The
@LCMEBillboards
has had around £550 donations in the last 7 days alone which we attribute to our increased presence on social media (new Tik Tok, more activity on Facebook and Instagram) and adding the digital leaflets to our website for people to download and -
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The van with the audio sounding great!
#LongCovid
#LongCovidAwarenessDay
Here's what people will be hearing around Westminster today, thanks to
@LCMEBillboards
Digivan that is currently circling around DWP, parliament and SW1 generally!
#LongCovidAwarenessDay
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Hi guys there are the first options for the UK Billboard campaign. In total after GoFundMe deductions (screenshot attached) we are working with a budget of £5,640 which should guarantee roughly 10-12 billboards of a size 48 sheet for a 2 week period with 24/7 exposure.
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Hi everyone, we are looking for images of people with
#LongCovid
to use in our Long Covid awareness day campaign. The images will be used in a sideshow that will be on the side of a digivan that drives around London. We would like to focus on more severe cases, but all images
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🚨Media opportunity🚨
A Guardian video journalist is looking to interview
#LongCovid
patients to document the daily reality of living with the illness. If you're up for it, DM us so we can put you in contact with the journalist. Please retweet!
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Hi everyone, the tests for the window and bumper stickers have arrived. What are people's thoughts? Are they too small? These are the only 2 sizes we could get without redesigning the artwork. We have found someone to do that if needed.
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We received a really nice email from a lady who saw our Ardrossan billboard. Things like this really keep us motivated to keep doing what we are doing. It also highlights the absolute shocking lack of public messaging around
#LongCovid
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Hi everyone. The second batch of billboards were due to go up today, but we have heard nothing from the provider. The guy dealing with us is on leave (didn't tell us). The other guy isn't responding to emails. We unfortunately don't know if they have gone up. Please bear with us.
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Hi everyone. I have done another draft for the ME awareness day flyer. This is the back, there is the usual Notrecovereduk billboard image on the front. looking for feedback. I will be submitted this to print this evening.
(The 700,000 figure comes from MEaction which had the
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Hi everyone, people have asked what the leaflet that will be handed out for our
#longcovidawarenessday
campaign will look like. I have attached a draft below. I am still working on it, so there may be some slight changes to text spacing etc. Great to get some feedback and
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Hello all,
We have been offered a deal. 6 boards, 4 in London for £1600(+VAT). £1600 is entire budget ATM. We considered aiming at specific locations (research/government), so this is change of direction. An x space tomorrow evening to discuss this/general campaign a good idea?
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LONG COVID AWARENESS DAY DIGIVAN ROUTE AND VOLUNTEER LOCATIONS.
If you would like to help out with handing out leaflets to members of the public, see the Digivan, meet other volunteers, protest with signs or wear your own LC merchandise then these are the locations.
We’ve
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The incredible advocacy efforts by Welsh patients, including the Not Recovered billboard
@GarethEvans1977
put up for the Covid Inquiry in Cardiff is highlighted in this article.
#LongCovid
#LongCovidAwarenessDay
#LongCovidAwareness
#MECFS
#pwME
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1. Brook Street, Sheffield
322K vehicles fortnightly.
Available - 1st January. 75Media.
Next to Sheffield University, student accomodation and busy intersection.
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Hi everyone, thanks to all who attended our space last night. For anyone who missed it or was unable to attend, here is a summary of the discussion and our plans moving forward below.
🧵
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Hi everyone,
We have been looking into billboard locations to target the NIHR and have been offered two locations.
The first is Cemetery Road in Bradford. This is 0.7 miles from the NIHR building and looks like a busy location.
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Long Covid Awareness Day is March 15th and we are working on ideas to create as big a splash as possible.
Currently we have around £1850, and it would be great to break £2K so we could achieve more. If you like what we do, please consider supporting the GFM. Link in bio.
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Hi everyone. We have been quiet over the past few weeks, but we are doing a lot of research in the background identifying good locations and figuring out feasibility. We will be announcing things soon.
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Hello everyone, we are currently exploring the idea of billboard vans and bicycles for
#longcovid
Awareness Day on the 15th March. Does anyone have any suggestions on good locations to park them? There may be restrictions on where they can be parked.
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As well as the billboards, a letter has been written to the NIH (and others) highlighting the lack of funding for
#MECFS
(and Long Covid) research compared with the symptom burden and economic impact. The letter calls for more funding and research. We would like to thank
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Hello everyone, we are looking for recommendations for a billboard location for
#mecfs
awareness day next month. The location should be relevant to M.E in some way, for example, somewhere that funds research.
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BILLBOARD LOCATIONS DECEMBER 4TH - DECEMBER 18TH
Junction of Copner road, Portsmouth
129 Rodbourne Road, Swindon
Canute Road, NR Ferry Terminals, Southampton
91 Romsey Road, Southampton
28 North Street Havant
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The Cardiff billboard put up by Gareth has been featured in an ITV documentary about clinical trials.
#MECFS
#LongCovid
On Wales This Week tonight, I talk about research and clinical trials for
#LongCovid
&
#MECFS
.
#LongCovidAwarenessDay
#MECFS
#MillionsMissing
@MarkDrakeford
@Eluned_Morgan
@lynne_neagle
@PeterFox61
@hef4caerphilly
@long_covid
@WAMESMECFS
@MESiGWales
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Thank you
@sarahjanesname
for covering this campaign in the Swindon Advertiser and bringing attention to those suffering from
#LongCovid
and
#MECFS
.
"Swindon campaigners with long Covid put up billboard"
'A group of campaigners suffering from long Covid in Swindon have put up billboards demanding justice'
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Hi everyone, I have done an updated draft of the back of the flyer. I have tried to incorporate everyone's suggestions.
(Alt text in two parts, second in comments)
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Hello everyone. Thank you to everyone who made it to the space on Thursday, there were a lot of great ideas discussed. For those who couldn’t make it, the recording is on our page but I will summarize here.
🧵
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Also, please check out our website for more information.
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Alongside the billboards and letter we will be using the hashtag
#dontforgetME
whilst tagging the NIH and quote tweeting images of these billboards. (starting from 11th May) This is to highlight that
#mecfs
is always forgotten when research is carried out and that ME/CFS
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Lastly, we would like to announce we will be supporting
@Thechroniccolab
with a political stunt they are doing to for
#MECFS
awareness day on Sunday 12th. You can find out more about that here.
We're going to be protesting outside numerous UK media offices for
#WorldMEDay
#MEAwarenessDay
on Sunday 12 May - calling for them to report PROPERLY on both
#MEcfs
&
#LongCovid
.
Can YOU join us for our livestream in London? We have a schedule here:
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A Digivan playing a slideshow of patients and an audio of the impact of Long Covid will be patrolling the area from 10am until 4pm with
@TheChronicColab
on board providing live photos and videos of the journey for us.
Example of the Digivan we hired below. (stock image)
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Hi everyone, we are looking at getting window and bumper car stickers with the billboard designs done. Can anyone interested comment below, so we can get an idea of how many we should order. I have ordered a couple of testers that should arrive Feb 1st.
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Hello everyone, thank you for bearing with us. We have finalized a short list of billboard locations around the country and will launching the twitter vote poll tomorrow. The locations we use for the campaign will be determined by the amount of likes on each location image.
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We will have a slide show presentation featuring the names and photos of Long Covid and ME patients from the
@NotRecovered
Instagram page along with a voiceover from a paid actor outlining the stats and figures of those affected, impact on the economy, workforce, long term
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Are there any
#LongCovid
patients in Southampton interested in speaking to the Southern Daily Echo about the billboards there?
Get in touch if so. First media opportunity for us so definitely keen to take advantage of this opportunity.
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This is the GFM for the independent volunteer who has put a board up in Wales for the Covid enquiry that should feature in a documentary.
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ITV approached us asking if they could cover our campaign on a Welsh current affairs documentary. We have a Trustee of a Long Covid charity there who is willing to speak and be featured on our behalf and set up 3 boards for the Welsh inquiry.
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@TheChronicColab
We would like to thank everybody who has supported us, we wouldn't be able to keep doing this without you. If you like what we do and would like to support us please consider donating to our Gofundme. Thank you.
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Thank you to everyone who took part in
#DontForgetME
for
#MEAwarenessHour
.
We got to 22!
My apologies if I wasn't able to catch all your posts. My notifications were high!
My fingers are burning from all the tweeting!
I hope we got the attention of
@PRCBradford
@PRCLeicester
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Thank you to everybody who voted and who has supported the campaign, we couldn't do it with out all of you. If you want to support us so we can continue doing this, please consider donating the our Gofundme.
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The Swindon Advertiser has covered the MRC's response to our billboard.
Thanks to
@sarahjanesname
for the article.
Medical Research Council responds to long-Covid criticism
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Today is the day! Our
#LongCovidAwarenessDay
campaign is happening in London. The schedule for the route is below if you would like to come along!
#LongCovid
#LongCovidAwareness
#MECFS
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Hi everyone. An independent person who is not directly part of this campaign is raising funds to pay for a billboard in Wales for the Covid Inquiry. The board may be featured in an ITV documentary, so it was also benefit this campaign. Please consider donating if you can.
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Hi everyone. We scheduled a space for 7pm GMT this evening to talk about the campaign. Any suggestions/questions welcome. We aim to discuss the campaign direction,website, media, funding, design, anything to do with the campaign. Hope to see you there.
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@Naomi_D_Harvey
I think them being too small is the concensus! We are looking at redesigning!
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If you like what we are doing and what to support us, please consider donating to our Gofundme.
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Finally we have added a template letter for website visitors to send to their local MP’s to call for action and raise awareness for Long Covid and ME/CFS.
This has been written by patients from social media who volunteered their time and efforts into
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4. South Accomodation Road, A63
840K vehicles fortnightly.
Available - 18th December. 75Media.
Right next to traffic lights!
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If you would like to support us so we can continue doing what we do, please consider donating to our Gofundme.
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@swindonadver
@sarahjanesname
@TheCanaryUK
@MrTopple
We would like to thank everyone again for all of your support in 2023, if you would like to support us so we can keep fighting for research through 2024, please consider donating to our gofundme.
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Hi everyone. Thanks to everyone who voted on the billboard locations. We are just waiting on the providers to confirm the locations before we announce them.
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5. 189 Ashton Road, A6017. Manchester.
350K vehicles fortnightly.
Available - 18th December. 75Media.
Denton Cricket Club, Stanhope park, off of M67 motorway.
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Do we know anyone living in Wales who would be okay to speak to an ITV journalist about their experience with Long Covid? It's for an ITV current affairs documentary.
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Hi everyone. We will be doing a space on Thursday at 7pm GMT to discuss the Long Covid awareness day campaign and also the upcoming ME awareness day. It would be great to see you there!
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We would again like to thank everyone who is supporting this campaign. We could not do it without you. If you want to help us continue raising awareness and calling for research into
#Longcovid
#mecfs
and associated diseases, please consider supporting our GFM.
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Unfortunately we won’t be able to attend in person tomorrow ourselves but we wish all the volunteers and charities the best of luck and we’re looking forward to seeing the photos.
#LongCovidAwarenesDay
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As well as the billboards we have also attracted some media attention with 3 articles. 2 of them in The
@swindonadver
Thanks to
@sarahjanesname
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Hi everyone, still waiting for confirmation from the provider that the boards are up. Confirmation of 3 with photos, but 2 are outstanding. Do we know anyone who is local to the locations who could check if they are up?
215 Glasgow Street, Ardrossan
322 Tong Street, Bradford
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- print at home for distribution.
Tomorrow is
#LongCovidAwarenessDay
and we are collaborating with various fantastic Long Covid charities who will be on the ground and distributing leaflets to the public from 10am until 4pm.
8,000 of these leaflets will be handed out in London
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Would massively appreciate a boost for visibility if you can help us
@RaviHVJ
@clarejdaly
@ShaneyWright
@AaronCa11
@LongCovidAdvoc
@Perospumpeh
@loscharlos
@1goodtern
@long_covid
@LongCovidSOS
@CaroleBruce17
@TomKindlon
@LaraHawthorne
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6. 664 Rochdale Road, Manchester
280K vehicles fortnightly.
Available - 18th December. 75Media.
Next to Manchester College Campus, Harpurhey Shopping Centre.
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Hi everyone, we are considering changing the wording on the billboard. Please could you let us know in this poll which of them you think is the best. The original is also in there. If you have another suggestion please let us know. (Images in the comments).
We demand clinical trials
134
Urgent research needednow
138
We demand research now
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Thank you
@long_covid
@LongCovidSOS
@MrTopple
@NicolaCJeffery
@TheChronicColab
@GarethEvans1977
@LongCovidAdvoc
and everyone who gave us advice and support.
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@notrecovered
We also are unable to actually attend in person on the day, but it was brought up in the Space that it may be a good idea if someone could attend and go on the van (even for a while). This could help provide live photos and videos for social media on the day, so if anyone would
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Hi everyone, we are going to do another space this Thursday at 7 pm, to discuss a plan we have for Longcovid Awareness Day. It would be great to see you there!
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