Ann Holliday💙
@AnnHolliday15
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Retired Adult Literacy and Numeracy specialist. Chronic Pain Advocate and Lived Experience Trainer. Footsteps Festival & LWWP. Pain Cafes in SW.
South West, England
Joined February 2019
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I’ve been a bit quiet recently, but on 22nd March my son, Robert Livingstone was told he’d widespread, untreatable cancer with no more than 2 weeks left to live, he was 46. He began his everlasting sleep on 04/04/2024 at 10.30am. RIP my beautiful boy 💔😢❤️😢
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@lornamcfindy
Well said! I rarely leave the house, have been out 6 times n last year! I know I’m lucky as so many can’t do this. Earlier today a family member bemoaning lockdown and how depressed they and friends were said “it’s ok for you, you’re used to it”. Un-bloomin+believable!
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@smw_rn
As a mother who lost her son this year, there is no greater pain than the loss of your child. Sending love xx
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@RobbieRinder
Please pour me a drink. I’ve just finished sewing the latest sets of scrubs. These are going to our local hospital and I’m knackered. I did a fillip. Your vodka will do! And the only tinned soup I like is Heinz Tomato. So that’ll do for my tea too xxx
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@MENnewsdesk
@tonyr2011
Not only are they overworked, abused, angels but now they won’t get a meal break! Thank you ❤️
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@alexlovelltv
@Sebchoudhury
Colours suit him. I’ve some similar! I still lose them - forget they’re round my neck? 🙄🙄😬😬🤣🤣
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@EamonnHolmes
@RuthieeL
@thismorning
Hurray hurray. I can start watching again!!! Only used to watch on Fridays and then that was denied me by you being replaced. Can’t wait. Xx🥰🥰
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@jayletay
@Forestvon
I think Long Covid is putting a spotlight on chronic illnesses which impinge on our life to the extent we rarely leave our homes. I count myself fortunate that most days I can leave my bedroom to go downstairs. As someone said I’ve been rehearsing for lockdown for years!
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@DarrenFEdwards
I definitely need the hug. My son only had one regret and that was that he hadn’t married the love of his life. Well miracles happened and it was arranged within 24hrs. We were all so happy for them. Look at his footwear!! 😀😀
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@RobbieRinder
Zero sized models influence young people. Until the fashion industry, advertisers, media etc accept damage that can be done by the “look” they portray as normal these fad diets are very attractive to easily malleable young minds.
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@RobbieRinder
A chink of light in the darkness. No words needed, the pictures tell the story. You will have made such a difference for them xx
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@RobbieRinder
If school isn’t a safe space for children and young people we must hang our heads in shame ☹️☹️. How can we change this narrative? Xx
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@moreEmmaline
@Dakota_150
For we who have ME/CFS and Fibro we have many many years experience of inadequate support from healthcare services
#CFS
#pwME
#Fibromyalgia
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@GoodLawProject
@lawyerstan
@carolvorders
And there was I and the
@tauntonscrubs
group making scrubs day in day out for nought with donated fabric. We’d get orders from our local hospital they’d be delivered. Our county Somerset needed us and we answered the call at no cost to the public purse. She makes me so angry 🤬🤬
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Please please follow. They do the bestest cream teas, yummy cakes and super sandwiches. It’s a soul satisfying experience. Go visit!!!!!!
Each year at this time we hope to boost our followers. We would love to have 4K by the end of the year. If you feel so inclined, please retweet and help us spread the word!
#exmoorisok
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@RobbieRinder
Your documentary should be made part of the Secondary School curriculum. In that way following generations cannot be deniers or claim ignorance. 😢😢
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@kelvin_fletcher
Be still my beating heart. This should come with a health warning! My 70+ year old heart may not recover!
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@DrAmirKhanGP
I’ve said it before. It’s Mum speak. Last time my son visited before we left the house I asked him to go to the toilet. He’s 41!! 😬🙄
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@RobbieRinder
@standardnews
Accepting different viewpoints makes life interesting and less narrow. I have politically, religiously, culturally diverse friends and acquaintances who think differently than me in many subjects. But as long as they are kind, honest, loyal and tolerant they will do for me.
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@MaryDairy151853
@1Fubar
Maybe he’s on disability and housing isn’t always capped.
ESA I believe can be about £720 every 2 weeks, say £1440 per month then if he has PIP + housing and council tax paid. Why go to work? Our benefit system needs to be reviewed.
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@RobbieRinder
Must be sooo difficult for them and soooo easy for families in high rise flats with no garden, no transport and little money. They should try it. Someone needed to say this and none better than you.
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@AuschwitzMuseum
It’s right to be reminded that it was not only Jews who suffered the savagery of the Nazi regime 😡😢😢
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New Covid restrictions. If you live in Scotland but visit England whose rules do you follow
@RobbieRinder
can you advise please before my son leaves Edinburgh for a visit!!
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My daughter a teacher in Cirneall hasn’t had a day off since lockdown. She’s my hero x
Fuck me up a chimney 🤦🏾♀️
The amount of misinformed twats on here that think that teachers get 19wks paid holidays, cushty pay and have been doing fuck all for two months is alarming.
The war against teachers has begun.
(Btw my time off twitter lasted 24hours 😂)
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@t_hewlett
@SaffronBarker
@bbcstrictly
Have to say I thought
@SaffronBarker
whole outfit was just so right for her, the routine and music. So evocative of an era gone by but looked modern. You ladies certainly know how to do a frock! X
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@talkRADIO
@JuliaHB1
@RobbieRinder
The one thing you can be sure of is that
@RobbieRinder
will say as he finds. And he will communicate his frustration, anger, disappointment, embarrassment at our country’s slow response with lucid prose that cannot be misunderstood.
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@bbcstrictly
@WillBayleytt
@JManrara
I believe
@WillBayleytt
will have created more interest in the Paralympic movement. People will see ability not disability.
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@ClareGerada
I think if you had said “my experience” and “I found exercise’ it would have been ok. Some of us
#pwME
have been left forever damaged and weakened by exercise even moderate is negative for us.
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@JayneSeckerSky
I personally think Jsyne Secker should go. She showed lack of professionalism, made it personal, was boastful ( I’ve been paid sooo much money I can buy to rent and out down you lowly, beneath me renters). Shameful. Sky Sports sacked and censured presenters. Sky News do same.
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@TVPFED
Thinking of the family especially his wife. A brave young policeman who died in the line of duty. 😢
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@bowelbabe
You put perspective into my life. I have had chronic pain for over 50 years. Also fibro, CFS, arthritis and a few other things. They pale into insignificance compared to your fight. You are so young I am 70. I would swap with you if I could xx
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@TomKindlon
I see a probable change of perspective! We were right all along GET doesn’t work!
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@TomKindlon
These are my symptoms. I have ME/CFS and Fibromyalgia. Maybe now we will be treated with the same respect and concern as those now presenting with Long Covid.
#PostViralSyndrome
#Fibromyalgia
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@RobbieRinder
@katieglassST
As usual you’ve both done an excellent job of bringing a real injustice and scandal to a national audience. You’re both so good at what you do. Keep doing this!
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@RobbieRinder
@GMB
@CharlotteHawkns
You have such pulling power! You don’t shy away from the difficult, awkward, embarrassing, impolite, rudeness etc. you are tenacious and an excellent communicator! So refreshing than the banality of some presenters. Well done 👏🏻👏🏻🤩🤩
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@DrSimonAshworth
@DesmondSwayne
All MPs against lockdown should work a week in a Covid ICU. Then they might say something sensible and appropriate
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@RobbieRinder
Oh, how lovely! I gave my youngest a hug for first time in a year! Couldn’t hug her on her Wedding Day! I admire that generation. They went through so much to ensure we lived in freedom. I’m not sure it’s appreciated as much as it should. Service before Self xx
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@fibromyalgiast1
And how we shower and dress up to go to a GP or hospital appointment! They see the best of us! Back home, collapse in a heap of pain and fatigue.
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@KirstieMAllsopp
@emmakennytv
Please go and teach my daughters class of 35 possible virus carriers.
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Earlier today I took part in a
@FestivalPain
session doing Origami led by
@DrLizzieBurns
It was fabulous and helped me manage the
#chronicpain
I was in this morning. You were brilliant
@DrLizzieBurns
and I’ll be looking at your YouTube Origami sessions!
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@FestivalPain
@loulouscorpio
@PhysioPainAssoc
@FlippinPain
@UnityPhysio
@sciatica_uk
@cookfulness
@WelshPain
@DeepakRavindra5
@KatyMunro1
@LivingWellPain
@livewellpain
@PainChampions
Excellent session. A really good introduction to how Mindfulness works. It can be another tool for your Pain Management strategy.
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@loulouscorpio
@FlippinPain
@Tash_Stanton
@cookfulness
@tmopain
@Andralus
@Shelts88
@felicitythow
This was the best description of osteoarthritis I have heard. It has “flipped” my understanding. Also that weight s per se doesn’t affect us but it’s body fat. I can get my head around that! You were really helpful as a person living with OA. Thank you xx
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@joeyjacobjordan
@PeriwinkleCott1
@bramble444
@TraceyGemmell17
@WalkingLisa
@ITVCharlieP
@HazelPriorBooks
@Dr_DeanAllen
@HighcliffExmoor
@holnicoteNH
@PNH_Hotelier
@letty_1999
@iamcornishpasty
@Cluckmuckcook
@janemalyon
@valstones
@JuliaBradbury
We might have to wait until 2021 but the wait will be worth it as we sink our teeth into one of the legendary
@PeriwinkleCott1
cream teas! Xx
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@lizcaton100
@kelvin_fletcher
@mikebreakfast
I think that there are some troubling undercurrents happening in
@bbcstrictly
For goodness sake it’s an entertainment show about learning to dance! Judges factor in improvement. The best dancer hasn’t always won! It’s who “entertains” us and
@mikebreakfast
certainly does that.
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@RobbieRinder
I’m in tears. You’ve done good
@RobbieRinder
The things you’ve brought to them will make life a little easier for them. What brave, resilient souls they are! Xx
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@bcdelaney1
@Forestvon
@PhillippaHolla1
@StenHelmfrid
It’s not just doctors, Physios and other health professionals, Pain Management courses has been my experience! Xx
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@RobbieRinder
My daughters boyfriend is moving in with her today. He has Aspergers. He is also succeeding in his chosen career. It’s challenging but many overcome their difficulties and use their experiences to show compassion to others. 💜
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@FestivalPain
@livewellpain
@PhysioPainAssoc
@diarmuiddenneny
@Fizzbw
@loulouscorpio
@Trewern_K
@MatthewMayers10
@Hollie52519545
@chrispenlington
@DeepakRavindra5
@UnityPhysio
@LivingWellPain
@MarkAggy
@ClaireC_PT
@sciatica_uk
If you have
#ChronicPain
and cooking seems a difficult or impossible task come along to see how
@cookfulness
makes serving up delicious meals possible!
@cookfulness
has lived experience of
#ChronicPain
#PersistentPain
and shares numerous tips and aids which keep him
#cooking
.
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@RolfatWarwick
@Warwick_Law
Rolf. I think of all those young people away from home feeling a bit lonely and unsure. And then there you are a great focus for the Uni community, something to get people together, chat, get to know each other. Hope you are an absolute Pawstar!
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@CortJohnson
And maybe just maybe there will be more empathy for those living with ME/CFS
#pwME
. and more money for research!
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@MichaelaHaas
@AJEnglish
So respect the research that Ron Davis and his team are doing gives us hope! Xx
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If you are living with persistent pain you need a distraction. Come along today to
@FestivalPain
Create & Chat on Zoom at 12.30. Creating and crafting makes us focus on something other than our pain and it can turn pain volume down.
#ChronicPain
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@RobbieRinder
@CatMacdiarmid
You are such a good subject with a very expressive face. Amazing how many different looks have been caught from that one sitting. A man for all artists that’s
@RobbieRinder
xx
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@HazzyG123
@MENnewsdesk
@tonyr2011
No money is enough to be spat at, stabbed, kicked, shouted at, etc etc
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@lizcaton100
@RobbieRinder
This is the stuff my dreams are made of!
@JohnBarrowman
@RobbieRinder
and Musicals. 😍😍
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@bhatia_bridget
@t_hewlett
I think even more time than that. A real walk through the process and how you chose fabrics, add and adapt to get the perfect look. There’s such an interest in home sewing they are not taking advantage of this. And there’s sustainability in repurposing. Tell them!!!!!
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@GaryScribbler
Out of the mouths’ of babes. You are obviously doing a great parenting Dad role! X
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@CortJohnson
I don’t think anyone diagnosed with ME/CFS will be surprised at this. We’ve always understood that with few exceptions we are the invisible forgotten unwell!
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@Porlockcoast1
@holnicoteNH
@PeriwinkleCott1
@DiscoverPorlock
@dunsterofficial
@KathySomerset
@visitexmoor
@VisitDevon
@shrewsmorris
@gartenzwerg333
@TraceyGemmell17
@MilesTeaCoffee
@MyFaveBench
@PostedInThePast
Memories of warm sunny days sat outside Selworthy church. Going inside for some solitude and introspection. A gentle walk down to
@CottageClematis
then on to
@PeriwinkleCott1
for lunch then a stroll round the Holnicote Estate. Perfection! Xx
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@ClagueNjc36
That’ll be helpful Many years ago the physio on my Pain Mgt course insisted on GET I had a massive ME/CFS flare and my PEM floored me for weeks
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Today I had to take to my bed early. Chronic pain met chronic fatigue with a vengeance. Tomorrow will be better!
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@PeriwinkleCott1
@bramble444
@TraceyGemmell17
@WalkingLisa
@ITVCharlieP
@HazelPriorBooks
@Dr_DeanAllen
@HighcliffExmoor
@holnicoteNH
@PNH_Hotelier
@letty_1999
@iamcornishpasty
@Cluckmuckcook
@janemalyon
@joeyjacobjordan
@valstones
@JuliaBradbury
Well
@PeriwinkleCott1
you will have to share your open8ng plans so we can get this organised. It will be something for us all to look forward to and a great place to meet up! Xx
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@RobbieRinder
Good advice. Hope you’ve recovered from the shock. Take care, keep safe you mean a lot to so many people 😍😍🥰🥰
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Ian Taverner
@cookfulness
is showing his approach to cooking in the
@FestivalPain
, an online event. All sessions free to access!
We've previously shared a case study on Ian and his experience of fibromyalgia and how cooking helps him. His story has now reached the BBC and is a good awareness piece for the condition. Click below to have a read. 👇
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What a wonderful young person. She will go far. Her mother must be so proud of her.
Kenya has raised over £80 from making key rings, bag charms etc. and selling them in her school, as well as on her Facebook page. She is donating money to FMAUK, as her mother has suffered from fibromyalgia which has had a huge impact on her life. (1/2)
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@wonkyalison
@cookfulness
@DUnionUK
@BritishPainSoc
@PhysioPainAssoc
@fmauk
@FNDHopeUK
@PatientBps
@loulouscorpio
@FestivalPain
@able2uk
@FlippinPain
You’d be welcome to join us at the Cookfulness sessions on a Friday at 2.00 pm or Create & Chat on a Wednesday at 12.30. We all live with pain (and Brain Fog).
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@RobbieRinder
@JBDCharity
I was wondering whether you need some craft stuff like knitting needles, crochet hooks and yarn. I’m sure I can persuade a few to downsize their stash. Also sewing machines abs fabric. Let me know please. Xx
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@johnthejack
That is it exactly!!! We haven’t been listened to! I find it so amazing I had ME diagnosed over 25 years after never recovering from EBV. Long Covid has been around for less than a year!!!!!!!
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@FestivalPain
@loulouscorpio
@DrLizzieBurns
It was fabulous! At the start I was wondering how I’d get through the
@FestivalPain
session because of
#ChronicPain
. I was so immersed in the
#Origami
that I forgot about my pain.
@DrLizzieBurns
is enthusiastic, patient and brilliant!
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