🏓 Julie 🏓
@juliesharp86
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I do not represent any organisation. My views change based on my mood. I have 47,xxx, autism and many long term health conditions.
Yorkshire and The Humber, Engl
Joined February 2017
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@DrEvans_Health
The government want people to be in employment. This person is achieving it. No one should be judging the person by their looks. The whole thing of hidden disability should tell anyone this.
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The world is turning against those who are disabled. This is being led by the government. Entering into scary times. No more Equality. Just persecution.
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How will unpaid carers get carers allowance once PIP is gone?
Has any one seen the ideas or suggestions being consulted on about this? It isn't in the PIP consultation.
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Apparently all my current health symptoms are due to me thinking about them and therefore noticing them. I GIVE UP! Medical Appointments are a waste of MY time!! Getting on with life and avoiding medics will be better for my mental health!
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It seems the PM has decided disabled people should be punished for the way their body is.
Anger and Fear is everywhere amongst the disabled and chronically ill.
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Behind every unpaid carer is a chronically ill person.
Take the unpaid carer out for a meal, to a social activity, on a walk.
But REMEMBER at home on their own is the chronically ill person.
Society provides no one else to care for them.
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Boris just said he reformed social care……….. erm how? When? Where? I think I missed that!
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That feeling when a social worker begs you to accept support. You say ok. Then that same social worker says their are no services willing to have you currently. 😞
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Why is carers allowance taken off universal credit? It isn’t a wage. It is money to make up wages you cannot earn. The system makes no logical sense!!
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Fedup of being told I ruin my husbands life by being disabled. He knew I was disabled before we got married. He picked me for who I am. The whole of me!
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There is a growing hatred towards disabled people living in the community. Is this just in Rotherham? Is anywhere else finding it?
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We are carers for one another. We both have autism. We care 24 hours 7 days per week 52 weeks a year. We do not get time apart because no place can support our individual differing needs.
#WhatMakesACarerCry
#RealCarersWeek
#CarersWeek
#ActuallyAutistic
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I have removed the ping pong 🏓 from my name because I am no longer being sent between social care and the NHS.
The local government ombudsman helped to end the match 🙂
I have a twice daily basic needs package for me and a twice a week break from being my husband's carer 🙂
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If all unpaid carers put the people they care for into a care home. Would there be enough care home places?
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When are the government going to sort out the mess DWP are in? They don't have enough work coaches.
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@HelenAshby72
I love coming on twitter to look what Dave, Elizabeth and yourself have been up to. It helps me see what is possible with the right support network! Keep up your family tweets! I love them!
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Round and Round in Circles. Disabled Person wants employment. Disabled Person Seeks employment.
DWP says you cannot do permitted work scheme.
Disabled Person wants volunteering. Gets volunteering. Only to be told there are no support workers to take you. 😣
Bored n Fedup
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My social worker yesterday stated the risk assessment is to protect the care workers as they have to be protected.
What has soceity come too? The primary aim is to protect a care worker.
What has happened to looking after the person in need of support?!
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#imvotingUKIP
I voted to leave the EU and I am using this election to demonstrate I still want to leave the EU!
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@hayleighb1
@JoshHalliday
Parents no longer are allowed to make decisions on behalf of their children.
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Care plan from the care agency have arrived and I have literally sat and sobbed. There are so many errors. 😭 I have no fight left in me. My voice isnt heard or listened too. That is all the document yells at me.
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@KieranRose7
Why not just with autistic people? Why do our parents always have to be involved? Why not listen to my voice??
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For anyone wondering my social care package has increased to 14 hours per week for wash/shower and dressing support every 12 hours (7am and 7pm). It is important to me that I am clean and I can change clothes regularly.
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Do we get a cared for week? Or are the people who receive care from unpaid carers not worthy of a week? It is hard to be cared for. It is hard to lose your voice due to being cared for. Two sides to every single coin.
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Does anyone actually read my tweets? Please press the heart if you do 🙂
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I would like to thank a respiratory nurse from northern general hospital Ros Frost she helped me to learn and manage my dysfunctional breathing whilst she learnt how to work with my autism
@MajorKirsten1
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#RealCarersWeek
Another one people do not see is the carer cannot do what they want to do and often this means the cared for person cannot do what they would like to do.
This results in both being trapped in basics and totally unhappy. Destroying relationships!
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We were brave today. We went on a bus to town. First time since 2020. Me in manual wheelchair pushed by an anxious husband. We went to see the Light Organ in the Minister. It was a great workshop.
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@DrHannahBB
It hit me hard because a fortnight ago my mother stopped talking to me. And todays news made me just want to go to her and hold/hug her tight. Yet she still isn’t contacting me though I am reaching out to her almost daily. The silence leaves me 😭
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@Shelbykinsxo
@lizzo
In some areas that term is that of in dear ment just like duck or chick.
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@neilmcrowther
To be honest this sounds familiar. Does the man have mental capacity? Sounds like he is being treated like he doesn’t. Me and my husband are often treated like we don’t. When actually we both have full mental capacity.
Lots of social care professionals here autism and assume
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@MattHancock
I would like to see a no deal brexit and cross parties sit around a table and work togethet politely and professionally to build a new UK.
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I have decided it is time to start a new hashtag.
#TrulyUnpaidCarers
So many unpaid carers cannot get carers allowance for one reason or another. So many do the role totally unpaid. Please if this is you. Start to use this new hashtag. Lets see how many are in this scenario.
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@MikScarlet
PIP reforms will mean more of us cannot work. We will have no money for a support worker and no money for transport.
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Care Act Assessment and Continuing Healthcare Assessment need putting together so that all areas can be assessed at once rather than putting people through multiple assessments often repeating there story time and time again!
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The OT has found us a suitable temporary property. We cannot move tonight as we are too tired. We will move on Thursday. It is an empty shell but we are so grateful for the OTs work. It just shows God provides for us!
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@paulapeters2
@RMTunion
I am often sat too low in wheelchair to see the screen because of this I have never tried to use one. I am anxious about next time I need to travel if I have to attempt to use a ticket machine. I don't even use cash machines. I go to a post office person.
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@millygreenwitch
I am sure the BBC have been through his full X account and checked the photographs themselves. They don't report on a story without checking all information including sources. It is more than there job is worth.
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No longer on a waiting list for a care provider.Waited ten months and have been removed because there is nothing. Sent emails on Saturday but the silence is deafening. The silence has totally drained me. Laid on sofa with twitter for company Tears comes in waves as I lost battle.
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People talk about autism as though it is the only condition a person has. Whilst I have autism. It isn't the reason I am on a long term sick note. I have multiple long term health conditions found by blood tests, body samples and scans.
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@flowergirl_lon
@Eurostar
@railandroad
Do Eurostar have hoists to transfer people from their own wheelchair chair to a station wheelchair?
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Why are the government texting people who have HAD their booster??
Are we now supposed to get a 2nd booster?
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@BuDs_UK
My asthma nurse was pleased I was still wearing a face mask in the doctors because there are lots of viruses about at the moment not just covid.
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Anyone else get stuck on the merry go round of do a care act assessment followed by a continuing healthcare assessment followed by a care act assessment followed by a continuing healthcare assessment? Does the merry go round ever stop? Is there a light at the end of the tunnel?
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For anyone who is still naiive enough to think you can ring and ask for help and get it. Be expected to be let down! I have come to the conclusion there is no point ringing nhs or council to ask for help.
😭😭😭😭
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Positive Post
Electric wheelchair enables me to get from room to room in my flat. It gives me independence in my flat when I am unwell.
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How do people cope with the loneliness now most people have returned to in person events, coffee mornings, knits and natters etc? I am struggling
#NEISvoid
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The biggest barrier is when a council says your needs are too high for social care. And the nhs say your needs are too low for continuing healthcare. You end up living in no man’s land for days, weeks, months and years…..
Disabled people fighting every day for basic support. Healthcare, social care, adaptations, constant worry about money. Scared to go out of home because of judgmental nastiness ramped up by
@Telegraph
@channel5_tv
@theJeremyVine
No one is immune from disability. No one
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I can see what is happening. PM wants to launch white paper for sick notes and disability benefit reform in September in time for Autumn Budget. PM will call election for January 2025 the latest he can. Ensuring most harm is done to the "vulnerable" in all areas of life.
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@GwynneMP
CEV ended in September 2021 according to the government website. We no longer exist as a group of people. Yet we are still here living with multiple long term health conditions that have not gone away.
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Happy Birthday 🎈 to me. Happy Birthday 🎂 to me. Happy Birthday Happy Birthday. Happy Birthday 🥳 to me. 🙂 I am 35 today 🙂
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Hi Both
Is how our social worker starts correspondence with myself and my husband. It would seem our names are forgotten. Personalisation is of no importance. Please use our names! As you never fail to sign an email with your name!
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#WhatMakesACarerCry
Carers Assessments being a legal requirement but having to provide a service afterwards isn’t 🤯
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Unpopular Tweet
Not all unpaid carers want to speak for their loved ones.
Some unpaid carers want their loved ones to be spoken too and given the chance to make their own decisions..
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Dear
#NEISvoid
I have only just found out about you, can you tell me more about you? I have multiple long term health conditions that impact with energy impairment.
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@adamfare1996
I went to my assessment prepared to show them how far I could walk. The assessor refused to let me show as they were worried I would fall and they cannot administer first aid.
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Just been made to feel like I am not trying hard enough to do for myself. Asking for social care is a horrid process.
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Carers assessment is a con! It is a paper based exercise of which you can have a copy of
#CarersRightsDay
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I live every day in fear of suffering the same fate as Oliver. My voice just gets ignored daily. Professionals have meetings without me. Even when I quote “nothing about me, without me”
#Oliverscampaign
@timrbuck
Today I will be presenting Oliver’s story, the importance of Reasonable Adjustments and The Oliver McGowan Mandatory Training to NHS NEL ICB LEDER Conference 2022
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@charliclement_
@BlondeHistorian
I wear a sunflower lanyard to represent hidden disability. I wear a mask as the lanyard is about hidden disability not mask excemption.
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How can a care worker provide person centred care if they don't read documents about the person they are to care for?
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@Kirsty_H220
@sophielouisecc
Also the pram could have been donated by a kind adult. The clothes could have been donated. You cannot and should not judge a person by just looking at them.
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@HelenAshby72
Dave is an adult and you allow him choice over his life. You encourage the correct decisions but do not force them. You are offering Dave the chance to have an independent life. Dave is one lucky man to have a mother like you 🥰
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I don’t know about social care collapsing I think it has already caved in on itself! Brokerage Support Service does not have any care providers for new people in Rotherham 😩
No idea what any one is supposed to do whilst they wait for care providers?? Beyond exhausted now!
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@UnpaidCareUK
have you seen the government want to get unpaid carers back into employment? To help boost shortage in work forces.
Yet there is no plans for the people who are being cared for.
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If you cannot get a PCR test then of course the number of positive cases will drop.
This does not mean there are less positive cases. It means there are less PCR tests available to discover positive cases.
Please find some common sense British Media and British Government.
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Positive appointment at Brierley Wing Outpatient Department. The HCA, The nurses, the breathing techincian and Prof Sabroe were all fantastic. Thank you Northern General
@SheffieldHosp
@MajorKirsten1
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What is it with Carers and Parents wanting to put us into day centres?
I get images of Daddy Day Care film or Rugrats going into play places whilst parents go shopping.
Please No. I don't want to go into a building all day. I have skills I could offer online to others.
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How on earth can you arrange flexible care and support if you have to go to your council about every change and have it agreed on a plan first??
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@JoshHalliday
So parents no longer have a say over what there children can do. A parents role to do everything they can for their child is lost!
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Positive Post
I have a new nurse specialist in Sheffield. If I leave a voicemail. I get a callback within a week.
It is a really positive experience thus far 🙂
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I won’t freeze this winter I have a new dressing gown / hoodie / fleece blanket all in one. Will be good since 18 degrees seems to be quite cool after the summer we have had.
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Been assessed as Nil Contribution for my Social Care Charges. Great you think! The council have to fund all my care but they will not commission me a service. They are currently trying to shove me over to the chc team. Who are naturally shoving me back at the council. 🏓
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This week will be tough for anyone on any type of benefits. We will be called lazy, a drain and many other derogatory names. Just remember those on the actual benefits know the truth, the pain and the raw emotions.
Here suffering with you this week.
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@Mikeo56977865
She has clearly renamed unpaid carers. Been saying the Tory’s were going to do this. Unpaid Carers will be called volunteers after half twelve today.
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@Ord_Off
Dave, I cannot hear cars, buses, or any engines. They are low tone sounds. I think electric car drivers need to watch for pedestrians rather than relying on you to “see” them.
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The social care white paper is not available in
#EasyRead
on publication day again!
@InclusionLondon
@Giselle_ASCWs
@socfuture
@LearningDisEng
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Controversial Tweet
I wish authorities would put CCTV in homes of people who have unpaid and paid care workers providing care.
This way authorities could see what care is provided and what isn't provided. Rather than decide the person receiving care is lying.
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Day one of moving home saw the arrival of a fridge and a fireside chair. It is all very real now. (02/10/2023)
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@TinyWriterLaura
I have lots of physical diagnosises but I still get told I do not look sick. I never seem to look sick. I am autisitic and follow routines this means I cannot be sick because I follow a routine 365 days per year.
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We have asked for time apart support on a weekly basis. Getting asked if we will go to a cafe and sit on different tables with a support worker each instead of going to different places. 🥺
I wanted to go to a holy communion service. He wanted to go to a mens talking groups 🥺
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As the night draws in for the final time for her majesty.
Rest in Peace Queen Elizabeth II
Heaven has gained a loyal servant this day.
Here is our night prayer early but seemingly suitable to be said now as we all mourn together.
@Ord_Off
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What will happen to cars, mobility scooters and wheelchairs leased from notability if PIP is gone?
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@HannahntheWolf
I have Ataxia that affects my hands and arms making grip painful. Recently discovered sellotape is a great way to avoid gripping objects like paint brushes.
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I am setting up a list of volunteers willing to run shopping errands in the Rotherham S60 area.
#carersfightback
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Happy Birthday to me
Happy Birthday to me
Happy Birthday to me
Happy Birthday to me
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@VictoriaAtkins
For anyone else wondering 35 working hours per week and must not work more than 10 hours in a row. Unless you choose to accept more. Is a French Trade union working laws. This is what labour are saying they will do in the first 100 days of entering power
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@BenFurner
@DWPgovuk
A support worker can ring too as long as the claimant is with them to authorise they are happy with them talking for them.
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@Mikeo56977865
Those on carers allowance aren’t paid. They are given an allowance. Been saying for weeks that this isn’t classed as pay. It is more like compensation for your troubles than pay.
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Spent three days in York. The best part was
@yorksightseeing
the whole crew today went above and beyond to help with a wheelchair user and family member boarding and alighting. Thank you for the great service.
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What is it with support agencies stopping work at 7pm? All support has to be finished by 7pm. What happens if you want to go out on evenings?
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#ItsOkayNotToBeOkay
Council have decided they cannot commission me any social care because they believe I should be seen as a Health need.
😭😭😭😭😭😭😭😭
It is hitting so hard. The rejection hurts deep inside.
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