Ivy Elkins
@ivybelkins
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Following
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Media
765
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3,627
Co-Founder, @EGFRResisters LC Patient Group; writer for ; lc advocate/survivor; dx stage IV 2013, @Princeton & @Wharton alum.
Evanston, IL
Joined October 2016
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Pinned Tweet
10 years ago on 12/26, I was diagnosed with stage IV
#EGFR
+
#lungcancer
. I’m still here thanks to research and making memories with my family!
#lcsm
@EGFRResisters
25
24
322
Today is my 6 year cancerversary thanks to the power of RESEARCH. I was diagnosed Dec 2013 with stage IV EGFR+
#lungcancer
that had spread to my brain and bones.
Today, I climbed a Mayan pyramid in Coba, Mexico.
@EGFRResisters
#lcam
#ResearchMatters
#livingwithlungcancer
61
113
2K
Today I did something that I never would have imagined doing in 12/2013 when I was diagnosed with stage IV
#lungcancer
that had spread to my bones and brain. Thanks to research, I moved my 18 year old son into college!
@EGFRResisters
#lcsm
#livingwithlungcancer
#ResearchMatters
34
44
785
As a stage IV
#lungcancer
patient, I never thought this would happen...but I have become eligible for surgery! After 6+ years on targeted therapy, I will have the right upper lobe of my lung removed
@UCCancerCenter
tomorrow by
@jdoningtonmd
!So very excited!
#lcsm
@EGFRResisters
46
44
504
There’s lots of bad news around, but I’d like to share something positive! Today, I am celebrating 8 years of living with stage IV
#EGFR
+
#lungcancer
. Happy to be healthy and surrounded by my family!
#lcsm
#lcam
@EGFRResisters
#researchmatters
28
21
508
Sharing some good news — had my first scans today after starting my new targeted therapy combo of osimertinib and selumetinib 7 weeks ago and the drugs are working! My EGFR+
#lungcancer
with a TRIM24 BRAF fusion is shrinking!
#LCAM
#LCSM
@EGFRResisters
#diecancerdie
48
11
420
NED after 6+ years! Upper right lobe of my lung — GONE! So glad I have such an awesome team
@jdoningtonmd
@JPatelMD
. VATS made possible for this stage IV
#lungcancer
patient!
#lcsm
#ResearchMatters
#ScienceIsAwesome
#HopeLives
@EGFRResisters
@UCCancerCenter
42
25
304
Today I am celebrating 7 yrs of living w/stage 4
#lungcancer
w/my family! Thx to
#EGFR
#TKIs
, my amazing onc
@JPatelMD
@LurieCancer
@NorthwesternMed
, fantastic surgeon
@jdoningtonmd
@UCCancerCenter
& my LC sisters!
#lcsm
#whiteribbonproject
@EGFRResisters
#ResearchMatters
19
13
300
Wonderful dinner last night celebrating 9 years of living with
#EGFR
+ stage IV
#lungcancer
!
The past 6 months have been tough due to an unexpected recurrence/treatment change, but I’m still hanging in there and hoping for many more future cancerversaries!
#lcsm
@EGFRResisters
18
12
258
Heading home from the hospital post-lobectomy! Thanks for the great care
@jdoningtonmd
@DSBryan1
@UCCancerCenter
!
#lcsm
#lungcancer
@EGFRResisters
18
8
206
THANK YOU so much to everyone who retweeted, contacted me, and liked this thread today. I just heard from
@Aetna
and THEY HAVE APPROVED the medication!!!!
PLEASE RT: I need help from the
#lcsm
community
@Aetna
, pls approve my onc’s 2nd appeal for
#selumetinib
for the TRIM 24 BRAF fusion that is driving my
#lungcancer
progression. I have received 2 prior denials
What’s the use of
#biomarker
testing if I can’t get the drug I need🧵
28
129
166
27
7
203
Today is my 5 YEAR STAGE IV
#lung
cancerversary. I am celebrating in Curacao with my new friend
#LuluTheLung
! I plan to start taking pictures with Lulu everywhere I go to raise awareness that ANYONE with lungs can get
#lungcancer
! Who wants to join me?
#lcsm
@iheartguts
12
26
196
64 months since I was dx w/stage IV
#lungcancer
and still stable! Got this great news from my fantastic oncologist
@JPatelMD
@UCCancerCenter
today. Thanks to
#targetedtherapies
I was able to see my son commit to college yesterday!
#bestweekever
@EGFRResisters
@Princeton
#lcsm
14
13
192
PLEASE RT: I need help from the
#lcsm
community
@Aetna
, pls approve my onc’s 2nd appeal for
#selumetinib
for the TRIM 24 BRAF fusion that is driving my
#lungcancer
progression. I have received 2 prior denials
What’s the use of
#biomarker
testing if I can’t get the drug I need🧵
28
129
166
Although I have a tiny bit of FOMO from missing
#ASCO23
, seeing my older son graduate from college nearly 10 years after being diagnosed with stage IV EGFR+
#lungcancer
is well worth it!
#lcsm
@EGFRResisters
@Princeton
@princetonalumni
@JPatelMD
@LurieCancer
@NorthwesternMed
12
7
186
Priceless moment last night celebrating my 18 yo son’s birthday with my 86 yo mom. This milestone was possible due to
#lungcancer
research and targeted therapy. When I was diagnosed w/Stage IV LC 5 years ago, I never dreamed I would see this.
#LCAM
#LCSM
@EGFRResisters
8
36
181
Returning from my first Parents’ Weekend at
@UMich
! Great to see my freshman son!
#Researchmatters
— didn’t think I would be around for this milestone when I was diagnosed with stage IV
#lungcancer
in 2013.
#lcsm
#lcam
#NovemberisLungCancerAwarenessMonth
@EGFRResisters
11
7
168
Celebrating stable scans after 4 months on osimertinib and selumetinib! What a great way to begin 2023!
#lcsm
@EGFRResisters
@JPatelMD
@LurieCancer
@NorthwesternMed
@AstraZeneca
@AstraZenecaUS
16
3
165
THIS! Celebrating my 23rd wedding anniversary thanks to
#lungcancer
research. Didn’t know if I’d make it to my 18th anniversary when I was first diagnosed 5+ years ago.
#lcsm
@EGFRResisters
#livingwithlungcancer
15
12
161
Thanks to
#lungcancer
#research
& excellent medical care, I have been able to live well for >7.5 years w/stage IV
#EGFR
+ lc. Long enough to see these little kindergarteners, including my younger son, graduate from high school today!
#lcsm
@JPatelMD
@jdoningtonmd
@EGFRResisters
15
7
155
Celebrating 26 years of marriage to my wonderful husband Ben at
@ArchesNPS
@VisitMoabUtah
! Despite living with stage IV lung cancer for over 8 years and one lung lobe down, still able to hike to see arches. Priceless!
#lcsm
@EGFRResisters
#lungcancer
15
2
130
I'm a published author!
I was honored to work with
@joan_schiller
on the 5th Edition update of her book entitled "Lung Cancer: Your Questions & Expert Answers"
It will be released tomorrow, May 3, 2022, everywhere.
…
#lcsm
#lungcancer
@EGFRResisters
19
12
120
Today is my younger son’s 15th birthday. He was 10 years old when I was diagnosed with stage IV lung cancer! So happy to see this day. Thanks
@UCCancerCenter
@JPatelMD
#medicalresearch
!
#lcsm
5
7
104
Good scans and still NED (No Evidence of Disease) today!Spreading Lung Cancer Awareness at
@NorthwesternMed
@LurieCancer
with
@JPatelMD
and
@ErikaHlavacek
. Proud to be part of the
#whiteribbonproject
started by
@heidi_onda
!
#lungcancer
@EGFRResisters
#lcsm
10
2
109
Thanks to
#lungcancer
research,
#targetedtherapy
and my awesome oncologist
@JPatelMD
at
@UCCancerCenter
, I celebrated my son’s 16th birthday yesterday!
He was 10 years old when I was first diagnosed w/stage IV lung cancer.
#lcsm
@EGFRResisters
4
5
107
It’s perfect that this article for
@LungCancer_HU
was published today! I just had my 2 week post-op appointment with
@jdoningtonmd
. I’m healing great & the tumor removed was classified as stage I, w/clean margins & no lymph node involvement. Officially NED!
#lcsm
@UCCancerCenter
“As a stage IV lung cancer patient, I never thought surgery would be an option for me.” Ivy talks about learning that she is a candidate for surgery.
#lcsm
1
8
24
12
11
106
Tomorrow, I will be celebrating my 6th Thanksgiving since my diagnosis with stage IV
#lungcancer
in 2013. This article is as true now as it was last year when I wrote it. Lots to be thankful for!
#lcsm
#lcam
#ResearchMatters
@EGFRResisters
2
20
102
What a week! Moved from our family home to a high rise condo — will be empty nesters in August. Scans yesterday show I am still NED. Thanks to research for letting me raise my sons while living w/stage IV
#lungcancer
!
#lcsm
@EGFRResisters
@JPatelMD
@LurieCancer
@NorthwesternMed
6
2
106
Loving my new Lung Cancer Awareness shirt — thx
@breathofhopeky
! It’s important to know that
#anyonewithlungs
can get
#lungcancer
— regardless of your sex, age, race/ethnicity or geographic location! The biggest risk factor is having a pair of lungs!
#lcsm
#lcam
@EGFRResisters
5
7
101
Metformin has been studied a lot in
#lungcancer
, w/conflicting results. Poster by
@ogarrieta
at
#WCLC21
stratifies patients on
#EGFR
TKIs plus
#metformin
into groups based on BMI. In patients with BMI>=24, addition of metformin appears to improve PFS and OS.
#LCSM
@EGFRResisters
4
40
98
On my way to Barcelona with
@jillfeldman4
for
@IASLC
’s World Conference on Lung Cancer
#WCLC19
. So excited to represent the
@EGFRResisters
!
#lcsm
#lungcancer
9
2
96
Should low dose CT screening for
#lungcancer
include those who have never smoked? Evidence presented by Dr. Shannon Zhang at
#TTLC22
indicates this could help detect lung cancer in this population earlier, at 1st baseline scan & reduce mortality.
#lcsm
@OncoAlert
@EGFRResisters
9
30
95
Very sad day yesterday in Neenah, Wisconsin saying goodbye to close friend and fellow
#lungcancer
advocate Erin Sarauer (
@erinkuss
). Erin was a 43-year old woman with a beautiful family and life, cut devastatingly short by lung cancer. WE NEED MORE RESEARCH!
#lcsm
@EGFRResisters
11
18
95
So cool to have one of my Lung Cancer Awareness Month tweets featured on the Reuters billboard in NYC! Thanks
@AmgenOncology
#lcsm
#lcam
#lungcancer
@EGFRResisters
@LUNGevity
1
11
89
Largest EVER live meet-up group of EGFR positive lung cancer survivors and caregivers took place this evening!
@EGFRResisters
@LUNGevity
#lcsm
#dchope18
#thisishope
4
25
82
This slide was presented in the Lung Cancer Targeted Therapies session at
#AACR20
today. As a healthy 47 year old when dx with stage IV
#lungcancer
completely out of the blue, with no known risk factors, I would like to know how I could have PREVENTED my LC
#lcsm
@AACRFoundation
9
14
80
Happy New Year! In 2021, I plan to continue advocating for increased
#lungcancer
research & awareness. Thanks to
@heidi_onda
for starting the
#whiteribbonproject
— for those of us living with LC,
#lungcancerawareness
goes beyond just November; it’s everyday!
#lcsm
@EGFRResisters
7
6
84
Today is the first day of November, which is
#LungCancerAwarenessMonth
. Please follow the
@EGFRResisters
because we will profile a different member living with
#lungcancer
each day this month.
#LCAM
#LCSM
#ResearchMatters
Because of EGFR research, Allen Lee was able to get married and see the birth of his daughter, Mia. We need more research and progress for him to be able to raise her.
#LCAM
#lungcancer
0
27
94
1
21
82
Heading to Vail for my 3rd year as patient advocate faculty for the
@AACR
/
@ASCO
Methods in Clinical Cancer Research Workshop. Looking forward to helping w/clinical trial design!
#lcsm
#VailWorkshop19
@EGFRResisters
#lungcancer
4
3
84
I am only living with
#EGFR
#lungcancer
9+ years post-diagnosis because I have been fortunate to access biomarker testing and have result-driven treatment decisions! We need to do better for the 64% — it can be completely life-changing and life-extending!
@EGFRResisters
#lcsm
There are many gaps associated with
#Biomarker
Testing in
#NSCLC
. Striking to see that using commercial and medicare claims data, approximately 64% of potentially eligible pts do not get personalized therapy!
@JCOPO_ASCO
3
66
137
4
14
82
Happy Thanksgiving to the
#lungcancer
community! I am thankful to be doing well 5 years post diagnosis with stage IV EGFR positive lung cancer. Because of targeted therapy, I can spend precious time with my family and make memories together.
#lcsm
#lcam
day22
@EGFRResisters
3
5
74
I may have stage IV lung cancer, but it doesn’t have me! Thanks to
#lungcancer
research, I just had an absolute blast with my family visiting my namesake town, Elkins, WV!
#lcsm
#livingwithlungcancer
@EGFRResisters
1
4
70
As a stage IV lung cancer patient, I’ve been on targeted therapy for almost 5 years and it’s certainly been a game-changer for me. I’ve been able to live a normal, active life while seeing my kids grow into teenagers and celebrating many milestones with my family!
#lcsm
I hear this often from multiple fronts and don't understand it. Just because targeted rx doesn't CURE cancer does not mean it's not a game-changer. Knowing many lung cancer pts that have lived 8, 10, 12+ years on targeted rx, this really makes me scratch my head....
#LCSM
10
18
117
2
14
70
Very important presentation at
#ASCO22
by Dr Matthew Schabath on why it is important to identify
#LGBTQIA
patients with cancer and the right questions to ask! At least 7 cancer types disproportionately affect these populations, including
#lung
!
#lcsm
#disparities
#SOGI
@OncoAlert
1
28
69
Exciting update! In collaboration with
@JanssenUS
I’m hosting a
#LungCancerChat
on Twitter 10/27 @ 11AM EDT about biomarker testing, mutations and targeted treatment planning, sharing info and tips for related doctor-patient conversations. I’d love to see you there!
#LCSM
5
23
70
Great news! Starting February 25th, Illinois will expand phase 1b to include those living with comorbidities such as cancer, heart disease, diabetes and others!
#lcsm
3
8
66
IMPORTANT FOR ALL TO KNOW: “If you have lungs, you can get lung cancer”
#lcsm
#lungcancer
@EGFRResisters
@IASLC
#WCLC2019
0
24
68
Received my Certificate of Recognition from the
@AACR
Scientist-Survivor Program tonight! So glad that I was fortunate enough to participate in this fantastic advocacy program for the 2nd tIme!
#AACR19
#AACRSSP
#lcsm
@EGFRResisters
5
7
66
Honored to be one of the
#ASCO22
Featured Voices! I will be tweeting about
#LCSM
abstracts, especially those important to
@EGFRResisters
impacted by
#EGFR
#lungcancer
diagnoses. I also hope to add insight to
@ASCO
conversations as a patient research advocate.
@OncoAlert
2
7
68
In this article for
@LungCancer_HU
, I talk about living with stable, but not cured,
#lungcancer
. I had my quarterly scans yesterday and found out that I am still extremely fortunate to have stable disease more than 5 years post diagnosis.
#lcsm
@EGFRResisters
@UCCancerCenter
“I had to change my goal from getting rid of the cancer in my body to learning how to live with it long term.”
2
2
14
2
8
65
November is Lung Cancer Awareness Month. Did you know?
#lungcancer
#lcsm
#lcam
#changelc
@LUNGevity
@EGFRResisters
3
36
67
All of the amazing women in this picture are surviving with
#lungcancer
. We had a great time at our annual holiday brunch in the Chicago area!
#lcsm
Holiday lunch with Chicago lung cancer sisters. None of us voluntarily joined the tribe, but all of us belong. That is hope-knowing you're not alone & believing that nothing, not even cancer, can defeat the human spirit - Here's to many more!
#LCSM
#SilverLinings
#Hope
3
14
70
7
4
65
Today is
#WorldCancerDay
! We need to
#closethecaregap
so that access to best options for screening, diagnosis and treatment are available to everyone, regardless of geography, race/ethnicity, and socioeconomic levels.
#lcsm
@EGFRResisters
@OncoAlert
#lungcancer
#healthequity
1
12
64
Thrilled to be
@AACR
in New Orleans to act as a mentor for the
#AACR22
#SSP22
program.
#lcsm
@EGFRResisters
3
2
63
Thanks to
@CEC_Onc
... heading to
#ASCO19
with
@jillfeldman4
to represent the
@EGFRResisters
! Looking forward to sessions, posters, receptions and lots of meetings over the next few days!
#lcsm
#lungcancer
@jfowlerpharmd
2
8
62
Excellent presentation by
@jillfeldman
: Learning you have cancer is "like being drop-kicked into a foreign country", where you don't know the language/customs or have a map. Words physicians use matter, also tone of voice and body language.
#lcsm
@OncoAlert
#ASCO20
@EGFRResisters
1
23
63
Made it to
#ASTRO21
! Looking forward to hearing
@jillfeldman4
provide the patient perspective in the Presidential Plenary about real world vs. clinical trial evidence!
#lcsm
#lungcancer
@EGFRResisters
@ASTRO_org
#jivy
3
5
62
Below is a transcript of my presentation at today's
#WCLC20
Press Conference on
#COVID19
and
#LungCancer
. I talked about mental health, online support, delayed diagnoses, telehealth, and the need to prioritize patients for
#CovidVaccines
.
#LCSM
Read:
5
15
63
Excellent talk by
@JFreemanDaily
on "A Lung Cancer Patient's Manifesto for Modernizing Clinical Trials." Clinical trials are treatment and hope; we need to eliminate disparities in clinical trials and barriers to access.
#VPS20
#WCLC20
#lcsm
1
19
57
All of this goals are critically important for improving clinical trial. I have a 6th goal to suggest though — Make sure patient advocates are included as part of the clinical trial team from the start to ensure the trial MEETS PATIENT NEEDS!
#ASCO22
@OncoAlert
#lcsm
6
16
60
Happy 2019! Celebrating my 6th NYE since I was diagnosed in December 2013 with stage IV
#LungCancer
with
#LuluTheLung
and my family.
#lcsm
#celebratingmilestones
#survivingwithlungcancer
#allyouneedarelungs
@EGFRResisters
@iheartguts
0
3
60
The Chicago crew is headed to DC for the International Lung Cancer Survivorship Conference (ILCSC)! Love traveling with all my sister survivors!
@LUNGevity
#ilcsc19
#lcsm
#LungCancer
4
6
58
This group of amazing women are all living with
#lungcancer
! They’re my “tribe” — we call ourselves the LC Babes!
@LUNGevity
#ILCSC19
#lcsm
1
9
57
#LungCancer
advocates REPRESENTING at
#AACR19
!
#lcsm
#disrupters
@EGFRResisters
@Exon20Group
@ALKLungCancer
@chrisdraft
1
11
55
Found out today that the
@EGFRResisters
had an abstract accepted for
@IASLC
#WCLC2018
! So excited that we will be presenting a poster about our patient-driven EGFR lung cancer initiative to a global audience.
#LCSM
#lungcancer
@jillfeldman4
11
14
58
Our
@EGFRResisters
@EGFRSummit
was a huge success! I am home now just reflecting on the wonderful connections made and exciting research ideas discussed this past weekend. Many thanks to our judges, young researchers,
@CEC_Onc
&
@AstraZenecaUS
for making this possible!
#lcsm
3
7
59
When I initially wrote this article for
@LungCancer_HU
, I had not yet had my post-lobectomy scans and visit to my oncologist. Well, I am happy to report that I had these appointments this week and am still considered NED (no evidence of disease)!
#lcsm
7
2
58
Standing room only tonight at the
#EGFR
#lungcancer
meet-up group
@LUNGevity
#ilcsc19
! I thought we had a huge crowd last year, but this year’s turnout exceeded all expectations! EGFR+ patents and caregivers ROCK!!
@EGFRResisters
#lcsm
1
6
57
5 years ago today at a happy family celebration — just before I was diagnosed with Stage IV
#lungcancer
. Little did I know that my misdiagnosed “tennis elbow” was due to bone mets from a mass in my lungs. ANYONE with lungs can get lung cancer!
#LCAM
Day 4
#LCSM
@EGFRResisters
0
22
55
Visited the Patient Advocate Lounge
@ASCO
and met up with these amazing
#lungcancer
patient advocates!
#lcsm
#asco19
@jillfeldman4
@lgreco_ny
@ZieglerColleen
2
7
56
Celebrated my dear friend
@jillfeldman4
’s 10 year
#lungcancer
#cancerversary
and my 5 year last night with painting and pizza! Yes, life IS beautiful!
#lcsm
#ThisIsHope
@EGFRResisters
3
7
56
Ask your Representatives to Support Restoring $20 Million in funding for the Lung Cancer Research Program in 2020! Just click on this link!
#lcsm
6
28
53
Thanks to the
@TODAYshow
for recognizing how “woefully underfunded”
#lungcancer
is. “While lung cancer kills more men and women than colorectal, breast and prostate cancer combined, only 6% of federal research dollars go to the disease.”
@jillfeldman4
@EGFRResisters
#lcam
#lcsm
Nonsmoker's family was haunted by lung cancer — then she got diagnosed herself
6
39
69
1
22
55
Great to spend the 2nd day of Lung Cancer Awareness Month celebrating survival with
#lungcancer
patients and caregivers
@UCCancerCenter
for the
@LUNGevity
Lunch and Learn!
#lcam
#lcsm
#LungCancerAwarenessMonth
@jdoningtonmd
@UChicagoMed
@diianeee
1
12
55
“We need to work WITH our communities to develop the resources for our communities.” Congrats to
@DrRobWinn
on new
#DEI
initiative in his name to address disparities in clinical trials.
#AACR22
#LCSM
@AACR
1
7
53
Dr. Pasi Janne wins the
#ESMO18
translational research award for his groundbreaking work with EGFR inhibitors. We’re so honored to have you as Medical Advisor for the
@EGFRResisters
!
#lcsm
@myESMO
0
14
55
Today is the official launch of our new
@EGFRResisters
website, ! Please help us share info about our initiative with patients, oncologists & other medical professionals! We already have > 250 members in 16 countries!
#lcsm
#lungcancer
1
40
55
Amivantamab is a bi-specific antibody that works for
@EGFRResisters
by binding to
#cMET
and
#EGFR
. This
#AACR21
poster discusses a potential TRI-specific antibody that might work better through binding to EGFR and two cMET locations.
#lcsm
2
14
52
Today for World Cancer Day, I AM living well with stage IV
#lungcancer
because of recent advances in research and treatments. I WILL continue advocating for increased awareness and research for lung cancer so that further progress can be made!
#lcsm
@EGFRResisters
#WorldCancerDay
0
11
54
RIP Eddie Van Halen. It’s important for the public to know that he died from
#lungcancer
, not throat cancer, contrary to other reports.
#lcsm
Iconic guitar virtuoso and rock star, Eddie Van Halen, died as a result of Lung Cancer.
#lcsm
1
8
21
1
15
53
For
#LungCancerAwarenessMonth
Day 7, I’d like to share pictures of a few beautiful women I spent time with yesterday who are living with stage IV
#lungcancer
like myself. None of us would be alive today without RESEARCH!
#lcsm
#lcam
#ResearchMatters
0
8
53
Just watched
@LAGurwitc
's excellent
#WCLC22
talk virtually. "Time to advocate for yourself as a patient is a luxury & a privilege that many don't have" -- so true. Patients shouldn't have to fight for access to testing & treatment they desperately need.
#lcsm
@EGFRResisters
2
12
53
Anyone can get
#lungcancer
— all you need is lungs. Sending tons of good wishes to
@TDucklo
on his treatment journey. Please reach out to the lung cancer community for support. I have been living with stage IV
#EGFR
positive lung cancer for 6 years.
#lcsm
@EGFRResisters
Some upsetting news to share & explanation for why I’ve been MIA recently: after a bunch of tests, I’ve been diagnosed w/ metastatic lung cancer. Which sucks a lot. I’m starting treatment Monday, & my doctors — who have been incredible — believe we can get this into remission. 1/
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1K
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11
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THIS IS VERY IMPORTANT! Cancer patients like myself have significantly higher risk of mortality from
#COVID19
;please prioritize us as part of IB in Illinois! I’ve lived with stage IV
#lungcancer
for 7+ years and don’t want to die due to a virus!
@JBPritzker
@chicagotribune
#lcsm
We need
#COVID19
#vaccine
in
#OncTwitter
patients NOW in the US.
#B117
🇬🇧 strain is far more contagious & we’ll see ⬆️⬆️hospitalizations in 4-6wks. I’m worried ppl w/ mets
#cancer
will get triaged to no ICU/vent if crisis stds invoked. This is avoidable! VACCINATE NOW!
#bioethics
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13
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Fantastic lung cancer awareness moment courtesy of
@NBCThisisUs
! Thanks for helping those of us living with
#lungcancer
to share the message that all you need are lungs to get lung cancer!
#lcsm
#ThisIsUs
Thank you
@Dan_Fogelman
#ThisIsUs
for pointing out that anyone with lungs can get Lung Cancer. No risk factors required.
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Come visit our poster about the EP1C patient experience collaboration between the
@EGFRResisters
and
@AstraZenecaUS
! Poster Row 32, P1.16-48 in the Exhibit Hall today (Sunday)!
#lcsm
#lungcancer
#WCLC19
@IASLC
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6
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Congratulations to Dr. Pasi Janne of
@DanaFarber
for winning the
#ASCO20
Science and Oncology Award and Lecture. Here are the issues that he believes need to be tackled to improve the future of precision therapy in
#lungcancer
.
#lcsm
@EGFRResisters
@OncoAlert
2
11
52
Great week spent at the virtual
@ASCO
/
@AACR
Methods in Clinical Cancer Research workshop w/fantastic clinicians, young investigators & patient advocates. Looking forward to seeing great things in the future from the YIs in my 2 protocol development groups!
#vailworkshop
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7
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It’s becoming clearer all the time that
#biomarkertesting
is important for patients at every stage of
#lungcancer
. We desperately need to improve education, access, and financial/insurance issues that limit the broad adoption of biomarker testing everywhere.
#WCLC21
@iaslc
#lcsm
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Key takeaways from
@jillfeldman4
: "Please do what is right, not what is easy. Access to clinical trials can make the difference between life and death."
#WCLC20
#lcsm
@OncoAlert
1
23
51
The
@EGFRResisters
community is eagerly awaiting clinical trials for
@BlueprintMeds
's BLU-945 4th generation
#EGFR
inhibitor that will target the triple mutation of EGFRm/T790m/C797S. Treatment for those of us who develop C797S is an urgent need!
#lcsm
#AACR21
#lungcancer
2
13
49
So awesome to meet
@NobelPrize
winner Jim Allison
@CancerCureDoc
and see him perform with his band
#TheCheckpoints
@BuddyGuys
last night during
@ASCO
!
#lcsm
#lungcancer
@sitcancer
@CEC_Onc
@jfowlerpharmd
@jillfeldman4
#asco19
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Thanks to
@UCCancerCenter
@UChicagoMed
@ARizzo44
@RizzoFoundation
@chicagotribune
for profiling my lung cancer journey in a full page ad in the Chicago Tribune. Everyone who has lungs can get lung cancer!
#lcsm
#lungcancer
@EGFRResisters
#cancercantcompete
5
18
48
Great to see
@EGFRResisters
@EGFRSummit
alum
@fdemiguelsdp
@YaleCancer
present his poster on osimertinib resistance in
#EGFR
+
#lungcancer
. Congrats on your
@AACR
Scholar-in-Training Award and so glad to finally meet in person!
#lcsm
#AACR22
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“Behind the p-value is the most important part of the story — people”
@jillfeldman4
at
#ASTRO21
. Real world data should complement clinical trial data and be applied in the context of each patient’s life.
#lcsm
#lungcancer
@EGFRResisters
@ASTRO_org
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10
47
Dr.
@Tony_Calles
: roadmap for checkpoint blockades in
#lungcancer
with driver mutations. Important to note increased risk of toxicity if IO followed by TKI. Most promising use of IO is in combo with chemo or antiangiogenic drugs, AFTER targeted therapies.
#lcsm
#ASCO20
@OncoAlert
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15
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Patients w/
#lungcancer
desperately need new treatments for leptomeningeal disease. A case study at
#WCLC20
describes a patient who has had success w/off-label dacomitinib with lepto. This might warrant further studying!
#lcsm
@EGFRResisters
#WCLC20
@OncoAlert
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As more and more patients like myself are living longer with stage IV
#lungcancer
, attention to survivorship needs is absolutely critical! This is a very important poster!
#lcsm
#NACLC22
So proud of my colleague and friend Mattea Miller for presenting our work in identifying survivorship needs for patients with metastatic lung cancer in the
#NACLC22
poster discussion 🎉
@HopkinsThoracic
@joyfelicianomd
#lcsm
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