EGFR Resisters
@EGFRResisters
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A group of EGFR+ lung cancer patients who are resistant to targeted treatment. Sharing support & research news, accelerating research, improving outcomes. #lcsm
Worldwide!
Joined August 2017
❤️Our latest newsletter is out! ❤️.Inside:.✅ EGFR Resisters is officially as a 501(c)(3) non-profit! 🎉.✅ Updates on research, advocacy, and patient support/education.✅ Ways to get involved. Read it here:
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Today we mourn the loss of our Ivy Elkins, a co-founder of the EGFR Resisters and formidable lung cancer advocate. She mill be missed! Condolences to her family and loved ones.
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Join us to celebrate the discovery of the EGFR+ mutation that has revolutionised the treatment of EGFR+ lung cancer, giving us improved outcomes and hope. Today we also remember the ones that we have lost from our EGFR Resisters community.
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Because of EGFR research, Allen Lee was able to get married and see the birth of his daughter, Mia. We need more research and progress for him to be able to raise her. #LCAM #lungcancer
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Here are just a few faces of EGFR Resisters on World Lung Cancer Day. We are all waiting for better treatments to keep us alive longer.
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Because of EGFR research, Samantha Bladwell was able to celebrate her daughter’s first birthday. #lcam
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Lung cancer in patients who never smoked -an emerging disease. “The global incidence of lung cancer decreasing in parallel w/ declining smoking rates in developed countries- the incidence of LC in individuals who have never smoked is stable or increasing”.
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💔 to share that Dann Wonser has passed after living 19 years with stage 4 egfr lung cancer. Dann was a prolific advocate & an inspiration to many in the community. He wrote a book (Second Wind: Thriving with Lung Cancer) & created videos to help others cope with this disease.
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‼️RESOURCE ALERT‼️.I have created a database of resources/information to help patients/caregivers etc navigate the EGFR LC space. It is a work in progress but here is the link: Save the link as I update this daily! Thank you!!
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Tagrisso failed after only 9 months for Filipe, Stage 4 #egfr #lungcancer patient and advocate. At 37, he shares his experience w/this disease and the importance of advocacy w/ @EuropeanLung. He exemplifies the need for better 2nd and 3rd line treatments.
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A community member created this art to remind us that #anyonewithlungs can get #lungcancer. We need to change the way we talk about it. We need to recognize that its a complex disease with many risk factors. We need to create a more supportive environment for patients & families
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Very proud to announce that our closed Facebook group for patients and caregivers has reached 1K members! If you or a loved one have been diagnosed with EGFR positive #lungcancer, please join us to share information and work together to improve patient outcomes. #lcsm.
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We are excited to announce our collaboration with @TheALCF to jointly advocate and fund research for patients with EGFR+ lung cancer.
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💔.
It is with a heavy heart and profound emotion that I announce the passing of my beloved spouse, Reika Yokochi, who left us at the age of 48 after a courageous battle with EGFR-positive lung cancer @EGFRResisters, a disease that disproportionately affects non-smoking Asian women.
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Osimertinib plus local treatment for brain metastases versus osimertinib alone in patients with EGFR-Mutant Non-Small Cell Lung Cancer. These findings suggest that upfront LT + Osimertinib can offer improved outcomes.
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Because of EGFR lung cancer research, Garth Atchley is still here to be a parent and husband for his family, and he's still running strong. #lcam
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Because of EGFR research, Kimberly Scott is alive to attend her oldest daughter's wedding, take her 2nd on her 1st trip to Scotland, see her son go to prom, celebrate 27th yr wedding anniversary, take her youngest to Hawaii. Living her best life. Grateful every day. #lcam
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EGFR-mutant NSCLC may remodel TME from non-inflamed to inflamed through acquiring resistance to EGFR-TKI treatment. “EGFR TKI treatment facilitates the transition of EGFR mutant NSCLC patients from ‘cold’ to ‘hot’ tumors.”.
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Research funding is disproportionate to the burden of disease that #lungcancer cancer imposes. Lung cancer patients and their families deserve more!. #lcam @OncoAlert @DFEGFRcenter #cancer #CancerAwareness #Advocacy @POTUS #medtwitter #onctwitter.#medX
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Allen Lee @allen_lee_ is a 5 year survivor, and 3 year resister with the T790M/C797S resistance mutation. Because of EGFR clinical trials, and chemotherapy, and targeted radiation, Allen recently heard his daughter say "dada" for the first time. #lcam. Attachments area
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Because of EGFR research, Sara Elida Kern got to celebrate her daughter’s 3rd and her son’s 1st birthdays. Here’s to more funding, more research, more viable treatments, and more birthdays! #lcam #lungcancerawareness
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🚨 News alert! The amazing Aurora, who was dx with EGFR lung cancer at the age of 28, is featured on @NBCNews and bc of her, lung cancer is on the front page of the website! Let’s read/share this article far & wide so LC gets the attention it needs! 😭 .➡️
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Double-dose osimertinib combined with intrathecal injection of pemetrexed improves the efficacy of EGFR-mutant non-small cell lung cancer and leptomeningeal metastasis: case report and literature review.
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Bispecific ADCs: A potential game changer for the next generation of ADCs.
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We are saddened to announce the passing of our dear Anita Figueras aka @scifiknitter, a co-founder and advocate extraordinaire of the EGFR Resisters. We are dedicated to continuing our work to improve patient outcomes and accelerate EGFR+ lung cancer research in Anita’s memory.
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We are launching our EGFR Resisters Instagram page today in honor of #LungCancerAwarenessMonth. Please follow us at egfrresisters_lungcancer! For #LCAM, we will profiling @EGFRResisters who have benefited from EGFR research.
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Because of EGFR Lung Cancer research, Donna Hunting was able to see her first grandchild being born and is blessed to watch all of her milestones in person. #lcam
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Because of EGFR research, Elisa Keesen was able to experience her 30th birthday, write a small book, attend her best friend's wedding, be a godmother, travel to Ethiopia and india, learn to surf and collect much more great memories together with her husband. #lcam
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This is not surprising news, but the confirmation of OS benefit with use of Tagrisso first line in #EGFR #NSCLC IS VERY EXCITING & hopeful for EGFR lung cancer patients and their families #LCSM #ResearchMatters
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Tiffany's husband, Nick, shared this powerful video with us. "3 years ago, my beautiful wife was diagnosed with advanced stage #lungcancer She lived a healthy lifestyle and never smoked, yet lung cancer still found her. She continues to fight every day." . #lcsm #lcam #cancer
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Because of EGFR research, Laura Book was able to attend her son's wedding and is still alive and kicking 3+ years after diagnosis. But more research and funding is needed to keep her alive in the coming years after targeted therapy fails! #lcam #lungcancerawareness
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Lung cancer in those who haven't smoked is 7th leading cause of cancer death worldwide! #ASCO23 Anyone with lungs can get #lungcancer
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Because of EGFR research, Kim Heffernan saw her youngest graduate grade school, her oldest graduate high school and was able to take her oldest son to college this year. #lcam
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Because of lung cancer research, Jennifer Moran is alive to celebrate her 50th birthday, see her son play college football, to see her daughter enjoy her senior year of high school, and celebrate 21 years of marriage to her high school sweetheart. #lcam #LungCancerAwarenessMonth
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Because of EGFR research, Laura Book was able to attend her son's wedding and is still alive and kicking 3+ years after diagnosis. But more research and funding is needed to keep her alive in the coming years after targeted therapy fails! #lcam #lungcancerawareness
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Histologic transformation of non-small-cell lung cancer in response to tyrosine kinase inhibitors: Current knowledge of genetic changes and molecular mechanisms.
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Watch now - EGFR Resisters 5th Annual Research Summit Wrap Up w/ commentary from @StephenVLiu & @ivybelkins. Congratulations to the young investigators! Thank you @CE_Concepts for sponsoring this event!. @EGFRSummit #lcam #lcsm .
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Because of EGFR #lungcancer research, Shannon Cowen has “1 powerful pill”, as her 5 year old says, that helps her to continue to live with lung cancer & maybe hopefully one day be cured so that she doesn't miss a single moment of his beautiful life. #lcam
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Because of EGFR research, Kateri Langseth was able to see her son get his license, teach her daughter how to drive and make as many memories as possible. #lcam
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Because of EGFR research, Stephanie Kohn was able to enjoy a wonderful family vacation in Colorado this past summer! #lcam #lungcancer #lungcancerawareness
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Osimertinib (Tagrisso) is a wonderful drug for EGFR + #lungcancer but once there is resistance, it can get complicated. We understand that resistance mechanisms are many, but we need better treatments once this occurs.
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Remembering our @ivybelkins , a champion for #lungcancer patients. Ivy's advocacy emphasized not only effective treatments but also the importance of improving patients' quality of life. Her work has made a profound impact.
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Happy New Year to all. Here's hoping we have some significant breakthroughs in #lungcancer research and treatments in 2020. In the meantime, we will live our lives to the fullest.
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Comprehensive mutational scanning of EGFR reveals TKI sensitivities of extracellular domain mutants.
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Because of EGFR research, Nancy Engel (an almost 4 year stage 4 #lungcancer survivor) could go on the trip of a lifetime with her husband. #lcam #lungcancerawareness
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Because of EGFR #lungcancer research, Sarah Christ was able to see Costa Rica with her family and honeymoon in Portugal with her wife. #lcam
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Thank you to all of the oncologists that often work tirelessly for their patients. We hope you know how appreciated you are & that we are aware of the sacrifices you make. Systemic change is needed for doctors & patients alike. #lcsm . @NarjustFlorezMD @esinghimd @StephenVLiu.
Oncologist Well-Being Has “Worsened Measurably”
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Today we say a final goodbye to one of our beloved founders, Anita Figueras. We shall continue her work to help improve patient outcomes in her memory.
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#WorldLungCancerDay Building a better tomorrow for EGFR+ lung cancer patients and families! We are 30% of our way to our research project with @lcrf_org
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Because of EGFR research, Nancy Engel (an almost 4 year stage 4 #lungcancer survivor) could go on the trip of a lifetime with her husband. #lcam #lungcancerawareness
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Theresa is living with stage 4 EGFR lung cancer while working full time and raising her two young sons. This is probably the equivalent of juggling 6 full time jobs at once. Moms really CAN do it all. #lcam #lungcancer
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Thank you @andrewpannu for this helpful infographic and deep dive (in the comments) on the EGFR+ #nsclc treatment landscape!.#nsclc #egfr #lcsm #lungcancer #onctwitter.
EGFRm+ NSCLC treatment landscape. Key assets, trials and companies segmented by treatment line and mutation type. Some takeaways from this competitive space:
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18 year stage IV EGFR+ lung cancer survivor, Dann Wonser, is raising funds for our research foundation and these donations will be QUADRUPLED! That means that a donation of $100 = $400! . Donate here:
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We are ready & set up for our Inaugural EGFR Resisters Research Summit! Looking forward to meeting the researchers. Missing @allen_lee_ & @ckennedysturdi In all the work we do we will always honor the memory and contributions of @teriak64 & @scifiknitter #LCSM #LCAM
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Lauren Corcoran,38, shares her #egfr #lungcancer story with @TODAYshow . Thank you Lauren for sharing & thank you to the today show for highlighting this story. We must continue to spread awareness!. #lcam #lcsm #cancer #mom #research
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Because of EGFR research, Samantha Bladwell was able to celebrate her daughter’s first birthday. #lcam
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Because of EGFR research, Frances Beard got to see her daughter enter and graduate from college. #lcam
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Today we lovingly remember Teri Kennedy, our cofounder, who inspired us and sent us on a journey to help improve the outcomes for people w/ #lungcancer
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Because of #lungcancer research, Alisa Brenes has lived to see her twin sons graduate elementary school, middle school high school, and college!!! #lcam #LungCancerAwarenessMonth
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Thanks to research, @jillfeldman4 has been LIVING with lung cancer for 11 years. #LCSM #ResearchMatters!.
When your 17 yr old can't remember you/life b4 lung cancer, knows your mom, dad & other fam died of it & really understands #ResearchMatters! Best message to wake up to (& nice insta post). I'm glad I'm not dead too & when it comes to lc I am happy to be a #MightyBitch! #LCSM
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Because of EGFR #lungcancer research, .Elena Rousseau's daughter knows who she is and will remember the real Elena. #LCAM
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Because of EGFR #lungcancer research, Kara Webb will be here to welcome her newest granddaughter next month and enjoy the two grandkids she already has!! #LCAM
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A macrocyclic kinase inhibitor overcomes triple resistant mutations in EGFR LC. Our findings suggest that brigatinib-resistant mutants can be overcome by BI-4020, a fourth-generation EGFR inhibitor, as a single treatment or w an antiEGFR antibody.
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Because of EGFR research, Sara Elida Kern got to celebrate her daughter’s 3rd and her son’s 1st birthdays. Here’s to more funding, more research, more viable treatments, and more birthdays! #lcam #lungcancerawareness
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Triple combination therapy comprising osimertinib, an AXL inhibitor, and an FGFR inhibitor improves the efficacy of EGFR-mutated non-small cell lung cancer.
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Because of #EGFR #lungcancer research, Mike was able to walk his daughter down the aisle and celebrate her big day👰👰. #LCAM #lungcancerawarenessmonth #lcsm #cancer #cure #defeatcancer #stage4needsmore #father #daughter
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Association of PD-L1 expression with driver gene mutations and clinicopathological characteristics in non-small cell lung cancer: A real-world study of 10 441 patients.
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Because of #EGFR #lungcancer research, Ashley is still alive 3 years after dx & was able to go on the vacation of a lifetime this summer with her husband & son. She is #grateful to still be here to make precious memories w/ her family & friends. #lcsm #lcam #tgif #youngcancer
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With great sadness we announce the passing of co-founder, Teri Kennedy. She ran annual fundraising walks, presented posters at IASLC Targeted Therapy Forums & relentlessly advocated for better EGFR treatments and research. We thank and honor Teri for all her #lungcancer advocacy.
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#lungcancer survivors and caretakers will be raising their voices to Congresspeople on Capitol Hill tomorrow for restoration of the $20 million funding level of the Lung Cancer Research Program within the Dept of Defense. Research=Survival! #VoicesSummit #FundOurLungs #lcsm
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Because of EGFR #lungcancer research, Rachel Quinto and her family gratefully celebrated her 42nd wedding anniversary after diagnosis of Stage 4 NSCLC over 2 1/2 years ago. #lcam
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Osimertinib and palbociclib in an EGFR-mutated NSCLC with primary CDK4 amplification after progression. "With combined osimertinib and palbociclib treatment as second line of treatment, he has an ongoing partial response at 10 months of follow-up.".
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We are excited to share our 1st webinar of a 3-part series on Progression & Resistance in #EGFR+ #lungcancer sponsored by @BlueprintMeds. Please join @sloan_kettering Drs. @HelenaYu923 & @jmchan88 to learn more about #smallcelltransformation. #lcsm.
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#ASCO21 we are ready to go!💨.Here, some of the most interesting abstract on #LungCancer #LCSM that will be presented, very soon! .Take a look at that & enjoy 👁🗨
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Because of EGFR #lungcancer research, Sarah Christ was able to see Costa Rica with her family and honeymoon in Portugal with her wife. #lcam
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"Big Bang Theory' Star Kate Micucci Reveals Lung Cancer Diagnosis: 'Never Smoked a Cigarette in My Life". Glad to read that it was caught early. another unfortunate example of lung cancer occurrence in young women. #lcam #lcsm #cancer #lungcancer #women.
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World Lung Cancer Day (August 1st) was the 1 year anniversary of the @EGFRResisters #lungcancer patient group. Please read our newsletter to learn about what we have accomplished in a year! #lcsm.
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Because of #lungcancer research, Lindi Campbell was able to celebrate #34yearsofmarriage to her college sweetheart! #LCAM #LungCancerAwarenessMonth
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Because of EGFR research, Maki Inada was able to have a family and live 11 more years. Her daughter is now 8! #lcam
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Bayer wins FDA breakthrough therapy designation for NSCLC candidate. BAY 2927088 is a reversible (TKI) that selectively inhibits mutant forms of HER2 and EGFR.
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Because of EGFR research, Dena Pettifer saw youngest daughter graduate HS & college, attended daughter's wedding, saw 3 granddaughters graduate HS. This year she was able to meet her 6th grandchild & 1st great grandchild. Fighting cancer for 6+ years.#lcam
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Because of #lungcancer research, Lisa Gnap can enjoy beach vacations with her husband 7 years after a #stage4 diagnosis. #LCAM #LungCancerAwarenessMonth
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In remembrance of Dr. Paul Kalanithi, author of #WhenBreathBecomesAir, who died of #EGFR #lungcancer in 2015 at 37, we emphasize the importance of #biomarkertesting and knowing your #EGFR status. #LungCancerAwareness #memoir #Cancer #bestseller #stage4needsmore #lcam #lcsm.
“I was neither angry nor scared. It simply was. It was a fact about the world, like the distance from the sun to the Earth.” Revisit an excerpt from Paul Kalanithi’s posthumously published memoir, “When Breath Becomes Air”:
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Because of EGFR #lungcancer research, Francesca McAndrew is looking forward to a trip to Europe with her husband, and first time with kids. in particular Italy, which is where her parents were born.#lcam
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Because of EGFR #lungcancer research, Kathy Sinclair, diagnosed on her 41st birthday, was able to celebrate her official "old-age" birthday!. #LCAM #lungcancerawarenessmonth #lcsm
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Because of EGFR #lungcancer research, Samantha Mixon looks forward to spending more time with her family in 2020. #lcam
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Because of EGFR #lungcancer research, Sara Kern looks forward to celebrating her sister-in-law’s marriage, welcoming a dear friend’s baby, and making hundreds of new joyful memories with her children, husband, family, and friends in 2020. #lcam
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1/3 Beyond statistics, each #EGFRLungCancer life lost leaves a void We hear echoes of their advocacy in our fight, fueled by memories of their strength & loved ones' heartbreak Today we share about Dr Jen Cipriani She was a wife, young mother, anesthesiologist, & patient advocate
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Because of EGFR #lungcancer research, the advocates of the EGFR Resisters want to acknowledge the lung cancer community and encourage others to become involved. #lcam
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Advocates at the @go2forlungcancer #VoicesSummit this week included our own Judy Ganeles, @AlisaBrenes, @LauraJBook from the EGFR Resisters. Asks to Congress included increasing to $60 million for the CDMRP FY2025 Lung Cancer Research Program. Thank you for being our voice!
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Because of EGFR # lungcancer research, Amie Hyman is alive 3 years after a Stage 4 Lung Cancer diagnosis and recently went on a very vigorous 15 RV trip to Yellow Stone, Grand Tetons and the Badlands! #lcam
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