Helen Grote
@helengrote
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Neurology Consultant @NHSGGC . Deaf. @HearingDogs recipient. 🏴 Outside work: 💕🐕🦺🌳🌻🏃♀️🚴🏻♀️ ⛷ 🍰 🎨🏺📚🧵⛪️
Glasgow, Scotland
Joined December 2011
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Pinned Tweet
My mother contracted
#measles
in her pregnancy with me.
I am profoundly deaf, but my eyesight & brain are unaffected. I am one of the lucky ones.
#Measles
kills & causes permanent disability.
Get your kids vaccinated.
#measlesoutbreak
#VaccinesWork
#Measles
is highly infectious, 6 times more than influenza.
It spreads within and across communities unless herd immunity is sustained. Visit the health centre to have your children vaccinated.
#ProtectedTogether
#VaccinesWork
🔗
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If you’re a healthcare worker (& not working this weekend) then give yourself permission to forget about
#coronavirus
for a bit.
Switch off the news & Twitter & do something you ENJOY.
Pick an activity:
🏃♀️ 🚲 🐶 📚 🍰 🍺 🌳🎵 💃
Remember to look after yourself too!
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Before I had my cochlear implant, I couldn’t hear things outside my flat.
I’ve just been sitting listening to the tapping of rain on the window.
Every tap, tap, tap of the raindrops.
What a wonderful sound 💕 ☔️
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It’s 2021.
Think about how you promote conferences.
Does anyone else see a problem with representation here…?
What message does this convey?
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Every morning I come into work & look at the pile of books balanced above my desk...
& I wonder if the one at the top is trying to tell me something...
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My week... 🤯
Monday: consultant job interview ... 👩🏼⚕️ ✅
Friday: cochlear implant operation...👂 🤕
Looking forward to bringing my love of Neurology 🧠
(& hopefully better hearing!)
to my consultant post with the excellent team
@ChelwestFT
&
@ImperialNHS
.
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It's pouring with rain outside.
Just over 6 months post-implant, I'm still obsessed with the sound of rain.
I'm amazed at the fact that I can sit inside, and hear the rain outside.
I just LOVE that sound it makes as it taps on the window. 🥰
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This is an advert for a consultant level neurosurgeon with 10 years of postgraduate training (after medical school)
Full time salary £33,790 to £53,132
No wonder we are haemorrhaging doctors to the USA, Australia & alternative careers…
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One year ago today, I received my cochlear implant!
I’m still v dependent on lipreading, but I love the sound clarity & the surprising joy of hearing new things: rain on windows, creaking trees, running streams (+ dishwasher & washing machine beeps!)
So grateful for this! 🙌
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It's
#DeafAwarenessWeek2021
, so as a
#deaf
doctor, I'm sharing a few things that may help D/deaf patients in clinics.
Research shows poor communication➡️missed appointments, misunderstanding of diagnosis/ treatments & increases morbidity & mortality for the Deaf.
THREAD 👇
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THREAD: 👇
I’ve been to a few medical conferences recently.
Some reflections:
There’s lots of talk about kindness, compassion & wellbeing...
and yet so often, I don’t see the rhetoric being turned into reality at these events for those of us with disabilities (1/6)
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Just dialled in to the
@RCPhysicians
EGM broadcast and there's no captions... and no facility to even switch them on. 🤷♀️
I've raised accessibility
@RCPhysicians
before and am deeply disappointed that yet again, I'm excluded.
@parthaskar
@djnicholl
@VauxEmma
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Two reasons to celebrate:
➡️ ARCP outcome 6 (CCT)
(& perhaps even more exciting...)
➡️ Second cochlear implant op has been successful!
(switch on in 4 weeks!)
HUGE thanks to my lovely Neurology colleagues & esp the ENT surgeons at
@uclh
🌟🌟🌟🌟🌟 🙌
#FridayFeeling
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CI switch on day..
After two months *I CAN HEAR* ! 🦻
Still on ‘Program 1’ so mostly electronic beeps & occasional words..
but already I can tell the clarity & volume will be much better than the ‘sound soup’ I had with hearing aids.. 🙌 🙂
Celebrated over dinner & drinks!
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The power of cochlear implants:
I can stream sound from MS Teams meetings on my desktop wirelessly to my cochlear implant via a Phonak microphone..
& go through two doors across the corridor to make coffee/ use the photocopier & continue listening..
(do AirPods do this too?)
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#LondonMarathon
all done in 3:55 (exact same time as my brother
@Ashleyjgrote
even though we weren’t running together!)
Forgot finish line selfie… so here’s one from home.
Thank you to all who sponsored us for
@GOSHCharity
on
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Had a lovely weekend. Went to
@sciencemuseum
with a friend & her daughter.
Blown away when I found this children’s book in the shop.
What’s this ‘Future Doctor’ wearing?
… a hearing aid!
Representation matters…for all those other deaf children who want to be doctors too. 😊
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Thank you to everyone who supported & sponsored us! We crossed the finish line together at Norwich cathedral in 4:38.
Wonderful reception from the congregation & interview with
@BBCLookEast
Hard work! Couldn’t have done it without my brother
@Ashleyjgrote
🙌
#Londonmarathon
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London to Cornwall train:
Brought books & newspaper for the journey.
Sat next to a stranger.
She asked about my cochlear implant & we chatted for another two hours about work, books, neurology, misogyny, pottery & holidays.
Swapped details & left as train friends! 🚂 🙂
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Recovering after second CI op..
Thankful for the NHS & excellent care from surgeons, nurses & HCAs 🙌
Grateful to anaesthetists for making the experience slightly better by providing a bear-hugger & choice of vein! 🌟
Being a patient shows how much the little things matter..
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THIS...👇
Are you speaking at a conference/ lecture/ other event...?
*Use the mic* 🎤
You might think your voice ‘carries’...
...but I can promise you that it doesn’t carry to my hearing aid unless you’re using the microphone (which is connected to the loop system...)
Pet peeve: Don’t be that presenter who stands at a podium and announces you don’t need a mic ‘cos your voice carries. And worse, asks the audience to flag if they can’t hear. I’m in the audience - you want me to announce my hearing loss to the room? Use the damn mic.
@ffolliet
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CQC are recruiting junior doctor specialist advisors (> FY2)
Link here 👇
The role can be undertaken alongside a current clinical post and is paid at a fixed daily rate.
Please RT & encourage junior doctors to apply!
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@ClareGerada
This gem from
@drphiliplee1
is probably the best thing to come from mandatory training...
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@MixedupMindful
Once worked at a hospital where one ward had an elderly lady with dementia who was previously a nurse. The nurses would let her sit with them every night while she carefully rolled up crepe bandages. She was just happy to be included and feel useful.
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What can senior female leaders do to encourage younger women in leadership?
➡️ Coach/ Mentor
➡️ Be authentic
➡️ ‘Nudge’
➡️ Discuss work-life balance
➡️ +ve reinforcement
#MWFConf19
@LMagee3
@rosespenfold
#SheInspiresMe
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One whole year with my lovely
@HearingDogs
Probably the most popular member of the neurology team
@ChelwestFT
&
@ImperialNHS
…
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@theipaper
Try telling that to the homeless patient I once treated. Drunk, they had fallen asleep in the snow. Frozen cold, wet and semi-conscious when they arrived. For some it is an addiction, not a choice. Everyone needs compassion. And the NHS should be there for those who need it.
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@GongGasGirl
Spot on.
And why wouldn’t a feminist wear dresses?
➡️ one garment - therefore avoiding that pesky top/skirt/trousers combo decision
➡️ Also - many dresses are easy wash & dry - no need to iron
Result: more time to smash the patriarchy
#winningwithdresses
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All set for a morning of vaccinating here at Charing Cross Hospital. Walk-in service. No appointment needed.
Do come along if you need your Booster (or even your first/ second dose)
#GetBoostedNow
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Cochlear implant day
#2
.
Voices sound like...
Adults (L)
Small children (R)
(also.. my email program makes a noise whenever I get a new email. I did not know this!)
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Took me a while to work out the reason for
#Donutgate
on Twitter but I’d like to point out that
@CrosstownDough
recently brought some doughnuts 🍩 to
@ChelwestFT
& it was 💯 the morale & sugar boost I needed for 1 minute on a busy afternoon.
So... thank you
@CrosstownDough
🙌
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‘Making a referral’ should be a mandatory OSCE station in medical school finals...
...please introduce yourself & *where* you’re calling from...
The Neurology SpR is probably fielding calls from several hospitals..
& it’s easier to help you with an informative introduction! 🙂
Doctors do not get taught much about how to make referrals while medical students. This paper tries to set things straight by giving 10 tips for surgical referrals.
@TipTopDocs
,
@TipTopDocs
,
@dr_waduud
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I once worked for an ITU consultant who when listing jobs on the ward round would look at me & say ‘Make it so, number one!’
I thought he was…odd…
… & it was only when I asked the nurse in charge why he said this, that we realised the problem:
I had never seen Star Trek.
My wife says at induction for new docs,they should be given a list of films to watch so they understand what the consultants are on about. I'd have Aliens, Starship Troopers and Goodfellas, oh, and Big Hero Six. What would be yours
#medtwitter
?
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Seeing lots about PPE, Facemasks & some clever people with 3D printers...
I’m a deaf doctor, looking after elderly ward patients - some with
#coronavirus
I’m struggling on ward rounds because I can’t lip read colleagues.
Anyone know where I can get transparent masks from?
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It’s taken me 11 months into a pandemic to produce my first loaf of bread...
Pretty pleased with this loaf using the
@Nigella_Lawson
‘No Knead Bread’ recipe..
..& it is delicious... perfect for a Sunday morning with a coffee & the papers! 🥰
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I was a deaf 3 year old with no speech..
... at playgroup I discovered that if another child had the toy I wanted, I just had to bite their arm...
(it worked EVERY TIME)
I’m still good at overcoming obstacles & finding solutions, but my methods are now socially acceptable...
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🚨'The experience of D/deaf healthcare professionals during the coronavirus pandemic'🚨
This paper w/
@DocFizzabella
& Emily Jackson has now been published by Occupational Medicine Journal.
Full paper can be found on the journal website page:
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Now 2/52 post CI switch-on!
I’ve spent the afternoon at rehab & mapping (surprisingly tiring)
The audiologist has turned the volume up a bit & adjusted the settings.
They’ve given me a (? plastic hairband thingy) to stop the CI falling off... but my hair hides it all 🙂
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I wish people would stop exhorting their twitter followers to get fit/ write a novel/ learn a new language during lockdown.
This is a global pandemic, not a holiday.
My crowning achievement on days off in between 12 hour shifts at the hospital was...
..cleaning the fridge. 🤷♀️
If you don’t come out of this quarantine with either:
1.) a new skill
2.) starting what you’ve been putting off like a new business
3.) more knowledge
You didn’t ever lack the time, you lacked the discipline
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THREAD 🧵
I’m loving that
@RoseAylingEllis
is such a positive role model for the deaf community - and that so many people are now learning BSL as a result of her presence on
#StrictlyComeDancing
(1/5)
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@Dr_JRogers
@silv24
Yes, I saw that. I’m sure the expert male speakers are not responsible for the layout, but someone is! It just makes the women seem either a) ‘less expert’ or b) a bit of an afterthought…
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A big THANK YOU 🙌 to all who have sponsored
@Ashleyjgrote
& I for the
#LondonMarathon
for
@GreatOrmondSt
.
Finished my virtual race just before 11.30am in Battersea Park, at just under 4.30.
Thank you for your support!
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Congratulations to
@RoseAylingEllis
&
@pernicegiovann1
#StrictlyFinal
winners!
Loved that
@bbcstrictly
crew & cast provided Rose the opportunity & communication support to achieve her potential as a dancer; showing what
#deaf
people are capable of, with the right support. 👍
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A little bit of good news...
New online bookshop 📚 unites indies to rival Amazon
& it opens today!
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For
#deaf
attendees, please:
1️⃣ Ensure the loop system is working & switched on *in every room*
2️⃣ Ask speakers to stand in one place & face the audience
3️⃣ Panels: please *repeat* Q&A’s / get someone to type Q&A’s on a screen
4️⃣ Provide BSL or a palantypist if needed (5/6)
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I’m all for a thoughtful, contemplative practice of medicine, and 💯 agree we need to listen carefully to our patients...
but as a *deaf neurologist* I’d like to gently highlight that invoking metaphors of disability for a soundbite can actually be quite... offensive 🤦🏼♀️
"A blind neurologist is many times better than a deaf one"
Dr Marco Mumenthaler (1978)
The patient's history, and narrative of their illness experience, is crucial.
In all medical fields.
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I am still angry at the way that so many D/deaf healthcare staff have been treated during this pandemic.
Nearly one year in, NHSE have *finally* set up a working group to develop suitable clear masks.
Are we easier to ignore because our disability is less ‘visible’ ?
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Proud of this
@HearingDogs
one!
My very affectionate, loyal & occasionally slobbery canine partner.
He was the goodest of good boys on his first day at work
@ChelwestFT
🥰🐾
& is a very welcome addition to the Neurology team…
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I wrote this a few weeks ago. As for many other people, it’s been a strange & difficult few weeks.
The CI switch-on can’t come soon enough. I’ve had silence for nearly two months & yet I’ve been plagued by the noise of tinnitus & musical hallucinations.
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Clear masks for use in healthcare settings are *finally* on their way to the UK ! 🇬🇧
Huge thanks to all who have spearheaded this campaign
@BAAudiology
@NDCS_UK
@SignHealth
@Jeremy_Hunt
@DeafVoices2020
@ActionOnHearing
Here you go! We have ALL been campaigning&collaborating w/ NHSE. So proud&grateful to the fantastic people who have worked on this and been involved in this including
@SusanGriffiths5
@DeafVoices2020
@NDCS_UK
@SignHealth
@Jeremy_Hunt
@BAAudiology
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As a deaf person I know how much we need accurate subtitles…
but I still think this
#subtitlefail
from the
#PlatinumJubilee
service earlier today is just really funny. 🤣
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I've written several academic articles as 'corresponding author' (& never received correspondence)
This BMJ article however, fills the postbag...
I've had everything from supportive emails (thank you!), promotion of business ideas and complaints! 🤦♀️
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🚨 CLEAR MASKS ARE HERE! 🚨
Nearly two years into the pandemic & we finally have DHSC approved clear masks!
Please encourage your NHS trust/ practice to purchase these. They facilitate lipreading & make a huge difference to deaf healthcare staff & patients.
Details below 👇
Two clear face masks have reportedly been approved by the Department of Health and Social Care for use in health settings.
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So, if you've been inspired by Rose on
#Strictly
, take it to the next level. Do whatever you can to ensure that deaf people are fully included.
Learn BSL. Provide those reasonable adjustments. Faciliate lipreading. Show kindness & patience. Be the difference that brings joy. 🙌
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Cochlear Implant update:
Minor complication after surgery so self-isolating ahead of another op 🙁
Nobody’s fault. Just sod’s law.
Felt totally 😔😢 initially, but now using the time to:
✅ write papers
✅ read
✅ walk dog
✅ provide 24/7 IT & tech support to parents...
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My parents struggled to find a primary school for me.
I was offered a) SEN school or b) primary with large, open plan classes & no support
A private school refused to take me because I was deaf.
This is why the
#DisabilityDiscriminationAct
(& Equality Act 2010) matters.
Today marks the 25th anniversary of the
#DisabilityDiscriminationAct
- a day which changed the lives of disabled people in the UK.
Thank you to the activists who were there, for letting us share your powerful stories and experiences all week.
#DDA25
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Failing to provide a functioning loop system at a conference when explicitly requested by a deaf person is not kind or compassionate.
It leaves me isolated, ignored and does nothing for my wellbeing. (2/6)
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This is *not* what a
#cochlearimplant
switch on is like...
Most patients (inc myself) just hear beeps/ robotic noises at first.
Understanding speech without lip reading takes weeks and weeks of rehab. (I’m still working on it!)
Don’t believe everything you see on
#EastEnders
!
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Enjoying my first
@TEDxNHS
...
a morning of heartfelt & inspiring talks... 💕
..supported with remote captioning & a BSL interpreter...
(So great to be able to follow it all & practise my BSL...!)
Thanks to the
#TEDxNHS
team, captioners & interpreters! 🙌
#inclusivitymatters
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@mattdoc1979
@AbbieTutt
Had a student once who forgot the name of the tuning fork. They turned to the patient & said ‘Can I test you with this… vibrator?’… 😳
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A great slide at the start of
#RCPMed2019
Should be the standard of all conferences to disclose this information at the outset:
Great to see
@RCPLondon
have committed to ensuring speaker diversity matches that of the workforce. 👍
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‘Professional responsibility extends to how we speak about other professionals in the presence of patients- even if we disagree with them. We need to consider how we treat each other when we work as teams & the respect we show.’
#civilitysaveslives
Dr. Chris Turner at
#gmcconf
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Finally on the train to
@abnconf
… my first in-person conference for over two years!
Looking forward to seeing old colleagues & meeting new ones for the first time too.
(Bit nervous about my talk though… 😬… wish me luck 🍀 / send prayers 🙏 …!)
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@allahdurag
My Dad took LOADS of pictures at my BA graduation. He later discovered there was no camera film in it... 😂
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Today's
#GoogleDoodle
features Dame Louisa Aldrich-Blake - one of the first British women to pursue a career in medicine. She graduated from Royal Free Hospital in 1893 and became a surgeon.
#womeninmedicine
@RCSnews
@RCPLondon
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We would love to see clear masks & shields such as these manufactured in the UK & to a standard that could be used in healthcare settings.
Please someone make these.
Deaf and hard of hearing followers, would this meet your needs?
Teachers and pupils in classrooms?
Work meetings where it's nice to see people's facial expressions?
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My hearing dog met a guide dog in clinic today!
They were both very good boys. ❤️🐾
(Photo taken & shared with permission)
@HearingDogs
@guidedogs
@ChelwestFT
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Accessibility at conferences is still a huge challenge if- like me - you’re deaf.
➡️ It’s a hidden disability.
➡️ I don’t look different to you...
➡️ I’m easy to ignore ☹️
but I miss out on a HUGE amount if I can’t hear. (3/6)
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CI diaries..🦻
Nearly 4/52 post-switch on & encouraging progress.
Huge improvement on today’s hearing test 🙂
The ‘A’ lines on audiogram show what I can hear with the implant (lower lines without)
Also given a ‘cros’ link which picks up sound from the L side of my head too!
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Enjoyed my trip to the
@BBCr4today
studio this morning.
Lovely to talk to
@MishalHusain
about the
#StrictlyFinal
,
@RoseAylingEllis
& the importance of communication support for
#deaf
people.
Thank you for the invitation!
Listen here at 0855 ⬇️
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Today is the 100th
#9LC
, and the last with
@SJCleobury
at the helm.
#thankyouStephen
. Love to all the choir families with whom we shared the journey. So many memories.
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Great after dinner speech at
#MWFConf19
by Dr. Helen Salisbury
➡️ anatomy textbooks describe female development as a ‘deviation’ from men...
➡️ The ‘textbook person’ is a 70kg man
Her response:
‘I’m prepared to be irritating, if that’s what it takes to achieve equality’ 👏👏
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Not the easiest week. I took it running at first light, to process my thoughts & pray.
Thankful this morning for the tree-lined trails here in SW London, and the gift of being able to run.
The scenery and silence here - but for the dim patter of my feet - is just beautiful.
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@kejones_
Mine: Not minimalist, but probably cheaper. Home-made from wine bottle corks and painted polystyrene balls. Joseph looks rather surprised. Baby Jesus is HUGE.
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BEFORE APPOINTMENTS
➡️ Flag deafness on medical records
➡️ AVOID telephones. Offer the option to text/ email/ use an app to make/ change appointments
➡️Book a registered, qualified sign language interpreter *in advance*if needed.
➡️ Offer a longer appointment
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@MedCrisis
Once slept on a mattress I found in a neurosurgery handover room. Woke up to find I was (literally) in the middle of the neurosurgery morning handover. 🤦🏼♀️
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This thread on transparent face coverings highlights how many people have hearing loss & need them
If you can sew, why not make a transparent mask? 🧵
A clear pencil case/ make up bag (rub bar of soap inside to stop fogging) can be used to make a clear window for lipreading 👍
By popular request. Let's do a thread on TRANSPARENT face coverings. Here's the most promising one I've seen (it's even going to be biodegradable) - but it's not available yet.
Reply to this tweet if you've got a good link to a mask you can see through.
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Great piece by
@alexandra_DBmed
.. on being a disabled doctor-to-be...
‘I might have less eyesight than most of you, but I have more insight than many of you...’
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I have measles induced deafness (see pinned tweet)
#Measles
can result in severe complications including permanent disability, brain damage and even death.
1 in 3 who contract measles in the UK are hospitalised.
Get your children vaccinated
#VaccinesWork
#ValueofVaccines
The
@WHO
has confirmed the UK has lost its ‘measles free’ status. Measles is one of the most infectious diseases known to man and lots of work is underway to combat the rise in cases. Our blog explains the current situation:
#ValueofVaccines
@DHSCgovuk
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Thank you
@CITmagazine
for publishing this 👇 article on making conferences more accessible for those with disabilities.
& thank you to my co-authors,
@alexandra_DBmed
@CharCuddihy
Link to PDF in next tweet.
Please RT & use if you’re organising a conference!
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Beautiful day for the
#ParisMarathon
& delighted to finish in 3:38. Not a PB, but I’ll take that given my lack of training!
Probably the prettiest marathon I’ve ever done too. Beautiful route, including parks 🌳, a chateau 🏰 and the riverside.
Thank you
@parismarathon
! 💕🏃♀️
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Thank you for the *excellent* loop system here
@TheBMA
@medicalwomenuk
#GenderBiasConf
... which allows me (& other deaf people) to hear, engage & tweet...
&
@HannahPopsy
for reminding people to use the microphone 🎤👏👏
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FOR PATIENTS USING BSL
➡️ Book a registered, qualified sign language interpreter *in advance
➡️Face the patient, not the interpreter
➡️Literacy for written English may be lower: offer a signed clinic letter & direct to the
@SignHealth
BSL health library for health information
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Please read this ☝️ if you’re organising a conference:
@RCObsGyn
@RoySocMed
@RCSEd
@RCPLondon
@RCPCHtweets
@RCSnews
@RCoANews
@gmcuk
@NHS_HealthEdEng
@NHSEngland
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I have to increase the program every 3/7 & do listening exercises..
The clarity of environmental sounds & speech is improving 🙂
& new sounds too!
bare🦶on floorboards..
the 🚙 indicator..
the crunchiness of leaves 🍁 (& crisps!)
& when I run, I can hear myself ... breathing!
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So lovely to see the Queen’s corgis, Muick & Sandy, and her pony, Emma, brought out before the funeral procession to St. George’s Chapel, Windsor. 😢
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Granny Grote is 91 tomorrow!...
... I bought her this lookalike gnome as a fun present (& a book & Liberty soap) ...
..as she likes gnomes & gardening...
... decided to put it in a shoebox for ease of wrapping...
... and had second thoughts... 😳🤦🏼♀️
(bubble wrapped instead!)
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Lovely tribute to
@DrJennyVaughan
from
@iharrijenkins
at our
@ImperialNHS
Neurology grand round this AM reflecting on ‘What would Jenny do?’
Jenny was a valued colleague, tireless campaigner for justice in healthcare & brought her
#learnnotblame
ethos to our department too.
It is with a heavy heart to share that the amazing inspirational legend
@DrJennyVaughan
peacefully passed away yesterday, Easter Sunday, surrounded by family. (
@matt_theknife
)
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@trishgreenhalgh
@SadiqKhan
I’m a doctor. I know the science says yes to 😷.
The trouble is that no-one seems to consider the fact that there are millions of deaf people like myself who absolutely need lip reading to communicate. Only one company (USA) makes transparent masks.
Who is advocating for us?
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Proof (if it were needed) that I have wonderful 🧠 colleagues...
I was self-isolating pre-op but
@NeuroDocLucia
was determined to ensure I should celebrate *somehow*
& she made a surprise socially distanced visit with champagne 🍾 & glasses 🥂 on Monday evening 🥰 🙌
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Inverness - Kyle of Lochalsh by train.
Equivalent of a village service (two carriages, multiple stations are ‘request stops’), but easily the prettiest UK train journey I’ve ever been on. 🥰🏴
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