Mark Young
@MarkYoung23
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Arsenal fan with a love of Astronomy, History, Magic & Ghostbusters. Disability/Rare Disease Advocate living with Colitis, PSC, Cirrhosis & Long Covid.
Kells, Northern Ireland
Joined February 2009
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I’m waiting patiently on a scan to tell me if I need a liver transplant, I can’t get antibodies from the vaccine & I’m currently surviving on £77 a week but the real big issue I’m facing is not being able to buy a Jubilee flag & plates from Tesco…….
The DUP, Ulster Unionists and the TUV all released statements questioning why there seemed to be a lack of royal paraphernalia on offer in a particular Tesco store in Northern Ireland.
✍️
@AllanPreston
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As a family we have lost 3 members to this virus. The dangerous people are individuals like Van Morrison & Ian Paisley Jr who have undermined our health advice multiple times across the past 16 months
I’m absolutely ashamed that this individual is meant to be the MP for my area
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I find it incredible that Ian Paisley Jr is falling over himself to talk to Jamie Bryson but yet as the elected MP for my area I’ve been unable to get any interaction with him over several years in regards to health & welfare issues.
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When
@naomi_long
is discussing her plans for the NHS, we see her do a steeple gesture.
The steeple gesture is a sign of confidence in what she is talking about.
#bbcnidebate
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Heard about an incident recently where a disabled person with Crohn’s disease was denied the use of an MLA’s office toilet facilities even after producing their “can’t wait card”.
If your MLA office doesn’t cater for disabled people do you truly represent them??
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@CovidJusticeUK
@BorisJohnson
My aunt & uncle where more than just bodies. My uncle was a veteran, hard working & proud family man.
My aunt loved watching football, baking & her family.
They both would of done anything to help anyone
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Happy 80th Birthday to the
#BigYin
#BillyConnolly
There are 2 of his quotes I love.
The 1st is:
“If you give people a chance, they shine.”
The 2nd is:
“Avoid people who say they know the
answer. Keep the company of
people who are trying to
understand the question”
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Arrogance like this really makes my blood boil.
Yesterday my mum had a hospital appointment where they found suspected cancer & took a biopsy. She was told that the results will be back in two months at the earliest?!
Jeffrey may not be in a hurry but my family certainly are!
EXCLUSIVE | Jeffrey Donaldson: Some are fixated with timelines but DUP won’t be calendar-led on Stormont return
✍️
@SuzyJourno
➡️
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Lying here in bed listening to that howling wind & the rain bashing against the window reminds me of just how blessed I am to have a warm bed & a roof over my head.
#StormBetty
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Leadership is about making decisions that people many not like but you still make them.
As part of a family who have lost several members to this virus, I’d rather other families didn’t have to experience similar,
I’m 100% standing behind
@naomi_long
&
@RobinSwannMoH
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As someone who is likely going to need a liver transplant, I can’t fathom why local politicians wouldn’t be doing all they could to get this organ donation legislation working & saving lives.
Every day of delay will cause lives to be lost & families to suffer.
.
@duponline
leader Sir Jeffrey Donaldson says his party will not support the election of a Speaker in tomorrow's assembly recall to discuss organ donation legislation
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Arrived home to a letter in my postbox from the local MP. Seemingly he’s forgotten something on all his literature.
Can anyone spot what’s missing?
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Absolutely shameful input by
@eastantrimmp
Clearly Mr Wilson hasn’t talked to grieving families or realise exactly how we feel about the PM’s behaviour.
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There’s no better way to end a tough week than spending it with
@TheMontyDon
in the garden.
@GWandShows
#GardenersWorld
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I was always taught growing up that it’s incredibly rude to talk when other people are talking.
This behaviour by members of a political party is just rude, undermining & an attempt at school yard bullying.
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Finally managed to get my hands on
@charles_watts
book.
Really looking forward to reading through it & finding out more about
@m8arteta
.
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Once Upon a time in Northern Ireland was an uncomfortable but important watch.
I believe the history of Northern Ireland / Ireland needs taught in our schools as it’s essential to educate our future so that they can avoid the mistakes of our past.
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A brave interview by
@SorchaEastwood
The infrastructure & facilities of the local trusts are clearly below standard & in need of major investment.
No patient should lose their dignity or privacy.
The patients, their families & staff deserve better
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So here’s some quick observations about the body language displayed in this video:
Sorry I forgot to post them last night
Can anyone pick out any interesting body language displayed by Mr Buckley during this part of his interview yesterday?
I’ll give you a few I observed later.
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This is the reality.
Jim Allister talking about leverage & the DUP gloating about collapsing the institutions really angers me.
Sitting back doing nothing while the health service is on the verge of collapse & people are struggling to survive isn’t leverage it’s inhumane & cruel
Amid the Windsor Framework spinning game, do not lose sight of the fact the health service is in meltdown and lives are at risk and being lost. During five weeks in hospital, there was never a mention of the Protocol. What’s the real crisis?
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Tragedy always makes us appreciate things we take for granted. Thanks for the incredible service the
@RNLI
&
#IrishCoastGuard
provide daily
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@brownecfm
@1goodtern
I had a session with my long covid psychologist & we discussed what it’s doing to people. It’s shocking when you’re told about the impact it has on your nerves & body regulation. Plus the possible long time issues it’s causing people
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@mrjamesob
This has really made my blood boil. We lost 3 family members to this virus. They didn’t cower, they fought it with everything they had. They where failed by the government when was meant to protect them.
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It’s time for reform in the
@niassembly
.
We can’t continue with single parties constantly collapsing the assembly just because they don’t get their own way.
It’s also time that my vote was deemed equal to that of nationalists & unionists.
NEW This is hugely significant.
DUP leader Sir Jeffrey Donaldson has told the ERG today that the DUP will not rejoin power-sharing in Northern Ireland, Tory MPs say.
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Just when you think
@BorisJohnson
can’t sink any lower.
His pathetic behaviour towards
@Ianblackford_MP
when Mr Blackford was talking about the amount of loved ones taken by covid was absolutely disgusting.
#PMQs
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@charles_watts
The big difference was how quick our midfield moved the ball last night. I really think Xhaka slows us down too much
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I’ve mainly noticed 2 tweets today. Both by local politicians in regards to the ongoing pandemic.
The first is childish, repulsive & ignorant. The 2nd is full of compassion, hope & respect.
I’d certainly prefer a future with more politicians like
@KateNicholl
& less Mr Wilson
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The DUP are claiming all local council areas in NI have playground provisions for disabled children thanks to them?!
I’m pretty sure councils are all made up of multiple political parties & individuals.
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Someone asked me earlier what I would say in the chamber tomorrow if I could.
It’s simple I’d name the organs people are waiting for in NI & the amount of people waiting on them.
I wouldn’t reference the DUP because it’s not about that party, it’s about the people being failed
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@deirdreheenan
@JulieEGilmour
My aunt and uncle,who lived in London, spent Christmas alone and a week later died both alone in hospital. We as a family had to make yet another sacrifice by not going to their funeral.
I can assure the PM & number 10 that I certainly dont find it funny in the slightest
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@morefluids
Thank you for sharing this.
We lost our aunt & uncle within 5 days of each other last week. The both died in hospital & we thought they where alone. This certainly eases that worry knowing that you & your colleagues will of gave them support, love & respect during that time. ❤️
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Doing a bit of Saturday shopping (on a Friday) for my elderly neighbours to let them stay home during
#StormKathleen
tomorrow.
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This is a very open & honest insight into
@naomi_long
I love that mentality of “if there is a problem, don’t moan about it, fix it”
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@TheAthleticFC
@gunnerblog
It still annoys me how the club treated Jerry. Arsenal prides itself on being a family & looking after our own.
Sadly Jerry didn’t receive any of that from the club & the club should put that right.
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@BenFurner
@C_Fitz_
I did this myself. I waited 18 months for the appeal but it was worth it.
On the appeal day I was awarded my PIP without even having to go in front of the panel.
It’s stressful in the run up but definitely worth it
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Great to see
@NualaToman
@disabilityni
on the
@UTVNews
tonight highlighting how disabled people in NI aren’t protected by legislation that the rest of the UK already has in place.
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Very proud of my cousin for summing the strength to visit the
@CovidMemorialUK
to see the names of his mum & dad the wall.
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It’s been a rough day with a colonoscopy & liver tests this morning but my little buddy Finn hasn’t left my side since I arrived back home.
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It now becomes clear why the ERG was so keen to get Truss & Kwarteng into the top jobs.
Their first act is to attack the lowest paid in our society & increase the incomes of the rich.
That was vile from
@KwasiKwarteng
who actually just said "for too long in this country we've indulged in a fight over redistribution"
Indulged?
Dealing with inequality is somehow over-generous? Does he think people choose to be poor & face disadvantage? Disgusting
#MiniBudget
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After the good news about Evusheld yesterday, it turns out the U.K. government haven’t actually ordered a single dose of it.
“Evusheld: Fears growing among cancer patients they may never receive 'game changing' Covid drug”
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It’s good to hear that I haven’t been alone in raising the issue of lack of infection control with the Belfast trust.
As someone who has infusions that make me severely immunosuppressed, I was surprised that no precautions where in place in the infusion suite/ward area.
All aspects of our health service are under great strain & close to collapse, including cancer services. This has been the hardest interview I've ever done and I only decided to do it so I could try and change things for other families. I also don't know how staff cope.
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IMO is that Doug comes across as very honest & likeable. Sometimes maybe that honesty gets him into uncomfortable political situations but I think that is a good quality to have as the normal person outside of politics relates to that. He also does seem very grounded
#AE22
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I always knew the
@Telegraph
was a gutter rag but this garbage is a new low even for them. (Pun intended)
Next Oakeshott will be calling for the return of workhouses or forced community service.
It’s exhausting seeing this nonsense constantly being aimed in your direction.
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During the pandemic
@DannyDonnelly1
was a councillor in my council area. I was shielding & had just lost 2 family members, he reached out to see if there was anything he could do to help.
I’ll forever be grateful for that.
I hope he’s elected by the people of East Antrim tomorrow
Over the last few weeks we’ve been going around East Antrim from Jordanstown to Cushendall talking to people on their doorsteps about what they they want to see. The thing they want is change. Tomorrow you can vote Alliance to lead change.
#VoteDonnellyX
in East Antrim.
#GE24
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This is an important message this
#InternationalMensDay2023
I took the step of reaching out this year & received help with my mental health. Its the best decision I’ve made. I could physically feel some of the weight lifting off my shoulders.
Please reach out if your struggling
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@dup_online
I’ve always been fascinated by the Islandmagee witch trials.
I’m glad to see that the women involved are finally getting the long overdue recognition they deserve thanks to
@donnelly_maeve
for bringing it forward again.
Shameful that it’s taken this long
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After 557 days of shielding somehow the dreaded day did arrive yesterday.
My lungs are in agony, my head is spinning, i’ve pain in every joint, the heats/chills are unbearable, moving has me exhausted & the coughing is nonstop.
I wouldn’t wish it on my worst enemy
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@SalBrinton
I think you need to be holding another meeting with JvT in regards to this. This isn’t good enough.
The pressures & strains this is putting on the CEV & immunosuppressed won’t be doing their health any good.
We deserve to be treated better than being a complete afterthought
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Seemingly some lives are worth less than others to this
@Conservatives
government
“Since
#Evusheld
was ruled safe by regulators four months ago, as many as 500
#immunocompromised
Britons have died, according to analysis by the charity Blood Cancer UK”
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A candle also lit in remembrance of
@radio_stephen
One of the nicest guys I ever had the pleasure of knowing.
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@itsjodiebuch_
It’s certainly not a weakness because it takes incredible strength to live with it.
Thank you for your honesty & sharing your own personal experiences because that’s how we educate people & remove the stigma around the subject
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@castleDD
That title sent a shiver down my spine.
I’m really not sure just how positive that’s going to be.
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Penny Mordaunt is displaying signs of unease & tension with Liz Truss.
You can see the unease in the sitting posture & the move away from Truss, which is an attempt to put distance between them. There’s also an eye roll at something Truss says.
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I’ve watched the full Jeffrey Donaldson speech. It’s laced with genuine anger and rage, you can tell that because of his voice wobbles while talking & body signals are perfectly in sync.
The body language of the person directly behind is the real interesting aspect.
Sir Jeffrey Donaldson’s fiery speech could prove a pivotal moment for DUP leader... it was even praised by his political rivals
✍️
@AndrewEMadden
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It must be incredibly tiring to walk around carrying this much hatred in your heart everyday.
Seemingly striving for a society that is fair & equal for everyone is now a “Woke agenda”
Personally I’d rather be “woke” than full of hatred.
Nicola Sturgeon’s demise and sudden resignation should be a warning to all those politicians that pander to the woke agenda. The public are not fools, they see right through agendas and believe in biological facts that being a man is a man and a woman, a woman.
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@dgurdasani1
As an immunosuppressed individual, how exactly do I stay vigilant?
Do I watch for COVID particles?
Do I physically have to fight people to stay away?
Do I walk around in a full hazmat suit?
Do I just stay locked away?
Soundbites are easy, the reality is completely different
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Very informative morning preparing for my upcoming PIP appeal.
It’s nice to be treated with compassion & decency.
The bonus was getting to push for better awareness of crohns colitis & have more discussions in the future.
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@stewartcdickson
It’s amazing what fear of an upcoming election & opinion polls can do. As an ex officer I find it astonishing that she is saying she supports the police but not the CC. All are attempting to uphold the law. This endangers all PSNI officers regardless how much she tries to deny it
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@Kit_Yates_Maths
As an immunosuppressed individual, how exactly do I stay vigilant?
Do I watch for COVID particles?
Do I physically have to fight people to stay away?
Do I walk around in a full hazmat suit?
Do I just stay locked away?
Soundbites are easy, the reality is completely different
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Last night my youngest nephew appeared at our door out of the blue.
He said he knew I’d had a rubbish week with new medication & thought a little treat would make it better.
It’s amazing how a little act of kindness can have such a positive influence on someone.
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@Lucy_Webster_
I thought it was just them putting in the bare minimum.
There’s a lot of unanswered questions.
The whole “back to work” rhetoric does make me uneasy about their future plans.
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I’m genuinely fed up with Jeffrey twisting to make the protocol his answer to every single answer
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As someone diagnosed with multiple invisible disabilities/rare diseases I want to raise awareness of invisible disabilities.
I also want to ask people to just be kind & not judge others. We don’t know what struggles other people are living with daily.
#InvisibleDisabilitiesWeek
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@CllrMichaelLong
You can have a thick skin on some issues but this display of hate & intimidation just should not be tolerated. No one should have to put up with that! To even suggest differently displays a lack of character & morals.
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It’s encouraging to see disabled people being at the forefront of a party manifesto.
Society isn’t inclusive until the voices of everyone are included & listened to.
The
@allianceparty
are working to make that happen, it’s one of the main reasons I joined
#AllianceWorks
#LE23
We're kicking off here today at the launch of our
#LE23
Local Election manifesto.
If you've also had enough of the politics of dysfunction and division and are looking for an alternative, check out our manifesto in full below.
#AllianceWorks
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I hate the term “special needs”. I listened to Paul Givan say it multiple times last night on the Nolan Show.
It’s such a patronising & offensive term.
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The perfect game show idea
#ToryWipeout2024
Let’s make all the current Conservatives MP’s run the Total Wipeout course. The winner can keep their seat in Westminster.
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Yet he claims he knows how people are struggling in this cost of living crisis. His flat renovation cost more than some peoples homes!
“Boris Johnon’s Wallpapergate: Leaked £200,000 invoice reveals flat renovation included £7,000 rug and £3,675 trolley”
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@DarrenArsenal1
Very good and well thought out set of tweets. The concern I have is I’m losing the enjoyment and escape Arsenal used to provide. Years ago we felt like a club where
@Arsenal
genuinely cared about the fans feeling part of the core. Now days it feels like they really just dont care
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I think it’s incredible to see how many former
@BelfastGiants
players are tweeting the club wishing them luck for the cup final on Sunday. I know it’s a cliche but it really shows that the Giants are more than just a sports team and I’m incredibly proud that they are my team
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Cant thank my GP enough for talking me through my diagnosis from yesterday and the possible roads ahead. Considering it was an emergency appointment & with all the pressures they are experiencing, I certainly didn’t expect him to spend so much time talking it over with me.
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This is
@BorisJohnson
reaction to a fellow elected MP asking about the amount of covid deaths in the UK.
Any normal person would be ashamed of it but seemingly Johnson thinks it’s something to mock
It’s insulting to each & every family
#PMQs
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It looks like I’ve yet another long winter ahead of me.
The
#immunosuppressed
of the U.K. are invisible to this government. They really have no concern for the Groundhog Day situation that we are still stuck in over 2 years later.
#Evusheld
could change that for us.
Feel sick & disgusted.
@DHSCgovuk
has shelved plans to protect the most vulnerable patients with Evusheld this winter, against the advice of 125 clinicians. This is a complete u-turn and a betrayal of the people who most need protection. A third Christmas in isolation.
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20 years ago today I was rushed into hospital with some my organs starting to shutdown as they where attempting to preserve the major ones.
Today I’m thankful for the nurses & the specialists that got me through those dark days. Without them I really wouldn’t be here today.
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@RobbieButlerMLA
People naturally respond better to positivity and I’ve certainly found you to always be positive.
It certainly shows how something simple can have an impact on others
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Listening to BBC Radio Ulster this morning from Ballymena.
Personally I’d rather my local MP was working towards fixing issues with IBD clinics & mental health access which I personally emailed him about (without reply), than trying to paint himself as NI’s version of Braveheart.
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It must be lovely not having to worry about timeframes.
While people awaiting test results, cancer treatment, colitis/crohns care & a wide range of other health issues can do nothing but worry about timeframes.
"The DUP is condition-led not calendar-led."
DUP rules out pre-Christmas Stormont return as talks set to resume today
➡️
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@CovidJusticeUK
My aunt & uncle ,who lived in London, spent their last Christmas alone, died alone & we couldn’t attend their funerals (there was 4 people at their funeral)
We did everything they asked yet a few miles down the road they partied.
Now they laugh in our faces.
I’m so angry
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I’m genuinely delighted that
@pfarrell767
is putting himself forward for election in the upcoming council elections.
For years people with disabilities have been overlooked & it’s about time we had representation in all forms of governance in Northern Ireland
#APNI23
.
@pfarrell767
“What matters most to young people and those with disabilities isn't a divided society held back by things that do not affect their daily lives. Instead what people want and deserve are leaders that deliver with what affects their day to day life”
#APNI23
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Story of inspiring NI disability activist’s journey gets Queen’s Film Theatre premiere |
@joanne_sansome
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@AngelaRayner
Absolutely disgusting.
I’ve lost families members and have had to shield for currently nearly 500 days without help from this government. I’m not a coward cowering away, I trying to protect my family from anymore grief and loss. How dare he basically call us all cowards
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This young man in the Ukraine was talking about trying to get out of the city using the train. He says it’s impossible for disabled people due to the long standing around & cramped coaches so many disabled people are having to stay in the war zone.
That’s absolutely horrendous
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My thanks to the incredible staff in the Ballymena vaccination centre today. They made the visit to receive my third primary dose today effortless.
@NHSCTrust
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This is a very grim looking picture. 7 of Northern Ireland’s hospitals are over capacity.
Sending all my love & support to our precious
@NHSuk
@NHSCTrust
@SouthernHSCT
@setrust
@BelfastTrust
@WesternHSCTrust
@NIAS999
staff confronting this overwhelming situation head on.
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It’s disappointing to hear about the removal of the hybrid option for local councillors. As someone who has stressed the importance of getting more disabled people involved in local politics, it’s incredibly disheartening to see another barrier placed in our way.
@sianalliance
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Today is the start of
#CrohnsAndColitisAwarenessWeek
it’s a week which is very important to me.
A week to spread awareness & to let people living with the conditions know they aren’t alone, as the conditions can make you feel incredibly isolated.
#Crohns
#Colitis
#IBD
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I think that finale of
#DerryGirls
was needed tonight. NI needed to have a reminder of just how far we’ve came & how precious peace is.
We need to protect that now more than ever.
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He hasn’t even played for us yet and I already love
@kmcfaull
.In that brief interview he already sums up what it means to be
@BelfastGiants
player
Also it’s a fantastic gesture by Paxton. Still being the perfect Giant after all these years
#WeAreGiants
#MoreThanJustASportsTeam
Words can't describe how much it means to be able to wear
#27
in honour of my good friend and his beautiful family! Thank you from the bottom of my heart to Paxton Schulte and the Belfast Giants! I won't take a game for granted everytime I put on that jersey!
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Fantastic to be able to follow the
@allianceparty
conference from my office at home.
Thanks to the party for making a live stream available.
#APNI24
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Tomorrow I’ll be voting for the candidate who is working to make North Antrim more inclusive & welcoming to everyone.
Tomorrow I’m voting for
@sianalliance
Sian is a strong advocate for disabled people & making sure our voices are heard.
#GE24
#VoteMulhollandX
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I haven’t done a full breakdown of
@BeattieDoug
body language from his interview on
@ViewFrmStormont
because I’ve just done one from last Thursday.
What I will say is that his body language was very positive & consistent throughout the interview. His blink rate was constant
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I always find it incredibly heartwarming when seeing tweets from our ex
@BelfastGiants
players sending good luck messages to the team. It really shows that they still care about our city and team
#WeAreGiants
#CCFinal19
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Today has been a tough day for those of us who are fighting hard to make peoples lives better in Northern Ireland. The current political shenanigans hang like a dark sky over the country but to use a quote from one of my favourite movies…..
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The most effective thing
@Keir_Starmer
or
@Ianblackford_MP
could do tomorrow at
#PMQs
is to simply read out some of the names of people who passed away on the date of the Downing Street party last year and the thoughts of their families.
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Sad to wake up to the news of a friend passing away overnight.
The world seems a little bit darker this morning.
Thank you for the memories & inspiring us with your never give up attitude. We’ll miss you C.
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It’s overlooked just how mentally draining & physically exhausting living with chronic illnesses can be .
This morning I attended two medical appointments.
This afternoon I slept for four hours while sitting in a seat.
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