Jayne Halhead
@Jaynes__World
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Following
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In memory of my Dad, a burly #Lancashire dairy farmer, I'm raising awareness of motor neuron disease #MND / #ALS #MND #MoreNeedsDoing ! Championing #Lancashire
Lytham St Annes, Lancashire
Joined October 2009
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🖤 REMEMBERING Colm Murray, the cherished
@rte
broadcaster and "Voice of Irish Racing", who lost his life to motor neuron disease
#MND
on this day 2013 at the age of 61.
"I used to pray to God, please DON'T let it be Motor Neuron Disease…" 😢
#MND
#MoreNeedsDoing
!
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❤️ GOOD BYE and thank you.
"My final message to you is, whatever your personal battle, be brave and face it, every second is precious, don't waste a moment. In a world full of adversity, we must dare to dream. Rob Burrow, over and out."
Fly free, Rob... 😢
#MND
#MoreNeedsDoing
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🖤 REMEMBERING Colm Murray, cherished
@rte
broadcaster and "Voice of Irish Racing", who lost his life to motor neuron disease
#MND
on this day 2013 at the age of 61.
"I used to pray to God, please DON'T let it be Motor Neuron Disease…" 😢
#MND
#MoreNeedsDoing
!
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❤️ ROB BURROW recorded a series of messages for his children that will be played at special moments in their lives as they grow up, his wife Lindsey has revealed...."
Read more:
#GlobalMNDAwarenessDay
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❤️
#MND
Warriors Rob Burrow, Stephen Darby, Ed Slater and Doddie Weir are the inspiration behind Kevin Sinfield's epic efforts to raise awareness and funds for motor neurone disease and they had these messages for their hero....
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PLEASE 🙏 join me in wishing the Big Man,
#rugby
icon
@DoddieWeir5
, a very Happy Birthday 🥳
@jk_rowling
...
#MND
#MyName5Doddie
#MoreNeedsDoing
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19 December 2019
How it started... 😢
"I'm taking it as a challenge, I don't intend to lie down, I want to get stuck into it."
Leeds Rhinos legend Rob Burrow spoke to us after being diagnosed with motor neurone disease aged 37.
Read more:
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OUR
#MND
shero Lindsey Burrow.... ❤️
“I know Rob has left messages on there for the children. At the minute it’s too raw to go and look through the machine but there are birthday messages on there, there are messages for the future.”
#GlobalMNDAwarenessDay
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FROM the moment he announced his devastating diagnosis on
#MND
Awareness Day, 21 June 2017 (for maximum impact), to the last moment we saw him at
#Murrayfield
, in all his vulnerability, Doddie Weir never stopped in his quest to make a difference for his fellow
#MND
Warriors... 😢
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🖤 Remembering Paul Darbyshire 🏉
The former
@WarringtonRLFC
player/coach and head of strength and conditioning at
@MunsterRugby
was only 41 when he lost his life to merciless motor neuron disease
#MND
on this day 2011.... 💔
#MND
#MoreNeedsDoing
!
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💙 A nod to Rob in
#LythamStAnnes
.... 💛
"In a world full of adversity, we must still dare to dream"
#MND
#MoreNeedsDoing
!
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🏉 Remembering JOOST VAN DER WESTHUIZEN, the mighty
#Springboks
icon who lost his life to motor neuron disease
#MND
seven years ago today.
Fly free, you legend.... 😢
#MND
#MoreNeedsDoing
!
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😀 "To be honest I am getting sick of seeing myself on TV. I’m going to lay low until Christmas and then get on with finding an effective treatment..." –
@Rob7Burrow
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🖤 REMEMBERING Joost van der Westhuizen, the mighty
#Springboks
icon who lost his life to motor neuron disease
#MND
five years ago today... 😢
#MND
#MoreNeedsDoing
!
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442
🖤 REMEMBERING Paul Darbyshire 🏉
The former
@WarringtonRLFC
player/coach and head of strength and conditioning at
@Munsterrugby
lost his life to motor neuron disease
#MND
on this day 2011 at the age of 41... 😢
#MND
#MoreNeedsDoing
!
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18
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🖤 Remembering COLM MURRAY, the cherished
#Irish
broadcaster and "Voice of
#Irish
Racing", who lost his life to motor neuron disease
#MND
TEN years ago today, at the age of 61.... 😢
"I used to pray to God, please DON'T let it be motor neuron disease!"
#MND
#MoreNeedsDoing
!
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😢 THIS is why I well-up every time I try to explain the brutal reality of merciless motor neuron disease!
@leedsrhinos
legend
@Rob7Burrow
is so selfless in his quest to raise awareness of this horrific condition.
Bless you, Rob, you're our hero... ❤️
#MND
#MoreNeedsDoing
!
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👏 SUCH a lovely gesture by
@PeterAsh_85
, whose
#Corrie
character has
#MND
.
Peter has researched
#MND
extensively, spending time with an
#MND
patient, and has been so moved he is taking part in Sunday's
#Manchester
10k in aid of the
@MNDAssoc
!
To Donate:
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🏉 Remembering PAUL DARBYSHIRE.
The former
@WarringtonRLFC
player/coach and head of strength and conditioning at
@MunsterRugby
was only 41 when he lost his life to motor neuron disease
#MND
thirteen years ago today... 💔
Thoughts are with Lyndsay, Ella, Georgia, Jack and Harry.
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My Dad loved
#TheTwoRonnies
.
Ronnie Corbett, who died
#otd
2016, lost his life to the same hideous horror that took my Dad, Motor Neurone Disease.
Both were proud men and didn't want friends present as they endured such a cruel and undignified death. 😢
#MND
#MoreNeedsDoing
!
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🏉
#OTD
2020....
ROB BURROW was treated to a standing ovation by a sold-out Headingley as he ran onto the field for the final time as a player.
The
@LeedsRhinos
legend could not hold back the tears as he was welcomed by former teammates from
#Leeds
' golden era.
#OneRobBurrow
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2⃣0⃣2⃣2⃣
@BBCSport
#SPOTY
ROB BURROW received the Helen Rollason award and KEVIN SINFIELD was recognised with a special BBC Sports Personality award!
So shush.... 🤫
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❤️ “HOPEFULLY, if you watch
#SpongeBob
, you’ll want to take care of our oceans” – Stephen Hillenburg
Stephen, the planet's most famous marine cartoonist, lost his life to motor neuron disease
#MND
(known as
#ALS
or Lou Gehrig's Disease in the
#USA
) on this day 2018 aged 57... 😢
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Love you and miss you, Dad.
Happy Birthday, you handsome devil.
Motor Neuron Disease, I despise you!
#MND
💔
#MoreNeedsDoing
!
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Thoughts are with you on your beloved Dad's birthday
@CharlotteHawkns
😢 an especially sad and difficult day.
Deepest empathy. xx
Bless you ❤️ for all you do to raise awareness of motor neuron disease
#MND
in Frank's memory.
#MND
#MoreNeedsDoing
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ROB BURROW is a HERO for having the courage to show the devastating indignity of motor neuron disease in intimate detail, laying bare his vulnerability to raise the profile of this hideous condition...and ALWAYS with a beaming smile and twinkle in his eye...
#MND
#MoreNeedsDoing
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Remembering the big man on his birthday.
Bless you for your legacy of love and enlightenment.
We miss you.
Fly free, Doddie.... 😢
#MND
#MoreNeedsDoing
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🖤 Yesterday we said our final farewell to
#MND
Warrior Sir John of
#Droitwich
,
@JohnAda10163823
.
Thanks for being such a lovely man, so laugh-out-loud funny and for your legacy of love and hope on behalf of your
#MND
family!
Lay down your sword, Sir John, night night....
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PLEASE 🙏 join me in remembering the Big Man,
#rugby
icon DODDIE WEIR, on his Birthday,
@jk_rowling
....
#MND
#MoreNeedsDoing
!
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🏇 LINDSEY BURROW made one of her first public appearances since the death of her husband Rob when she went racing at
#Thirsk
.
“Rob was really passionate about racing...I’m committed to continue as patron of
@thegoodracingco
to honour Rob’s legacy." 💙💛
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🖤 REMEMBERING Joost van der Westhuizen, the mighty
#Springboks
icon who lost his life to motor neuron disease
#MND
six years ago today... 😢
#MND
#MoreNeedsDoing
!
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Two years ago today the world lost a
#rugby
icon, Joost van der Westhuizen, to Motor Neurone Disease.
In memory of Joost and in tribute to lionhearted
@Scotlandteam
legend,
@DoddieWeir5
, now tackling terminal
#MND
, please retweet to raise awareness of this cruel global killer!
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❤️THOUGHTS are with Kathy Weir, affectionately known as 'Mary Doll' to her late husband Doddie, on the occasion of their 27th Wedding Anniversary.
WE will continue to strive to realise Doddie's vision of a 'World Free of
#MND
'.
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ANOTHER wonderful gesture by
@PeterAsh_85
, whose
#Corrie
character is living with
#MND
.
Peter is now passionate about raising funds for the
@MNDAssoc
and is taking part in today's
@Great_Run
#Manchester10k
!
💙 Go well and thank you, Peter 🧡
To Donate:
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We need to talk about Kevin.... 💙
....and Rob Burrow and motor neuron disease....
#MND
#MoreNeedsDoing
!
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💙 One year ago today 💛
From the moment he announced his devastating diagnosis on
#MND
Awareness Day, 21 June 2017, to the last moment we saw him at
#Murrayfield
, in all his vulnerability, Doddie Weir never stopped in his quest to make a difference for his fellow
#MND
Warriors.
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"We had stops so we could check in with Rob...Trying to communicate without his
#eyegaze
was tough, so we worked off smiles; a smile meant ‘yes’, no smile meant ‘no’...We stopped to get him out of the chair to stretch him...It was a challenge for him and he deserved that medal…"
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🖤 REMEMBERING John McGlashan, the successful and popular
#Scottish
footballer and manager.
Born in
#Dundee
, John lost his life to merciless motor neuron disease
#otd
2018, six months after diagnosis! He was 50 years old.
#MND
#MoreNeedsDoing
!
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🏉
#RugbyLeague
legend
@Rob7Burrow
deserves a posthumous honour for baring his vulnerability to the world with dignity, humour and humility, in the hope of raising awareness and research funds for
#MND
during his daily battle with this brutal disease.
Fly free, Rob.... 😢
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🖤 REMEMBERING Adam Maher, the
#Australian
-born
@hullfcofficial
#rugbyleague
🏉 legend who lost his life to motor neuron disease on this day 2020, less than two years after diagnosis. He was 47.
Thoughts are with his family, friends and former teammates.
#MND
#MoreNeedsDoing
!
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Happy Birthday,
@kevinbridges86
! 🎂 Though you're not 'a rugger fan' 😲 thank you for what you did for Doddie in his bid to raise awareness of merciless motor neurone disease and for all you've done to support our cause! ❤️Lovely to see the big man laugh!
#MND
#MoreNeedsDoing
!
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Fly free, Rob.... 😢
It is with deep sadness that the club can confirm that former player Rob Burrow CBE has passed away, aged 41.
More here
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🖤 Remembering Mo Hayder, the bestselling British
#crime
writer who lost her life to motor neuron disease
#MND
on this day last year at the age of 59 💔
Thoughts are with her husband Bob and daughter Lotte on this especially sad and difficult day.
#MND
#MoreNeedsDoing
!
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⚡️ WHAT 'SIR KEV' DID NEXT....
OUR
#MND
hero, Kevin Sinfield, sets off on his most epic challenge yet raising funds for motor neuron disease, in tribute to his friend and former teammate
@leedsrhinos
legend
@Rob7Burrow
👏
#ul7ra
#ultra7in7
🙏To Donate:
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@theJeremyVine
@CliveMyrieBBC
And this beautiful tribute by
@SophieRaworth
, his close friend and colleague.... ❤️
RIP George 😢
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Happy Birthday, Dad 😢
It will be 13 years next month since Dad endured a horrifying death due to Motor Neurone Disease. Too many are facing the same fate and WE NEED A CURE!
#MND
#MoreNeedsDoing
WE ALSO NEED to be allowed to choose the manner of our own demise!
#ImWithNoel
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Four years ago today,
@SallyNugent
talked to Stephen
@DarbyRimmerMND
,
@DoddieWeir5
and
@Rob7Burrow
on
@BBCBreakfast
about living with motor neuron disease
#MND
during
#Covid
lockdown.
We miss you, Doddie and Rob 😢 and we will always be by your side, Stephen ❤️
#MoreNeedsDoing
“If I go on a ventilator the likelihood is that I will never get off”
@sallynugent
caught up with
@DoddieWeir5
,
@DarbyRimmerMND
and
@Rob7Burrow
.
They all have
#MND
and speaking to
#BBCBreakfast
they share what lockdown is like whilst living with an incurable condition ⤵️
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@JohnnyVegasReal
@Saints1890
And meeting inspirational
@Rob7Burrow
was the cherry on the cake!
#MND
#MoreNeedsDoing
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🏉
#AllBlacks
' hooker NORM HEWITT has lost his life to motor neuron disease
#MND
at the age of 55.
I've been reading the tributes and outpouring of love for this remarkable man.
Thoughts are with his wife Arlene and all his loved ones.
Fly free, Norm....
#MND
#MoreNeedsDoing
!
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Let us all close our eyes at midnight and make a wish that 2023 is the year we find a cure, or at least an effective treatment, for motor neuron disease....
#MND
#MoreNeedsDoing
!
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🖤 Remembering Adam Maher, the
#Australian
-born
@hullfcofficial
#rugbyleague
🏉 legend who lost his life to motor neuron disease on this day 2020, less than two years after diagnosis. He was 47.
Thoughts are with his family, friends and former teammates...
#MND
#MoreNeedsDoing
!
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❤️ ROB BURROW'S message to his mate
#otd
2021:
“I’m absolutely made up for Kevin and his OBE...He’s stood by my side on the pitch and continues to be with me through my toughest opponent...Next step is a knighthood. I would love nothing more than to call you Sir Kevin Sinfield."
Kevin Sinfield has been awarded an OBE in the Queen’s Birthday Honours for his work in raising awareness of MND 🏅
His Leeds Rhinos teammate Rob Burrow is living with the condition.
#BBCBreakfast
had this surprise for Kevin ⬇️
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LET'S all raise a glass 🥂 to celebrate the Silver Wedding Anniversary 💒 of a very special couple 💞
#rugby
legend Doddie Weir and his beautiful wife 'Mary Doll'❣️
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Thoughts are with you on your beloved Dad's birthday
@CharlotteHawkns
😢 an especially sad and difficult day. Deepest empathy. xx
Bless you ❤️ for all you do to raise awareness of motor neuron disease
#MND
in his memory.
#MND
#MoreNeedsDoing
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💔 Remembering Jennifer Bell, the brave young mum of two who lost her life to motor neuron disease on Christmas Eve last year. 😢
Following her diagnosis in 2019, Jennifer spent her time not only creating precious memories with her daughters, but also raising awareness of
#MND
.
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⚽️REMEMBERING Rob Hindmarch, the
@SunderlandAFC
@DCFCOfficial
and
@Wolves
defender born
#otd
1961, who was only 41 when he lost his life to
#MND
in 2002.
A time when I was blissfully ignorant of this horror that would take my Dad three years later 😢
#SAFC
🔴⚪️
#DCFC
🐏
#Wolves
🐺
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REMEMBERING
#rugbyleague
's 🏉 Nick Smith, whose young life was cruelly cut short by motor neuron disease
#MND
on this day 2017. He was 38. 😢
In 1998, Nick played with
#SirKev
Sinfield in the
@leedsrhinos
Academy Championship-winning side.
#ForSmudger
#MND
💔
#MoreNeedsDoing
!
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🖤 REMEMBERING Don McVicar, the
#Scottish
footballer ⚽️ who lost his young life to motor neuron disease
#otd
2006. He was 43.
#MND
#MoreNeedsDoing
!
@StJohnstone
@TranmereRovers
@MontroseFC
@PartickThistle
@AirdrieoniansFC
@AyrUnitedFC
@ForfarAthletic
@ArbroathFC
@TEnglishSport
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❤️ PRINCE WILLIAM will compete in the 'Royal Charity
#Polo
Cup' tomorrow raising funds for eleven causes, including motor neuron disease
#MND
.
BLESS YOU,
@KensingtonRoyal
....
#MND
#MoreNeedsDoing
Read more:
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I've been raising awareness of motor neuron disease
#MND
on
#twitter
for 11 years today!
There's far too much ignorance of this callous and neglected killer!
I'll never forget the fear in my Dad's eyes as he succumbed to this horror. 😢
#MoreNeedsDoing
!
#MyTwitterAnniversary
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🖤 REMEMBERING DAVID HAGEN ⚽️
The former
#RangersFC
,
#JamTarts
and
#FalkirkFC
midfielder lost his life to motor neuron disease
#otd
2020 😢 at the age of 47.
Thoughts are with David's loved ones on this especially sad and difficult day...
#MND
#MoreNeedsDoing
!
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📸taken twenty years ago today when both these
#rugby
legends were blissfully ignorant of the horrific condition that would afflict them in their forties.
Joost van der Westhuizen died of
#MND
in 2017 and Doddie Weir is tackling this killer without a cure!
#MND
#MoreNeedsDoing
!
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Love and miss you, Dad.... ❤️
Happy Birthday, you handsome devil.
Motor Neuron Disease, I despise you!
#MND
#MyNobleDad
#MoreNeedsDoing
!
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Heartbreaking to see so many young sporting personalities tackling devastating motor neuron disease 😢 but so heartwarming to see them utilising their popularity to promote awareness and raise funds in the face of this neglected and underfunded killer!
#MND
💔
#MoreNeedsDoing
!
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ON the day that KEVIN SINFIELD does
#Edinburgh
, let's remember national treasure RONNIE CORBETT, who was born in the City
#otd
1930!
The comedy legend endured a cruel and undignified death due to motor neuron disease
#MND
in 2016, the hideous horror that took my Dad.
#7in7in7
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💔 The Burrow family photos on
#instagram
,
@rob7linsdey
, are beyond heartbreaking.
Rob was so right to call his book "Too Many Reasons to Live".
Lindsey, Macy, Maya and Jackson; you'll often be in our thoughts and forever be in our hearts ❤️
#MND
, you are evil incarnate.
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On 14 December 2005, Dad was admitted to hospital with pneumonia after aspirating food into his lung, a complication of motor neuron disease
#MND
; he asked not to be resuscitated.
He was 'kept comfortable' and we sat by his bed until he died in the early hours of the 15th....😢
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BIG feature on the BIG man on
@BBCBreakfast
this morning, so make sure you're watching!
Fly free, Doddie... 😢
#TartanTitan
#MND
#MoreNeedsDoing
!
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16
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🏉Wishing former
@Scotlandteam
+
@lionsofficial
's big-hearted gentleman of
#rugby
@ScottHastings13
a very Happy Birthday 🥳!
A huge thank you for all you do to raise awareness and funds for
#MND
, and for always being there for your mate, the late, great Doddie Weir... ❤️
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HAPPY BIRTHDAY 🎂
@GMB
&
@ClassicFM
's
@CharlotteHawkns
✨
BLESS YOU 💕 for being such a passionate and proactive Patron of the
@MNDAssoc
, in memory of your beloved Dad Frank.
💙 Much love from all of your
#MND
family 🧡
We hope your day is as special 🌟 as you are!
xxx
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🏉 LET'S raise a glass in memory of
@EnglandRugby
's legendary prop PAUL ' THE JUDGE' RENDALL, who lost his life to motor neuron disease
#MND
one year ago today, less than a year after diagnosis.
Thoughts are with his loved ones.
#WeWillRememberThem
#MND
#MoreNeedsDoing
!
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Bestselling British
#crime
writer Mo Hayder lost her life to motor neuron disease
#MND
on 27 July 2021 at the age of 59.
#Wolf
, a major six-part crime thriller based on Mo's acclaimed Jack Caffery novels, will air on
@BBCOne
and
@BBCiPlayer
on 31 July....
#MND
#MoreNeedsDoing
!
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I wonder if
@Springboks
' and
@SaleSharksRugby
's Faf de Klerk ever thought he'd be wearing the No 9 of late, great
#rugby
🏉 legend, Joost van der Westhuizen, when this photo was taken!
#RSAvENG
#MND
#MoreNeedsDoing
!
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REMEMBERING the Big Man on his birthday.
BLESS YOU for your enduring legacy of love and
#MND
enlightenment, DODDIE WEIR 💙💛
THOUGHTS are with his wife Kathy and sons Hamish, Angus and Ben on this especially sad day.
Fly free, Doddie.... 😢
#MND
#MoreNeedsDoing
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18
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🎈 HAPPY BIRTHDAY to
@BBCBreakfast
presenter and our cherished
#MND
ambassador
@SallyNugent
!
BLESS YOU for the genuine compassion, sensitivity and respect you show our
#MND
community.
WE HOPE you have the best of birthdays, Sally!
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🌹 THE ROB BURROW
#MND
ROSE makes it's debut at
#RHSHamptonCourt
today, with £2.50 from each sale going to the
@MNDAssoc
❤️
@harknessroseco
: "The buds unfurl into stunning saffron yellow blooms that captivate the eye. This vibrant floribunda...."
More:
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Three short years ago today Rob Burrow, Stephen Darby and Doddie Weir shared the importance of their friendship with
@sallynugent
on
@BBCBreakfast
.... 😢
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Totally agree, Brent!
Let's celebrate ROB BURROW and KEVIN SINFIELD'S CBEs, awarded for being
#MND
heroes, and stop bellyaching about knighthoods....
#NewYearsHonours
Congratulations to Kevin Sinfield & Rob Burrow being awarded CBEs in
#NewYearsHonours
for their incredible support and fundraising for
#MND
Let's not get hung up with Knighthoods but let's really celebrate this hugely high honour for these 2 legends.
#kevinsinfield
#robburrow
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William: “Is there anything you specifically want people to know about
#MND
?”
Rob: “
#MND
is not incurable, it's just been underfunded. Doddie Weir showed us the way. Hopefully through our campaigning we've helped to make people aware and given people affected by
#MND
some hope.”
Prince William surprises Rob Burrow and Kevin Sinfield with CBEs
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🏏
@StuartBroad8
to join Kevin Sinfield on the final day of his gruelling
#7in7in7
through
#London
for
#MND
.
Stuart lost his beloved step-mum Miche to motor neuron disease in 2010.... 😢
I’m joining Kev & his team today. I’ll be around Richmond Park at 12ish if you see us give us a cheer!
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Bestselling British
#crime
writer Mo Hayder was born on this day 1962. Her life was cruelly cut short by brutal motor neuron disease in 2021.
A major six-part crime thriller
#Wolf
, based on Mo's acclaimed Jack Caffery novels, will air on
@BBCOne
in 2023...
#MND
#MoreNeedsDoing
!
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HAPPY BIRTHDAY 🥳
#MND
Warrior 💪 Sir John of
#Droitwich
⚔️ fighting motor neuron disease with ferocious fortitude and raising phenomenal funds for the
@MNDAssoc
!
He's
#Baggies
biggest fan and bloody funny too!
Hope your day is as special as you are,
@JohnAda10163823
🤩❤️🎈🎂
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💙 “I wish you all the best of luck at the
#RobBurrowLeedsMarathon
…You’re making a huge difference to the
@MNDAssoc
’s work caring for people with
#MND
...Take time to enjoy it, drink lots of water...If you see me en route, say hello...Together we will keep banging that drum!" 🧡
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#MyTwitterAnniversary
I've been raising awareness of motor neuron disease on
#twitter
for 1⃣3⃣ years!
I lost my lovely Dad to merciless
#MND
in 2005 😢.
There is still far too much ignorance of this cruel killer and I will never stop banging the
#MND
drum!
#MoreNeedsDoing
!
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