MND Association
@mndassoc
Followers
48,235
Following
12,160
Media
8,720
Statuses
58,251
Our vision is a 🌎 free from 𝐦𝐨𝐭𝐨𝐫 𝐧𝐞𝐮𝐫𝐨𝐧𝐞 𝐝𝐢𝐬𝐞𝐚𝐬𝐞 #MND
England, Wales & N. Ireland
Joined March 2012
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Our MND Connect Helpline is here to support all those living with and affected by motor neurone disease, offering information and support on all aspects of MND.
Call: 0808 802 6262
Email: mndconnect
@mndassociation
.org
Visit:
💬
#MND
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We’re sorry to hear that Doddie Weir OBE has died.
Since sharing his MND diagnosis in 2017, Doddie became an inspiration to many, raising awareness and campaigning tirelessly on behalf of those with MND.
Our thoughts are with Doddie’s wife Kathy, his 3 sons, family and friends.
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What an unbelievable moment 👏
Kevin Sinfield carries his best mate,
@Rob7Burrow
across the finish line of todays
#RobBurrowLeedsMarathon
.
Just wow 💙
Sponsor Kev here:
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Congratulations to MND Association patron, Kevin Sinfield, who was given a Special Award at this evening's BBC Sports Personality of the Year.
It acknowledges Kev's epic fundraising in the fight against
#MND
, raising £7 million in honour of his friend,
@Rob7Burrow
.
💙
#BBCSPOTY
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We’re deeply saddened to learn of the death of our patron Rob Burrow CBE.
Since his MND diagnosis in 2019, Rob has played a vital role in raising awareness and money to support our work. We will be forever grateful.
Our thoughts are with Rob’s family, friends and fans.
It is with deep sadness that the club can confirm that former player Rob Burrow CBE has passed away, aged 41.
More here
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HE'S DONE IT 🥳 £1,000,000!
A remarkable achievement. An inspiration.
We cannot thank you enough Kevin 💙 he's raised a million £ running 7 marathons in 7 days in honour of his best friend
@Rob7Burrow
and the MND Association.
🧡
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This moment 🥹 unforgettable…
An absolutely incredible reception for Kevin Sinfield as he joined
@sallynugent
on the pitch at the
#RLWC2021
final after completing his
#Ultra7in7
challenge.
You couldn’t have said it any better 💙
#BBCRL
#MND
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Today, on Rob Burrow Day and the day of Rob's funeral, we want to pay tribute to all he has done for the MND Association and the MND community.
We will be forever grateful.
Thank you Rob.
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Through thick and thin.
The highs and lows.
Kevin Sinfield will always step up and go the extra mile for
@Rob7Burrow
, and the
#MND
community. He's a hero.
Thank you for everything Kev 💙
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💙🧡
So incredibley deserved. Congratulations
@Rob7Burrow
, Lindsey and Kev!
#PrideOfBritain
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BREAKING 🥳 WE DID IT!
The
@GOVUK
has now agreed to commit £50 million to fund specific research in to motor neurone disease in response to our
#United2EndMND
campaign.
It's made the front page of Sunday's
@Daily_Express
, which has supported our fight 🔬
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There truly is only
#OneRobBurrow
...
We'll be forever grateful Rob 💙
Thank you for everything you've done for the
#MND
community and the MND Association.
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Read our tribute to Doddie Weir OBE.
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£ 1 , 0 0 0 , 0 0 0 🥹
He’s done it again. Kevin Sinfield has raised over one million pounds for those living with and affected by motor neurone disease.
Heroic 💙
This is going to make such a massive difference:
Thank you all 🧡
#Ultra7in7
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HE'S DONE IT AGAIN 🥳 £2,000,000!
No, that's not a typo. Kevin Sinfield has now reached the £2,000,000 milestone.
It's truly incredible. We cannot thank Kevin and everyone that has donated enough. This is going to make a real difference.
🧡
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Huge congratulations to MND Association patron,
@Rob7Burrow
, who has been awarded the Helen Rollason Award at this evening's BBC Sports Personality of the Year.
He was honoured in recognition of his tireless awareness raising of motor neurone disease.
👏
#BBCSPOTY
#SPOTY
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Rob Burrow CBE 🎖️
Kevin Sinfield CBE 🎖️
HRH The Prince of Wales surprises Rob Burrow and Kevin Sinfield with their CBEs.
Full story below.
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Wow... that was incredible.
Everyone at the Association would like to say a massive thank you to
@Rob7Burrow
and his amazing family and friends for raising invaluable awareness of MND.
You can donate towards our fight against MND here
💙 !
#MyYearWithMND
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Today is the funeral of Rob Burrow.
Members of the public are invited to line the route of the cortege, to pay their respects as it makes its way to the crematorium. You are asked to be in position from 13:00.
For more details, click below.
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The Burrow family have arrived at the National Television Awards 💫
Best of luck to them and the
@BBCBreakfast
team at tonight awards.
Thanks to everyone who voted!
#NTAs
📸
@leedsrhinos
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“This is for all the
#MND
warriors.”
Inspirational words from
@Rob7Burrow
.
This evening, he was awarded the Helen Rollason Award at the BBC Sports Personality of the Year awards. It was presented by his friend, Kevin Sinfield 💙
#BBCSPOTY
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HE'S DONE IT 🥳
#THEEXTRAMILE
COMPLETED!
"There's only one, Kevin Sinfield" 🎶
Congratulations Kevin. What you have done in the last 24 hours has been truly remarkable. We will never forget it Sir Kev.
You are our hero. Thank you for everything.
💙
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Another day, another marathon for Kevin Sinfield.
5 to go. £210,000 raised... Incredible.
Send your messages of support here 👇
🧡
#RunKevinRun
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“So brave, so tough. I wish he could have seen the outpouring of love”
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Rob Burrow:
#MyYearWithMND
may not have won this time but it's a winner in our eyes. The awareness it's raised of motor neurone disease has been incredible.
Thank you to
@Rob7Burrow
and his family for selflessly sharing their story.
Well deserved
@KateGarraway
👏
#NTAs
#MND
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This was the moment earlier today that both
@Rob7Burrow
, surrounded by his family, and Kevin Sinfield were awarded their CBEs by HRH The Prince of Wales
@KensingtonRoyal
.
Found out more tomorrow morning on
@BBCBreakfast
!
#MND
#BBCBreakfast
#7in7in7
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What a shot of the
#BBCBreakfast
sofa 👏
Kevin Sinfield with his best mate,
@Rob7Burrow
and family, alongside
@sallynugent
and the amazing
@BBCBreakfast
team who covered today's
#TheExtraMile
challenge.
Watch it back here 📺
#MND
[📸
@ClaireRyanSport
]
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In case you missed it, today our patron,
@Rob7Burrow
was awarded his MBE at Windsor Castle.
The MND Association's Royal Patron, HRH The Princess Royal, presented Rob with his award.
Full story below 👇 📸
@leedsrhinos
!
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If you have a spare few minutes please watch this…
Today saw an emotional homecoming for Kevin Sinfield as he stopped at Headingley Stadium in Leeds. He was met by best mate and inspiration,
@Rob7Burrow
.
This is friendship 💙
#Ultra7in7
📹
@leedsrhinos
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Morning everyone 👋
Kev Sinfield and the team are running a well deserved 0 miles today.
What a special week it’s been 💙
#Ultra7in7
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HE’S HALF WAY 🥳
Kev has just passed 50.5 miles and hit an amazing £350,000. He’s now half way to completing his epic 101 mile
#TheExtraMile
challenge. The countdown is on.
He needs your support now more than ever… Let’s go Kev!
💙
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A message from MND Association patron, Kevin Sinfield, ahead of tonight’s
@SkySportsRL
coverage of
@LeedsRhinos
vs
@LeighLeopardsRL
.
The game, played on
#GlobalMNDAwarenessDay
, is dedicated to celebrating the life of the inspirational Rob Burrow 💙
#SkyRL
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Kevin Sinfield has just gone past the £250,000 mark 🥳
Yes, Sir Kev has just raised over a quarter of a million pounds for Rob Burrow and the MND Association.
A momentous achievement. Well worthy of a dab 🤙 !
#RunKevinRun
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“Time is not a luxury that the
#MND
community have.”
Here’s
@Rob7Burrow
receiving his Points of Light Award from Prime Minister,
@RishiSunak
yesterday evening.
Catch up on
#BBCBreakfast
!
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Squad goals 😍
They’re all set and ready to go.
Our team of runners have now raised over £1,260,000 in the fight against motor neurone disease.
💙
#RobBurrowLeedsMarathon
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“Kevin is a friend to all of us” 💙
This is what Kevin Sinfield’s
#Ultra7in7
challenge meant to all those living with and affected by
#MND
.
The team joined
@sallynugent
and
@jonkay01
on the
#BBCBreakfast
sofa this morning after a remarkable 7 days!
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We would like to thank our patron,
@Rob7Burrow
, his wife, Lindsey and their family for continuing to raise awareness of motor neurone disease (
#MND
).
The difference they have made to the work of the MND Association is truly incredible. They've helped so many.
Thank you Rob 💙
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HUGE congratulations to MND Association patron, Kevin Sinfield, who has won Celebrity Fundraiser of the Year 🥳 at this year's
@JustGiving
Awards.
'Sir' Kev has raised over £4 million in support of his best mate,
@Rob7Burrow
.
Thank you all for your votes 💙
#JGAwards
#Ultra7in7
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He's only gone and done it 🥳 £1 million!
Kevin Sinfield's
#TheExtraMile
challenge has now raised over £1,000,000... and we've ran out of superlatives.
It's been an unforgettable day for the MND Association,
@LDShospcharity
and the
#MND
community.
💙 !
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Rob Burrow:
#LivingWithMND
may not have won this evening but the awareness it has raised of motor neurone disease has been incredible.
Thank you to our patron
@Rob7Burrow
, the Burrow family, and the
@BBCBreakfast
team.
Big congrats to
@LewisCapaldi
👏
#NTAs
#MND
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Who's tuning into
@CBeebiesHQ
right now?
In 5 minutes,
@Rob7Burrow
will be reading tonight's Bedtime Story - Tilda Tries Again, a story all about perseverance. Rob will be using his communication aid - a first for the show.
Watch live below 💙
#CBeebies
#MND
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Amazing to see His Royal Highness, The Prince of Wales, meet with MND Association patrons
@Rob7Burrow
and Kevin Sinfield today.
The Prince
@KensingtonRoyal
congratulated them both on their outstanding efforts to raise awareness of, and funds to fight MND.
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BBC Breakfast are paying tribute to Rob Burrow this morning.
Rob’s former teammate, Jamie Jones Buchanan, spoke to
@BBCBreakfast
and reflected on what an inspiration Rob was.
Fans have been leaving tributes outside Headingley Stadium 🧡
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As of right now, our
#RobBurrowLeedsMarathon
runners have raised a combined…
£ 1 , 3 2 6 , 0 0 0 😮🥳
Thank you to everyone, you never fail to amaze us. We hope you all had a wonderful day. You can donate to the team below.
💙
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COME ON KEV 🥳
We’re into the final stages of Kev’s truly remarkable
#TheExtraMile
challenge. It’s getting extremely hard now, he needs your support.
Watch
@BBCBreakfast
for live coverage of the finish!
#BBCBreakfast
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How wonderful is this? 😍
To recognise International Day of Persons with Disabilities,
@Rob7Burrow
has been asked to read a
@CBeebiesHQ
Bedtime Story this weekend.
Find out more on
#BBCBreakfast
this morning!
#IDPD
#MND
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“One Rob Burrow” rings out around
@LeedsRhinos
Headingley Stadium followed by an impeccable minutes silence for which some of Rob’s ex-teammates joined the current Rhinos squad on the pitch.
There truly is only
#OneRobBurrow
💙
#GlobalMNDAwarenessDay
#SkyRL
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Very special birthday wishes to MND Association patron,
@Rob7Burrow
MBE.
Happy birthday Rob 🎈 thank you for all you've done for the Association and the
#MND
community as a whole.
We're proud to be fighting alongside you!
#OneRobBurrow
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We're delighted to hear that
@Rob7Burrow
has been awarded an MBE in the
#NewYearsHonours
List.
"He's inspired so many people by sharing his journey, just as he did on the pitch" -
@ChrisJamesMND
.
Congratulations 💙 there's only
#OneRobBurrow
, MBE!
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Today is was announced that
@Rob7Burrow
is to read a
@CBeebiesHQ
Bedtime story using his communication aid technology, the first time a bedtime story has been read this way.
Rob will read the CBeebies Bedtime Story at 18:50 on Saturday.
Check out the full story below!
#MND
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"I have had such a great life. I have been gifted with a wonderful wife and the most incredible three children. I hope that they know how much I love them." - Rob Burrow.
If you watch one thing today, let it be There's Only One Rob Burrow.
Click below.
💙
#OneRobBurrow
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Sam is living with MND, and has just completed the
#LondonMarathon
Sam has donated over £50,000 to the Association since 2020 through his charity
@StandAgainstMND
Thank you, Sam. You are a hero.
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Congratulations from everyone at the MND Association to our patron,
@Rob7Burrow
, who today collects his MBE at a special ceremony at Windsor Castle.
It’s for services to rugby league
@TheRFL
and for raising awareness of motor neurone disease.
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T H E Y ' V E D O N E I T 🥳
Congratulations to Kevin Sinfield and the team who've just completed the
#Ultra7in7
challenge.
• Seven ultra marathons in seven days
• Edinburgh to Manchester
• £1,350,000 raised:
We've ran out of words 💙
#RLWC2021
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Lindsey, you're an inspiration 💙
Carers embody selflessness. They devote themselves to loved ones, offering so much without seeking anything in return.
Thank you Lindsey,
@Rob7Burrow
and the Burrow family, for once again raising vital awareness.
#CarersWeek
#LivingWithMND
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£ 2 , 0 0 0 , 0 0 0
It just keeps going 🥳
Congratulations and thank you so much to Kevin Sinfield and the team, and of course all of you for your support, this is going to make such a huge difference.
💙 !
#Ultra7in7
#MND
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"We want to give hope to Rob and to everybody else who’s suffering"
We're proud to have our patron Kevin Sinfield OBE, running today's
#LondonMarathon
for families affected by motor neurone disease.
He's running in honour of his friend and fellow patron,
@Rob7Burrow
🧡
#TeamMND
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Describe these guys with one word...
We'll start 🧡 inspirational.
#RunKevinRun
#OneRobBurrow
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What a day for Kev and the team…
£ 1 , 5 0 0 , 0 0 0 👏 it just keeps going…
Just a remarkable achievement.
Can we say anymore?
💙
#Ultra7in7
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Lindsey Burrow spoke to
@SallyNugent
on
@BBCBreakfast
this morning about her husband Rob, his impact and the tributes he received following his death.
We’ll be forever grateful to the Burrow family for the awareness they’ve raised.
#GlobalMNDAwarenessDay
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They’ve made it to Headingley 👏
A heroic welcome for Kevin Sinfield and the team as they reach the home of
@leedsrhinos
where
@Rob7Burrow
was waiting proudly to greet them.
Amazing 💙
!
#Ultra7in7
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We're so proud to have
@Rob7Burrow
as a patron of the MND Association.
Rob, his wife Lindsey, and children, Macy, Maya and Jackson, have selflessly shared their family journey with
#MND
.
It's inspired so many others to take action 🧡
We'll never be able to thank them enough.
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Rob's wife, Lindsey, and his daughter, Macy, will run the final mile with Kevin. How amazing is that?
This is a remarkable day. We are all so proud of what Kevin is achieving.
#TheExtraMile
is coming up!
💙 !
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W O W 😧
Here’s the situation, this is the crowd waiting for Kevin Sinfield and the team to arrive in York right now, completing day five of the challenge. £600,000 raised so far.
Unbelievable support 💙
#Ultra7in7
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Shirts, flowers, messages and more have been left outside Headingley Stadium in honour of Rob Burrow.
It's testament to the strength of feeling people have for Rob and demonstrates the positive impact he had on so many.
You can read our tribute below.
[📸
@hullfcofficial
]
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£ 7 7 7 , 7 7 7 🥳
HUGE congrats to Kevin Sinfield and the Ultra 7 in 7 team who’ve just hit their incredible fundraising target.
A massive thank you from everyone at the MND Association. This means so much to those living with
#MND
.
💙
#Ultra7in7
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Fans of Rob Burrow are leaving Burrow 7
@LeedsRhinos
shirts and flowers at Headingley Stadium this evening in tribute to Rob.
He inspired so many 💙
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🗺️ 101 miles
⏰ 24 hours
💪 Kevin Sinfield
Be ready bright and early tomorrow for The Extra Mile challenge. Tune into
#BBCBreakfast
for coverage.
Send your messages of support to Kev using
#TheExtraMile
- he will be using them as motivation 👏
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If you look up 'friendship' in the dictionary you should see this picture.
𝐓𝐡𝐢𝐬 𝐢𝐬 𝐟𝐫𝐢𝐞𝐧𝐝𝐬𝐡𝐢𝐩 💙
#RobBurrowLeedsMarathon
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Marathon three done for Kevin Sinfield... come rain, wind or snow.
£302,000 raised. That's £100,000 a day so far.
Remarkable. We have no words, just admiration.
💙
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“In a world full of adversity, we must dare to dream”
We’ve seen an incredible reaction to the There’s Only One Rob Burrow documentary that aired last night on BBC One.
You can still watch it on iPlayer. We highly recommend doing so!
💙
#OneRobBurrow
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Yet another milestone 🤩 £2,500,000!
Kevin Sinfield has now raised over two and half million pounds.
The money and awareness raised by Kev and his team is crucial and will help those affected by motor neurone disease across the country.
💙
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1K
Finish line moment 🏁
Kevin Sinfield completes 101 miles in 24 hours in honour of
@Rob7Burrow
and families across the country affected by motor neurone disease.
Thank you to
@SallyNugent
and the
@BBCBreakfast
team for raising awareness 🧡
#TheExtraMile
18
118
1K
Congratulations to MND Association Director of Research Development,
@DrBrianDickie
, who has been awarded an MBE in the New Years Honours list.
Brian has been recognised for ‘services to motor neurone disease research’.
Full story here:
#MND
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The MND Association is delighted to welcome two new patrons –
@Rob7Burrow
MBE, who is living with motor neurone disease, and his former
@leedsrhinos
team-mate and friend, Kevin Sinfield OBE.
More here 👏
#ThankYouRob
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1K
.
@ProSyndicate
said he'd dye his hair blue if he reached 10% of his target. £13,337 later... :D
http://t.co/DCWsjJbKNi
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We're so grateful to
@LukeTheNuke180
for this amazing gesture helping us raise awareness of MND.
Luke, a
@WarringtonRLFC
fan, has offered his support after seeing the work of the MND Association and bravery of our patron,
@Rob7Burrow
, following his
#MND
diagnosis.
🎯
#TeamNuke
Luke Littler will show his support for the Motor Neurone Disease Association (
@mndassoc
) by wearing the charity's logo during the 2024 Premier League season.
👉
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1K
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963
We've had a great couple of days at our inaugural
#MNDEncourageUK
event.
Today we welcomed our Royal Patron, HRH The Princess Royal, who gave a speech to, and spoke with, those attending the conference.
We also heard from Lee
@onein300
,
@SallyLight17
and
@DrBrianDickie
🔬
#MND
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And there we go...
@Rob7Burrow
,
@MummyWithM
and Co hand the
#United2EndMND
patient letter in to
@10DowningStreet
.
Thank you to everyone living with motor neurone disease who signed the letter 💙
We're asking
@GOVUK
for £50 million to fund a virtual institute for
#MND
research!
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We second this 🙋♂️ Congratulations to all of the runners, volunteers and staff for making
#RobBurrowLeedsMarathon
a day to remember. Will you be celebrating with some junk food like Kev?
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Remembering Doddie Weir OBE.
The MND Association will be forever grateful for the awareness and money raised by Doddie, all for those affected by MND.
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928
𝐋𝐞𝐠𝐞𝐧𝐝𝐚𝐫𝐲.
𝐄𝐱𝐡𝐢𝐥𝐚𝐫𝐚𝐭𝐢𝐧𝐠.
𝐈𝐧𝐬𝐩𝐢𝐫𝐚𝐭𝐢𝐨𝐧𝐚𝐥.
This team have made an unforgettable difference to the lives of those living with and affected by motor neurone disease, and the work of the MND Association.
We'll never forget it.
💙🧡
#Ultra7in7
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Huge thank you to
@SkySportsRL
,
@LeedsRhinos
,
@LeighLeopardsRL
and the whole
@TheRFL
community for again helping to raise funds and awareness in the fight against motor neurone disease.
We promise to not stop until MND is treatable and ultimately curable.
#GlobalMNDAwarenessDay
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“5,000 reasons why we should go again…”
This morning on
@BBCBreakfast
, MND Association patron, Kevin Sinfield, announced his latest challenge.
He’s running for the estimated 5,000 people living with
#MND
in the UK.
More details below 🏃♂️
#7in7in7
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A message to Prime Minister,
@BorisJohnson
, on behalf of everyone affected by motor neurone disease, from MND Association patron
@Rob7Burrow
.
The Government's funding for targeted
#MND
research stands at less than £5 million a year. That’s not enough.
🔬
#United2EndMND
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They’ve done it 🥳
Kevin Sinfield and his team have completed another marathon in honour of
@Rob7Burrow
and families affected by MND. Thank you to every one of them!
📹
@leedsrhinos
#ThankYouRob
#RobBurrowDay
#7in7
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MND Association patron, Kevin Sinfield, will push best mate and fellow patron,
@Rob7Burrow
, around the
#RobBurrowLeedsMarathon
course tomorrow.
The pair continue to inspire so many 💙
Watch more on
#BBCBreakfast
!
15
126
891