๐๐๐๐๐ โคLee
@JZaitshik68278
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Post SSRI Sexual Dysfunction Awareness @PSSDNetwork and Occipital Neuralgia Awareness, 24 years old #prescribedharm . @PFSNetwork & Long Covid ally. Pro medicine
Michigan, my views are my own
Joined April 2023
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Pinned Tweet
I think people in healthcare need to respect the perspectives of people whoโve been harmed and if you donโt like it, just donโt say anything at all, youโre not the one whoโs harmed nor understands the implications of being harmed and not helped
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When you are 20 fucking years old with akathisia symptoms from antipsychotics for 6-7 months, thatโs not fucking normal, thatโs an iatrogenic condition, Iโm not suppose to be having the symptoms of a god damn 90 year old in my 20s, thank you psychiatry, thank you for the trauma
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I might be suing my psychiatrist, itโs been three and half years and still no medical record has been received after countless times of asking for it and by other medical professionalsโฆ Iโm disgusted that heโs still able to practice, a title doesnโt make someone above the law
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Iโll talk all fucking day about my sexual dysfunction and other health problems, if you donโt like that, block me, I donโt give a fuck but I wonโt stop talking openly about my health problems, Iโm a donโt give a fuck anymore kind of person
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@AkathisiaAlli
I remember him, I believe he was a guitaristโฆ He is clinging to life with minimal to no help. This is why distrust and resentment will continue to persist with modern medicine. For the love of god, I wish doctors and medical bodies would take this shit seriously
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@zaelefty
@IanCopeland5
He got ratioed, Iโm ok with people changing gender but we havenโt evolved technologically enough to change our evolution enough to alter our biological sex, we can perhaps change gender but not biological sex, most sex change procedures are cosmetic scams.
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Can we do an edit on this and replace it with โthis Barbie has Post SSRI Sexual Dysfunctionโ and/or โthis Barbie has akathisiaโ or โthis Barbie suffers from iatrogenic conditions and doesnโt have safe helpโ. Letโs do some for the Kens out there haha
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@ruby_danger
@INVESTIG4T0R
@WarMonitors
Son of one of the Hamasโs cofounders, heโs a bit coo coo
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With my friend in Mexico City ๐๏ธ trying to live my life with health problems, itโs a perfect picture but just because it looks perfect on the outside I still struggle on the inside with many things and thatโs ok. Iโm easy on myself and set boundaries for what I can and canโt do
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Some people donโt understand the effort, the tears, the pain and suffering each individual raising awareness has gone through to get PSSDNetwork to where it is today. Itโs been a team effort and the success it has had for providing awareness has been monumental thanks to those
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Iโm in support groups, I am sad when I hear that a person has taken their life because of our broken health care system. I hurt for them, I hurt with them, I wish for every soul on the planet, I could do something for everyone hurting, the most I can do is speak up and loudly
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Firm handshakes to this Reddit user whoโs commenting about this recent study on Prozac, trust in evidence based medicine can only be restored by more transparency, honesty and research into these harms treatments can cause.
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I miss living, i want to live, I donโt want to just spend my entire life surviving. I miss going to top golf with friends, planning out my future, I miss going on dates, I miss myself, I miss so many people, I miss the beach, I miss running 3 miles a dayโฆ 1/2
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Another 1 bites the dust, too be honest I cant really care when he chose suicide prevention day to insult and minimize iatrogenic awareness surrounding PSSD and other forms of sexual dysfunction that psychiatric meds can cause Mr pro medicine, may not be after all be pro medicine
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Im off this bs app for a while, I literally canโt handle the toxicity, I canโt handle the bs, itโs sabotaging my mental health, I see the patterns, being on here really sucks the life out of me and Iโm already struggling.
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@TheSDPadresFan
@PicturesFoIder
Court systems fuck over victims so street justice is fair in opinion
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Diet doesnโt fix PSSD, I could eat a box of donuts and have normal sexual functioning pre medication, I can eat a diet healthier than most longevity experts and still have abnormal sexual functioning/reproductive health, tired of seeing diets marketed as solutions
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@cyberg1rlfrn
@svlgoodman
Biologically speaking you donโt know as much as you claim to. Bottom surgery doesnโt change someoneโs biological sex, itโs a freak procedure that exploits trans people in my opinion and if anything they need their own separate research because reproductively they nothing like
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Reviews from my ex psychiatrist, Iโll be posting more when I wake up because Iโm not the only one who thinks heโs a nut job
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Risperidone felt like snake venom and Lexapro was the cherry on top. The dose makes the poison, of course these medications can be helpful provided that people are given informed consent and appropriate dosing. What happened to me could have been avoided with my psychiatrist
Jaden was wrongly prescribed several psych meds he didnโt need (looks like it couldโve been bad malpractice). Link in comment.
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You know what also causes people to take their life? Post SSRI Sexual Dysfunction and other iatrogenic conditions, akathisia is a huge insane issue, can we talk about it without creating prescribed harm stigma?
you know who also canโt have sex ? ppl who killed themselves bc of depression
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I was blocked with no response or empathy for the pain and suffering I endured from prescribed harm, hereโs a perpetuator of prescribed harm stigma, heโd rather stare at the sky and pretend these issues donโt happen because thatโs of course the most convenient thing to do.
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Prescribed harm stigma is real, donโt med shame but donโt shame me for sharing for talking about how my life was ruined by psych medication. Mental health care advocates need to add this in their agenda to make health care better
Speaking out about psychiatric treatmentsโฆ
(1) If you are helped by treatment, you will be celebrated, validated and praised for your bravery.
(2) If you are harmed by treatment you will be ignored, gaslit, discriminated against and invalidated (causing further harm).
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Literally gave up my ego to talk about this, inspired by many other amazing people before me and still inspired by those that have the strength to speak up regularly, Twitter is so exhausting... I immediately crave an Oreo milk shake every time Iโm on here ๐
Retired psychiatrist Dr. Peter Gordon discusses with
@wdpsychiatry
how certain individuals and organizations within the psychiatry profession are intentionally turning a blind eye to the issue of
#PSSD
.
Full interview:
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Rest in peace brother, your life mattered, it still matters, I wonโt shut up until itโs solved.
RIP, Jason. Another taken too soon from this world due to the perpetual torture of having to live everyday with
#PSSD
.
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@jonathanstea
Then what do we call Post SSRI Sexual Dysfunction? 3 years of anorgasmia, delayed ejeculation, genital numbness and host of cognitive symptoms persisting after discontinuation with a rapid onset. Not only is my libido merely none existent, I have all these symptoms, am I scary?
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All the bad takes on PFS and PSSD from people benefiting from these treatments are wearing me down but I on the bright side I can explain to them itโs a nuance problem and just because youโre living in a utopia doesnโt mean everyone else is. Calling my experience an anecdote
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@NoahRyanCo
My reaction to it made me feel like it was a lobotomy in the form of a pill, thereโs no nice way to put it, not my fault, I didnโt ask for this
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@RyanMarino
I never knew Rogan as a serious person, heโs an entertainer lol itโs kinda expected, I kinda think his fear about the new embryo research was very dramatic lol too many bong tokes Joe haha
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@PieAreSqwared
They just think โpeople onlineโ and ignore the problem, we simply are too inconvenient for them to practice actual medicine and acknowledge harms.
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I know some people describe their experience with medications as they have a new pair of glasses on, they see the world more clearly. In my case the SSRI and neuroleptic took the glasses I had on that were perfectly fine and replaced them with a strength way too blurry for me.
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Another bites the dust lol he made the right decision, I got sick of seeing him belittle others lived experiences. Itโs ok to discuss benefits but I have to interviene when they are grossly exaggerate while the potential harms are sugar coated to look like innocent rainbow farts
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Iatrogenic injuries prevent people from connecting and living a normal life, if these disparities are never solved thatโs a lot of years of life stolen. Iโm saying this as Iโm in Florida and not really able to enjoy it like most people my age, like I once was able to
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@drraja_
Instead of blocking people that have been harmed, could you have some compassion for those without help suffering from iatrogenic conditions caused by SSRIs and try to be an ally in advancing medicine instead of being complacent with the risks we experience, food for thoughtโฆ
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Sitting here in the confines of home rotting and battling iatrogenic conditions for 3 years, I was 20 years old and healthy, if any healthy person takes psychiatric medication there always remains that probability of there life being destroyed even if doesnโt itโs still possible
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@drrachelrubin
Iโm glad thereโs voices like her whoโs raising concern and not giving up, itโs hard to get medical bodies to listen but collectively we can make change, than you for saying what needs to be said.
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And some ppl want to speculate that Post SSRI Syndrome may not be real, I mean they literally use these meds for predators to derail their sexual function which is a great thing but now help those who aren't sexual predators, who didnโt consent to persistent sexual dysfunction
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Itโs not pill shaming, itโs not the fault of individuals including myself who fell for the trap of mental health care thatโs poorly regulated and lacking behind in science, itโs not the fault of those that need help, we have to have these discussions or change wonโt happen.
You enter into the psychiatric systems of drugs and bullshit labels and you donโt improve. At best you are viewed as mentally ill & you are drugged and โmonitoredโ. At worst, itโs a death sentence where you can lose your freedom as you are forced drugged and incarcerated
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@hubermanlab
@StanfordMed
Would love to hear you discuss and bring awareness to Post SSRI Sexual Dysfunction, you have the platform and have a voice of reason, please discuss this issue so people can be informed and perhaps get more interests from medical bodies to solve it and PFS
Every single male sexual health video by Andrew Huberman never discusses sexual dysfunction caused by medication besides hair loss meds ๐คฆ๐ปโโ๏ธ
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@drjrucker
@joannamoncrieff
James what about those who have died or lost years for their life from iatrogenic injuries, instead of blaming her, perhaps blame your field for creating and burying problems the field has yet to fucking address.
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@Arlin4US
@OliLondonTV
How is it propaganda when it has happened, even if this is staged, donโt mean much. You tryna say new born werenโt slaughtered in this conflict?
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@DrLadeSmith
Wishing those with iatrogenic condition such as akathisia and Post SSRI Sexual Dysfunction get the recognition and medical breakthroughs they need to lead a happy life ๐ป๐
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Imagine designing a product/treatment and then not doing anything to solve itโs defects, imagine selling cars with defects and not providing any additional services to address the defects of the cars, thatโs whatโs happening. Modern medicine isnโt very consumer friendly
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@Rozewicz
@susan_bewley
@ProfRobHoward
@PGtzsche1
@cochranecollab
@CochraneLibrary
@Risk_Literacy
@MaryanneDemasi
Depression may reduce libido but not everyone whoโs depressed has a reduced libido and suffers with genital numbness making it hard to maintain an erection, anorgasmia and difficulty climaxing. Also SSRI induced sexual dysfunction is not always reversible
@PSSDNetwork
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She could not care about mental health or solving disparities in mental healthcare, point proven yโall. Sheโs fake as fuck, who do I expose next?
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Prescribed harm stigma and med shaming all in one haha
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Hereโs another quack, I asked him if heโs pro addressing iatrogenic conditions because Iโm unapologetically in need of healthcare to address my conditions and asked him to follow
@PSSDNetwork
and share to improve the field of psychiatry and sexual medicine and this is what I get!
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Saying that PSSD is chemical castration is not fear mongering and secondly if you sucker up to Stea after he exposed his true colors, go fly a kite ๐๐ I donโt need no fake sympathy, Iโm not on here trying to make friends, Iโm on here to spread awareness because my life
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Itโs very validating that I donโt let doctors invalidate me haha Today was a win and a sign of personal growth and strength, I handled it well. I just wonโt likely be returning for a follow up due to what was said that was very disrespectful.
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If I knew there was a possibility of sexual dysfunction, let alone chronic and sometimes permanent sexual dysfunction, I would never have had rolled that dice, what may benefit another certainly in my case did not benefit me.
It is very worrying that this is not being communicated to patients- how many people would really agree to play dice with their long-term sex-life if they knew the risk?
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Sometimes you have to block unsupportive family to protect yourself. Itโs not good to be by people that say โI love youโ but then invalidate youโre medical conditions, itโs not the kind of people I want in my life. At my worse I expected support, they chose to be disrespectful
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@EveSimmns
I wish it was rainbows and unicorns for everyone, you have to decide if for yourself if the risks are worth the benefits, if ur on antidepressants and are doing well, no need to worry. Unfortunately medicine isnโt perfect so the risks need representation
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Some psychiatrist in r/psychiatry giving his uniformed and ironically uneducated opinion on what PSSD may be. Then you have PoketheVeil, aka โjack assโ with his mod comment, that dude must smell like of sweat and coffee breath, how can he by a psychiatrist if heโs always on ๐
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Fuck cancer, I canโt wait for the day kids and people of all ages donโt have to worry about anymore about the millions of cancers out there. I canโt wait for debilitating neurological dysfunctions/diseases to be cured too ๐
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Post SSRI Sexual Dysfunction is not a delusion, the symptoms are debilitating, itโs another form of pain I deal with. Itโs important health care experts understand how the lack of acknowledgment and concern negatively impacts prescribed harm individuals who are seeking help
These doctors need to be sued! After reaching out for help for PSSD, I was sectioned under the assumption that I had โdelusional disorderโ because โ the medication is out of your body, it canโt do thisโ. The plan was to put me on a brain-shrinking antipsychotic.
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So many people speak of injustice but speak never speak about the amount of on going injustices in health care that leave people like me to rot. Itโs still hard waking up sometimes when the emotional pain kicks in about the life I could have had if I never took those psych meds
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Every single male sexual health video by Andrew Huberman never discusses sexual dysfunction caused by medication besides hair loss meds ๐คฆ๐ปโโ๏ธ
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My iatrogenic conditions turned my normal suffering into drowning, I think most people with any chronic illness/medical conditions feel the same. Whereโs the help and concern for iatrogenic conditions? It canโt be that hard for pharma companies responsible to get their heads
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@JDaviesPhD
Itโs always rainbows and unicorns, overselling benefits and make side effects sound like they are cute and innocent little rainbow farts and coughs
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I need awareness break yโall but Rosie is right on the dime here, we need voices that can speak am with us too, we canโt win this battle alone, collectively we can make a change. Anyways iโm off this app for a while, i need to focus on my mental health and overall health.
Iโm now dedicating my life to awareness, advocacy and research into PSSD. Iโll do whatever I can to ensure that no one else has to experience the pain and suffering that myself (and many others) have had to endure. PSSD is not a life, itโs an eternal prison sentence of your soul.
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Medical professionals need to quit treating patients enduring iatrogenic medical conditions as subhuman and unworthy of healthcare
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So I have POTS, was it due to the multiple psychiatric medications I took? I have no idea, Iโve only been having debilitating symptoms for the past 3 years since those medications, medical conditions are complex, I went from athlete to coach potato, less these days, I keep moving
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@PSSDNetwork
We need better mental health care, totally unacceptable that our first line treatments are ruining some peopleโs lives in a relatively short amount of time, we can do better.
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This goon has comments locked, just spreads a bunch of misinformation in his cozy echo chamber, what a quack
SSRIs do not cause erectile dysfunction.
But they do DELAY ejaculation.
SSRIs are used on a scheduled basis for ALL indications EXCEPT premature ejaculation -- they are used as needed.
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I swear this did something to dopamine, I use to get so hooked into video games that I felt immersed in every experience and immensely passionate about good games. I think thereโs a dopamine component to the cognitive dysfunction and sexual dysfunction phenotype of PSSD
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Itโs not fear mongering, SSRIs can cause chemical castration. I think alot of psychiatric meds can considering they all seem to be pretty harmful for sexual health and things harmful for sexual health can be harmful for mental health
@kevinnbass
Some of us were permanently castrated by an SSRI and never informed about permanent side effects.
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@ian_hickie
@EveSimmns
@Mental_Elf
@YOUTHe_au
Itโs important to not that not everyone benefits, we really need to reduce the stigma that excludes people prescribed harm suffering iatrogenic conditions from receiving help and more funding for research. My story
Risperidone felt like snake venom and Lexapro was the cherry on top. The dose makes the poison, of course these medications can be helpful provided that people are given informed consent and appropriate dosing. What happened to me could have been avoided with my psychiatrist
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@ROSIE_PSSD
I wish a pandemic didnโt happen, thatโs really what caused the isolation and led me to seeking help
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Heโs minimizing risks and speaking directly to another human suffering from prescribed harm like theyโre a disposable sack of meat, Iโm tired of seeing it. Canโt even do the bare minimum of getting behind research that could provide life saving care for those 1/3
@PSSD_Lexapoison
@977Investor
@ErickLarsonMDJD
@isthischill
@LiedbergPatti
This is well known, but the reaction is very rare. We prescribe penicillin for step throat but we know one in a million will have an anaphylactic reaction and risk death.
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@PFS_swallow
Forced medication is seriously fucked up, I would freak the fuck out, this shit should not be tolerated by any practicing physician and when it happens there should be legal repercussions
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@adamfare1996
And vice versa, people that are benefiting, donโt harass and invalidate people that have been harmed. We all deserve respect and quality health care, at the end of the day we are people with dang health problems and should be on the same page pushing for everyone to get the help
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There should be legal repercussions for those who made this disaster in the pharma industry (hims/hers and others) and those in the FDA responsible for repeatedly ignoring patient reporting and not doing their damn job to provide inform consent and research for this defect of the
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Hyping up PSSD? This guy really thinks talking about a medical condition many people suffer with makes it harder for people who need medication, how ignorant. People deserve to know the risks and benefits of every medication, I take meds, I know thereโs a risks, I have accepted
@ROSIE_PSSD
What you are saying is not backed by data at all.
Itโs interesting that when it comes to the effectiveness of antidepressants you want to label it as a placebo while exaggerating the side effects.
Meds might not have worked in your case, but it works in case of millions of
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Failing healthcare system, dog shit system. Imagining want to live so bad you stay alive but keep being put on medications that make your iatrogenic condition worse, how fucked
Stefan developed
#akathisia
in 2020. Since then, he has been repeatedly misdiagnosed, involuntarily hospitalized, and poly-drugged. This is Stefan today, three years later.
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The cognitive symptoms of PSSD and other conditions that are iatrogenic can make people depressed because we have to live with these symptoms but how can symptoms that did not exist prior to medication be maliciously deflected onto depression? Because itโs easy to do so
@PssdScotland
@coopercdavis
I donโt know how the establishment can confuse and oversimplify the subject, thereโs no justifiable contradiction to what we currently know from the available medical literature that points to persistent sexual dysfunction from medication as simply โdepressionโ.
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โAlways reversibleโ not true. If so people wouldnโt be complaining of Post SSRI Sexual Dysfunction and I wish I was one of those people whoโs SSRI induced sexual dysfunction was reversed. Itโs just not โalwaysโ the case
@susan_bewley
@ProfRobHoward
@PGtzsche1
@cochranecollab
@CochraneLibrary
@Risk_Literacy
@MaryanneDemasi
Depression reduces libido. It is therefore unclear whether it is causation or association. In my experience antidepressant associated reductions in libido (and other sexual adverse effects) are always reversible.
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@ChrisGovernale
Yikes, Iโm banned from that subreddit for discussing PSSD, moderators whom are psychiatrists donโt have much respect for those wanting to raise awareness about iatrogenic conditions, for them we are just statistical insignificances. We could really be saving lives by addressing
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I miss sex, I miss orgasms, I miss having romantic fantasies, I miss my mental clarityโฆ To think I had it hard then. Yes depression of any kind is terrible but comparing myself to myself, this version of me doesnโt have just depression but also depression+more. Pursue hope
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@hubermanlab
@DrMEisenberg
@StanfordMed
Was the time stamp around 2:20:00 minutes in? I have Post SSRI Sexual Dysfunction at 24, I have genital numbness and anorgasmia which contribute to my low libido, sex isnโt appealing and I have these symptoms despite having normal prolactin levels
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@DanClintonRN
@Rozewicz
@susan_bewley
@ProfRobHoward
@PGtzsche1
@cochranecollab
@CochraneLibrary
@Risk_Literacy
@MaryanneDemasi
That+ we want research and treatments for PSSD, I donโt know what sane people think we should just RIP SSRIs off the market, people just want the problems that they can cause to be addressed instead of dismissed. Itโs just wrong and itโs doing a disservice to public health
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@KennethMPeters1
@BeaumontUrology
Aye a doc from Michigan, one of a few that recognizes these issues, we certainly do need research and a treatment/s for all of them. Life in my early 20s with PSSD has been debilitating and surreal
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People that think sexual dysfunction doesnโt cause depression and worsening anxiety really need to understand that their world view is quite messed up and not everyone shares the same type of depression ๐คฆ๐ปโโ๏ธ
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@PieAreSqwared
Yo remember being depressed before an SSRI and still feeling the orgasm? I think we all do as sufferers of PSSD, otherwise we wouldnโt be complaining, we know our bodies more than doctors do, itโs sad for a long time no one listened to the ones before us
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The most ridiculous people to exist are definitely on antidepressant subreddits with no objective understanding of individual experiences and the prevalence of PSSD, they want to argue that I am fear mongering despite providing information. It doesnโt discriminate ๐คฆ๐ปโโ๏ธ
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So they want to expand MAIDs to mental illness in canada, it just stirs pain in me, why canโt we allocate more money into medicine research, why are we just giving up? Why are both of the wealthiest countries in the world not doing more to help? This should never be thought of
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@Aerea_caeles
Itโs not fear mongering, Itโs not just a side effect, itโs an iatrogenic condition but the game of trial and error is a risky game, itโs why research is important so everyone gets the best results and a guaranteed treatment plan that works.
Risperidone felt like snake venom and Lexapro was the cherry on top. The dose makes the poison, of course these medications can be helpful provided that people are given informed consent and appropriate dosing. What happened to me could have been avoided with my psychiatrist
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@drpraveenpsy
Very disrespectful post, most people commenting about PSSD have PSSD, not everyone experiences PSSD is anti-psychiatry and rather critical of it and are suffering from symptoms they never had up until taking an SSRI. The recent prevalece study is not accurate and I can explain
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PSSD is what happens when you didnโt have sexual dysfunction or cognitive impairment your entire life and then all of a sudden get a broad range of sexual dysfunction symptoms and cognitive issues from taking an SSRI that didnโt go away after discontinuation. Easy to understand
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@wdpsychiatry
There shouldnโt be stigma about speaking up, anyways I felt suicidal because of it, I felt violated and Iโve never wanted to die more in my life than when I had akathisia. Thatโs a pain I donโt wish on anyone and thank god for my family, i think I didnโt have them I wouldnโt be
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@Jenna_DeWitt
Then what happened to my sexuality? I feel castrated, is there another word in the English dictionary to describe my absence in sexuality and sexual health? I have Post SSRI Sexual Dysfunction, i feel asexual, thatโs how I describe it
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That. Itโs just so hurtful to tell someone who battles everyday dealing with an invisible condition that they should essentially be quite and say nothing about what their SSRI did to them. All people with PSSD want is better healthcare that addresses and treats or cures PSSD
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@Psychiatry_Anti
I would talk about what happened to me, how my life was ruined by the events that followed my adverse reactions that became iatrogenic conditions. Iโd also share about the importance of listening to feedback so we can have better medicine in the future
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@CSWhiteMD
Thank you, I suffer with Post SSRI Sexual Dysfunction and I appreciate your insight and I find medical professionals like yourself who donโt invalidate my suffering to be role models for incoming and older generations who are stuck on their high horses lol
@PSSDNetwork
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