daringshift
@daringshift
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Complexly chronically ill 2015-2023. Addressed the root causes and recovered. Hoping to help others do the same. #KennedyIsTheRemedy #KennedyShanahan2024
Phoenix, Arizona
Joined July 2023
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While I try to limit political commentary, I think this is important: Kennedy is only candidate who is talking about the chronic illness epidemic. If you're frustrated choosing between the lesser of two evils, I hope you'll consider that there is a third option.
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I was recently asked what it's like making friends now that I've recovered after 9 years of chronic illness.
My honest answer? It's hard to relate to people now. I haven't reconnected with old friends. I haven't made any new friends, despite earnest efforts.
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After 9 years of wishing, praying, and trying everything within reach, 2023 was the year I achieved the impossible: I recovered from severe MECFS.
May 2024 be a year of hope, healing, and miracles for those still suffering. I hope 2024 is your best year yet! 🫂
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A big piece of the puzzle with chronic illness, such as MECFS, is mitochondrial dysfunction. I've been on all kinds of mitochondrial support for years, but my clinician just shared a few things that hadn't been on my radar.
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At dinner last night, I learned that my boyfriend's tinnitus has been gone for two years, thanks to magnesium L-threonate.
Tinnitus is theorized to be cause by a magnesium deficiency, and L-threonate is the only form that can cross the blood-brain barriers.
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For 8 months, I've been in full remission from MECFS, MCAS, and CIRS. What does that look like?
-Walking a mile 3-5 times per day
-Visiting the Saturday farmer's market to buy a week's worth of fresh produce
-Cooking meals from scratch & reheating leftovers
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I've joined communities and clubs, and I engage with familiar faces at the farmer's market.
But I still feel like an alien.
I can't bring myself to care about superficial issues. I can't bear to listen to gossip. I want depth, authenticity, and meaningful conversations.
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I'm often asked what labs patients should ask their doctors for. The answer will be unique based on one's health history and symptoms,. However, my new doctor just ran a pretty comprehensive panel. It may be a good template to tease apart origin of symptoms.
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I haven't made new friends yet, but I don't feel discouraged.
Confucius wrote, “A healthy man wants a thousand things, a sick man only wants one.”
As someone who was very sick for nearly a decade, I still only want that one thing: to remain well.
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As promised, here is a link to my ME/CFS recovery story, which includes a brief summary, along with details of the full course of my illness and recovery. Questions are welcome! Please be kind.
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In 2017, my best friend said I'd become a shell of my old self and ended our friendship. Everyone else followed suite.
Just one friend continued to check in on me, even though she was busy starting a family. She is my most cherished friend, and also my only friend.
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The emptiness of surface-level conversations is, in many ways, worse than the loneliness of isolation. Most interactions are painfully devoid.
I have no desire to reconnect with those who abandoned me, even though I assume they didn't understand I was sick, not uncaring.
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As someone who is in full remission from MECFS, POTS, CIRS & MCAS whose Alzheimer's dx was reversed, what can I offer this community? I'd like to help, but I feel like I've shared most of what I've learned. So, I will probably limit my time here, unless there are outstanding Qs.
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How do you make friends post-illness?
It was a good question, I wish I had a better answer.
The journey of chronic illness doesn't end when we resolve our final symptoms, but setting down the heavy pack certainly eases the burden and makes everything else feel manageable.
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I thought "recovery" would be filled with big plans, big dream, and big accomplishments. And it may be.
But, for now at least, I'm savoring the tiny dreams come true. The fitted sheets, fresh tomatoes, mountaintop views, and the shrill little voice calling me "auntie".
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Two weeks ago, I posted about my boyfriend being denied the opportunity to take medical school final exams due to contracting COVID. We got legal counsel, disability resources involved, and had family and friends call into the school. He's taking his exams today. 🙏
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The COVID pandemic unleashed a flood of research about mitochondrial damage. The collapse of cardiovascular function in COVID suggests something amiss in mitochondria. The heart, like the brain, has about 5,000 mitochondria per cell.
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I've been on 9 grams of taurine per day since 2018. I've experimented with phasing out most supplements since recovering, but taurine is one a handful that I don't ever plan to discontinue. It is such a powerful lever.
Most of us know that "Taurine" is one of the primary amino acids that appears to shift symptoms in
#LongCovid
#MECFS
.
Check out the importance of Taurine in the Born Free protocol and the dosage (hint: its probably quite a bit higher than what you are taking now).
Nice to see
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My doctor fully attributes my sustained remission from MECFS to plasmalogens. Prodrome Glia gave me my life back. My boyfriend and mother-in-law, too.
We sold our car and backpacking gear to afford to give plasmalogens a try, and have no regrets.
Prodrome Glia is my
#1
recommendation for anyone with
#MECFS
and
#LongCovid
with "neuro symptoms" (including brain fog, cognitive issues, migraine, headache, tinnitus etc).
It comes in liquid form! If the capsules are sold out (as they often are) just buy the liquid. Its even
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@ThePOTSPostman
Stop thinking about it so much, and focus your energy on something positive. 🙄
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My life shrunk tremendously while ill and I haven't yet found the courage to expand out again. However, my small & close-to-home life is brimming over with beauty. The little things I went so long without are everything. Every moment I find my body capable is a blessing.
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I'm blessed to be in a period of extended remission or recovery from MECFS. I've been symptom-free for 8 months, and very mild for the 16 months prior. That after 7 years of illness. However, as
@chydorina
recently stated, I'm better, but not "better".
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I'm logging off for awhile. I've shared my story, offered tips & tried to inspire hope. After years with no energy, this app is now stealing precious time from more meaningful pursuits; it's become a distraction from living. Wishing hope & healing for everyone I've met here. 🫂❤️
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@LilNic000
My thoughts exactly. I'm hoping it's miscommunication exacerbated by silence over the weekend, but the hubby is super stressed about this on top of COVID and tends to be very perceptive.
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Glutathione is an important antioxidant to protect the mitochondria. Your brain, particularly the frontal cortex, has 5,000 mitochondria per neuron. The brain uses a ton of energy, which requires a lot of mitochondria. It needs glutathione to protect those mitochondria.
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For the sake of full transparency, this is what "fully recovered" looks like for me. Not pictured: refrigerated and powdered supplements.
Healing, for me, has been an ongoing patching and (attempted) repair of quantified nutritional/mineral deficiencies and systemic weaknesses.
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I'm taking a break from X. I struggled w/ the transition from illness to health, but I've made it though. I'm getting reacquainted w/ myself & my dreams. Working toward a promotion. Learning about preconception health. Enjoying HIIT workouts w/o PEM. Living fully. Feeling joy.
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I don't see any studies on PubMed, so this is purely anecdotal.
He takes Mg L-threonate to support memory and cognition, so the resolution of tinnitus was just a welcomed side effect.
Thought I'd share, in case anyone is interested. L-threonate is expensive, through.
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-Washing the sheets and remaking the bed every weekend
-Bathing regularly and brushing my teeth
-Swinging my 3-year-old niece like an airplane
-Reading books and participating in a book club
-Helping my mom weed her garden, then plant ranunculus, geraniums, and strawberries
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When first diagnosed, my doctor said "I don't have an answer, but we'll work through this together." No promises, but instead a commitment to stay by my side. He shared the dismal recovery stats, but also anecdotes of other patients' improvements. Realism with a sprinkle of hope.
Coming out of a patient consult, I want to emphasize this ‼️ point ‼️ to my colleagues: please don't tell patients that because they got
#MECFS
, they're not going to get better. So many patients tell me it's what their doctor told them and how crushed they were to hear it. My
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-Joyfully scrubbing the toilets
-Writing thank you notes who those who didn't disappear when I was ill
-Journaling, blogging
-Working at a high-level and being awarded employee of the year for my support on a big project
-Continual gratitude and awe over the small things
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1) Succinic Acid: Succinate can improve glial oxidative metabolism and improves metabolic performance of mixed glial cell cultures with mitochondrial dysfunction. Most of the clinical studies involve TBI or stoke, but the same mechanisms of failure might be present in MECFS...
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@BaszkoM
💔 I was that person. Sleeping in my car, thinking it was all in my head... being told by doctor's I'm depressed. I wish I knew of a better way to help. There are so many suffering silently, convinced they've done something wrong.
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Has anyone in the MECFS community recovered from a severe and extended illness, and gone on to successfully conceive and birth a healthy child? Or know of studies? Starting a family was my
#1
motivation to recover. I'm hopeful, but also terrified that my body is too damaged. 😔
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We abandoned our home 2+ years ago due to mold. Our attorney visited today with a construction expert. There's now significant mold growing on the HVAC, sinks, cabinetry... everything. Today, I'm truly grateful we left. We lost everything we owned, but we reclaimed our health.
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At a recent appointment, my doctor said I have a "5-alarm fire in the attic"
I feel healthy. However, my brain volume is in 12th%ile with significant atrophy, despite 32 months on Prodrome Glia & Neuro, lion's mane, cerluten, endoluten, & BPC-157. Structurally? No improvement
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This is such an important acknowledgement.
I've been back to full health for 8 months, but am psychologically stuck. I cry more now than while bedridden. It's been hard to find my bearings again after such profound loss. Everything is my life is going well, but I feel so lost.
Recovery can be tough psychologically. It helps to know this feeling is really normal.
Strangely, this period (when significant baseline increase has occurred) can actually be one of the hardest parts of chronic illness - as recovery becomes more of a reality the mismatch
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While severe, I swore I would go back to help those still suffering. That's the only reason I'm here. It was never my plan to stay long-term. I'm gradually losing touch with the experience of being ill, but still carry the trauma. It's become deeply painful to be here.
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@Alina_MSN_RN
Hoping it was a miscommunication. If this isn't resolved tomorrow and he is, in fact, failed I will share. It's a ridiculous policy.
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I recently wrote a post on my daily supplement stack, including preferred form, brand, dosage, timing, and what diagnosis is specifically being addressed (ME/CFS, CIRS, Alzheimer's). I'm happy to answer any questions here.
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For
#pwME
, have you noticed that, aside from chronic symptoms, you never get sick (e.g., common cold)?
I've been sick twice since my 2015 onset and the last was a brief cold in June 2019.
Think this due to overactive immune system, no social interactions, supplements, or other?
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5) Acetyl-L-carnitine: Similar to CoQ10, I think most of us have been on ALC for a while, and for good reason. It supports brain repair, mitochondrial function, male & female fertility, and more. It's an all-star player.
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Here's the article referenced. I was dx'ed with mitochondrial myopathy in 2018 while largely bed-bound. I was hiking and weightlifting again by 2022 by targeting the mechanisms listed, thought with different supplements. Mito dysfunction IS reversible.
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4) CoQ10: Okay, so we're all already on CoQ10 and have been forever, right? CoQ10 protects the substantia nigra, which is the part of the brain that reduces dopamine. CoQ10 preserves mitochondrial membrane potential and reduces generation of reactive oxygen species.
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I started taking plasmalogens June 2021, while severe. By March 2022, illness was mild. By July 2023, I was in full remission. And I keep feeling better.
My treating MD fully credits plasmalogens for my recovery. I think they're just one piece of the puzzle, but a vital one.
“Plasmalogens are abundant phospholipid ethers that protect phospholipids and lipoprotein particles from oxidative stress and associated damage”
As
@chydorina
has highlighted, plasmalogens may be an important target in ME/CFS supplemental therapy. Really need to be cheaper tho!
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I just got my lab results back. High viral/fungal antibodies, vitamin E deficiency, low RDW, high BUN/creatine ratio, high A/G ratio, low ALP, high TGFb1, sky-high complement C4a, VEGF deficiency, high MMP-9. Almost identical to while severely ill, which is devastating.
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I'm often asked what labs patients should ask their doctors for. The answer will be unique based on one's health history and symptoms,. However, my new doctor just ran a pretty comprehensive panel. It may be a good template to tease apart origin of symptoms.
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You'll need to find a practitioner to analyze the results or do your own research as to whether it's viral persistence, Lyme, mold exposure, mineral deficiencies, mast cell issues, etc. Many labs here were once abnormal for me, and pointed me in the right direction.
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My clinician recommended a therapeutic dose of 2,400 mg per day for me.
This is a broad overview of the application of CoQ10 in neurodegenerative disease.
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I'm a big fan of herbal antimicrobials. Namely, oil of oregano has been a huge player in my healing journey. They're worth investigating.
I recently upgraded from a generic to
@BioticsResearch
A.D.P. emulsified oil of oregano, 12 tablets/day, and can't say enough good things.
One of the most important studies of the past 10 years: herbal antimicrobials are (probably) better at treating bacterial overgrowth than conventional antibiotic treatment
So many people struggle with digestive problems and bacterial overgrowth is causative in the majority
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My current picture is the day I hiked 16 miles of Glacier National Park--the day I considered myself to be recovered from MECFS, a moment of immense joy.
I plan to celebrate each anniversary of my recovery with a new hike and victory pose.
Year 1: Taggart Lake, Grand Teton 🏔️
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My clinician recommended up to 4 g per day for me.
I found this study on treating cerebral ischemia conditions in rats to be interesting, though I'd love to see a science-savvy mind give a layman's overview of potential human application.
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2) α-Ketoglutaric acid: αKG is part of the regulatory mechanisms that maintain cell homeostasis in an ever-changing environment. Skeletal muscle undergoes rapid loss in response to inflammation, and αKG appears to enhance muscle growth by activating mTOR signaling.
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Since I mention that Itraconazole helped me: Within 2 weeks if starting, I had symptoms of renal/hepatic failure. Scoured PubMed and found quercetin decreases activity of the cytochrome P450 3A4 enzymes responsible for breaking down many drugs and toxins. Same mech as grapefruit.
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@chydorina
@remissionbiome
Yep, I've been on 4-6 grams of taurine/day since May 2018 (under guidance of a physician--this is an insanely high dose). It's a miracle compound! I believe it's been gradually boosting my baseline all that time, across multiple systems and symptoms. And it's cheap, to boot.
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As always, I'm not a doctor and my doctor's recommendations for me don't necessarily apply to you. This is for educational purposes only. I trust my team, so my understanding on some topics is limited. If you research further and can explain in layman's terms, please do!
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"Overall, this evidence supports the notion that mitochondrial dysfunction is associated with ASD."
I've hypothesized some relation between autism spectrum disorders & a susceptibility to MECFS, so this is interesting.
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Biomarkers of
#mitochondrial
dysfunction in
#autism
spectrum disorder: A systematic review and meta-analysis
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@Katie72283511
Yes, that's very true. I feel a sense of camaraderie here that's hard to find out in the real world. I think the trauma of illness changes us, and finding others that can understand and empathize is quite valuable, if not imperative.
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I've been getting several unkind DMs about my "white privilege" and comments like "it must be nice to be rich" and I'd appreciate the opportunity to address that because they're hurtful to me, and perhaps others who get similar comments.
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Please just be kind to one another. We've all been through so much already. Everyone within the chronic illness community is trying to support one another. Those of us who have found permanent remission are just trying to offer a leg up to those not quite there. 🫂
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One of the most common questions I've received is, "How do I find a good Integrative Doctor or Functional Medicine Doctor?" I'll give my suggestions, which differ from the mainstream articles.
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Yesterday, I learned that a neighbor suffers from severe chronic illness due to mold. Her husband, an orthopedic surgeon, thinks she's batshit crazy. For years, my FIL (also an MD) accused my bf and I of faking it. Seeing her sob was devastating.
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During my 9 years of chronic illness, I never called myself "sick". I just "wasn't feeling well".
Rather than moping, I researched biochemical baseis of the diagnosis and addressed the root causes.
I removed blocks, repleted deficiencies, and tinkered toward wellness.
I've recently become obsessed with listening to stories of people who received terminal cancer diagnoses and not only survived, but left the system that gave them that diagnosis entirely and healed themselves naturally
Every single one of them recalls the moment they were given
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P.S. I'm not a terrible partner, I promise. 😅 I was diagnosed with Alzheimer's around the time he likely first told me, so the info didn't stick.
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As promised, here are my side-by-side NeuroQuant reports from Jun 2021 and Jan 2024.
The NeruroQuant is a volumetric MRI of the brain with AI analysis of various regions. In essence, it takes 2D segmented images as reconstructs their 3D volumes.
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Friends, life on the other side of chronic illness is so, so good!! 🌻💪🥰
Don't give up hope. Keep learning. Ask questions here. Experiment with new things. Listen to your body. Make tiny strides forward. Believe that it CAN get better. I promise, it can.
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There is significant overlap between the RemissionBiome protocol and the treatments I've piecemealed together across the last 5 years to achieve recovery/permanent remission. It's a project worth following, if you're not already!
Hello
#RemissionBiome
👋
We shared before that we have 2
#Renegade50
participants going through the acute phase.
The long term goal is baseline increases for all the participants. In the acute phase, we look for cycling and remission events to indicate the activity going on.
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3) Oxaloacetic acid: Appears to mediates ADP-dependent inhibition of mitochondrial complex II– driven respiration. My understanding is limited, but this article appears to mirror what my clinician shared.
It was recommended I take 50-100 mg per day
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I'm feeling completely brokenhearted today.
We've been saving to a "baby fund" for the past decade and just drained the bucket to cover lawsuit expenses.
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This. No on believed me until my boyfriend started filming me struggling to walk, spewing gibberish language & having panic attacks about a made-up X-Files character. It was humiliating, and absolutely necessary. My neuro became my
#1
advocate after that.
Make them understand.
@angryhacademic
And be explicit. Instead of "I have trouble with stairs", say "One flight of stairs per day is my limit, I plan my life around only once per day. I cannot carry anything with me, I must use both hands on the rails, my husband walks behind so I don't fall. My HR gets up to 180"
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I attendee a lecture from Dr. Andrew Maxwell this weekend and he talked about the "pentad super-syndrome". Basically, MCAS, dysautonomia, EDHS, gastrointestinal dysmotility, and autoimmune disease are all interconnected and feed into one another.
Chronic mast cell over-activation is treated like it's just some nuisance side feature of
#LongCovid
– some minor or downstream facet of the condition incidentally affecting a few with it... but this is wrong. Chronic mast cell over-activation is pathophysiologically INTEGRAL.
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This. Doctors told me I was de-conditioned and I should exercise. I trusted them over what my own body was telling me, pushed through the pain, and slipped to severe. Trust your body, be kind to yourself, and do everything you can not to get worse.
If there is ONE message I wish I could get across - it is THIS.
Don't push. Do everything you can to NOT decline.
We need to address the dysfunctions BEFORE they progress. Its hard to come back from system failure.
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I fervently believe that shifting my approach from "fixing a dysfunctional body" to "restoration of cellular health and proper mineral ratios" was vital to achieving remission.
It took 4.5 years of that approach to recover, but I could constantly *feel* miniscule improvements.
When you think about 'health' dont think of the body, the organs, or the tissues.
Think about the cells. Healthy cells make for healthy tissue.
Cellular health is not all that is important but without it healing can not take place.
Heal from the cell on up.
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My clinician recommended up to 750 mg - 1 g per day for me.
I found this study on αKG application in inflamed piglets to be interesting, though I'm hoping to learn more on human application.
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It's becoming clear to me that justice is a pay-to-play system. We're only able to participate because I saved aggressively before getting ill & since recovering, & because we have family willing to help. Most people who lose it all have absolutely no recourse. It's so wrong.
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I'm seeing a POTS specialist for the first time tomorrow.
I haven't had tachycardia, syncope, high HR, low BP for 3+ years so I feel foolish. However, my recent brain MRI shows significant atrophy at the peripheral, suggesting poor intercranial blood flow.
What would you ask?
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I was exposed to toxic mold for years without knowing. In retrospect, my labs had offered a hidden clue.
Urine tests consistently showed low specific gravity. Doctors said I was drinking too much water.
In reality, my antidiuretic hormone (ADH) was dysregulated due to mold.
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I recovered, sure, but I don't have a protocol or clear answers as to why. I never had much to offer, really. I mostly came here to say "you're not alone" and "I'm rooting for you" and "please don't give up" because those were the words I needed but never heard. 🫂🩵
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Also, while I say I'm "fully recovered", I do still have limited food, environmental, and chemical sensitivities, as well as impaired long-term memory. However, those are my *only* remaining symptoms and feel healthier than before MECFS.
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I may be blasting mold literature for the immediate future. It destroyed my body, but I had no idea how much evidence there was to back up my experience. Insomnia, fatigue, bronchitis, cognitive impairment, neuro dysfunction, GI distress, emesis, infertility, etc.
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I thought my journey with chronic illness was over.
It's not.
I know that I'll get through this hurdle as I have everything else. I just wish I'd known how hard post-recovery would be.
My body's healed but there's another layer of healing that has yet to take place.
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I was diagnosed with Alzheimer's (subtype 3) at age 32. At age 35, my neurologist reversed the diagnosis.
I read The End of Alzheimer's and followed Bredesen's protocol, and I do believe it made a difference.
This is a great deal on a very informative and actionable book!
In order to help make optimal brain health as accessible as possible, there will be a one-day sale, on March 6, of The End of Alzheimer’s ebook, for $1.99. I hope that this will help many in need. Let’s all make Alzheimer’s a rare disease, as it should be.
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It feels selfish to consider the possibility of PTSD when I've not been a prisoner of war nor beat by someone I loved. It seemed silly that being ill could inflict trauma, but I think it's the most likely explanation for what I've been experiencing. Trauma.
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What helped: 1) strict diet (basically meat/fish, non-starchy vegetables, animal fat, and berries only for the last 5 years), 2) targeted supplementation based on objective lab values and research, 3) LDN, 4) Prodrome Glia, 5) addressing environmental toxins, and 6) itraconazole
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As of this morning and based on a conversion, my treating physician now *fully* attributes my recovery to high-dose ProdromeGlia (100mg per kg). At 130 lbs, I'm on 7 capsules/day. It's expensive at $1.11-$3.30 per CAPSULE, depending bottle size and coupons, but worth considering.
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I'm in remission from MECFS, hoping to conceive this year. I've now have the "go-ahead" from all of my doctors, including a fertility specialist & maternal-fetal specialist for high-risk patients. What else do I need to consider?
1/
Has anyone in the MECFS community recovered from a severe and extended illness, and gone on to successfully conceive and birth a healthy child? Or know of studies? Starting a family was my
#1
motivation to recover. I'm hopeful, but also terrified that my body is too damaged. 😔
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For anyone suffering chronic illness, this is perhaps the most important concept to grasp: "Get the biochemistry and nutrition working well enough so that normal physiological reactions can happen."
How did I recover? I spent 5 years here ☝️ first.
I want to talk about crashes from interventions and how the broken "stress response" or "adaptation-dysfunction" reactions make trying new stuff difficult.
"Adaptation dysfunctions" means its hard to ADAPT to new things (and it is physiological).
Crashing and permanent lowering
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I watched
@DrGoodenowe
's webinar on plasmalogens & autism. Emphasis throughout was on giving the body the resources to perform its inborn functions.
In November 2023, my MD fully attributed my remission to plasmalogens. I wasn't so confident.
Now, I think he may be right.
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Lots of new faces, so reposting.
Chronically ill 2015-2023. Severe 2017-2021. Mild 2022-2023. Symptom free since June 2023.
Dx: CFS, CIRS, POTS, MCAS, hEDS, Alzheimer's, autoimmune issues.
Nothing to sell. Not staying long-term. Just sharing my story, hoping to help.
As promised, here is a link to my ME/CFS recovery story, which includes a brief summary, along with details of the full course of my illness and recovery. Questions are welcome! Please be kind.
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@Ambercatlady
This is so painfully relatable. I think that's why, personally, I can't bring myself to connect with former friends. One of the painful lessons of chronic illness is how selfish most people are, and I feel the same: being alone it better than shallow, empty friendships.
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@Paula_JKnight
My hubby's in med school now and rote memorization is rewarded and critical thinkers are punished and pushed out. Every doctor he's mentioned this to has confirmed it's been that way since at least the 70s when they were in school. ME is complex, and MD don't ask questions.
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In my time on X, I've received comments about my word choices. It's welcomed. My brain is wired differently and the tactics I learned to communicate with others faded during my isolated years of illness. I'm relearning. Please know I'm always open to constructive criticism. 🩵
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That said, I'm rooting for all of you. I wish for everyone hope, healing, and those tiny blips of joy that carry us through the worst days. 💖☀️🌷
If I can offer anything to help, please do ask.
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After years of chronic illness, my body is healed & remains resilient against stressors. Our dream to start a family was put on hold, but I'm now physically & mentally ready.
Requesting any advice, books, or X follows for fertility, pregnancy, post-partum, parenting, etc. Thx!
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Yesterday, I had a follow-up with my integrative neurologist, an expert in "complex" patients. Overall consensus is I'm walking a fine line between illness & health. I'm physically & cognitively at pre-illness capability, but I can't afford to overdraw my budget. 1/
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Prone to canker sores? That's herpes. While rare, it can travel up the trigeminal nerve into the brain causing HSV-1 encephalitis. Lysine, olive leaf, and oil of oregano are potent anti-virals that I've found keep viral outbreaks at bay. Which may ultimately stave off dementia.
New research has found anyone given a diagnosis of Herpes is nearly twice as likely to develop dementia, adding evidence for a viral role in dementia. It’s also a great reason to aggressively treat outbreaks & adopt an ongoing HSV prevention protocol.
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I thought life on the other side of MECFS would be all butterflies and rainbows, and it is. But it feels like I'm observing all of life's beauty while adrift on a small vessel in the center of a calm lake. Stuck. Lost. Waiting. Uncertain. A bit scared.
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