Xaya Who?
@XayaWho
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she/her ✨️ abolition, disability justice, decriminalization, antiracism ✨️ free N95s in New Orleans @FightCovidNOLA
New Orleans / Bulbancha
Joined April 2019
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Pinned Tweet
I started a Discord server* for people in the New Orleans area who still care about COVID!
(*like a private social media group - no trolls!)
I'm hoping to use it for (safer) social connection and advocacy. DM me for the link! 💜💚😷
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Today, my friend rented a pool and had a small birthday party! We all took molecular tests before, and alternated N95s and distancing. I'm really grateful to have been invited to something like that 💙
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If I have to email event organizers to ask for accessibility info, it means I have to ask, "am I welcome?"
Consider how it feels to have to do that, knowing the majority of the time, the answer is "no."
Give access info up front. Don't make disabled people beg for inclusion.
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Alternatives to the "society will fall apart when everyone's disabled, and that's bad!" framework:
(Please add if you have more resources on this topic!)
TL;DR mass disability is incompatible w capitalism, not with human life. We need disabled wisdom to adapt past capitalism.
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@Patricia_Ann_E
I was told that I was breaking the law by carrying my epi-pen and inhaler on me instead of letting the (part-time) public school nurse (who I never met) keep them. These regulations make 0 sense and I'm so sorry and upset that they took a kid's life.
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The idea that disabled people should each have personal caregivers, rather than being part of larger systems of care, somehow feels related to the logic of nuclear families... 🤔
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Randomly thinking about that one reporter that embarrassed Psaki and Biden so bad that they had to give us all free tests to save face...
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Existing as a medically vulnerable person, without totally giving up on your life, is so indescribably hard right now. I don't get what people, especially left organizers, get out of dunking on people barely surviving.
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Anyway shout-out to the disabled people who have found comrades, raised consciousness, raised money, helped find housing, helped find healthcare, and distributed ppe, e-sims, and other vital tools thru this app and other strategies that the abled establishment dismisses as fake.
This really explains so much about how ableist commies have been posting. The total unseriousness and dismissiveness. This isn't "real" to them. They're just having a little fun, blowing off some steam, and they genuinely can't understand why we're so upset
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Adding the caveat that most people can't rest the way they need to and still survive.
And that makes these kinda tweets extra fucked up because it validates the bosses who make people work while sick.
It’s so disgusting how every one of these ghouls makes it a point to say they’re working while positive to set an example.
Do not do this. Rest as much as you can. Being active physically and mentally while ill increases the likelihood of long COVID. 1/2
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@IrisParkerAU
I think I saw a tweet about this where they said that the government reduced food regulations early pandemic and never brought back the original regulations?
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Everyone who cries about there not being enough protest in the US owes money to a bail fund.
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Paxlovid has to be given within a few days of contracting covid. That can't happen if people can't get tested quickly.
So without accessible testing, do we really have access to antivirals?
When someone says “we have the tools,” they have disconnected from reality.
We have an antiviral.
We have outdated vaccines.
That’s it. That’s all we have.
Please wear a respirator whenever in public. Please stay home when you’re sick.
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The CC community has had 4 years now to learn about disability justice and the history of eugenics...
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"You're individualizing the problem by bringing it to my attention.
I'm acknowledging the systemic nature of the problem by doing nothing." 😌
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@tdouble_u
As someone who was like this, no. We sit through genuinely racist shit with white people, knowing we can't really respond, carry that resentment, have a hair-trigger reaction to any slight with other Black people, respond because we can, and create problems where there are none.
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Also I just think it's funny (convenient) how when talking about the history of like, responsibility for disease spread, yt folks just wanna reference HIV criminalization, and not the Native American genocide.
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Still unpacked: the way members of vulnerable groups are labeled "activists" whether they are or not, and how everything they do in response to their own vulnerability is labeled "activism" open to critiques on tactics.
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I joined the customized-respirator club!
This is the
@DentecSafety
comfort air nx, painted and bedazzled with rhinestones and faux pearls. Inspired by
@nickelpin
and others, and aiming for simple but sparkly. White matches more of my outfits than p100-purple.
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I'm sorry I still can't get over that "solidarity for all sick people includes people wilfully spreading disease" at the same time that the IOF is getting polio boosters because they created an outbreak by destroying sanitation infrastructure.
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*Part* of why I wear big P100s & duckbills is to grab attention. People in subtler masks blend in more next to me.
I hate people & public spaces anyway, and I stay ready to fight. Better to target me than a people-pleaser.
I encourage people with more privilege to consider it.
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"I really want to hammer this home: every cop in your neighborhood is damaged by their training, emboldened by their immunity, and they have a gun and the ability to take your life with near-impunity. This does not make you safer, even if you’re white. "
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This is why organizers and leaders of all kinds need to consistently model masking.
Humans are social creatures above all else and I’ve been noticing that there’s a tipping point when it comes to mask mirroring. I want to share a surprisingly positive and hopeful experience that I had a few months ago 😷🧵1/
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A good summary of what's happening in Sudan.
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I'm still really emotional about the fact that I got to dance in the street tonight with a bunch of masked people. 🥹
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"...prioritizing the care and love of our sick, pained, expensive, sensitive, fantastic bodies,
and there is no one left to go to work, perhaps then, finally, capitalism will screech to its much needed, long-overdue, and motherfucking glorious halt."
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I'd find this apology easier to belive if
- your Instagram didn't have more public maskless pics
-
@newdisabledsouth
acknowledged the pandemic beyond a passing mention (or, you know, took action at all)
-
@newdisabledsouth
didn't praise the new anti-mask CDC director
Fully agree here. I pulled my mask down to my chin for this photo and I regret it, not just now but I regretted it the moment I did it. I very much appreciate the rightful critique and accountability from the community on this one, no excuses.
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The Future is Disabled - Leah Lakshmi Piepzna-Samarasinha
@thellpsx
audiobook free through
@QueerLibLib
:
introductory article:
"At the core of my work and life is the belief that disabled wisdom is the key to our survival..."
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It's wild to see people claim covid activists aren't distributing supplies, when like, I know we all see these photos of protests.
🧍♀️
Where do you think those masks are coming from?
🧍♀️
Where?
🧍♀️
Joe Biden?
🧍♀️
PSL?
🧍♀️
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"Disabled writers like
@DrSamiSchalk
have noted that most... will be disabled soon... that is not a bad thing but a space of infinite possibility. We have the power to transform the world from the hellscape it is... to one oriented around care, safety & everyone having enough."
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Btw, while people talk about Act Up's legacy, as much as I admire them...
that legacy includes repeatedly falling short on racial justice and centering the least resourced.
No idols.
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What if we all just blocked these terrible people instead of putting them on each others' timelines?
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Sick Woman Theory - Johanna Hedva
essay text:
audio:
"Because, once we are all ill and confined to the bed, sharing our stories of therapies and comforts, forming support groups, bearing witness to each other’s tales of trauma..."
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@antiracistsouth
Even if well-intended, "strongly recommending" masks doesn't actually lead to people wearing masks at events. Certainly not enough to make the events safe and accessible to high-risk people.
And that disabled people bring important wisdom to movement work.
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I know it's hard to teach yourself things you didn't learn from society, but when y'all are proudly flaunting your lack of cognitive disability, and when DJ resources are way more accessible than the scientific studies y'all do read, it's hard to be patient.
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It's understandable if you don't think of every access need up-front. But just starting the process of creating accessibility, and clearly communicating that, goes a long way.
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Are the couple extra book sales and the false sense of superiority really worth it?
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"...What would a world radically shaped by disabled knowledge, culture, love, and connection be like? Have we ever imagined this, not just as a cautionary tale or a scary story, but as a dream?"
-Leah Lakshmi Piepzna-Samarasinha
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"It’s radical to imagine that the future is disabled. Not just tentatively allowed to exist, not just ok I guess there’s one white guy with a wheelchair, cool, diversity. But a deeply disabled future: a future where disabled, Deaf, Mad, neurodivergent body-minds are both..."
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This is a subtweet at everyone using IQ uncritically, but this isn't the only thing it applies to.
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Alt text: "All my grief says the same thing--this isn't how it's supposed to be. And the world laughs, holds my hope by the throat, says: but this is how it is."
Black serif text on white background.
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If only ableds used "disability is not a monolith" to actually respect varied access needs, not scold people by saying "well this other person with a condition doesn't have this access need, so stop calling it ableism when your access needs aren't met."
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"...Crip genius is what will keep us all alive and bring us home to the just and survivable future we all need. If we have a chance in hell of getting there."
-Leah Lakshmi Piepzna-Samarasinha
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I should really know their name. That shit would be on my resume for life.
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What if I said we also can't politely "educate" or "meet people where they are" our way out of eugenics?
Resisting enslaved people of all genders did not sit with their oppressors to educate them about abolishing the oppressive terrorist regimes that kept them captive. They organized their rage into revolutionary violence.
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@angelzpanik
@AnaMardoll
@POTUS
Millions of disabled people are forced to personally and indefinitely shut down with no financial relief, or are forced to risk their lives because of the lack of relief.
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"...accepted without question as part of a vast spectrum of human and animal ways of existing, but where our cultures, knowledge and communities shape the world.
What would a future look like where the vast majority of people were disabled, neurodivergent, Deaf, Mad? ..."
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Harm reduction =/= "I get to harm others just a little bit, as a treat"
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@wrath_776
And blaming parents as if all of them spontaneously stopped talking to their kids on a whim?
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@laymagdalene
More theorists need to admit that they aren't gifted writers, and hire people to make their shit make more sense, imo.
Also, they need to stop the jargon arms race.
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I got this kinda comment in response to doing mask distro! Who do you think is taking these thousands of masks? 🤡
Plenty of people still care. We're just invisiblized.
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@jewstein3000
I think about this a lot too. I wonder if they'd say something like "we drifted apart" when really they ghosted me.
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@amandalhu
I just put together how familiar this is. "You need to at least acknowledge that things are better. Saying that things are bad, even though some things are slightly better, makes *you* the problem."
It's the same shit people said about racism in the 90's and 00's.
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Do people in the US under a certain age still take tuberculosis seriously?
I get the sense people take for granted that it's "not a big deal anymore."
We need to stop comparing COVID to the flu and start comparing it to tuberculosis. Clinically, epidemiologically, COVID has more in common with tuberculosis. Like COVID, tuberculosis is an airborne insidious infection that can affect any organ of the body. A Great Imitator.
12/
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I love this reframe of Jesus dying for our sins.
God didn't invent crucifixion to guilt us from minor sins with secondary trauma.
Jesus isn't J Walter Weatherman.
The crucifixion is the ultimate human sin, institutional violence. The lesson saves our souls from being complicit.
The forces that crucified Jesus are the same that crucify poor people everywhere! New ep here:
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@jewstein3000
@TsaiMeLemoni
Yeah I get the vibe that their goal is to protect our ableist society against the threat of mass disablement, rather than create a society that doesn't disable and dispose of undesirables! But they think we're in the same movement and hold us back.
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Not policing:
- negative opinions
- criticism
- disagreement
- asks for changed behavior
- talking shit
Policing:
- a system of violence and coercion to control a population and protect the ruling class
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This is blowing up beyond my usual circle, so hi! We're fundraising to buy more masks to distribute for free in New Orleans!
venmo:
@fightcovidnola
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Oh fuck yeah! Union workers at Meow Wolf Santa Fe
@MWWCNM
refused to work in support of zionist propaganda and got his show canceled.
I can't find a strike fund or other ways to support, but it's worth keeping an eye out for retaliation so we can have their back.
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@yesallcrops
This is for a Black disabled culture bearer from my community, who needs funds to pay for LC treatment!
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@audisdead
So much of the hate boils down to "thousands of oppressed people are being killed, and you're worried about something that's killing thousands of oppressed people!?"
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Btw, the last JVP NOLA meeting was masks-required and absolutely packed. Other local organizers have no excuses not to require masks.
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This discourse would hit differently if we didn't all see in 2020 that the left is capable of organizing mass grocery/meal delivery.
But they resent us too much to integrate us into sustainable mutual aid. We're expected to settle for temporary charity, and then stop existing.
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"Attack against eugenics is necessary going forward, as all genocides have only ceased when the people it victimizes fight back.
The anti-masker is not acting purely as an individual. Rather, they are practicing violence as part of the collective force of eugenics..."
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Recently I've been thinking about how much of my journey with disabled organizing is about unlearning and pushing back against mainstream left organizing culture.
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Remember when they un-banned facial recognition in New Orleans, and people acted outraged, and then they admitted that masks thwart the technology, and... people stayed maskless?
Between Covid, bad air quality, and surveillance, I don't understand not carrying a mask in your pocket
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@GhostOfSocrates
This reminds me of the time this chick talked shit about me wearing a mask in my car. It was in the French Quarter - narrow roads, tons of pedestrians - and I had my windows down. The fact that I could hear her talking about me under her breath kinda proves the point.
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The story of every mask bloc
think about how many things in activism started because one person saw something missing and decided to take the initiative to make it happen, and then others saw that and decided to help (hint: it's more frequent than you think!). initiative is a powerful thing.
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If you struggle with allergies, esp eye allergies, and have a lot of hair, I highly recommend trying out hair coverings when you go outside!
And it's a perfect time to try it bc there's a culturally-specific covering that people are being asked to wear in solidarity: kufiyas!
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I just learned that I'm far from the only one who was upset by or conflicted about the "How to Talk to Your Loved Ones About Covid" guide, so wanted to throw it out there to others that they're not alone.
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Fuck subtweeting. (Though this applies to a ton of people.) This is more about pastachips than joseph.
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@amandalhu
"Racism is over. Now the real racism is Black people talking about race."
"The pandemic is over. Now the real pandemic is disabled people talking about covid."
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bonus Mask Bloc Toronto cameo in the wild? 👀
"Can't afford food? Blame billionaires, not immigrants"
Poster spotted in Toronto
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It's ahistorical bastardization, and people should be embarrassed.
I feel uncomfortable with a "harm reduction" politics that centers the least harmed.
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This is also why comparing covid activism to drug harm reduction tends to get the power dynamic backwards.
Drug harm reduction helps protect people most endangered by stigma & criminalization.
Risky covid behaviors are neither stigmatized nor criminalized. Guess what is? 👇
@actupny
Context kills this comparison.
The people currently being criminalized are the disabled people & organizers calling for masking and protections, not the people shrugging off their role in unmitigated transmission in service of capitalist exploitation & recreational activities.
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"I am not surprised that a university named for a supporter of the confederacy and holed up in the richest, whitest neighborhood of a Black-majority city finds itself confused about who the 'outside agitator' really is."
#OPINION
On Wednesday morning, May 1, at 2 a.m., Tulane and Loyola student protesters woke up in their sleeping bags to a police raid.
✍: Serena Sojic-Borne
Click the link below to learn more!
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In case it wasn't clear, Bernie's tweet is the fucked up one I'm talking about.
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@ErinMRodgers
@such_hockey_wow
@AITA_reddit
The fact that it was his first trip since the accident 😭
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@genderlessflesh
Someone who worked in a nursing home said they only trust Walgreens and Sunbeam brands.
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@tdouble_u
ime, when we do talk about this stuff with white people, they're basically like "yeah, we don't really accept you and neither do Black people." And we believe it because then we can feel special, entitled to white spaces, and get an easier "enemy" with less privilege than us.
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Actually, "people pleaser" is probably too reductive/narrow here. There are a *lot* of reasons that others would be more vulnerable to harassment than me.
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@michael_hoerger
Imagine my doctors providing me this kind of education, instead of the other way around :')
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A lot of people ask what makes one "count" as disabled. Is it an insult to "real" disabled people to call myself that? Am I disabled enough? 🧵
I think the only way to not be disabled enough, or invalidate other's identity by claiming "disabled" is to...
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