E 🇵🇸
@genderlessflesh
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chronically ill with ME & LC. proud dog & cat dad. white, queer/non-binary/trans. they/them/theirs
Joined May 2020
I always want to know if I’m following someone harmful or abusive.
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I hadn’t heard from my dad in months so I called his local social services to see if they could send anyone to check on him. They said only option was cops showing up. So instead I DoorDashed him cookies & asked the driver to deliver directly to him. He was there thank god.
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DoorDash driver was so freaking sweet about everything. She told my dad to call me. He did not. After I repeatedly called him, he finally emails me some weird, vague transphobic thing. So that’s why we don’t talk anymore. But at least I was able to confirm he was ALIVE.
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Me (masked) “Oh, I’m not sick, I just can’t get sick”.Her (in hospital scrubs/no mask), “Do you have an EXCITING vacation planned?” Me, “No. I have a debilitating chronic illness & can’t get more sick.” Her, “Oh, so when you get sick you get REALLY sick?” Me, “Yes…?” Cont…1/2.
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Dental tech: *sees my mask* “Are you sick?”.Me: No. I can’t GET sick.”.DT: “Are you sure there’s nothing we need to know…?”.Me: “I’m chronically ill, not acutely ill.”.DT: “So you wear the mask all the time, even at home?”.Me: “Yes, but only at home if people come over. I’ve….
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I did not expect this tweet to blow up! Thank you everyone for the kind words. If you can, please support a Black, trans, disabled, STEM educator. This is an urgent need. DDORENZO/paypal.DninoDorenzo/venmo.CasaDiDorenzo/cashapp.
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Her, “Ohhh…(takes a step away from me).” Me, “Walking pneumonia is going around! I’ve read accounts of multiple people getting denied xrays of their lungs when they seek care & then it turns out they DID have walking pneumonia.” Her, “Uhhh…uh-huh. Well, see you later…” 2/2.
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Protect yourself against government surveillance, walking pneumonia, bird flu, influenza, and Covid with this one weird trick!.
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17 year old on reddit reports they’ve had covid 9 times, 2 of which were completely asymptomatic & they only found out bc they had to test for an event. They’ve decided to start masking again. Children have been completely failed by “public health”. This is horrific.
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An influencer’s husband had covid, did a CrossFit competition immediately afterwards, had a heart attack, died repeatedly during CPR, survived, & received a heart implant. Their dr told them they don’t need to mask bc covid is inevitable & doesn’t want them to live in fear 1/4.
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This all happened at a dental surgeon’s office where loose fitting surgical masks seem standard. I asked the tech and surgeon to wear N95s and they did but I am apparently an anomaly.
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…been sick once in 5 years.”.DT: “Oh, wow, then you must be doing something right”. Me: “I’ve taken antibiotics multiple times for this tooth infection because I avoid dental care because of the risk of getting sick.” cont….
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DT: “What do you mean?”.Me: “Sick with colds, flu, RSV, Covid.”.DT: “Ohhhh……”.Me: “Yeah…I can’t work, go to school, or leave my home or bed much because of my post-viral chronic illnesses. This appointment is the only thing I can do this week.”.DT: “Damn.”.Me: Yeah.
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So apparently the dentist I recommended to a bunch of people because he & staff are willing to wear N95s during appointments, is now telling prospective patients that there’s a $40 fee for N95 masks to be worn. Just another fun day in the plague hellscape.
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Went to get my blood drawn today & no one is masked. Hand sanitizer everywhere. I politely ask the phlebotomist to wear a mask. She leaves to go find one & comes back to say they don’t have any. I offer her an individually wrapped Well Before KN95.
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Today the tech who did my heart echo told me covid was “created” to harm people & is being disseminated before the election to hurt people. She’s “very sad” it’s hurting people on purpose. But she’s not worried about Covid. She got it from her Bible study. ALSO….
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I’m making my account private overnight bc of the possibility of waking up to a clusterfuck of trolls. I’m amazed at how overwhelmingly positive folks’ reactions to my tweets have been. I am just a small acct talking about my estranged dad! Thank you for all for the love!.
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queers citing the CDC guidance as an excuse to spread a deadly & disabling virus (C19) is so deeply hypocritical & shows no sense of queer history or investment in being queer as a political identity & imperative. so many that came before us are rolling in their graves.
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unless you really know you’re on the same page with someone about covid precautions you can’t trust them. people are out there thinking they have food poisoning or stomach bug bc they only have GI symptoms.
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My sweet friend has been working very hard to make this shop a reality! $3 rapid tests, Auras 10 for $5, 3-Aura sample packs for $3, ReadiMask samplers 6 for $8. More to come!!
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my mom: “no thank you, that invitation is too much covid risk”.my mom’s friends: “you’re being paranoid”.my mom, “i’d rather be paranoid than sick”.Go mom!!!.
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My immune response to Novavax has been quite noticeable. My last two Novavax shots had barely noticeable side effects. This time it’s still not as bad as mRNA for me, but I’m still achey & just overall not feeling good. Wanted to share bc not every instance will be low-symptom.
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Post script: both the doctor and the couple in question were very clear that this happened BECAUSE of the covid infection. They state this multiple times.
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I made a post on Red Note (Chinese social media app people are moving to bc Tik Tok ban) last night asking to chat with other maskers in China. Overnight, tons of people found me. They called themselves “pandemic prevention nailhouses”. Find me on Red Note @sick_smells #rednote.
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My friend is asking me for articles etc on why it’s important not to exercise for several weeks after Covid. Can anyone help me with links? I’m too wiped out to do more than a cursory search & I’m not finding what I need.
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I got my Novavax at Costco. Paid ~$177 for it out of pocket because my insurance doesn’t cover it & as far as I can tell no other pharmacies nearby have Novavax. I am privileged to be able spend that much on a vaccine. This privatization of Covid vaccines is unconscionable.
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Husband says, “I’ll be more aware of my surroundings now.” I feel for them as this has been a traumatizing experience, but continuing to not mask & risk exposing themselves & others to a deadly & disabling virus is ableist & selfish. It’s absolutely wild out there. Stay safe. 4/4.
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Dr also said that he can return to normal exertion (martial arts & CrossFit 5-6x week) in a few weeks. Dr ALSO said another person came in after almost dying from a post-covid heart attack & needed a heart transplant during the same time period that the original guy was 2/4.
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at the hospital getting his implant. Dr says post Covid heart issues are becoming common. Many people messaged this woman to tell her & husband to mask etc. & she got upset & defensive. Apparently she has EDS, CFS. Both her & husband are uncritically listening to negligent dr 3/5.
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(USA) Paxlovid now costs about $1470 out of pocket. I urge you to contact your insurance companies (if you have insurance) to find out if they cover it/how many times a year. Do this NOW before you are sick with covid & overwhelmed. My medicaid insurance covers it completely.
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I am once again asking that you not sacrifice safety for aesthetics when choosing a mask. If you can’t get a seal on an ear loop mask, it’s not worth it for the color/design. Take it from someone w post-viral ME/CFS. Find a mask that seals to your face & just decide it’s cute.
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Then I got home & cried there, too. I’m still crying on & off. These HCWs do not give a fuck if I live or die, they don't care about my quality of life. They would rather avoid wearing a mask for 5 minutes than protect my well being. It makes me feel like shit. They don't know me.
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now is a good time to bring back rapid testing (if you stopped) prior to meeting up, if you have access to to tests. even if you’re meeting up in respirators. caught an asymptomatic infection yesterday of someone i was about to spend 2+ hours in close proximity with, indoors.
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if I will need to return to this location for labs. I need them to not hate me. & what's wild is they wash their hands, put on nitrile gloves, use sterile needles, & use alcohol swabs- BUT THEY DON'T MASK. They don't even HAVE.masks. And there is hand sanitizer EVERYWHERE.
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Masks, like condoms, are an issue of consent. We are inevitably forced to interact with other ppl for various reasons, necessary or chosen. Either way, if someone is not wearing a mask (KN95, N95, etc), they are making a choice FOR the ppl around them re: C19 exposure 1/17.
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Today on Reddit, I saw a post by someone who has Covid for the second time in their pregnancy.
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plz don’t trust family etc to be transparent about being sick/having “allergies”. my bff got C19 from her family who had “allergies”/lost their smell the next day/tested pos for covid. there’s so many ppl on reddit questioning their + rapid tests bc they want to do Thanksgiving.
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Supervisor comes in & tells me "your mask protects you! if so & so doesn't want to wear a mask it's her right." I say "I'm just trying to receive health care that doesn't endanger me.".Supervisor reiterates that "your mask protects you!" I say "to a point".
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the receptionist at the cardiology office i’m going to later this month said the dr is willing to wear a N95, but they “can’t make anyone who works there wear a mask”. so my request for nurse & dr to be in N95s is a no-go. i said, can the nurse wear a surgical mask? “no”. 🙃🙃🙃.
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HCWs: *washes hands*, *puts on nitrile gloves*, *preps area with alcohol wipes*, *procures freshly sanitized or brand new/individually wrapped implement*. Me: “Can you please wear this mask?” HCW, “How DARE you ask such a thing. I REFUSE. It’s my RIGHT not to wear a FACE DIAPER”.
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…she gave my gf & I religious pamphlets & told us we need to worry about our spiritual wellbeing, not just physical health. And that we need to think about if we’re going to heaven or hell. About where we’ll end up. That lady is lucky that I’m on beta blockers that keep me calm.
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I don’t have the ability to articulate the degree of psychic fatigue I am experiencing in this unmitigated plague hellworld. What is left to say? I’m estranged from entire worlds of people I used to know. Anti-science is rampant. Eugenics normalized. My heart is suffering.
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my 89 y/o stepdad had minor surgery today in NYC and the HCWs made him REMOVE HIS 3M Aura N95 and PUT ON A SURGICAL MASK. my mom said the HCWs were super smiley and happy. not masked ofc. they’re GLEEFULLY endangering my elderly parents. i am so freaking angry.
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or what's at stake for me. I have ME/CFS & dysautonomia. l'm trying not to have to spend the rest of my life in a dark room unable to interact with the people & animals I love. Unable to listen to music or watch tv. Unable to eat w/out deteriorating uncontrollably. Fuck them.
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honestly i’m embarrassed for the event organizers who aren’t prioritizing covid safety & requiring masks. there are marches & art expos & play parties that have mask requirements WITH compliance. 1/3.
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it’s funny to me that there are “covid cautious” ppl who think all covid cautious ppl are regularly breaching our own covid boundaries and jeopardizing ourselves and others safety. we’re rlly not. i N95 mask with everyone except my gf. avoid indoors except medical appts.
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I back down bc wtf else am I supposed to do. I used energy I don't have to go to this appointment, already put myself in danger entering the building/office. I need blood work prior to my cardiology appt next week so that that 2 hour round trip to that office is not wasted.
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imagine needing to be *reminded* to wear a mask. i have stress dreams where i’m in public unmasked about once a week. the level of complacency, ableism, and denial some people must have going on to where they need *reminders* is mind boggling.
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Now because she didn't listen to me, this is extending the amount of time I am being exposed to an unmasked HCW in a room with mediocre ventilation (I have my Co2 monitor). I finally manage to push back tears & interact with her politely as she takes my blood. Bc who knows.
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It’s so weird that there are people who make entire social media accounts just to harass and bully covid conscious/safer people. Like…why?? Go live your “normal” life that you are so desperate to return to.
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this barbie can’t see the movie in theaters because masks aren’t required 💖.
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the “no ableism, no racism, etc” queer Pride dance party that i asked to require masks (bc…no ableism, right?) ignored my pleas & the organizer is now promoting the event (that’s tonight) w no mention of masks even tho they said they’d be “encouraged”. “no jerks!” ok asshole.
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I walked out of the office & wanted to cry but water would compromise the electrostatic charge of my N95 & I still needed to go down the elevator & exit the building. I finally get into my carer's car & immediately start sobbing. I cried most of the way home.
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i’m so tired of being treated as a covid info resource when people need me, and an over reacting weirdo pariah when they don’t.
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So I emotionally shut down while the.phlebotomist prepares my arm for the blood draw. Meanwhile I already told her to use my hand bc my veins are so small. She insists on trying my arms first. So she tries both first and OFC neither works so she's like oh ok let's use your hand.
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why, when i already told a friend we can meet up inside wearing masks and running air purifiers, does she text me morning of go ask if we can eat lunch together???? so i asked her to eat before arrival but seriously what is going on with people?.
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r/COVID19positive is a very active shit show right now. a lot of very sad, sick people who are upset about missing Christmas, having diarrhea, loss of taste & smell. Plenty of people going to the ER. A few horrible family members who knowingly got their loved ones sick. Mask up!.
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my mom is visiting me for a week. she arrives tomorrow. she avoided travel and covid exposure prior. she will wear a N95 Aura mask door to door except for (holding her breath) during ID check. she will do Enovid and CPC mouthwash upon arrival. 1/6.
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matching a face mask to your outfit is cute but please don’t sacrifice safety for fashion. there should be NO air escaping/coming in. if you can’t get a good seal to your face with ear loop masks: switch to N95s. yes they only come in black & white but your safety is worth it!.
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i’m sorry but N95 mask technology is just objectively SO cool. i marvel at my masks constantly & and feel grateful.for the tech. blows my mind that people reject something so scientifically complex yet simple to use that can save lives.
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sooooo is everyone else constantly hearing about people in their inner and extended circles getting covid right now or is just me? i’m averaging learning about two new cases a day.
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Free Paxlovid for people with Medicare, Medicaid, or who are uninsured:
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sometimes i feel like if i push back on a “masks optional” event & say they should require masks, the organizers are even less less likely to mask at the event bc they found me annoying?! 1/2.
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Plz keep in mind that in the *future* when asking a potential friend/date if they masked “during the pandemic”, many will intentionally/unintentionally retcon the past & say “yes” even tho they only masked w cloth masks in 2020-2021ish, only sometimes, etc.
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I spoke with someone in infection control dept at UMC hospital. They."educated" me that C19 needs <6 ft. & 15 mins to infect, that it’s “milder”, that “surgical masks are sufficient for general population, and that airborne=sneezing coughing….
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@bibicosplays Absolutely. The dysautonomia specialist I went to see said TTT are not needed for diagnosis and are cruel & can hurt people. He said the only reason to get one is for diagnosis where that’s the only way, or if insurance wants it in order to provide coverage. I hated mine.
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why do these people go into health care? and it feels like they take some gross satisfaction in telling me my request is impossible. the receptionist was so smug. wait til i show up with my P100, eye protection, HEPA, and Co2 monitor.
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estranged friend, “my kid has a little cold”.me, *expresses condolences, offers info about covid surge/more accurate testing/advises person to notify their clients who they work maskless in close proximity with*.them, “we don’t have covid. thanks”. 🤷🏻♂️ negligence on many levels.
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i cannot relate to people who are like “i’m gonna go to an outdoor bar when *wastewater/cases/test positivity* are low & that’s my calculated choice”. that thinking has no relationship to my reality. i can’t take that risk.
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i’m sorry y’all but outdoor dining isn’t rlly safe. maybe if ur very distanced & there’s good airflow ? but you’d have to be very far away from the other diners. i would not risk my life or anyone else’s to eat this way. i would get take out & eat at home or have a picnic. 🤷🏻♂️.
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1. wear the best masks.you have.2. open windows/doors/meet outside.3. run HEPA filters if you can.4. rapid test prior to meeting if you can .5. use prophylactic nasal sprays if you can.6. do regular PCR or molecular testing if you can.Number ONE mitigation is high quality masks.
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a dear friend of 17 years who i used to talk to every week stopped contacting me because i tried to talk to them about not having a large bday party w national & international guests…it’s a long story. i expressed my pain & they sympathized but they’ve been absent since then.
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today someone i’ve been friends with for many years told me that I’M excluding THEM by asking them to mask in public so we can still be friends. you can’t make this shit up. see attached email screenshot.
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Using nasal spray *instead* of respirator masks when someone CAN mask & has access to masks screams “I don’t care if I give other people COVID” to me. Like…you’re willing to go maskless for the vibes & rely on nasal spray that will likely not protect you or other people?.
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i feel like one difference btwn a lot of ppl who mask outdoors & those who don’t is that the latter fundamentally think that if they get covid x times they’ll be okay. whereas the former know we’ll (and others) will be FUCKED by C19 so unmasking outdoors isn’t an option.
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The so-called “mask required” march. Disgusting. Just say you don’t give a shit if the most systemically marginalized people become/further disabled by Covid, become bedbound, houseless. Dead. They don’t care if we die. This shit makes me livid. Fuck you all.
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I cannot stop thinking about how much pain, suffering, & premature death could have been avoided if people had worn respirators during the height of the HIV/AIDS epidemic. People were like “Oh whoops this HIV+ person has a cold I guess! We couldn’t have prevented it!”.
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It's so weird that doctors and nurses care for covid+ patients maskless, and then give more people covid, some one whom end up at the hospital. getting taken care of by maskless HCWs. who then. spread more covid. and. sigh.
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I’ve eaten two meals in the the last two days sitting up at my kitchen table. For context, I’ve eaten 99.9% of my meals reclining for the last two+ years bc of post-covid orthostatic intolerance. This 2nd meal today, I decided to stay seated for a while & see what happens.
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if you get covid unmasked outdoors, you still got covid. i wear my mask outdoors because outside is not magic and i’m not risking my health for the rest of my life.
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my friend just got covid from family members. they hung out outside & hugged & went inside to use the bathroom (w bathroom window open). family all had “allergy” symptoms & didn’t disclose prior to meeting. please mask outdoors & don’t trust ppl to tell u they have symptoms.
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Seriously, FUCK all my fellow white “queers” who can mask & don’t. FUCK YOU ALL I FUCKING HATE YOU YOU EUGENIC, RACIST ASSHOLES. People are dying & becoming disabled, suffering abuse, because you have zero principles or backbone. Stop fucking whining & wear a mask. FUCK YOU.
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I really wish I could say, “Is it your right not to wash your hands & wear nitrile gloves?” whenever a health care worker tells me it’s their “right” not to mask. Sadly I am not usually in a position to be antagonistic.
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Just FYI one of the Death Panel hosts, Abby Cartus, published a covid minimizing article online and then deleted it ✌🏻.
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I have 2 debilitating post viral conditions, my girlfriend has zero. Neither of us wants me to get worse or for her to become chronically ill. We do everything in our power to protect each other. That’s basic respect & love. That’s living a full life.
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i said no we can go ahead w appt tomorrow before surge gets worse. we ended the call on an okay note but he was def annoyed. i’m just trying to survive and not get sicker or die. i wish ppl wouldn’t act like that was a burden.
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dentist i’ve seen 2x now who has always been super chill about wearing N95s/me bringing my HEPA- today i called to ask if he & the tech would be willing to take covid tests tomorrow morning before my appt bc of the covid surge/me being high risk.
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I’m hearing that people with Medicaid are not able to get Novavax covered at Costco pharmacies. If anyone has any relevant experiences or info please lmk. It’s almost $200 at Costco if you’re not a member, $140ish with membership. This is absurd.
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i hate missing out on time with my family because there aren't basic airborne pandemic precautions in place in this fascist anti-science ONGOING plague hellscape. it cuts like a knife to think about all the time i've lost with my mom. fuck the covid deniers and anti maskers. 6/6.
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Not only do I not use ableist language but I’ve stopped using “smart” as a descriptor. There are lots of ways to say something is a good idea without referencing someone’s intelligence. I don’t want to use intelligence based descriptors, positive or negative.
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people are annoying. yes i know rapid test negatives are not reliable but the tests can be used as a LAYER of mitigation. i would hope folks are testing AND masking. people can barely afford rapid tests let alone molecular/PCR. if u catch a positive test on a rapid that is a WIN.
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We all deserve loved ones who take covid seriously and take precautions because they understand the gravity of not doing so- for *their* loved ones, themselves, and strangers alike.
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i could do BETTER INFECTION CONTROL for EVERY SINGLE.HOSPITAL in New Orleans than the people who are getting PAID to do it. i'm a 34 y/o disabled person with a BA in sociology. and i would do a better job. i would reinstate a mask mandate:.
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It’s so weird to me that there are people in the world I used to be friends of many years with but after I complained about being abandoned by society via pandemic eugenics (didn’t even say a word about THEIR behavior), they never spoke to me again. BESTIE LEVEL “friends”.
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@MrkStdngr the cardiologist i saw recently said i was likely too young for heart problems (33). she was maskless as were all the nurses and staff. had to ask her and nurse to mask up and of course it was just surgical masks. said she’d never heard of ME/CFS. unreal.
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Someone quote tweeted me and said comparing masks to condoms stigmatizes people with STIs and makes people with covid feel bad and I just….WHAT!?.
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