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Susan Dougill
@SusanD1408
Followers
677
Following
30K
Statuses
17K
I am a married mother of one teenage son. I have a wonderful husband who cares for me. I have ME/CFS Fibromyalgia, POTS, peripheral neuropathy & other things
Greater Manchester, England
Joined November 2022
@AmandaB55744931 I am so sorry. This seems to be happening more and more. Seems like keeping the figures looking good is more important.
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@darrengrimes_ No. Just typing this they can use against me because I am chronically ill and disabled. I need predictive text because I can no longer spell. Am doing it laid down in bed because I am struggling to sit up at the moment.
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@Ed_Miliband If that was true solar panels would be cheap so everyone could put them on their houses. Carparks would be covered in solar panels so the countryside wasn't destroyed. The sick and disabled would be cared for instead of killed off. I just want a day without pain, without worrying
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@ThePOTSPostman Haven't found out it's a real issue yet but know it is. My thyroid is completely diseased and enlarged, I now suffer from achalasia, I have the butterfly rash on my face. Tons of other stuff. Being fobbed off with your bloods are fine.
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@JoannaWo4 No it's just the newbies don't know where to turn. Are being diagnosed with things like FND instead so the government can put it as a mental health issue instead
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@IAmJessPlant It's awful. My stress levels are through the roof. I was in hospital last week so haven't even managed getting dressed since. My brain is like mush. The stress also makes things worse.
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@hopefullizzy Very very true. Everyone reacts to a small crisis but not the daily struggle. The daily struggle they pretend isn't happening. Even some of those that are close stop asking or caring after a while. Most of the population don't see us or believe the governments lies.
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@unojen_wood This isn't fair. I was the main wage earner. Now I get minimum of everything & have to pay for everything because my husband works. We won't be able to afford me. We will have to divorce
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@DiaryofaSickGrl Only been diagnosed with hypermobility, never tested for eds - rheumatology. Pots - cardiologist. MCAS I haven't even bothered with trying.
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@JonjayNeedham1 I'm still listening and proud of the amazing journey you have been on. Keep going you are worth it.
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@Shrink_at_Large I lost mine for 10 months. Didn't answer a single question at tribunal because they said the same evidence was overwhelming
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@RupertLowe10 I am a rape victim. I have no problem with other people's choices but I need to a safe space to be able to go the toilet and change. Luckily too ill to go out anymore but still need it in hospital
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