35, bedbound with hEDS/vEDS etc, ill for 24 years. I know I’m blessed to still be alive! 🙏🏻 Bedbound is still earthbound 🛌
#FayesBaes
Mostly in hospital! 🙄
I’ve been in hospital for 8 weeks and it looks like I won’t get home for my Birthday on the 30th. But I want to celebrate surviving a nightmare year against the odds so if u wanna help me do that I’d be much obliged ❤️
#Birthday
#Wishlist
#AmazonWishList
Hey guys, it’s me Faye. I’ve been bought down for an emergency CT scan so thought I’d take advantage of having a bloody phone signal. I’m not well enough to type much but I just wanted to say a huge thank u for all of the tweets, msgs and gifts etc. It means the world to me! ❤️
Despite being bedbound, fed by a line in my liver, having a catheter, being unable 2 stand or walk, having multiple joint dislocations & being in constant pain. The
@DWP
@dwppressoffice
now say I have 2 have an independent medical assessment 2 prove it 2 switch 2
#PIP
. Please RT!
Message from Faye’s Mum: Sadly Faye was rushed into hospital with Sepsis again on Thursday night after being unwell all week. Her infection markers are sky high so they’re pumping her through with antibiotics and running lots of tests and scans trying to find the source.
It’s me Faye again. If I stay stable for 24 hours then they’ll look at discharging me so I don’t pick up anything else and I can rest and recover from the arterial bleed, infections and Covid. I’ve spent over 9 weeks in hospital since Sep and I’m desperate to be home for Xmas. 🙏🏻
Message from Faye’s Mum: Sadly Faye was rushed into A&E with Sepsis again last night with the help of the fire brigade carrying her out of our house. She was then whisked off to Resus and they called the ITU outreach nurse who stayed with her for several hours, stabilising her.
Just seen this photo of a gay couple from around 1900. Yep u read that right, 1900 and 2 incredibly brave men made the decision to risk literally EVERYTHING to record how much they loved each other.
Just felt they had to be remembered and shared! ❤️🏳️🌈
#NotMarriedButWillingToBe
Update on Faye: She’s still very poorly but is more alert. She has bilateral pneumonia again and had a dramatic and agonising cardiac event on Saturday night. They were worried that a vessel in her heart had perforated but scans showed it was due to the extent of the infection.
Message from Faye’s Mum: Sadly Faye was rushed into hospital with Sepsis again on Thursday night after being unwell all week. Her infection markers are sky high so they’re pumping her through with antibiotics and running lots of tests and scans trying to find the source.
@ruth_madeley
Ohh that’s easy!!! ❤️ When the
#Rio2016
Paralympics were on I went to a hospital appointment and a little boy about 3-4 saw me in my wheelchair and excitedly tugged at his Dads hand...
“Dad, Dad it’s a Paralympion!!!” 😍🙌🏻♿️
That’s the difference representation on TV makes xxx
New message from Faye’s Mum:
Faye came out of hospital a week ago after 13 days up in Cambridge but sadly Faye only lasted 3 days at home before being rushed back into Resus with Multiple Blood Clots, Pneumonia and Sepsis.
She could do with all the love etc she can right now.
I've spent nearly 10 weeks in hospital since September fighting sepsis, pneumonia, blood clots, internal bleeding, pleurisy, arterial bleeding in my lung, Covid and several infections. But I’ve survived it all and am going home tonight for Christmas!!! 🥰🙏🏻❤️
#BlessedAndGrateful
It’s me Faye again. If I stay stable for 24 hours then they’ll look at discharging me so I don’t pick up anything else and I can rest and recover from the arterial bleed, infections and Covid. I’ve spent over 9 weeks in hospital since Sep and I’m desperate to be home for Xmas. 🙏🏻
After the absolute shitshow that was Matt murderer Hancock on last years
@imacelebrity
, I don’t think I can cope with Nigel f*ckwit Farage on the show this year. 😐
Sorry
@antanddec
but I’m out, it was nice while it lasted… 🤷🏻♀️❤️
@ITV
#BoycottImACeleb
#FuckOffFarage
Update on Faye:
It’s been touch and go and all of her close family members were brought in to say goodbye as they didn’t think she’d survive the night. But after pumping her full of antibiotics, drugs and blood transfusions etc, she’s still very poorly but proving us all wrong.
New message from Faye’s Mum:
Faye came out of hospital a week ago after 13 days up in Cambridge but sadly Faye only lasted 3 days at home before being rushed back into Resus with Multiple Blood Clots, Pneumonia and Sepsis.
She could do with all the love etc she can right now.
Sorry to disappoint those who didn’t believe I was immortal but I’ve done it again! Nearly died of Sepsis, Blood clots, Pneumonia, Pleurisy and 2 litres of fluid in my abdo. ITU wouldn’t take me and said I had no chance so wanted to put me under a DNR. 4 weeks later I’m back! ☺️
Message From Faye’s Mum:
Addenbrookes finally have a bed so Faye will be transferred up today and it should take about 3 hours. They’re letting me go in the Ambulance with her and are sorting out accommodation for me in the relatives hostel, so she won’t be on her own up there.
Update from Faye’s Mum:
Faye’s fits, spasms and confusion have subsided now and she’s just exhausted of it all. They’re doing imaging to try and find a place where a new central line can be placed as her access is so poor but for now, we’re sitting tight and hoping for the best.
Message From Faye’s Mum:
Addenbrookes finally have a bed so Faye will be transferred up today and it should take about 3 hours. They’re letting me go in the Ambulance with her and are sorting out accommodation for me in the relatives hostel, so she won’t be on her own up there.
Thanks for all your RT’s/quotes/likes re the
@DWP
@dwppressoffice
#PIP
❤️
The
#DWP
are deliberately putting severely ill and disabled people through hell and it’s going on in every town around the UK.
I’m spreading the word for all those out there fighting the same battle!! 💪🏻
Message from Faye’s Mum:
Sadly Faye took a turn for the worse yesterday and is now suffering from fever, chills, major problems with her surgical catheter and is in agony from the bleed in her lung. We know how worried everyone already is about her, so wanted to update you all.
I’m home and safe in bed people. 🥰❤️
I’m just exhausted from the nightmare of the last 6 weeks being in hospital and nearly dying etc. But I honestly don’t care cos I’m still alive when everyone thought my life was over and wasn’t worth saving and that’s a bloody miracle. 🙏🏻🍀
Update From Faye’s Mum:
They’ve removed her infected central line and she’s waiting to go to Addenbrookes. Her spasms, confusion and hallucinations are caused by the infection and are awful. If u know and love Faye please send photos, videos and messages etc to help ground her.
Spending my 35th Birthday in hospital has been harder than I expected TBH. 🥹
But 1 of my fave Nurses Mary who I’ve known for 15 years ordered a Birthday cake for me (slight damage in transit but it’s the thought that counts!) 🥳🎂🍰
Thank u so much Addenbrookes
@CUH_NHS
🥰🙏🏻❤️
Update from Faye’s Mum:
Bad news as Faye has tested positive for Covid again. She’s caught it twice now in the same hospital and last time it was nearly fatal. She hasn't been well enough to have her booster yet either so underneath the strength she's showing, she’s terrified.
Faye says thank you for all of your love and support. She’s exhausted but holding her own and I’m sure you know by now that she always comes back fighting! They've moved her to an isolation room and are doing more tests and X-rays etc and the lung pain is now more under control.
I’m home safe in bed… 🥰
I’ve spent 10 weeks in hospital since September fighting sepsis, pneumonia, blood clots, internal bleeding, pleurisy, arterial bleeding in my lung, Covid, MRSA and other infections.
But I won and I’m beyond grateful for that! 🥹🙏🏻
#BlessedAndGrateful
10 weeks ago I was rushed into Resus with my 3rd Sepsis of the past year. I was then transferred up to Addenbrookes for an operation and then came back to Eastbourne DGH.
After a false start last week, I’m finally going home! 😍🙌🏻❤️🙏🏻
#BlessedAndGrateful
#TheresNoPlaceLikeHome
Just a quick update as I feel pretty awful TBH. My Mum left a msg at my GP surgery 1st thing yesterday morning and literally within an hour the on call Dr came out. He’s given me strong antibiotics and said to call 999 if I get any worse. Thank u for the love and concern ♥️
Hey guys it’s Faye ❤️ got my 2nd Sepsis and Pneumonia within 6 months and I’m really weak and exhausted, not helped by no TPN for 9 days so can’t reply to all your tweets/msgs so I just wanna say a huge thank u for all the love, support and kindness, it means the world to me. 🥹
Update from Faye’s Mum: Faye’s central line is badly infected for the 3rd time in 9 months and now it has to be removed. Which means going to Addenbrookes again to try and get a new one in. Faye dislocated her shoulder again too and is in a lot of pain so she’s quite sad today.
Faye says thank you for all of your love and support. She’s exhausted but holding her own and I’m sure you know by now that she always comes back fighting! They've moved her to an isolation room and are doing more tests and X-rays etc and the lung pain is now more under control.
Message from Faye’s Mum:
Sadly Faye took a turn for the worse yesterday and is now suffering from fever, chills, major problems with her surgical catheter and is in agony from the bleed in her lung. We know how worried everyone already is about her, so wanted to update you all.
How about instead of quoting tabloid articles about
@carolineflack1
and spreading gossip, instead we take a good long look at ourselves and how we choose to communicate online. It’s not just the CPS and the media who have blood on their hands! ❤️🙏🏻
#RIPCaroline
#BeKindForCaroline
Well I’ve cried more in the last 2 days than I have in the 6 weeks I’ve been in hospital this time and am just kinda at my limit now TBH after spending 6 of the last 10 months in hospitals. Thank u so much for taking the time to reply/msg, it truly means the world to me. 🙏🏻❤️🌍
How about some bloody good news for once?!? 🙄 The magic unlicensed powder they trialed on me worked beautifully and stopped the extensive bleeding from my femoral central line site. So I’ve done my lil human Guinea Pig act again and hopefully it’ll help other people now. 🥰🙏🏻❤️
Over the last 18 months, close friends and even some family have just abandoned me. But then u get special people like my BFF Stacey, her fiancé David and lil Faye (named after me!) who willingly make a near 700 mile round trip just to see u! 🥹🙏🏻❤️
#Surprise
#BlessedAndGrateful
Sometimes I seriously question why I fight so hard every day just to survive when it means nothing to some people. I feel terrible right now and I’ve never felt so alone and afraid and if anyone can’t see that I need them now more than ever then they clearly don’t know me at all.
So this is 35, an age that I never dared dream that I would live to frankly. Now u may think I’m being overdramatic but considering I’ve nearly died multiple times in the past year alone, let alone in the 23 years beforehand, I’m really bloody not.
#35thBirthday
#ItsMyBirthday
People keep saying how brave and strong I am and I always play it down but after a nightmare year with my Dad’s psychological abuse, spending 6 months in hospitals and losing my cat Lily, you’re right, I am. I’m proud of myself for not giving up and surviving against the odds. 💪🏻
I’ve just been told by someone that they don’t think my life is worth living due to the amount of pain and suffering I go through and that my quality of life is so bad that if they were me they would rather be dead. 😯
I seriously don’t know how the fuck to respond to that!!! 😳
I honestly can’t even begin to thank everyone enough for all of the continued love, kindness and support. 🥹🙏🏻❤️ I’ve spent 5 of the last 9 months in hospital fighting for my life and I seriously couldn’t do it without the gorgeous people by my side.
#BlessedAndGrateful
#ThankYou
Sadly my fears have come true and my GP’s not happy with me coughing up blood clots so we’ve gotta call an Ambulance to take me to A&E. Dunno whether to laugh or cry TBH… 🥺
Thank u so much for all the love, concern and support right now 🙏🏻 Basically I’ve been getting iller and iller since I came out of hospital 3 weeks ago and feel awful. But I’ve typed an update a little bit at a time over the past few days, for the lovely people asking how I am ❤️
After a few false starts I’m finally back home thanks to 3 lovely Ambulance crews, after 10 weeks in hospital with Sepsis yet again. 🥹
I’m totally exhausted now physically and mentally so please bear with me while I re acclimatise and try to rest and recover! ❤️🙏🏻
#HoneyImHome
Good news for once guys! 🥰
I’m on day 4 of my TPN re-feeding plan and I’ve had a few side effects but nothing major. So after nearly 5 weeks in hospital it’s full steam ahead and I’m going home tomorrow. Another near fatal sepsis battle fought and won! 💪🏻🙏🏻
#BlessedAndGrateful
So it's been 4 long weeks since I was rushed to hospital with sepsis/pneumonia/septic blood clots in my lungs/surgical catheter and central line infections. I’ve been without my TPN feed for a month now but thankfully the microbiologists say they can restart it slowly tonight…
Hey guys it’s Faye! I can’t thank u enough for all of your lovely replies/msgs/gifts during another Sepsis battle. ❤️ Addenbrookes say it could be 2-3 weeks until they have a bed so they’re gonna take my central line out today and carry on with the IV antibiotics in the meantime.
Bad news guys. 🥺 The blood cultures from my central line have come back positive. I dunno what’s gonna happen now but I think they’ll have to remove it and I’ll have to go up to Addenbrookes to get a new one in cos I’ve been off TPN for 24 days already. I think I'm gonna cry.
I’ve been wanting to do an update on the sepsis but I didn’t know what to say TBH. It seems that my body just can’t take any infection anymore and it means my prognosis isn’t great now. But I was given 3 months to live 15 years ago so you’re not getting rid of me that easily! ❤️
My SATS have gone down to 94 and my GP said if it goes below 94 we have to call 999 so I’m a bit on edge. My temperature is still high and I’ve been really breathless and wheezy but thankfully using my inhaler is helping. I just feel horrendous now TBH. Thanks for all the love ❤️
Ok let’s do the “I’m still alive” post take 2 ☺️
After my tweet below I deteriorated and started having seizures etc and was mostly unconsciousness for days. They thought I’d had a stroke but I hadn’t and it was due to the extent of the infection but it was very scary.
Faye ❤️
Hey guys it’s Faye! I can’t thank u enough for all of your lovely replies/msgs/gifts during another Sepsis battle. ❤️ Addenbrookes say it could be 2-3 weeks until they have a bed so they’re gonna take my central line out today and carry on with the IV antibiotics in the meantime.
I’ve been wanting to do an update on the sepsis but I didn’t know what to say TBH. It seems that my body just can’t take any infection anymore and it means my prognosis isn’t great now. But I was given 3 months to live 15 years ago so you’re not getting rid of me that easily! ❤️
Update from Faye’s Mum:
Faye tested positive for Covid again in hospital on Friday and is now in an isolation room. She can’t get a phone signal or strong enough Wi-Fi to reply to your messages etc so with her help and coaching I’m trying to keep everyone updated on her behalf.
I’m finally home after they couldn’t get the 3 Ambulance crews needed until 7.30pm. I’m absolutely exhausted physically and mentally but I’m back in my own bed and I couldn’t be more grateful. Plus I got to the sky for the 1st time in 5 weeks and it’s never looked so blue! 🥰🙏🏻❤️
After 33 days in this room, looked after by lovely Nurses/HCAs, an Ambulance and the 3 crews needed to get me home are booked for 4pm. I know I’m blessed to survive sepsis so many times and I don’t take it for granted for a second. Thank u so much for helping me through it! ❤️🙏🏻
Well hopefully by tonight I’ll have a lovely new, not infected central line in and they’ll be able to restart my TPN slowly after not being able to have it for over 5 weeks. I dunno what time I’m going down to theatre but I’ll see u guys on the flip side. Wish me luck!!! 🙏🏻🤞🏻
Update from Faye’s Mum: Faye’s now stable but exhausted after her 2nd Sepsis in 2 months and 3rd in 8 months. The MRSA in her lungs is the Sepsis source but the blood cultures from her central line have come back positive so they’re redoing them to confirm whether it’s infected.
I’m bailing out of social media until tomorrow as NYE is always a really hard time for me and I’m in a lot of pain.
But I dearly wish u all a very Happy New Year and hope u have a great night, whatever you’re up to! 🙏🏻
See ya on the other side ❤️
#NewYearsEve
#NYE
#NewYear2024
I went down at 10ish and just got back in my room. I’m bruised, battered and bloodied but it’s another battle won! 💪🏻 I’m now sporting a femoral line a few inches to the side of my surgical catheter so I’m gonna start a fashion trend. I’ve got a central line again people! ☺️🙏🏻❤️
I feel like I’ve been desperately battling a huge wave of depression and PTSD over the last week or 2 but I haven’t been able to say much and now it’s getting closer to engulfing me. I don’t really know why I’m posting this TBH but I guess it helps me feel less alone and afraid.
Do u want the bad news or the good news 1st? 😬
Bad news, I’ve got MRSA yet again just to top the Covid. That makes it 4 times in this hospital and Covid twice. I should get a certificate or something! ☺️
Good news is I’m still going home and the Ambulance is booked for 6pm. 🥰
I spoke too soon guys! 🥺
Got big problems with my surgical catheter again so I need the Urologists to come back and see me. They haven't got all of my TTO drugs etc yet either so they've had to cancel the Ambulance and I’m staying in here for another night.
I’m so gutted… 😐
I feel really sad today and pretty awful in general TBH, physically and mentally. The past year’s been a nightmare with my Dad’s psychological abuse, my cat Lily dying, my Mum falling badly and me spending 4 months in hospitals so I could just really do with a lil break now. 🙏🏻
Thank u for the concern and msgs asking if I’m ok etc. ❤️ Full disclosure, no I’m not ok and I think I’m about as far away from ok as I’ve ever been. Physically and mentally it’s just all too much and I don’t wanna bother people but I really need u and your support right now. 🙏🏻
When you’ve had a nightmare 10 days fighting your 2nd Sepsis within 6 months and are feeling a bit sad as to what it means for your prognosis and 1 of your fave people in the world
@sueperkins
plays a song for u on
@BBCRadio2
…
🤒🥺😯😮😳🤯😃😍🥰🥹
#ThankYou
#BlessedAndGrateful
Watching everyone going to Christmas parties/events and seeing family/friends is bittersweet. I can’t do any of that and never will, so it’s a hard time for me. It reminds me of everything I've lost and I’m thrilled for u and that u can do it but it also makes me kinda sad. ❤️
After waiting 10 days to get transferred back to Eastbourne hospital, I now have a bed so the Ambulance is coming at 9.30am. It’s 9 weeks since I was admitted with Sepsis and it’s the next step to getting home. Should get there about 12.30pm ish so ill catch ya on the other side!
So my final diagnosis is, bladder stones caused an infection which turned into urinary sepsis. It then spread to my blood which infected my central line and to my lungs, causing bilateral pneumonia and septic blood clots. I’ve gotta be on IV antibiotics for 2 more weeks at least.
Sorry for the lack of updates the past few days, TBH I’m really scared right now and I’m just trying to not let my mind go there. I’ve been in Addenbrookes for 9 days now and hopefully on Tuesday they’ll get a new central line in. But as always with me, it’s never that simple…
My mate just asked what I want for my Birthday but I hadn’t even thought about it beyond getting out of hospital and going home. It’s weird TBH cos 15 years ago I was given 3 months to live and told I wouldn’t make my 20th Birthday and now here I am 2 weeks away from my 35th! 🥰
Check out the new friend I just got to keep me company in hospital! 🥹🐰🐇
I dunno which of my lovely Faye’s Baes sent me this Easter bunny but it’s made my day and brought tears to my eyes. I’m so lucky to have such amazing people in my life. ❤️🙏🏻
#BlessedAndGrateful
#ThankYou
Just stopping by cos I know people are worrying. I’ve still got an infection and am having fevers/sweats but they didn’t wanna give me anymore antibiotics cos I’m allergic/resistant to loads. But I’m defo deteriorating and just trying to last the bank holiday without calling 999.
Update on Faye:
Thank you for all of the love and support coming her way, we know how much it means to her. Considering 2 weeks ago ITU refused to take her as they said there was nothing they could do for her and wanted to put a DNR order on her, I think she’s doing pretty well.
Update on Faye:
It’s been touch and go and all of her close family members were brought in to say goodbye as they didn’t think she’d survive the night. But after pumping her full of antibiotics, drugs and blood transfusions etc, she’s still very poorly but proving us all wrong.
Wishing u all a very Merry Christmas and Happy Holidays!!! 🎅🏻🎁🎄
Thank u so much for being part of my life, whether you’re a close friend, online mate or just an occasional commenter, thank u for making my tiny world so much bigger, better and brighter. ❤️
#MerryChristmas2023
Message from Faye’s Mum: The Sepsis is now under control thanks to 2 strong IV antibiotics but Faye still feels horrible and is exhausted. It doesn’t help that she hasn’t been able to have her TPN feed for 6 days now and her blood sugars keep dropping dangerously low. 1 of 2.
Well only to a hospital but I’ve not left my house to go anywhere other than hospitals for 8 years now. I've got a CT scan to see if the Pneumonia, Pleurisy and arterial bleeding are better and whether I need more treatment. Wish me luck guys, I can't take any more bad news! 🍀🤞🏻
So full disclosure, I’m really afraid right now about what happens to me care-wise as I’ve deteriorated a lot this year. They brought up the possibility of me going into a nursing home and my Mum just burst into tears and said “No way, no way!” so I know she’s as afraid as I am.
To the twat who told me I should consider covering up the scars on my neck and chest:
I have loads of scars from central lines and a tracheostomy etc on my neck and chest. But they’re my battle scars and show how many fights I’ve fought and won so I would never hide them. 💪🏻
10 weeks ago I was rushed into Resus with my 3rd Sepsis of the past year. I was then transferred up to Addenbrookes for an operation and then came back to Eastbourne DGH.
After a false start last week, I’m finally going home! 😍🙌🏻❤️🙏🏻
#BlessedAndGrateful
#TheresNoPlaceLikeHome
All of the staff on this ward are so lovely. They call me love, darling, sweetheart and 1 nurse calls me lovey which is my fave! My HCA on tonight is really nice and he just said that it was a pleasure to look after me which was really sweet. It makes a big difference in here. ❤️
Awful night but one of my fave HCA’s is on and just said “Hiya love, have u got everything u need? Do u know what u amaze me, you’re so young and so ill but you’re lovely. When I hear most of the f*ckers on here moaning nonstop I think, u have no idea. I do admire u, u know.” 🥹
Message from Faye’s Mum:
Faye has thankfully tested negative for Covid today so she’s no longer infectious but she’s still got all the nasty symptoms and the severe pain in her lung. She’s been back in hospital for 3 weeks now and has been getting iller and weaker by the day.
@sueperkins
It’s like she’s been wanting to do that for 69 years and finally thought “fuck it, why not? I’m the Queen!” 😄🗡 And she looked so bloody chuffed with herself when she’d done it ❤️ xxx
Ok people, the depression/PTSD/Anxiety is kicking my ass right now but I’m determined to bring
#FayesFringeFaves
back for
#EdFringe2023
. ❤️
So if you’re performing comedy (stand up/musical/theatre/kids shows etc) at the
@edfringe
#EdFringe
let me know so I can feature u 🎤🎭🎫
9 weeks after being rushed to hospital with Sepsis yet again, I’m going home today so fingers crossed I can stay out for more than 3 weeks this time! 🙏🏻🤞🏻
Huge thanks to all the lovely people who’ve helped me through it, I couldn’t of done it without ya 🥹❤️
#BlessedAndGrateful
Thank u for all the love coming my way ❤️
10 days in hospital, 3 days at home, rushed into Resus critically ill then 4 weeks in hospital has really hit me hard now I’m home. I’m struggling TBH and feel so sad but I feel guilty saying that cos I’m alive and I very nearly wasn’t.
I got a belated Birthday present! 😃 My surgical catheter was stuck to my bladder wall hence all the pain/bypassing for 4 weeks. Now it’s been unstuck and works perfectly which is a bit annoying cos Addenbrookes could’ve easily done it but at least I can go home tomorrow now! 🥰
I hope you’re all doing ok. I’m coughing up lumps of blood again and my chest is a lot worse but I can’t type much ATM cos I’m in agony with the Raynaud's. I’m going for my chest CT today (if they send the 2 crews needed unlike the other week) So fingers crossed for me guys! 🤞🏻🙏🏻
Sorry for not replying to tweets/msgs, I’m really not very well. My chest’s bad and the CT scan still shows active infection/bleeding, I’ve got major probs with my bladder/surgical catheter and my central line site is still infected and I just feel awful so please bear with me.
Bad news but at least I know why I feel so bad. My sputum samples came back positive for MRSA still after I got it in Dec, despite the Drs telling me it would of gone weeks ago. My GP is talking to the microbiology/general med teams tomorrow to see if I have to go into hospital.
I honestly can’t thank everyone enough for all the love, support and kindness 🥰❤️ I know I’m living on borrowed time and won’t win the war in the end but I’m gonna fight every battle along the way and I couldn’t do that without the army of amazing people by my side. 🙏🏻
#ThankYou
As promised here’s the 411. Not great news and I didn’t know what to say cos it’s all unknown and I’m aware that I’ve already scared the shit out of everyone multiple times over the last few months. But I ain’t gonna last weeks with this hanging over me and not sharing the truth.
Back home update, thank u so much for being part of my crazy journey! 🥰🙏🏻
I hope the world is treating u all well but if it ain’t then send me names/photos and I’ll take care of em. 😄
Look after yourselves and be good and I’ll be back properly soon… ❤️
#BlessedAndGrateful
So my latest sputum results have come back positive for MRSA and Candida. A surgery Paramedic came out to see me and he said that I looked completely wiped out and that I need antibiotics for both bugs otherwise he’s worried I’ll get Sepsis again. I feel really bloody rough now.
After 33 days in this room, looked after by lovely Nurses/HCAs, an Ambulance and the 3 crews needed to get me home are booked for 4pm. I know I’m blessed to survive sepsis so many times and I don’t take it for granted for a second. Thank u so much for helping me through it! ❤️🙏🏻
Thank u so much for all the love and support after yesterday ❤️ It just about finished me off TBH but I’m ready to go again so hopefully I won’t get nasty jobsworths today. I’ve spent 6 and 1/2 months out of the last 12 in hospitals and I just desperately need to get home now.
Thank u for all the love, kindness and support 🙏🏻❤️ Everyone keeps saying how strong and brave I am but it doesn’t mean that I don’t feel afraid and alone so I really appreciate every like/reply/msg. 🥹 You’ll never know how strong u can be until being strong is your only option.
Thank u so much for all of the love since I came out of hospital on Tuesday night. I’ve been really poorly since, with high temperatures and coughing up nasty phlegm again so I’m praying it’s not the sepsis/pneumonia/pulmonary embolisms/delete as appropriate, kicking off again.
So my central line site is badly infected and really sore, just to add insult to injury. The cold is killing me and making my pain much worse and my chest is deteriorating. Combined with the PTSD/Depression it’s just too much right now TBH so thanks for the love and support. ❤️🥹
So it's been 4 long weeks since I was rushed to hospital with sepsis/pneumonia/septic blood clots in my lungs/surgical catheter and central line infections. I’ve been without my TPN feed for a month now but thankfully the microbiologists say they can restart it slowly tonight…
Thrilled to say that I’m back in my own bed at home after 3 nightmare months in hospital with blood clots in my lungs and heart, Sepsis, Covid, MRSA and Endocarditis!!! 🛌❤️💪🏻
Can’t thank u guys enough for all of the love, support and generosity that’s come my way!!! 🙏🏻💖 xxx
So I’ve been in hospital with sepsis/pneumonia/blood clots in my lungs for 2 weeks now. But I haven't had my TPN (basically IV food) for 15 days as my central line‘s infected and they can’t get a temporary line in. I feel pretty rough and weak now but it's onwards and upwards! 💪🏻
Message from Faye:
Wow that blew up, 27k views and 1.1k likes! Thank u so much for all the love from around the world ❤️ The CT scan shows infection in my bowel and lungs which explains the pain I’m in and why I’m so ill. They don’t know if the Covid has caused it or not though.
Hey guys, it’s me Faye. I’ve been bought down for an emergency CT scan so thought I’d take advantage of having a bloody phone signal. I’m not well enough to type much but I just wanted to say a huge thank u for all of the tweets, msgs and gifts etc. It means the world to me! ❤️
So I took a turn for the worse 2 days ago and started violently vomiting and my temperature and pulse went really high. My chest is really bad again too and I’m coughing up nasty stuff. Thankfully managed to stay at home so far and am praying that I won’t end up in hospital. 🙏🏻