Faye Talbott ♿️💙🇺🇦
@Faybe1989
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35, bedbound with hEDS/vEDS etc, been ill for 24 years. I know how blessed I am to still be alive! ❤️🙏🏻 Bedbound is still earthbound 🛌 #FayesBaes
Eastbourne, UK :-)
Joined May 2010
To the lovely people asking how they can help, I have mobility/medical/stress relief/personal care items on my #AmazonWishList which would be a big help. Thank u so much for all of your love and support! 🥹❤️ #NEISVoid #MillionsMissing #EDS #vEDS #hEDS
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So guys, what’s occurring? ❤️ I’m back home and just completely and utterly exhausted TBH. Honestly, the 12 days spent in hospital on that urology ward were an absolute bloody nightmare 24/7 and I don’t really have the mental or physical capacity to say anything more right now.
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Update from Faye’s Mum: Faye’s being discharged despite not receiving adequate treatment or being well enough to. But I’m terrified of what’ll happen to her after they didn’t tell me she’d had a seizure and the crash team was called for 2 days so I just want her out of there now.
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Update from Faye’s Mum: Faye took a turn for the worse over the weekend with her haemorrhaging blood post-operatively, being violently sick and suffering an as-yet-unknown seizure yesterday. They took her for a brain MRI and chest CT today which will hopefully give some answers.
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Well I’m still in hospital after my fairy godmother Pauline’s intervention. She contacted this special patient care concern team who came to see me 20 mins before they were discharging me and said that they couldn’t send me home in this state and they have to do a load of tests.
Hey guys, it’s me Faye ❤️ We had to argue with more Drs again today cos they’re ignoring my chest infection, coughing up blood/phlegm and breathing probs cos “it’s not their speciality” and are sending me home tomorrow. It’s just been a nightmare on this ward since Monday TBH.
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Hey guys, it’s me Faye ❤️ We had to argue with more Drs again today cos they’re ignoring my chest infection, coughing up blood/phlegm and breathing probs cos “it’s not their speciality” and are sending me home tomorrow. It’s just been a nightmare on this ward since Monday TBH.
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RT @AuschwitzMuseum: Eighty years ago today, over 7,000 prisoners of the German Nazi camp #Auschwitz, including some 700 children, were lib…
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Update from Faye’s Mum: Big rows earlier as a Dr wanted to send her home in agony without a catheter, but we were having none of it and then she was rushed off to theatre before I could get there. After the general anaesthetic and painful operation Faye’s shattered but it’s done.
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Right guys, my account is public again so I can carry on as usual interacting with friends and followers as social media is literally my whole social life. Unlike some selfish, ignorant people who live in their own worlds. So if u don’t like what I post, don’t bloody read em! 🙄
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UPDATE: At A&E 10 stretcher patients were queuing just to get in but I was given priority and enjoyed the complimentary gas and air as I waited. 4 more peeps tried but couldn’t get a new catheter in so I’m now on a ward, waiting to see what happens in the morning. Wish me luck!
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I’m in agony now after my surgical catheter decided to do it’s magic trick and extricate itself last night and the tract closed up so I have no choice but to call 999 and get an Ambulance to take me to A&E. I’ll try and update ya as and when I know more.
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My surgical catheter tract has closed up so the Nurse couldn’t get a new tube in and couldn’t do a urethral one with my EDS. We decided to try and last with the retention pain etc till 8am and contact Urology to hopefully bypass A&E but if the pain is too much I have to call 999.
Oh for FFS! My surgical catheter has come out with the balloon deflated, which explains why I’ve been in agony and had big problems. I can’t get it back in though so an out of hours Nurse is coming out but it’s not looking good and a trip to the hospital is on the cards. Bugger.
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Oh for FFS! My surgical catheter has come out with the balloon deflated, which explains why I’ve been in agony and had big problems. I can’t get it back in though so an out of hours Nurse is coming out but it’s not looking good and a trip to the hospital is on the cards. Bugger.
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Overnight a really hard and agonising lump came up on my leg from my anticoagulant injections but I dunno if it’s a blood clot/haematoma/abscess etc. I’ve got big probs with my bladder/surgical catheter now too, causing horrendous pain and spasms so it’s a good job I’m rock hard!
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RT @DogDeskAction: Our fundraising auction has very few bids on which is worrying 😟 Please will you have a look, January is always a diffi…
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RT @JanetEv28129124: @Faybe1989 So sorry to hear you are poorly once again Hopefully you will get the help you really need Sending love xx…
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