Amanda
@Lost_Nickel
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Is not wanting to use the oven during high outside temperatures a poor person thing? I have had a couple people think I’m weird for not wanting to use the oven (or the stovetop for long periods) during these heatwaves. I get told ‘that’s what AC is for’.
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Can someone please explain to me why a doctor would order a bunch of tests, which come back with a high number of abnormal results, and then tell you they really aren’t abnormal because they see levels like that all the time? If that is normal then why isn’t it on the tests?!?
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So I have had a brain MRI with spots and areas of demyelation. I’ve had a lumbar puncture with high IgG protein levels amongst other abnormal findings. I see a new document in MyChart from my neuro to PCP saying not to rule out ‘anxiety and depression’ as cause for my illness
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This is getting way too popular and I am way too shy for popularity
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Reposting because I can’t comment. I didn’t know I had MS until a Covid infection triggered a flare which has left me with vertigo, dizziness, motor difficulties, weakened eyesight, IBS, neuropathy, jobless, and destitute. I had an unknown pre-existing condition.
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@sebajones
This is how I look at it, too. There is no need to make it harder for the AC to work. When I think about baking when it’s 99° outside, I just think about the power grid failing due to the demand and the wear and tear on equipment, let alone the electric bill.
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Since when does depression cause nerve damage viewable on an mri scan. I just can’t today. I can’t. I’m just going to sit here crying in my frigid house until god punishes me with a new problem.
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And these are results were I’m on the edge of normal. These are results that are flagged by the lab as abnormal. I don’t understand. Quite a number of them have to do with kidney disease. They insist I am not drinking enough water but I drink more than 128 ounces a day plus tea
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I swear when I die early of some kidney malfunction I’m going to be cremated and have my ashes blown in the face of each doctor that said I was normal.
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@LadyChuan
This is me. Diagnosed with MS in January. My health went from ok to disabled over a 2 week Covid infection. I’ve lost everything. I’m suicidal. I’m still treated like a hysterical woman even with a severe diagnosis. People still don’t want to believe.
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@DrCarolineMWF
So what if you’re autistic, because when that happens to me I feel less listened to and more interrogated which causes me to fluster. Not everyone processes things the same way. Are doctors using this to discount my pain and suffering? I would rethink this. It seems damaging.
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@JhDesignbyJill
I think about this too. When I heard what a spice kitchen was I was totally on board. You might even call it a life goal.
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And by high I don’t mean at the upper end of normal. I mean actually high, well above normal range.
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@Craig_A_Spencer
@chrislhayes
When the cdc said vaccinated people did not have to wear masks a few months back, the next day I went from seeing almost everyone masked to maybe 2-3% in a county that had, at that time, less than 48% vaccinated. How’d that work out?
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The messed up part of it is that while I am scared about what my results may mean, I was almost relieved because now I have proof that something is not right. I thought it would be better because now I would be believed. I didn’t think I’d have biomarkers but not taken seriously
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@AlanS71420449
I didn’t have AC growing up either. But back then where I used to live, a heat wave was maybe 85°. It’s been over 95 for like a month now.
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@Craig_A_Spencer
@chrislhayes
Businesses hear 5 days, and that’s even optional. I’m fairly healthy but i live with a high risk person. I am terrified I will bring it home because my work will make people work sick. This will end poorly.
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But then it’s like, is it normal for people with MS so you don’t give a crap about treating me? Then tell me. I have no idea what is normal for MS.
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I have officially reached the point where I can’t keep up with what needs done and can’t afford to pay someone to help. I have no idea why to do. How do people take care of themselves with this when there is no help?
#LongCovid
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Today diagnosed with relapsing remitting MS and a referral to a MS specialist to verify. Covid is not a harmless cold.
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I am starting to think that I’m not receiving adequate medical care because I’m an unmarried woman in my 40s with no children, therefore i have no value in our society. I have no one relying on my unpaid labor, so there isn’t an urgent need to help me.
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@AlanS71420449
Ooh I never thought about plugging it outside. It’s safe to when it’s so hot? I love my crockpot. My energy window is between 8:30-10:30am so that’s when I try to prepare food for the day, the crockpot it amazing for that.
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I’m so tired. I’m so tired. All I can do is lay here and cry because my body won’t do what I need it to do and there’s no help. There’s no help. People think if something bad happens to you there are resources and there is nothing. I don’t know what to do to make things better
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@Usedfeet
This. Especially with autoimmune issues because women’s body’s are so different in this area
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@giddeygirl
I did have a bad experience during the visit but he ordered so many tests I started thinking maybe he was going to be good. Now I wondered if he ordered all the tests to try to show me it’s nothing. Only problem is they are all showing up abnormal and that it’s NOT nothing
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@amandatoryfigs
This is infuriating. You deserved better care. Mine is currently 18 but they insist I must not be taking my supplements regularly. I take 2 kinds.
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@SillyPutty78
I can’t see how to add notes at all. I know I can send messages, which I never do because then I will become a ‘nuisance’ patient. If you become a nuisance, they like to quiet-quit you until you disappear
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@CBSNews
THERE WAS NO SPARRING!!! There was a woman doing her job and then a man insulted her. Jesus, CBS, is Les Moonves writing your headlines... sexist much?
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@FrostGroup1
@LilMrsMurder
@DiaryofaSickGrl
I know you feel attacked, but I was like you before I understood how dynamic disability worked and that my level of functioning is not the baseline I should be judging others by. I still struggle with ableism but choose to see it as learning when corrected now.
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@MohamedMOSalih
Dehumanizing. As a woman, this is a day that tells me that the people in power don’t view me as human. Just something that has stuff put in my vagina and pushed back out so men can leave a genetic legacy. I’m not human. I’m livestock.
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@iamdarylleon
@markos
Harris is pro Wall Street and against sentencing reform. Learn what a Reagan democrat is. Would I. It's for her over a republican? Yes.
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@markos
Read your own words here people and ask yourself if you're part of the problem. I prefer Bernie Sanders to Joe manchin, yet joe gets a pass?
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@markos
Other point being, we are going to lose if we continue as is. We will not win by being Reagan democrats. People need the commons
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@atommiller
This is what is hurting me. I got really sick when I got Covid. Thought I was healthy but turns out I had undiagnosed MS and getting sick like that caused a lot of nerve damage. I have to cut costs everywhere so I make my own bread. My grocery has bread flour 5lbs for $2.69.
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@aftab_usa
You get told those things even when your labs, MRIs, and cardiac work ups are abnormal too. Especially if you’re a middle aged woman.
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I’m in my 40s. I did not know I had a condition that could rapidly disable me if I got sick until I got Covid. I have lost everything. I am not unique. You are not unique. You can be, and are probably like me, a ticking time bomb waiting for the detonation. Covid is a detonator.
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I don’t think they realize that when you are really sick, and years of doctor’s visits with abnormal tests hasn’t gone anywhere, you start to get looked at like a liar by those around you. People you need help from, because the doctors say your multiple abnormal tests are fine
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@_the_mykie_show
My doctor telling me my recent issues with swallowing were due to eat too big of bites of food. I have MS.
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@MindfulMen99
I never thought about that. It is like a hot coal sitting on the stove top, isn’t it? I’ve been using mine to grill burritos for a few minutes several times a week. I should find another way.
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@erpdc
@svershbow
Or your lab results are off the charts but they message you and say, ‘these numbers are a little high, but that’s normal’
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I need encouragement to stay alive. I can’t adjust to this. Think I’m having huge MCAS flair. O2 is 89, I’m bright red head to toe, my vision is wavy and weird. The wanting to pass out when I stand up is worse, eyes black out. WTF am I supposed to do?
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@jsclark5768
Not judging. I’m poor. I went from not rich, but surviving better than some, to disabled and jobless nearly overnight. I had just got to the point where I could take a vacation for real in my 40s and now I am selling my things for grocery money
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@JoeStoll419
@Bonkers1210
@Witches_4_Weed
@Microsingular
@FinFlamKC
@DonaldJTrumpJr
If I don’t carry car insurance, I will eventually go to jail if I get pulled over or in an accident. If you don’t carry health insurance, I pay $1500 for a Tylenol at the hospital to pay for your inability to cough up 30k for an health emergency. Think outside yourself for once.
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I’m so sorry I have to do this. I know there are people worse off than me, but I need to try anything I can. I am working on trying to get any other help I can. Please be kind. I promise you I am crueler to myself than you could ever be.
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@jewstein3000
I got into a fight on Nextdoor with a nurse who said that TB was not airborne. I, and I’m not proud of this, I googled her and she sure is a nurse, at a hospital in Stateville, NC. I do not recommend getting medical care there 😬
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@hawkstar293
@AlanS71420449
I have MS and some other related issues. I suffer extreme fatigue. Not ‘I need another nap’ but a complete exhaustion of my energy reserves. Like pressing the gas petal as hard as you can and the car slows down instead of speeding up. It doesn’t matter how hard you want to go
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@lsthart
Every doctor except my gastroenterologist has been like this, but my gastroenterologist is an NP so maybe that explains it
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Now I sleep maybe 5 hours a day because of pain and discomfort. I miss the beginning when I slept 16-20 hours a day. I’m up at 5 because right now there is no position that does not result in pain on a level most people would go to urgent care for.
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@elle_carnitine
I don’t know why they don’t consider that some of us can’t go to restaurants to have that experience and sometimes just want to have a treat and this is the only way. But I guess we don’t deserve any pleasures whatsoever since we are not fully human to these folks.
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@FrostGroup1
@LilMrsMurder
@DiaryofaSickGrl
People who work long hours that want convenience food that is healthier. Caretakers who are stretched too thin need a faster meal. I think the overall point is to stop making value judgements of others because you don’t know the situation of others. Don’t shame someone for trying
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@FrostGroup1
@LilMrsMurder
@DiaryofaSickGrl
We aren’t saying that because you don’t understand why someone would need this that you ‘aren’t disabled enough’ we are imploring you to understand that there is a wide range of disability. Plus you don’t need to be disabled to buy those.
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@TracyHe86071794
@Edorisc04
@PressSec
@realDonaldTrump
No. This is false. Feinstein had received a letter that asked she keep it confidential. She gave it to the fbi and they placed it in the file. The Washington post had received a tip line call, investigated and then broke the story.
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@gshsmathmom
That’s me, July b-day so no school birthday parties and always an ice cream cake on my birthday.
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Insurance denied my MS medication. What can I do? It’s been appealed and denied multiple times. I don’t understand how this can happen. I am so stressed and stress can make me sicker and give me more lesions.
@AmbetterHealth
, do I not deserve treatment?
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@davidsirota
Maybe it’s not about what Americans in the revered “middle America” think, but about who is allowed to speak openly without fear of retaliation and who isn’t.
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@Timodc
@mattplotner
I have MS. I didn’t know I had MS before Covid. My one Covid infection took me from functional and solvent, to disabled and destitute. Another infection that bad and I may lose my sight or my ability to walk. Yet if I choose to mask, I get harassed, people online mock. Do better.
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I’m trying to apply for SSDI and they keep sending me forms or notices I have to reply to ASAP, and every single one comes days after it was due. How am I supposed to do this? I’m at my wits end. I haven’t even been given enough time to find out how to even get there.
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@CJsaneAlbertan
I have dozens of abnormal labs and have become so ill I cannot work. I have about an hour or two where I am functional enough for light activity such as unloading the dishwasher or watering the garden. I also have MS, but they haven’t even started treatment. My body is dying
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@EricHolthaus
I don’t know you but I know what that’s like and send you some empathy and my wishes for things to get better fast. It’s amazing how some of the worst things we go through turn into the start of a better life.
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@justbeingmendy
@user0000O0
Some people don’t have decisions. I can’t make my MS go away. I can’t work and I can’t support myself. This is a bad take. Some people have no decisions, and that’s a failure of society. If you think there are decisions for everyone, you are privileged and blind
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@BlogChurchWork
@robreiner
@HouseDemocrats
There are literally dozens of reason people are giving in this thread alone. Your tweet is both inaccurate and insincere.
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@andrewlynds
@nytimes
Furthermore, why doesn't Mrs Johnson have the right to allow whatever supportive person she wants in the car with her? Esp a family friend?
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@hawkstar293
@AlanS71420449
I try to do any cooking, cleaning, bathing, and such during that time. It leaves nothing leftover for fun activities like hobbies. My life feels very small these days
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@somethings_awry
I wrote a report for school with this as a subject and for weeks after I was so terrified of exploding into flames that I would get home from school and then just sit perfectly still for as long as I was allowed thinking I had to cook the friction down in my bones or I would die
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@chrissyteigen
For me it’s when a character is on the phone and they don’t even say goodbye at the end. They just hang up after a conversation. Like, maybe the other person had more to say? Who just hangs up without some closure?
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@lxeagle17
I was vaccinated. I caught Covid from someone who caught Covid 1 month after being boosted. I am now disabled, destitute, and have to beg friends and family for money to stay housed and alive. I am pro-vaccine but this one is not effective. Covid is like EBV, HIV, and HPV.
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@TheBookshopMan
This is the sort of toy that should have children’s books written about it. It’s the sort of toy that would be hugged and loved and then mourned if it disappeared or the child grew too old to love it anymore. It’s a toy of lasting memories.
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@tweetjjtweet
If you are immunocompromised or disabled, you are safer and safe from public comments. Plus COST. A study just came out that said more than 2/3 of us are paycheck to paycheck. I am all of the above. I can’t pay $20 to sit and be harassed for protecting myself from worsening MS.
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@davidsirota
Well let me take a stab at this... I don’t live in middle America, I live near Charlotte. I don’t openly speak about politics because I have a progressive view and those around me might not and those that might not are generally armed and angry. I can’t speak about politics at
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@ProperChels34
I don’t understand why they even use that type of measurement tool. I haven’t had my temp taken with an oral thermometer in years. They always shoot that raygun thing at my forehead. They sell them on Amazon for like ten bucks. I’d bring one and introduce them to technology.
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I have to close my right eye to read what I’m typing because it’s so damaged and blurry i can’t read anything, yet when I look through my left eye it’s clear as day. I have ‘motion sickness’ nearly every minute of the day because of it.
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Found out I was denied SSI this morning. That’s easier to get than SSDI. So I am expecting to be denied that. I don’t know what I will do. I need it to survive. I guess I will have to not survive earlier than I hoped.
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@EscaleraCat
I know! I have done the same but they never adequately explain, just it’s normal for those to be off. I also say, maybe they aren’t normal for me and maybe that’s why I am so sick!?
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@literarynahuatl
@_alialkhatib
This doesn’t happen. There are not armies of people with no physical problems going to the ER, spending thousands, for attention. This is a story we tell ourselves to soothe our conscience because deep down you want to believe sickness is moral and a good person stays healthy.
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@HassanPRG
We need to track the deaths due to this if it passes and charge them with some form of homicide
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@JuddLegum
@ChuckWendig
This isn’t the first year they’ve done this, it’s just the first year they got caught. I guarantee it’s not just this district.
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@BillKristol
@Juliolcubano
Only, did we have an entire party in control enabling the autocratic tendencies of a mentally unstable narcissist? Did we have leaders of senate committees actively distributing false information to protect people from prosecution for their crimes?
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I have grip issues with my right hand that came on so fast that I still drop and break things several times a week because I’m still not used to it after a year and a half. Started with my Covid infection. My right leg also has difficulty and I have fallen 7 times this year alone
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I am so scared. I live in a state that can put you in prison for not paying bills and I already have tapped out all help I have with housing and utilities. I can’t even pay for bankruptcy. I literally have only one option and it’s coming up fast. This world is unforgiving.
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@CarrollBryant
You are not a victim. You knew you were saying something abhorrent and you are reveling in the attention. I say this because the only alternative is that’s you clearly think pedophilia is better than people with different opinions, and that would be monstrous. Seek help.
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@davidsirota
Work because in my small office, all those above me are trump supporters and I could lose my job. I had a left leaning bumper sticker on my car and have had things thrown at me on 485 at 70 mph.
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Part of the MS fun is trigeminal neuralgia, a sharp, disabling pain on the right side of my head that is known to be one of the most painful things to go through. I can attest to this sentiment. I get attacks that last hours to days. No meds to help.
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@brazen_unicorn
@KaitMarieox
I was thinking they were from her father-daughter purity dance at her church
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@TracyHe86071794
@Edorisc04
@PressSec
@realDonaldTrump
Both the letter and tip were sent before his actual nomination when he was on the short list and she felt this was information needed to shed light on his character. This would not have been investigated by the fbi unless requested by the White House
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It may not be a conscious belief but a subconscious bias based on millennia of misogyny, but I am truly beginning to wonder.
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I wish I could hire someone to come cuddle me when I’m feeling my lowest due to this long Covid crap. Human, dog, sloth, I don’t care.
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@JeffeypopJd
@DiaryofaSickGrl
Hide us away in abusive ‘care’ facilities. How very final solution of you. Disabled people deserve life and independence too. How awful of you.
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@ClearAutism
Been reaching out trying to get assessed in my 40s after being urged to by a the therapist I was seeing at the time. Each one said it’s not possible to assess adults. I’m like, I grew up during a time when they didnt think girls could be autistic, so I suffer for that forever?
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