Josh Mailman
@Globeseek
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I am a patient advocate living with NETS My tweets are my own opinions but my various non profits do receive funding from pharma
Joined May 2007
@DukeCancer @dukemedicine @DukeHealth @DukeMedSchool Congratulations my friend I look forward to seeing you when I am in the area. ( Which somehow was 3x last year)
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Are they kind? That was the ? posed to me dressings rm while waiting for my MRI. This was after a tech used tape to keep my socks on. I told her they were and that it was 50th scan and that all imaging techs over my 17 year+ journey have been kind. So let's all be kind this year
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@ICPO_Foundation @baumrp Honored to be featured. There is always hope but it takes a great deal of support @SNM_MI @NANETS1 @ITM_Radiopharma @netcancerday
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Looking forward to learning something new today as the first patient advocate to speak and attend the Boulder Peptide Symposium
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@oreganruth @Nate_WilsonMD @AACR @ASCO Another year of working with and learning from some great learners. You will all leave San Diego tomorrow with completed protocols and informed consents. Congratulations
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@Nate_WilsonMD @oreganruth @AACR @ASCO I missed the taco 🌮 run. I had a great and rewarding experience working with you and all the members of pdg5
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Outstanding work
Grateful for the opportunity to give my testimony at the #WaysAndMeans Committee’s field hearing in #Utah, focused on access to health care. Honored to represent and share many of my patients’ experiences. @huntsmancancer @NeliMUlrich @HCI_SachApte @HuntsmanCOE
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@tmprowell @ivybelkins @AACR @ASCO It is so sad that we lost @ivybelkins last week. We will sing her praises at this year's @asco @AACR @ivybelkins will be missed but not forgotten
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Congratulations to Dr. Evans @UCSFimaging the recipient of the Sam Gambir trailblazer award at this year's @SNM_MI annual meeting
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Live Now The Past, Present, and Future of Theranostics for NETs: Richard Baum, MD, Professor of Nuclear Medicine, Elcin Zan, MD, Radiologist, Shereen Ezzat, MD, Endocrinologist, Princess Margaret Cancer Centre -
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As with many things tech issues happened - here is the new link
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Live now. Talking about how molecular imaging and nuclear medicine work. @CureNETs @NANETS1 @HealingNET1 @LACNETS
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@marklewismd @OncoThor @NANETS1 @CureNETs @SNM_MI Since I haven't bought the article. It would be interesting to note % of those pretreated with akylators and average time to onset. Given the delay in onset of MDS AML how do you tease out prior therapy? We saw some of these in control net trial when rlt combo with cap tem
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Day 2 @theNCI Cancer Data Summit. Clinical trial discovery. Great to see so much interest in improving this area.
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At @NIH for the next few days at the cancer research data exchange summit. Working meeting to help clinical trial discovery in oncology. I have learned so much on the topic over the last two years thanks to @Ancora_AI and our work on our trial finder
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I as well as many if not most @CureNETs patients are only alive due to this and the subsequent discovery and treatment made after this discovery. To be part of the event we stand on the shoulder of giants
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@AmanChauhanMD @NANETS1 Sorry I missed it I was on capital hill advocating with my family for the department of defense to open funding for NET research in FY25. @PamelaKunzMD @helops79 @JaydiDelRivero
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