NET Cancer Day
@netcancerday
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Worldwide NET Cancer Awareness Day is an awareness-raising event coordinated by INCA, the International Neuroendocrine Cancer Alliance.
A Worldwide Effort
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Globally, NET Cancer patients spend a significant proportion of their household income on cancer treatment. We need to change this. More healthcare funding and better healthcare plans are needed
#wescan
#letstalkaboutnets
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Today is NET Cancer Day! 🦓
Help us improve time to diagnosis for NET patients, globally! We can do this by understanding barriers to early diagnosis and working collaboratively towards removing these.
R/T
#wescan
#LetsTalkAboutNETs
#NeuroendocrineCancer
#NETCancerDay
#NETcancer
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November 10 is NET Cancer Day.
Download the NET Cancer Day ribbon, make it your profile picture, share your ACCESS story and help us spread the word.
For more info and to download the NET Cancer Day ribbon head to:
On Nov 10
#LetsTalkAboutNETs
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🦓Today is
#NETCancerDay
! Today we unite in one global voice to speak about neuroendocrine cancer and call for more NET awareness among HCPs, which will help them suspect it and diagnose it early.
📢Share our messages in 11 languages:
#LetsTalkAboutNETs
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First center of excellence for NET treatment in Spain. Hospital Universitari Vall d´Hebron together with VHIO have recently been accredited as Centre of Excellence by ENETS. Congratulations to the whole team!
@Netespana
#LetsTalkAboutNETs
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📢Today is
#NETCancerDay
! Created by INCA over 10 years ago,
#NETCancerDay
is held to raise awareness and improve NET diagnostics and care. Know the Symptoms. Push for Diagnosis! 📌Join us and spread the word: ▶
#LetsTalkAboutNETs
#MedTwitter
#OncoTwitter
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Today is
#RareDiseaseDay
. Governments must take rare diseases seriously and ensure healthcare coverage for everyone, everywhere, now and beyond COVID-19. We ask for equitable access to health and social care, diagnostics and treatments for
#NeuroendocrineCancer
and genetic NETs.
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Neuroendocrine tumors (NETs) are frequently misdiagnosed and early detection is key. NET Cancer Day aims to increase awareness of NETs & to provide a voice to the NET community to ask for improved access to diagnostics, treatments, information, care & research.
#LetsTalkAboutNETs
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NETs doesn’t discriminate, it affects men, women and children from all countries around the world. 7 in every 100,000 people are diagnosed each year and these numbers are growing.
Today is
#NETCancerDay
, help us raise awareness and spread the word
#LetsTalkAboutNETs
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The focus of
#NETCancerDay
2019 is to highlight the challenges patients and clinicians face around ACCESS – access to information, access to care & treatment, access to research and access to support.
Help make this a global conversation, today and everyday
#LetsTalkAboutNETs
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45% of patients are not correctly diagnosed with NETs at first diagnosis.
Patients are often misdiagnosed with conditions such as: Irritable Bowel Syndrome (IBS), bronchitis, menopause and anxiety.
World
#NETCancerDay
is Nov 10
#LetsTalkAboutNets
#INCAlliance
#NetCancer
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February 4th is World Cancer Day. Let’s say it out loud:
I am a neuroendocrine cancer patient advocate and I will Speak Up for more
patient involvement in NET research.
#WorldCancerDay
#IAmAndIWill
#letstalkaboutnets
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Today is
#WorldPancreaticCancerDay
. Early diagnosis is vital. It is also vital to distinguish between pancreatic cancer and pancreatic neuroendocrine cancer, which took the lives of Queen of Soul Aretha Franklin and visionary Steve Jobs.
#WPCD
#LetsTalkAboutNETs
@worldpancreatic
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February 29th is Rare Disease Day. Neuroendocrine cancer is defined as
RARE. Let’s join the campaign and share that we are
MANY, we are STRONG, PROUD and want EQUITY for each NET patient in
access to diagnostics, treatment and care.
#RareDiseaseDay
#LetsTalkAboutNETs
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About a third of NET patients are diagnosed by pure chance, while undergoing tests for an unrelated condition. We need to raise awareness of symptoms.
Know the symptoms. Push for diagnosis.
#LetsTalkAboutNETs
#NETCancerDay
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November 10 is NET Cancer Day.
Each year thousands of patients around the world are misdiagnosed due to a lack of ACCESS to NET specialists in their country
Help us change this.
Download the NET Cancer Day ribbon and toolkit via:
#LetsTalkAboutNETs
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Please keep retweeting our posts & keeping the conversation going about NET Cancer Day 10th Nov!
If you haven't already, please share our NET Cancer Day 2020 ribbon in your tweets!
#letstalkaboutnets
#neuroendocrinecancer
#netcancerday
#netcancer
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NET Cancer Day is held on the 10th of Nov. We raise awareness of neuroendocrine tumors and draw attention to less common cancers by starting a global conversation amongst communities, medical professionals & governments
#LetsTalkAboutNETs
#NeuroendocrineCancer
#NETCancerDay
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The focus of
#NETCancerDay
this year has been to highlight the challenges patients face around ACCESS – access to information, access to care & treatment, access to research and access to support.
Help make this a global conversation, today and everyday
#LetsTalkAboutNETs
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📢Today is
#WorldCancerDay
! Let’s unite to take action to close the gap in cancer care. We continue to offer evidence-based resources to
#closethecaregap
.
👉Hear from NET patients how misdiagnosis affects lives and take action:
#LetsTalkAboutNETs
@uicc
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Fact 1:
#NeuroendocrineCancer
often presents with vague, unclear symptoms which is why it is commonly diagnosed at an advanced stage. Watch out for common misdiagnoses like gastritis, irritable bowel syndrome, digestive problems. 10-day
#NETInfo
wave
#WCD21
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Press Release: This Sunday marks the 10th anniversary of
#NETCancerDay
. A day dedicated to raising awareness around
#neuroendocrinetumours
amongst medical communities & general public.
Retweet to help spread the word
#LetsTalkAboutNETs
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#NeuroendocrineCancer
is of low incidence but many people are living with it. Sunday, February 28 is Rare Disease Day. Let’s raise our collective voice and ask for more equity in access to diagnostics and treatments for
#NeuroendocrineCancer
.
#RareDiseaseDay
#LetsTalkAboutNETs
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Neuroendocrine cancer is challenging to diagnose. 👉We would like to help all
#oncologists
to gain better understanding of NETs.
✅Download
#NETInfo
on different NETs in your language to be aware:
#LetsTalkAboutNETs
#OncTwitter
#OncoTwitter
#MedTwitter
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The world lost Steve Jobs to pancreatic neuroendocrine cancer 9 years ago. The visionary who redefined the digital age will always stay with us as a proponent of innovations. Only through an innovative spirit such as Jobs’ can incurable diseases be beaten one day.
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🦓9 days to
#NETCancerDay
2023! Neuroendocrine cancer is easily missed and patients endure symptoms for a long time going around in circles until they get a correct diagnosis.
✅Join us and use the campaign resources in 11 languages:
#LetsTalkAboutNETs
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May 12th. International Nurses Day. The role of nurses in NET healthcare is of essential importance. Тhank you so much for everything you are doing for NET patients!
#LetsTalkAboutNETs
#internationalnursesday
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🎯Today we support
#RareDiseaseDay
. 300 million people are living with a rare disease around the world. Let’s raise awareness of uncommon NETs among more clinicians.
✅Download
#NETInfo
in your language and share it with your doctors:
#LetsTalkAboutNETs
0
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This year marks the 10th anniversary of
#NETCancerDay
. Once again the focus is to highlight the challenges NET patients face, this year particularly around access.
Help make this a global conversation, today and everyday
#LetsTalkAboutNETs
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Strength doesn’t come from what you can do. It comes from overcoming the things you once thought you couldn’t.
#LetsTalkAboutNETs
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🔔New NET researchers‘ insights on the INCA website: Watch the special presentations on NET clinical trials and the importance of patient involvement by Dr.
@PamelaKunzMD
and Dr.
@JaydiDelRivero
. 👏Thank you!
✅Watch videos here:
#LetsTalkAboutNETs
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Most common NET primary sites are lungs, pancreas, & GI system. Most common misdiagnosis: asthma, IBS, gastritis, anxiety.
#Pulmonologists
and
#gastroenterologists
, mind the zebra, be aware: Download
#NETInfo
in 10 languages:
#LetsTalkAboutNETs
#GITwitter
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The Primary Neuroendocrine Cancer factsheet provides essential information around a hard to detect disease, its proper diagnostic methods and types of treatment approaches. A valuable info pack for any healthcare professional, medical student or patient.
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It is with heavy hearts that we share with you that our dear friend and amazing colleague Michael Rosenberg, founder of MENETS, passed away. Michael will be sorely missed by the NET community. We will be forever grateful for his tireless efforts to improve the lives of patients.
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I am a neuroendocrine cancer patient advocate and I will HELP MORE
HEALTHCARE PROFESSIONALS to learn about NETs. If you don’t suspect it,
you can’t detect it.
#WorldCancerDay
#IAmAndIWill
#letstalkaboutnets
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Sadly, Bollywood star Irrfan Khan passed away aged 53. He was diagnosed with a neuroendocrine tumor in 2018. The Indian-born actor was one of the most wanted stars both in India and Hollywood. Our hearts go out to his family and friends.
#NeuroendocrineCancer
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Globally, it takes 5 years on average from initial symptoms to actual diagnosis: North America– 6 years; Oceania– 5 years; Europe– 4; Asia– 2 years. Best results on early diagnosis are registered in Asia.
#wescan
#LetsTalkAboutNETs
#NeuroendocrineCancer
#NETCancerDay
#NETcancer
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GPs are pivotal in early NET diagnosis and ongoing management. Prof. Dermot O’Toole brings insight on how to facilitate and alert GPs on NETs at the 2022 INCA Global Patient Advocate Summit.
#LetsTalkAboutNETs
#GPTwitter
#MedTwitter
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The final
#INCABootCamp
session took place today. INCA thanks all the brilliant patient advocates from 6 continents for taking the 9-month class and wishes them success in their concerted efforts to make a change for more meaningful patient involvement in NET research.
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Do not miss the
#NET
and endocrine tumors session at
#ESMO21
on Monday and Tuesday. Keep an eye out for
@GrupoGETNE
’s new data from the
#DUNE
,
#AXINET
and
#NICENEC
clinical studies.
#LetsTalkAboutNETs
@myESMO
,
@Netespana
,
@net_connectinfo
,
@OncoThor
,
@OncLive
,
@Ja_Capdevila
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Know the symptoms. Push for diagnosis.
Read more of Esteve's story:
On November 10 help us raise awareness for NETs by using your social media account to contribute to the global conversation and help us spread the word.
#LetsTalkAboutNETs
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Tomorrow we will mark
#NETCancerDay
: Help us raise awareness about neuroendocrine cancer to reduce the time to correct diagnosis! Check the facts and get involved: ▶ Share our messages to HCPs!
#LetsTalkAboutNETs
#MedTwitter
#OncoTwitter
#GITwitter
#MedEd
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September 30 is
#RareCancerDay
! Neuroendocrine tumors (NETs) are a group of less common cancers with increasing numbers being diagnosed and more people living with this disease worldwide. Help raise awareness and spread the word for
#RareCancerDay
today.
#LetsTalkAboutNETs
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“We need to foster an honest dialogue with HCPs on the patients’ priority of having better QoL in treatment instead of the sole focus on living longer. Patients are the experts on themselves”, noted
@TeodoraInca
at
@EuropeanCancer
@Anticancerfund
event on shared decision-making.
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Together, we are stronger.
There is a power to speaking with one voice 🌍
"We need to change attitudes towards rarer cancers and ensure all affected have a clear, effective and holistic diagnostic/treatment pathway.” - INCA President, Catherine Bouvier
#netcancerday
#netcancer
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Today kicks off
#NETCancerDay
week!
NET Cancer Day is this Friday, November 10th.
Thanks for sharing LACNETS Los...
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🦓Get ready: In 1 hour we start the ENETS-INCA
#NETCancerDay
Educational Webinar for patients and their families! Tune in from 12:00 to 14:15 CET on the ENETS website:
#LetsTalkAboutNETs
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10
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NET healthcare professionals will share experience and best practices this week during the 16th Annual ENETS Conference in Spain. INCA will be there to speak about the unmet needs of NET patients. Check the program here.
#LetsTalkAboutNets
.
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Please join us by getting involved this NET Cancer Day & every day going forward!
Follow. Retweet. Like. Share. Shout.
Raise awareness about this hidden cancer and tell everybody you know about it!
#wescan
#letstalkaboutnets
#neuroendocrinecancer
#netcancerday
#netcancer
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Doctors are taught in medical schools: "when you hear hoof beats, think horses" – consider the most common diagnosis. But sometimes it's a zebra. Think "zebra" to spot NETs!
#LetsTalkAboutNETs
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We wish the whole NET community a happy, healthy and prosperous 2020. Happy New Year!
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Today is World
#NETCancerDay
.
Share your stories and join the global conversation to help raise awareness about NETs.
.
Download the NCD ribbon here:
And don’t forget to hashtag:
#LetsTalkAboutNets
#INCAlliance
#NetCancerDay
#NetCancer
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November 10th is
#NETCancerDay
and it’s getting closer. This year, you can help make a difference by snapping a selfie to capture your route to NET diagnosis. Check our website on how to get involved in the campaign.
#LetsTalkAboutNETs
0
9
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📢On November 10th, we need to speak in one global voice about symptoms that can disguise NETs!
🦓Tell every HCP you know!
👉Join us with social media banners in 11 languages:
#LetsTalkAboutNETs
#EndoTwitter
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👏Thank you to everyone who joined us on
#NETCancerDay
and spread the word about neuroendocrine cancer! We are grateful to all HCPs and cancer societies who support our call!
#NETCancerDay
is every day, so again:
🦓Take a closer look at Neuroendocrine Cancer!
#LetsTalkAboutNETs
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We are excited to announce that the INCA poster on unmet needs in NETs was awarded First Prize for Poster in the Clinical Category at the 16th Annual ENETS Conference. Over 350 posters were presented at the biggest medical conference in NETs.
#ENETS19
#LetsTalkAboutNETs
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We are here at
#ENETS2023
! Visit us to meet INCA patient advocates and join the INCA/ENETS Symposium tomorrow, March 23rd, 11 CET!
#LetsTalkAboutNETs
3
11
25
Join us for the first ENETS-INCA NET Cancer Day Joint Educational Webinar tomorrow and seize the opportunity to engage with top European NET specialists from multiple disciplines.
#NETCancerDay
#LetsTalkAboutNETs
0
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30 days to NET Cancer Day 2022:Pheochromocytoma is a rare neuroendocrine tumor, develops in cells of an adrenal gland. Often misdiagnosed: Read Tanisha’s story: Download
#NETInfo
in your language:
#LetsTalkAboutNETs
#OncoTwitter
0
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INCA poster on SCAN presented at the NANETS Annual Symposium in Boston featuring a total of 113 abstracts. NANETS’ support in promoting the global survey on access challenges is instrumental.
#wescan
#NANETS2019
#letstalkaboutnets
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Patients and clinicians need ACCESS to innovative solutions:
#NETCancer
symptoms are wide and varied and call for innovative treatments.
Help us:
#LetsTalkAboutNETs
#NETCancerDay
@VictoryNETFoundation
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INCA is grateful to
@WoncaEurope
to have our poster on the role of GPs/family doctors in neuroendocrine tumor diagnostics in Europe at
#woncaeurope2022
. Check out the poster and talk to lead author Catherine Bouvier, CEO of
@ncukcharity
.
#LetsTalkAboutNETs
#GPTwitter
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11
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#RareDiseaseDay
is on Feb 28th. Although considered rare, now NET is the 7th most diagnosed cancer in Australia. INCA helps clinicians to spot NETs easily: ✅Download
#NETInfo
in your language:
#LetsTalkAboutNETs
0
15
23
Proud to announce that INCA poster on unmet needs in global NET care was selected among 350 posters to be presented live at the poster walk on both ENETS conference days.
#LetsTalkAboutNets
0
7
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Early diagnosis of NETs improves patient outcomes, which can mean many years of good-quality life. 46% of patients are diagnosed with stage IV neuroendocrine cancer. The global NET community is committed to make change happen.
#wescan
#letstalkaboutnets
#netcancerday
#netcancer
1
9
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Help us improve time to diagnosis for NET patients, no matter where they live! We can do this by understanding barriers to early diagnosis and working collaboratively towards removing these.
You are the key to change.
#wescan
#LetsTalkAboutNETs
#NETCancerDay
#NETCancer
0
5
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Four esteemed world surgical experts in NETs will offer insight into key topics in a live-streaming webinar this Thursday, November 21st. Send in questions ahead of time or live during the webinar:
This event is organized by
@TheAAES
0
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One of the main side effects from NET cancer treatment is fatigue. Loss of muscle mass could also be observed. Any type of physical activity would help you feel better. Talk to your doctor.
#LetsTalkAboutNETs
3
9
24
🤝This week let’s unite for a global, vocal
#NETCancerDay
!
📢Let’s call for the medical community to take a closer look at neuroendocrine cancer!
✅Read the story of Oliver from Germany about his experience with symptoms and diagnosis:
#LetsTalkAboutNETs
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Let's keep on raising awareness about NETs. Today you can do it with just one click - by voting for Ethan’s film. Ethan's wish is that other children with
#MEN2B
are diagnosed as early as possible to avoid incurable
#MedullaryThyroidCancer
. Vote Thank you!
1
10
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Today is Rare Disease Day. INCA and its 26 members from 6
continents will push for equity in access to diagnostics, treatment and
care for people living with NETs all over the world!
#RareDiseaseDay
#LetsTalkAboutNETs
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15
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Medical professionals need a greater understanding of the unmet needs of NET patients and a better understanding of NET related syndromes.
.
Help us find a cure. Spread the word on November 10, World NET Cancer Day
#Letstalkaboutnets
#INCAlliance
#NetCancerDay
#NetCancer
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👉MEN 2A is a rare hereditary condition. It is diagnosed clinically by the occurrence of two or more specific endocrine tumors (MTC, pheo, parathyroid adenoma).
✅Download our new
#NETINfo
on MEN2A in 10 languages:
#EndoTwitter
#MedTwitter
#PathTwitter
1
11
24
Life-saving cancer diagnostic treatments should be equally available for all patients. Push for access to best treatments for NETs. Engage at least one authority that can make a change for treatments for NETs! ...
#WorldCancerDay
#IAmAndIWill
#letstalkaboutnets
#changefornets
1
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46% of NET patients have advanced stage disease by the time they are correctly diagnosed and for many of these patients, a cure is not possible.
#LetsTalkAboutNETs
#NETCancerDay
0
12
23
#MEN
stands for
#MultipleEndocrineNeoplasia
, there are 3 types – MEN1, MEN2 and MEN3. They can be inherited, with each child having 50% risk of inheritance.
✅Check our brand new
#NETInfo
in 10 languages, download here:
#LetsTalkAboutNETs
#EndoTwitter
2
9
23
📢Don’t miss the ENETS-INCA NET Cancer Day Educational Webinar for patients and their families tomorrow!
✅Tune in on November 10thfrom 12:00 to 14:15 CET on ENETS website:
#LetsTalkAboutNETs
#NETCancerDay
0
9
23
Getting closer to 2020, let's give thanks to our family, those that care
and always stand behind us during hard times. For a neuroendocrine
patient, family could be everything.
#LetsTalkAboutNETs
0
11
22
📢Today is
#WorldCancerResearchDay
! Advancing NET research with greater focus on the NET patient perspective is vital for ensuring better care.
👉Learn from some of the best NET researchers:
#LetsTalkAboutNETs
#EndoTwitter
#OncoTwitter
#MedTwitter
#MedEd
0
13
21
February 4th is World Cancer Day. Get ready for it. Let’s raise our
voice and join the global effort to make a change. Progress is possible
for an earlier diagnosis for neuroendocrine cancer.
0
18
22
The 1st World NET Forum, organized by
#ENETS
in partnership with NET societies around the world, including
#INCA
, just kicked off. Leading NET experts discuss basic and translational science in NENs on March 8-9th, both online and in Barcelona.
#LetsTalkAboutNETs
#Neuroendocrine
1
7
23
INCA new President Catherine Bouvier assumed office, saying: “I am honored to support driving forward an organization focusing energy on building a better world for our community by changing attitudes through truly cross-functional collaboration”.
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4
22
Let's join efforts to change attitudes to patients with non-specific undiagnosed symptoms & to neuroendocrine cancer as a whole in order to secure optimal diagnostic and treatment pathways for NET patients.
#letstalkaboutnets
#neuroendocrinecancer
#netcancerday
#routetodiagnosis
0
7
23
📢
#WorldCancerDay
is on February 4th. We need to
#closethecaregap
in correctly diagnosing neuroendocrine cancer. ✅To raise awareness of NETs, download a
#NETInfo
factsheet in your language and share it with your doctor: ▶️
#LetsTalkAboutNETs
@uicc
#MedEd
1
11
23
All medical professionals need a basic understanding of the unmet needs of
#NetCancer
patients and NET symptoms to provide better care to patients. Greater awareness is required.
Help spread the word
#LetsTalkAboutNets
#NetCancerDay
0
11
23
Neuroendocrine cancer needs multidisciplinary expertise to ensure that the best management and care are provided.
We help all
#oncologists
to be aware of NETs.
✅Download
#NETInfo
in your language:
#LetsTalkAboutNETs
#OncTwitter
#OncoTwitter
#MedTwitter
0
15
23
Have you heard of a multidisciplinary NET team?
Multidisciplinary teams (MDTs) consist of various specialists who work together to formulate and provide the best possible treatment plan for patients.
#LetsTalkAboutNETs
0
10
22
We are looking forward to the 10th Annual INCA Global Patient Advocate Summit on September 26-27th in Lisbon! The global NET patient community is finally meeting in-person after 3 years. Stay tuned for news!
#LetsTalkAboutNETs
1
9
22
NET patients are often misdiagnosed for years, and require
multiple consultations prior to receiving the correct diagnosis.
Sometimes they are diagnosed by pure chance.
#wescan
#LetsTalkAboutNETs
#NeuroendocrineCancer
#NETCancerDay
#NETcancer
0
7
20
👏Happy 200th anniversary to
@TheLancet
and thank you for the long history of fostering meaningful changes in health systems. Thanks to Prof. David Collingridge, EIC,
@TheLancetOncol
for the contribution to patient advocacy.
@TeodoraINCA
.
#LetsTalkAboutNETs
#Lancet200
0
7
21
Gall bladder dysfunction was the 1st misdiagnosis for 10% of NET patients globally. We need improved NET awareness among GPs and gastroenterologists. Download
#NETInfo
in your language:
#LetsTalkAboutNETs
#generalpractitioners
#GITwitter
#primarycare
0
13
22
👉INCA-ENETS Symposium today started with Dr.
@sugandhadureja
and Prof. Dermot O’Toole presenting the approach to PCPs in the Think NENs e-learning and how NEN awareness among HCPs can be improved by such programs, including students’ NEN training.
#LetsTalkAboutNETs
#ENETS2023
1
7
21
There are friends, there is family, and then there are friends that become family.
#LetsTalkAboutNETs
0
8
21
#EuropeanHormoneDay
is launched today to raise awareness on the significant role of hormones. Neuroendocrine cancer stands for a group of cancers starting in neuroendocrine cells. Share
#NETInfo
in 10 languages:
#LetsTalkAboutNETs
#BecauseHormonesMatter
0
6
22
Carcinoid syndrome, carcinoid heart disease, carcinoid crisis are specific neuroendocrine cancer related conditions.
#NETInfo
covers the most-up-to date information on their symptoms, treatments and monitoring in 10 languages.
#LetsTalkAboutNETs
0
10
22
INCA supported a study on the impact of COVID-19 on NETs management. Thanks to the authors: Catherine Bouvier Ellis,
@ncukcharity
,
@cives_mauro
Mauro Cives, Jorge Hernando,
@DrAngelaLamarca
,
@Prof_M_C
Martyn Caplin, Marianne Pavel. More➡️
#LetsTalkAboutNETs
3
11
22
#NeuroendocrineCancer
and genetic neuroendocrine tumors are hard to detect. Let’s challenge this. Medical universities need to encourage training in NETs to help improve time to diagnosis.
#RareDiseaseDay
#LetsTalkAboutNETs
0
14
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