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Neuroendocrine Cancer UK #NotJustNECancer Profile
Neuroendocrine Cancer UK #NotJustNECancer

@ncukcharity

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Supporting the #Neuroendocrine Cancer community, incl diagnosis, access to best treatment & care - and stimulating research. Helpline 0800 434 6476

UK
Joined May 2012
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@ncukcharity
Neuroendocrine Cancer UK #NotJustNECancer
3 hours
Do you have a UK patient diagnosed with Neuroendocrine Cancer (NETS / neuroendocrine tumours / NECs)? Please tell them about our Patient Handbook online here: @UHSFT @nhsuhcw @Leic_hospital @uhbtrust @SwanseabayNHS @CV_UHB @BelfastTrust @NewcastleHosps @SheffieldHosp
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@ncukcharity
Neuroendocrine Cancer UK #NotJustNECancer
22 hours
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@ncukcharity
Neuroendocrine Cancer UK #NotJustNECancer
4 days
Tim’s neuroendocrine cancer was discovered unexpectedly after routine tests for swallowing issues. Swift action led to specialist care & successful treatment—but scanxiety remains. Read Tim’s story ➡️
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@ncukcharity
Neuroendocrine Cancer UK #NotJustNECancer
4 days
RT @BTOGORG: The @IASLC Staging Cards, 9th Edition, are a set of 22 laminate pocket-sized reference cards which are an excellent resource f…
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@ncukcharity
Neuroendocrine Cancer UK #NotJustNECancer
4 days
@BTOGORG @IASLC Is there one for correct Typical (TC) and Atypical (AC) lung neuroendocrine classification inclusion? Much has changed with therapy options -
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@ncukcharity
Neuroendocrine Cancer UK #NotJustNECancer
4 days
Today is #TimeToTalkDay - if you're in the UK and diagnosed with Neuroendocrine Cancer, put the kettle on and check out our patient support calendar - lots of opportunity to join us for an informal chat and spend time with others who really understand: @macmillancancer @MaggiesCentres
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@ncukcharity
Neuroendocrine Cancer UK #NotJustNECancer
4 days
At Parliament this week, asking MP's for help in getting the NHS to fund NICE-approved SIRT (selective internal radiation therapy) for all UK neuroendocrine cancer patients who need it. It's vital to raise awareness of the problems still surrounding access to minimally invasive - and proven - cancer treatments. @wesstreeting @BNMSnews
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@ncukcharity
Neuroendocrine Cancer UK #NotJustNECancer
6 days
RT @BeatablesFC: You thought it was over? 👀 We are delighted to share that Beatables FC and Fenners United will be hosting a rematch of la…
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@ncukcharity
Neuroendocrine Cancer UK #NotJustNECancer
6 days
@BeatablesFC @BSF2020 @DorothyHouseHC Thank you for your continued support and awareness raising!
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@ncukcharity
Neuroendocrine Cancer UK #NotJustNECancer
6 days
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@ncukcharity
Neuroendocrine Cancer UK #NotJustNECancer
6 days
RT @FACupFactfile: I don't often tweet about this but it's #WorldCancerDay It's also 3rd anniversary of knowing I'm living with cancer!…
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@ncukcharity
Neuroendocrine Cancer UK #NotJustNECancer
6 days
@FACupFactfile Thanks for your continued support too!
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@ncukcharity
Neuroendocrine Cancer UK #NotJustNECancer
6 days
RT @Jen71Marchetti: @ncukcharity Thank you all for sharing. #awarenessmatters #awarenesshelps us all learn more about #nets and hopefully m…
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@ncukcharity
Neuroendocrine Cancer UK #NotJustNECancer
6 days
We've created a Neuroendocrine Cancer Overview for Endocrinologists, in partnership with @UKINETS - This guide is designed to educate healthcare professionals on the signs, diagnosis, and treatment of neuroendocrine cancer. Please share @Soc_Endo
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@ncukcharity
Neuroendocrine Cancer UK #NotJustNECancer
6 days
On #WorldCancerDay we’re amplifying the voices of those affected. We asked, "What do you wish others knew about neuroendocrine cancer?" Their answers were powerful. Share your views - Drop a comment below. ⬇️
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@ncukcharity
Neuroendocrine Cancer UK #NotJustNECancer
7 days
Welcome to 'Loop', our new January 2025 newsletter for the UK Neuroendocrine Cancer community: @CR_UK @macmillancancer @MaggiesCentres
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@ncukcharity
Neuroendocrine Cancer UK #NotJustNECancer
7 days
RT @christheeagle1: "Giving back has become my passion, almost like a daily addiction. It fuels my soul and gives me purpose. But I’ve also…
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@ncukcharity
Neuroendocrine Cancer UK #NotJustNECancer
7 days
RT @MGMcNamara: While encouraging, one would expect that compared to everolimus in G1/2 GEPNET, PFS would be better (historic approx 11 mo…
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@ncukcharity
Neuroendocrine Cancer UK #NotJustNECancer
7 days
@MGMcNamara And enlist patient feedback early, too. You can cope with alot when you know why.
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@ncukcharity
Neuroendocrine Cancer UK #NotJustNECancer
7 days
RT @OncoThor: It is not surprising to see that not all G2 panc NETs are created equal. Why would pNET w/ Ki67 of 4% behave the same as 20%.…
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