Boisterous Ben
@BenBoisterous
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Ben is 12, he suffers from severe intractable epilepsy. In 2019 Ben was given a UK private prescription for medicinal cannabis. I am campaigning for NHS access.
Joined June 2019
Where is the research money? The Dutch government have just put in 1.4 million into trials for paediatric treatment resistant epilepsy and the use of Bedrocan #cannabis oils. Why is @10DowningStreet not doing the same for the #children in the #uk.
@Hanseizuremum @BorisJohnson @MattHancock "It has moved more slowly than I'd hoped for a year ago." @MattHancock responds to calls for more families to have access to #medicalcannabis. More here
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The law change made it harder and more expensive to get our son’s medicinal cannabis.
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She said: “Minnie hasn’t got years to wait. She could be dead by then. “She has such bad side effects to anti-seizure medications that putting her on a new anti-seizure medication could kill her.” #endourpain
A mum's plea for the drug that could ease her child's suffering READ MORE:
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Why would they try bromide that is unlicensed but not a medication with a little THC in it?
Scots mum fights for cannabis drugs to 'save toddler' from horrific seizures
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Minnie has not got time to wait for U.K. trials to start in the U.K. She needs access now! Will @10DowningStreet allow more children to suffer?
It's outrageous that access to THC medicine is denied—even in palliative care. Why is death viewed as a more acceptable option than effective treatment? Minnie is on unlicensed potassium bromide after other treatments failed. @wesstreeting if that's permissible, why not cannabis oil with THC? #EndOurPain
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@wesstreeting Minnie should be allowed immediate access.
End our pain specifically raised Minnie’s case before Christmas! Minnie’s case highlights the urgent need for access to observational trials as was the case in 2013 for a child in a similar position. @wesstreeting, children need your immediate help!
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RT @Lara1273: When a prescription of medical cannabis massively reduces the number of seizures that a child has, keeps them well and out of…
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@marclanders I have seen it on some of my posts and @End_Our_Pain page. I thought it was just spam too.
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Today in Westminster Hall, politician’s debate the lack of NHS access to medicinal cannabis. Ben has been denied for 7 years! What is your MP doing to help those with chronic conditions? @wesstreeting @EndOurPain #lessthan5
#TikTok
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@Cuddy_Splatter @wesstreeting @End_Our_Pain I’ve played it outside parliament! People were shocked and stopped to ask us about it. That was for just a few hours.
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@wayneth10174652 @wesstreeting @End_Our_Pain It was heartbreaking for us to watch, completely powerless to help him.
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@Gamesreaper69 @wesstreeting @End_Our_Pain No they shouldn’t, especially when they have given the exact same medicine to three other children given government access. Also, a child in 2013 was given the first individual licence to obtain cannabis medicine before U.K. trials on an observational basis.
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@senmum05 I totally agree. I once said the same thing to a daily mail journalist who said she had never viewed it in that way. We give children morphine as treatment so we should be giving access to cannabis treatment.
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@MedCannUser @End_Our_Pain I would keep trying. If they continue to receive correspondence about the issue then they have to acknowledge there is a problem. Especially six years on!
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Please send your MP a letter and ask them to attend the debate by clicking on the link.
As we approach the important debate on medicinal cannabis access in Westminster Hall on January 30th we encourage all of you to take a moment to send a letter to your MP using the link below. Your support can make a difference in bringing attention to this vital issue. Let’s stand united! 👉 Find you MP Link: #WestminsterDebate #YourVoiceMatters
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RT @marclanders: "Marijuana cuts lung cancer tumor growth in half, study shows" The researchers aren't sure how THC stops tumors from grow…
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@marclanders @End_Our_Pain @RobinsonBee @AlastairFeeBBC @Fieldfisher Children have died waiting for access that was promised. They should be embarrassed by that. @End_Our_Pain group has a two year old child who stops breathing multiple times a day. The neurologists will give that child end of life care before trying a full extract cannabis oil.
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