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ALS Hope Foundation Profile
ALS Hope Foundation

@ALSHF

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The mission of the ALS Hope Foundation is to make a difference in the lives of people living with ALS through Care, Research and Education.

Philadelphia, PA
Joined June 2010
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@ALSHF
ALS Hope Foundation
9 months
RT @LyleOstrow: (THREAD) Attn: ALS Researchers! There are 3 WEEKS until the FY24 DoD @CDMRP #ALSRP LOI deadlines on June 18th. More info…
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@ALSHF
ALS Hope Foundation
9 months
RT @BrainstormCell: Sara Feldman, PT, DPT, ATP has been the Physical Therapist and Assistive Technology Professional at the MDA/ALS Center…
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@ALSHF
ALS Hope Foundation
9 months
RT @BrainstormCell: Terry-Heiman Patterson, MD @Heimanpatterson has been committed to #ALS since 1982 when she started her multidisciplin…
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@ALSHF
ALS Hope Foundation
9 months
RT @NEALSConsortium: Resource Announcement! Check out the ALS Guide to PT and OT, created by the NEALS Physical Therapist/Occupational Ther…
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@ALSHF
ALS Hope Foundation
9 months
RT @MDA_Advocacy: You still have ⏲️ to send comments to @USDOT on the monumental proposal to improve the #flying experience for passengers…
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@ALSHF
ALS Hope Foundation
1 year
RT @iamalsorg: The 2024 I AM ALS Community Summit and flag event will be from May 29th - June 1st, and there is still plenty of time to add…
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@ALSHF
ALS Hope Foundation
1 year
RT @R1_Crew: The ALS Clinic Advisor is a powerful resource because of YOU! Your insights help identify best practices that can improve the…
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@ALSHF
ALS Hope Foundation
1 year
RT @MNDScotland: Breaking news - tofersen has been recommended for approval by the EMA for the treatment of people with SOD1 MND. We will p…
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@ALSHF
ALS Hope Foundation
1 year
RT @LyleOstrow: @alsassociation @MDAorg @LesTurnerALS @iamalsorg Don't forget @ALSHF! I see Dr. @HeimanPatterson in your pic and she has wo…
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@ALSHF
ALS Hope Foundation
1 year
RT @mndresearch: 📢 The International Symposium on #ALS #MND is back for its 35th year! 📢 📆 6 – 8 December 2024 📍 Montreal, Canada ✍️ Abstr…
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@ALSHF
ALS Hope Foundation
1 year
RT @YourALSguide: This is an amazing new resource for the ALS community. Thank you Nadia and @ALSTDI team!
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@ALSHF
ALS Hope Foundation
1 year
RT @MDAorg: #MDA is pleased to announce @limpbroozkit, #ALS patient and advocate, as the Keynote Speaker at the 2024 MDA Clinical & Scienti…
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@ALSHF
ALS Hope Foundation
1 year
RT @alsassociation: We joined #ALS physicians, @MDAorg, @LesTurnerALS, and @iamalsorg on the Hill yesterday to advocate together for a bill…
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@ALSHF
ALS Hope Foundation
1 year
Dr Terry Heiman-Patterson joined with other ALS organizations & advocates to discuss the ALS Better Care Act (HR 5663/S.3258). This is critical legislation that will provide essential access to multidisciplinary care and clinical trials for people with ALS. Thank you!
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@ALSHF
ALS Hope Foundation
1 year
RT @RunningMama0522: This past weekend I had the opportunity to serve as a Research Ambassador Mentor for a class of the @NEALSConsortium C…
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@ALSHF
ALS Hope Foundation
1 year
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@ALSHF
ALS Hope Foundation
1 year
RT @End_The_Legacy: We debuted as a formal non-profit in 2023 with support from @ALSHF . One year later - our self report! And at the botto…
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@ALSHF
ALS Hope Foundation
1 year
RT @LiveLikeLou4: Need a last-minute gift for your favorite person living with ALS? 🎁 Check out our friend @SarahNauser's gift guide. She p…
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@ALSHF
ALS Hope Foundation
1 year
RT @MDA_Advocacy: Sharing great news from our partnership with @TSA, covering @MindyHSpeaks's experience with excellent customer service at…
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@ALSHF
ALS Hope Foundation
1 year
RT @MDA_Advocacy: The ALS Better Care Act, championed by bipartisan leaders, ensures #Medicare coverage for vital #ALS services like physic…
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