Brooke Eby
@limpbroozkit
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Last Seen Profiles
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@MrBeast
@MrBeast
hear me out- I’m 34 with a terminal disease called
#ALS
(don’t I look just like Lou Gehrig?). Let’s get your $ toward a cure for a devastating, underfunded disease that kills someone every 90 minutes. You can be the next
#icebucketchallenge
.
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Throwing out the first pitch at the O’s game! Scariest moment of my lifeeee
#als
#lougehrigsdisease
#orioles
#baseball
#mlb
#firstpitch
@Orioles
@MLB
@SlangsOnSports
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Throwing out the first pitch at the
@Nationals
game tonight for Lou Gehrig day!!!!
#imodium
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Day 19 of ALS Awareness month! Featuring my roommate, draymond.
#alsawarenessmonth
#als
#lougehrigsdisease
#apartment
#adaptive
#wheelchair
#accessibility
#handicap
#mtvcribs
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I’m going to be on the TODAY SHOW tomorrow 5/18 at 8:09 am highlighting my ALS story with
@SavannahGuthrie
❤️ Set your recorders!
#als
#todayshow
#savannahguthrie
#endALS
@TODAYshow
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Day 20 of ALS Awareness month! ProfessionALS unite
#alsawarenessmonth
#als
#lougehrigsdisease
#work
#salesforce
#career
#dayjob
#workfromhome
#tech
#insurance
#benefits
#disability
#guardianangel
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Day 30 of ALS Awareness month! One day left 🥹 love you all for asking questions this month ❤️
#als
#alsawarenessmonth
#lougehrigsdisease
#outlook
#diagnosis
#positivity
#terminal
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Day 12 of ALS Awareness month! Intro to Brackie 101
#als
#alsawarenessmonth
#lougehrigsdisease
#diagnosis
#support
#bestfriend
#humor
#funny
#31days
#day12
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Day 29 of ALS Awareness month: Memorial day edition! Two days left- what haven’t I covered??
#als
#alsawarenessmonth
#lougehrigsdisease
#veteran
#memorialday
#service
#va
#veteransaffairs
#serviceconnecteddisability
#alsveteran
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Final nyc travel day! Homeeee for the holidays
#wheelchair
#travel
#traveldiaries
#nyc
#als
#accessibility
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Day 31 of ALS Awareness month! 🎶And nowww the enddd is neeeearrr 🎶
#alsawarenessmonth
#als
#lougehrigsdisease
#support
#donate
#help
#research
#cure
#terminal
#share
#wediditjoe
@ALSTDI
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Day 24 of ALS Awareness month! ONE WEEK LEFT hit me with all your burning questions ❤️
#als
#alsawarenessmonth
#lougehrigsdisease
#diagnosis
#prognosis
#neurology
#neurodegenerative
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DAY 31: 1. share 2. donate 3. brainstorm how you can help
#als
#advocate
#terminal
#fundraiser
#awareness
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meet the new chair! A Permobil M3 fit by Numotion (PS Brendan is single for the LA girls)
#wheelchair
#als
#disability
@PermobilGlobal
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Day 14 of ALS Awareness month! Dating with a diagnosis and multiple lipstick redos.
#als
#alsawarenessmonth
#lougehrigsdisease
#dating
#diagnosis
#support
#day14
#31days
#
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ALS progression in visual form. Even the slowest ALS progression is still too fast.
#findacure
#endals
#heralsstory
#disability
#terminal
#alsawareness
#lougehrig
@HerALSStory
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Let the countdown to 9/27 BEGIN!!!!
#als
#lougehrigsdisease
#nurown
#fda
#adcom
#terminalillness
#advisorycommittee
#medicine
#brainstorm
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loved this respiratory therapist, she made it so not scary
#als
#breathing
#ventilator
#respiratorytherapist
#inhomecare
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Day 22 of ALS Awareness month! Let’s hear it for Cliff and Ginny!
#als
#alsawarenessmonth
#lougehrigsdisease
#parents
#parenting
#disability
#disabilityparenting
#momlife
#dadsoftiktok
#family
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Day 23 of ALS Awareness month! Releaseee the resources
#als
#alsawarenessmonth
#resource
#supportgroup
#support
#equipment
#wheelchair
#lougehrigsdisease
#disability
#iamals
#newlydiagnosed
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Dating after a scary diagnosis: the follow up
#lanchparty
#ALS
#dating
#lovestory
#single
#endALS
#findacure
#firstdate
#disability
#disabilitytwitter
#disabilityawareness
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You are all INSANE. THANK YOU for sparking a match for the ALS community ❤️💙
#als
#lougehrigsdisease
#fundraiser
#donate
#anonymousdonor
#match
#wediditjoe
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Day 25 of ALS Awareness month! Chchchchangessss
#als
#alsawarenessmonth
#lougehrigsdisease
#diagnosis
#neurology
#change
#bodychange
#physicalchange
#symptoms
14
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272
Day 28 of ALS Awareness month - PART 2! If you want to help, call your congressperson and recommend Nurown’s FDA approval.
#als
#alsawarenessmonth
#lougehrigsdisease
#neurology
#fda
#clinicaltrial
#endpoint
#nurown
#treatment
#medicalnews
#congress
#advisorycommittee
#adcom
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By the way, Dray didnt get out of bed once throughout the entire ordeal
#als
#fall
#fallrisk
#wheelchair
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Thank you
@salesforce
for giving us the mf’ing DREAMFORCE STAGE! Will share what we presented in just a couple weeks 😅
#dreamforce
#alstogether
#df24
#alsforce
#slack
@Dreamforce
@dhdresser
@MJSulli
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Trolls: Brooke you’re a joke and not helpful, you should live and share your shortened life only in the way I want you to
Me: (shines a spotlight on their trolling for people to see)
Trolls: Wait wait wait everyone remember to BE KIND
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Day 11 of ALS Awareness month! Armed with my diagnooosis
#alsawarenessmonth
#als
#lougehrigsdisease
#diagnosis
#emg
#clinic
#badnews
#doctor
#family
#31days
#day11
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Day 9 of ALS Awareness month! Limb vs bulbar onset and an inappropriate use of air quotes
#als
#alsawarenessmonth
#lougehrigsdisease
#limb
#bulbar
#onset
#limbonset
#bulbaronsetals
#speech
#swallowing
#limp
#diagnosis
#slurred
#31days
#day9
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Taking my motorized wheelchair on its maiden train voyage! PS this reads as a paid ad for the train but I swear it’s not I was just excited it was easy
#wheelchair
#motorizedwheelchair
#amtrak
#train
#accessibility
#handicap
#wheelchairfriendly
#handicapaccessible
#als
#lougehrig
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Day 16 of ALS Awareness month! Let’s leave no question unanswered- what else ya got??
#als
#lougehrigsdisease
#alsawarenessmonth
#fivewishes
#medicaldirective
#will
#advanceddirective
#diagnosis
#illness
#endoflife
#31days
#day16
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Day 4 of ALS Awareness Month! Thank you for joining in the conversation and keep firing away!
#alsawarenessmonth
#als
#raredisease
#notrare
#incidence
#research
#estimate
#prevalence
#lougehrigsdisease
#illness
#31days
#day4
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Go through one year of ALS with me!
#ALS
#endALS
#findacure
#wheelchair
#mobilityaid
#afo
#braces
#rollator
#walking
#neurodegenerative
#orthotist
#orthotics
#oneyear
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Explaining The Levity Project. All choppy camera work blamed on my inability to talk about this without getting choked up ❤️
#als
#alstdi
#salesforce
#coworkers
#thelevityproject
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Attempting a video a day for ALS Awareness month on TikTok/insta! Follow along!
#ALS
#ALSAwarenessMonth
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Day 27 of ALS Awareness month! What other sayings should I bank….
#als
#alsawarenessmonth
#lougehrigsdisease
#neurodegenerative
#voicebanks
#voicebanking
#speechpathology
#slp
#speechlanguagepathologist
#jennifercoolidge
@TeamGleason
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36 hours until I speak at the Nurown adcomm. Hit me with your best advice!!
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It is Global ALS Awareness day.
#icebucketchallenge
#als
#lougehrigsdisease
#globalalsawarenessday
#mnd
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AMA day 6 for ALS Awareness month ❤️ ask anything in the comments!
#als
#ama
#lifeupdate
#vlog
#breakup
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day 7! I think I may be ableist toward my own degenerating body but sharing my inner thoughts nonetheless
#ableism
#bodypositivity
#disability
#differentlyabled
#bodyimage
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Feb 2024 ALS clinic part 1: neuro exam
#als
#neurology
#clinic
#exam
#neurodegenerative
#strengthtest
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AMA day 2 for ALS Awareness month ❤️ ask anything in the comments!
#als
#mystory
#healthjourney
#oversharing
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Day 26 of ALS Awareness month! Meet some partners/primary caregivers
#als
#alsawarenessmonth
#lougehrigsdisease
#neurodegenerative
#caregiver
#caregiving
#partners
#marriage
#throughsicknessnhealth
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10 year anniversary of the Ice Bucket Challenge for ALS 🧊
#als
#icebucketchallenge
#endals
@alsassociation
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Day 18 of ALS Awareness month! A lot of “turns out” in this one
#als
#alsawarenessmonth
#lougehrigsdisease
#misconceptions
#wrong
#rumors
#didyouknow
#icebucketchallenge
#turnsoutthat
#raredisease
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Day 17 of ALS Awareness month! Ya win some pizza parties ya lose some pizza parties
#als
#alsawarenessmonth
#lougehrigsdisease
#positivity
#silverlining
#goodnews
#support
11
25
214
Day 34 of ALS Awareness! We thought this would look like a professional medical video but it’s like a weird home video
#als
#lougehrigsdisease
#icebucketchallenge
#footdrop
#neurology
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