Brooke Eby
@limpbroozkit
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@MrBeast @MrBeast hear me out- I’m 34 with a terminal disease called #ALS (don’t I look just like Lou Gehrig?). Let’s get your $ toward a cure for a devastating, underfunded disease that kills someone every 90 minutes. You can be the next #icebucketchallenge.
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Throwing out the first pitch at the O’s game! Scariest moment of my lifeeee #als #lougehrigsdisease #orioles #baseball #mlb #firstpitch @Orioles @MLB @SlangsOnSports
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ALS Progression update- 2.5 years into diagnosis, 6 years into symptoms #als #diseaseprogression #neurodegenerative
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Throwing out the first pitch at the @Nationals game tonight for Lou Gehrig day!!!! #imodium.
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Day 19 of ALS Awareness month! Featuring my roommate, draymond. #alsawarenessmonth #als #lougehrigsdisease #apartment #adaptive #wheelchair #accessibility #handicap #mtvcribs
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11/12. Current & former ALS caregivers, watch this space #alstogether #caregivers #cALS #MomsCameraShy
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I’m going to be on the TODAY SHOW tomorrow 5/18 at 8:09 am highlighting my ALS story with @SavannahGuthrie ❤️ Set your recorders! #als #todayshow #savannahguthrie #endALS @TODAYshow
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Day 20 of ALS Awareness month! ProfessionALS unite #alsawarenessmonth #als #lougehrigsdisease #work #salesforce #career #dayjob #workfromhome #tech #insurance #benefits #disability #guardianangel
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Day 30 of ALS Awareness month! One day left 🥹 love you all for asking questions this month ❤️ #als #alsawarenessmonth #lougehrigsdisease #outlook #diagnosis #positivity #terminal
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Day 29 of ALS Awareness month: Memorial day edition! Two days left- what haven’t I covered?? #als #alsawarenessmonth #lougehrigsdisease #veteran #memorialday #service #va #veteransaffairs #serviceconnecteddisability #alsveteran
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Day 12 of ALS Awareness month! Intro to Brackie 101 #als #alsawarenessmonth #lougehrigsdisease #diagnosis #support #bestfriend #humor #funny #31days #day12
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Day 31 of ALS Awareness month! 🎶And nowww the enddd is neeeearrr 🎶 #alsawarenessmonth #als #lougehrigsdisease #support #donate #help #research #cure #terminal #share #wediditjoe @ALSTDI
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Day 24 of ALS Awareness month! ONE WEEK LEFT hit me with all your burning questions ❤️ #als #alsawarenessmonth #lougehrigsdisease #diagnosis #prognosis #neurology #neurodegenerative
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meet the new chair! A Permobil M3 fit by Numotion (PS Brendan is single for the LA girls) #wheelchair #als #disability @PermobilGlobal
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ALS progression in visual form. Even the slowest ALS progression is still too fast. #findacure #endals #heralsstory #disability #terminal #alsawareness #lougehrig @HerALSStory
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loved this respiratory therapist, she made it so not scary #als #breathing #ventilator #respiratorytherapist #inhomecare
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Day 22 of ALS Awareness month! Let’s hear it for Cliff and Ginny! #als #alsawarenessmonth #lougehrigsdisease #parents #parenting #disability #disabilityparenting #momlife #dadsoftiktok #family
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Day 23 of ALS Awareness month! Releaseee the resources #als #alsawarenessmonth #resource #supportgroup #support #equipment #wheelchair #lougehrigsdisease #disability #iamals #newlydiagnosed
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Dating after a scary diagnosis: the follow up #lanchparty #ALS #dating #lovestory #single #endALS #findacure #firstdate #disability #disabilitytwitter #disabilityawareness
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Day 25 of ALS Awareness month! Chchchchangessss #als #alsawarenessmonth #lougehrigsdisease #diagnosis #neurology #change #bodychange #physicalchange #symptoms
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You are all INSANE. THANK YOU for sparking a match for the ALS community ❤️💙 #als #lougehrigsdisease #fundraiser #donate #anonymousdonor #match #wediditjoe
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By the way, Dray didnt get out of bed once throughout the entire ordeal #als #fall #fallrisk #wheelchair
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Thank you @salesforce for giving us the mf’ing DREAMFORCE STAGE! Will share what we presented in just a couple weeks 😅 #dreamforce #alstogether #df24 #alsforce #slack @Dreamforce @dhdresser @MJSulli
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Day 11 of ALS Awareness month! Armed with my diagnooosis #alsawarenessmonth #als #lougehrigsdisease #diagnosis #emg #clinic #badnews #doctor #family #31days #day11
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Trolls: Brooke you’re a joke and not helpful, you should live and share your shortened life only in the way I want you to .Me: (shines a spotlight on their trolling for people to see).Trolls: Wait wait wait everyone remember to BE KIND.
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Taking my motorized wheelchair on its maiden train voyage! PS this reads as a paid ad for the train but I swear it’s not I was just excited it was easy #wheelchair #motorizedwheelchair #amtrak #train #accessibility #handicap #wheelchairfriendly #handicapaccessible #als #lougehrig
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Day 16 of ALS Awareness month! Let’s leave no question unanswered- what else ya got?? #als #lougehrigsdisease #alsawarenessmonth #fivewishes #medicaldirective #will #advanceddirective #diagnosis #illness #endoflife #31days #day16
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Day 4 of ALS Awareness Month! Thank you for joining in the conversation and keep firing away! #alsawarenessmonth #als #raredisease #notrare #incidence #research #estimate #prevalence #lougehrigsdisease #illness #31days #day4
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Thrill of my lifeeee, thank you @1capplegate 💙💙💙.
On today’s MeSsy podcast we talk to this incredibly funny and wise and wonderful human. Brooke Eby. And she has ALS! Listen today wherever you get your podcasts. Then if you haven’t already, go back and listen from episode 1 xo
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Explaining The Levity Project. All choppy camera work blamed on my inability to talk about this without getting choked up ❤️ #als #alstdi #salesforce #coworkers #thelevityproject
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Go through one year of ALS with me!#ALS #endALS #findacure #wheelchair #mobilityaid #afo #braces #rollator #walking #neurodegenerative #orthotist #orthotics #oneyear
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Attempting a video a day for ALS Awareness month on TikTok/insta! Follow along! #ALS #ALSAwarenessMonth
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Day 27 of ALS Awareness month! What other sayings should I bank…. #als #alsawarenessmonth #lougehrigsdisease #neurodegenerative #voicebanks #voicebanking #speechpathology #slp #speechlanguagepathologist #jennifercoolidge @TeamGleason
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day 7! I think I may be ableist toward my own degenerating body but sharing my inner thoughts nonetheless #ableism #bodypositivity #disability #differentlyabled #bodyimage
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Feb 2024 ALS clinic part 1: neuro exam #als #neurology #clinic #exam #neurodegenerative #strengthtest
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Day 26 of ALS Awareness month! Meet some partners/primary caregivers #als #alsawarenessmonth #lougehrigsdisease #neurodegenerative #caregiver #caregiving #partners #marriage #throughsicknessnhealth
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10 year anniversary of the Ice Bucket Challenge for ALS 🧊 #als #icebucketchallenge #endals @alsassociation
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Day 18 of ALS Awareness month! A lot of “turns out” in this one #als #alsawarenessmonth #lougehrigsdisease #misconceptions #wrong #rumors #didyouknow #icebucketchallenge #turnsoutthat #raredisease
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Day 17 of ALS Awareness month! Ya win some pizza parties ya lose some pizza parties #als #alsawarenessmonth #lougehrigsdisease #positivity #silverlining #goodnews #support
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Day 34 of ALS Awareness! We thought this would look like a professional medical video but it’s like a weird home video #als #lougehrigsdisease #icebucketchallenge #footdrop #neurology
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Come with me to the Capitol for ALS! (FYI storming the Capitol jokes aren’t funny yet) #kickALS #ALS #ALSawareness #advocacy #advocate #capitol #dc #weneedacure #legislators #fightforacure #wheelchair #disability #lougehrigsdisease #morethanourstories #conference
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