ALS Advocacy
@alsadvocacy
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ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
Stanford MedX ePatient Scholar
Joined February 2009
RT @PurdueDivers: @PurdueSports .@CSCAA: "Adam has produced champions & mentored young athletes with deep care and respect. His legacy will…
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RT @PurdueSports: .@CoachSoldati is the first diving coach ever to win the @CSCAA's top honor -- the National Collegiate & Scholastic Troph…
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RT @TeamGleason: It was great to be with @tim_cook at the Super Bowl. Team Gleason is proud to have a partner like 2025 Game Changer Tim C…
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RT @pknoepfler: Several states including MA and CA have filed suit today to stop the NIH indirect cut HT @jgschraib…
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RT @alsadvocacy: Shoot, some even pay to come up first when you google "ALS advocacy" If we lose a strong NIH, the entire fight against AL…
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RT @jan_nolta: To better understand the impact of the new administration‘s gutting of NIH indirect costs, please know that money is basical…
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RT @LiveLikeLou4: Happy Super Bowl Sunday! 🏈 Fun fact: Before becoming a baseball legend, Lou Gehrig was recruited by Columbia University…
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RT @charlesornstein: While other media accounts have detailed several key moments in the blitzkrieg on USAID, this article provides new det…
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The message that all 3 branches of govt need to hear today is simple. Science matters.
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While we're at it, @CPathInstitute has an important role in our publicly funded ALS research. How about a strong statement on the importance of the work that NIH and FDA do, please? It's nuts for us to sit silently while we lose important research infrastructure and resources.
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Shoot, some even pay to come up first when you google "ALS advocacy" If we lose a strong NIH, the entire fight against ALS loses. Where are you @alsassociation @alshf @iamalsorg @ALSTDI @youralsnetwork @NHCouncil @TargetALS_fdn et al ???
Google "als advocacy" A LOT of ALS 501c3s pop up. Not one has spoken out on the importance of NIH funding for ALS research. Crickets. That is not ALS advocacy. An important research vehicle is under imminent attack & we get crickets from the people who are paid to advocate.
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Google "als advocacy" A LOT of ALS 501c3s pop up. Not one has spoken out on the importance of NIH funding for ALS research. Crickets. That is not ALS advocacy. An important research vehicle is under imminent attack & we get crickets from the people who are paid to advocate.
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Trump threatened college research, culture and funding. Confusion reigns.g
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We finally got NIH to take ALS more seriously and invest more... and now this...
NIH cuts billions of dollars in biomedical funding, effective immediately
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