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Your ALS Guide Profile
Your ALS Guide

@YourALSguide

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A user-friendly website where people living with ALS, caregivers, and professionals can find educational guides, expert video clips, resources, and more...

Joined September 2022
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@YourALSguide
Your ALS Guide
@YourALSguide
2 years
After a year of collaboration with families and professionals across the #ALS community, our new ALS Home and Daily Living Guide is now live! A special thank you to @ALSHF for their guidance and support. Visit
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@YourALSguide
Your ALS Guide
@YourALSguide
6 hours
As ALS progresses, it can be hard to consider giving up the independence that comes with driving. Learn how to gauge whether you can still drive safely at #als #endals
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@YourALSguide
Your ALS Guide
@YourALSguide
7 days
Assistive devices like toilet safety frames, portable commodes, bidets, and raised toilet seats can improve bathroom safety and independence. Learn more at #als #endals #alsindependence
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@YourALSguide
Your ALS Guide
@YourALSguide
14 days
Our ALS Home and Daily Living Guide aims to help people living with ALS improve everyday quality of life and empower caregivers with knowledge, skills, and resources. Learn more at #als
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@YourALSguide
Your ALS Guide
@YourALSguide
14 days
RT @AndreaBackman05: Join me, Dr. James Barry of @MGHNeurology, Shubhangi Lal of FNIH & ppl w/lived experience at the @everything_als webin…
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@YourALSguide
Your ALS Guide
@YourALSguide
21 days
You do not have to go through this alone. Many caregivers and people living with ALS find it helpful to share, connect, and learn from others in similar situations. Learn more at #als #alssupport #alsresources
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@YourALSguide
Your ALS Guide
@YourALSguide
28 days
When you’re living with a disease like ALS, tending to your mental health can help you find peace of mind and have a renewed sense of control. Learn how you can improve your mental, emotional, social, and physical well-being at #als #MentalHealthMatters
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@YourALSguide
Your ALS Guide
@YourALSguide
1 month
RT @NEALSConsortium: Don’t miss our webinar on January 15th: "Expanded Access Programs in ALS: What Have We Learned, Where Do We Go from He…
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@YourALSguide
Your ALS Guide
@YourALSguide
1 month
Start off the new year by learning what you can do to experience a better quality of life. Find recommendations and information about nutrition, sleep, stretching, exercise, and more at #als #alsselfcare #endals
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@YourALSguide
Your ALS Guide
@YourALSguide
1 month
#als #endals #alsselfcare
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@YourALSguide
Your ALS Guide
@YourALSguide
1 month
#ALS #ENDALS
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@YourALSguide
Your ALS Guide
@YourALSguide
2 months
#ALS #ENDALS #HappyHolidays
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@YourALSguide
Your ALS Guide
@YourALSguide
2 months
We have partnered with Pat Dolan and team to merge our ALS Clinics Directory into their ALS Clinic Advisor Locator, which is now the most comprehensive, up-to-date directory of ALS clinics in the U.S. and around the world. Take a look: @ALSClinicSurvey
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@YourALSguide
Your ALS Guide
@YourALSguide
2 months
RT @PVA1946: Airport security shouldn’t be a Veteran’s hardest mission! ✈️ The House passed the VETS Safe Travel Act, which gives FREE @TS…
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@YourALSguide
Your ALS Guide
@YourALSguide
2 months
The word "legacy" can mean different things to different people. Here we are talking about leaving a meaningful emotional legacy for loved ones. Learn more on our new Legacy page: #ALS
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@YourALSguide
Your ALS Guide
@YourALSguide
2 months
Twice a month, we share helpful tips, resources, and information to help you navigate the road ahead. Sign up for our free newsletter at to stay up-to-date on new #ALS content, equipment, and more. #ENDALS
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@YourALSguide
Your ALS Guide
@YourALSguide
2 months
We would like to remind the #ALS community that today is Giving Tuesday, which means that it is a good time to make a donation to an ALS nonprofit organization that has provided meaningful support to you or your loved ones. #GivingTuesday
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@YourALSguide
Your ALS Guide
@YourALSguide
2 months
#ALS #NationalFamilyCaregiversMonth #ENDALS
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@YourALSguide
Your ALS Guide
@YourALSguide
3 months
#ALS #NationalFamilyCaregiversMonth #ENDALS
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@YourALSguide
Your ALS Guide
@YourALSguide
3 months
RT @ALSofGNY: Your advocacy matters! The bipartisan Senator Elizabeth Dole 21st Century Veterans Healthcare and Benefits Improvement Act ha…
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@YourALSguide
Your ALS Guide
@YourALSguide
3 months
Respite care can help #ALS family caregivers avoid burnout by providing much-needed breaks. Depending on your local resources and support network, you may be able to find caregiving help at no cost. Learn more at #Respitecare #NationalFamilyCaregiversMonth
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