Just made this acc with the intention of finding support/info from other chronically ill/disabled people. I’m undiagnosed but have MS-like symptoms. Can anyone recommend me some good accounts to follow?
#NEISvoid
@rowdyburns1978
@runolgarun
You just awakened the bitch in me. I will not entertain this conversation anymore but here are some notes: Thats another straw man fallacy. They don’t make sense and you don’t actually dispute anything AT ALL. Maybe you have a point, but I wouldn’t know it.
@KarlaValliere
@cvspharmacy
Aetna/CVS denied me medication that was prescribed and given to me during an 11 day hospital stay. Not only was it unsafe to stop suddenly, my symptoms have gone unmanaged since. (I gave up on getting it filled) Infuriating to do this to anyone, but a child?? I’m so sorry.
@vvictorman_uel
@YesAnastasia13
@cenobyte3
Honestly going to the ER sounds like the best bet. You’re in a life threatening situation. It is warranted, you are trapped. I encourage you to call 911 ♥️ I hate that this is happening to you, something similar happened to me but I am much safer. I am here for you
did an at home tilt table “test” and I think I fit the diagnostic criteria for POTS lmao I’m just confused bc I’d been diagnosed with PSVT. Can I have both? I’m feeling very uninformed rn lol
#NEISvoid
feeling pretty brain fog-y right now
Being hit with a hard sudden wave. Fatigue, restlessness, widespread pain & extreme weakness. General malaise. Kinda feels like a flu but I know it’s not. I never know how to help myself.
#NEISvoid
help?
So Liquid IV doesn’t have the 30% off discount anymore but I emailed them and they offer 15%. POTS15. Hope this helps friends
#pots
#dysautonomia
#NEISvoid
@rozietoez
@uncanny_eli
@lisaquestions
You basically described me in the first part of your tweet so I am here to say that I am wholly unqualified and would never think to speak on trans women’s experiences 😌
“Cease fires are temporary by definition” FUCK OFF this messaging is detrimental to the cause. A temporary ceasefire isn’t enough and no amount of Webster entries are gonna change that.
This isn’t it. Reframe. We should all be able to afford those prices actually . No way people aren’t being exploited at prices less than that. Imagine a world where people are fairly paid, and able to pay fairly
@DK4balls
@WhitneysWave
@RescueATX
Are you lying just for fun or what. She’s signing to a room of people… If I were in the back and someone was signing tiny I would not understand. coming from someone who’s used interpreters’ services.
@JoannaNoBanana
Standing up & the heat/humidity the kitchen. Also, having no appetite = No motivation to go through the pain of cooking. What’s the point
@DesertRetro
Because the movement is using the word ceasefire. Look up the term “semantic shift.” (An academic term for your comfort.) I don’t know of any papers specific to the word ceasefire and its usage in this movement, so you’re gonna have to do a lil critical thinking on your own bud.
@bennessb
Thank you for saying this!!! My therapist and boyfriend always try to remind me that it’s real, but hearing this from another disabled person is so incredibly validating
a lot of suicides are caused by people not having enough money. i think any suicide fund that is for "raising awareness" is complete bullshit & that money should be given directly to people whose suicides will be prevented by improving their material conditions
I’m a grantwriter. I just got news that a grant I submit on behalf of a client was awarded. She will get $250,000 to build a mobile covid clinic for underserved areas. It feels like such a win and I am so proud to have contributed to something like this.
@zukosmadre
@m3jstile
Disabled people know it’s expensive. You’re not a hero for saying shit we already say. You’re speaking over us, real disabled people, which is ableist. God damn stop playing the victim. You could be learning so much but you wanna protect your ego instead.
@JoannaNoBanana
I want to feel better , but also use the energy I do have in healthier ways, & feed destructive habits less. I feel like the bar is ridiculously high for me to actually reach comfort but I’d still like to try.
I spent approx 5 min in a coffee shop today. [even though I had an abdominal surgical garment AND my cane AND I have bruises on my face from falls AND I look like I spent the last week experiencing post op complications because I WAS] I felt the chemicals in my brain reset
@KittyDotty
I am so sorry! I’m going through pretty much the exact same thing. I have a surgery scheduled next month and I have no idea how I’ll wake up. So scary. People really don’t understand how severe endo can become.
@gummyribs
The whites of my eyes are blue tinted and I am now obsessed with looking at the whites of everyone’s eyes just to see how fucked I might be lol
I have a secret lil health Instagram if anyone wants to follow each other there too. It’s private because.. I mean I share pretty private shit lol. Videos of symptoms or whatever. I just want to curate who sees it. But yeah it’s @ secrettoot .
#NEISvoid
#POTS
#chronicillness
@DeafOn4Wheels
Actually now that I’m thinking about it. My hands started going bad a few months before the quarantines started and I was still seeing my Deaf friends. So after a while I just couldn’t add much to the convo. My friends still understood me but my signing was … clammy lmao
We’re gonna see them pick up violence again and we’re all supposed to be happy because “we got a ceasefire, isn’t that what you wanted?” I won’t accept any less than a free Palestine, and I won’t let the dictionary gaslight me into acceptance.
Just sent a cold email about what could be a dream job? Accepting thoughts, prayers, lit candles, brujeria, vibes, whatever has love and supportive intentions
The more I talk to doctors and others who know what hEDS is the more I’m like “wow I’ve really had this my while life haven’t I?” Today’s unexpected connection? hEDS ->constipation
I don’t think there is a single part of the body or body system this disease doesn’t affect.
My heart breaks endlessly for the disabled Palestinians who should be treated with care and dignity but are instead faced with inhumane conditions that the world’s healthiest could not endure.
@NeuroArchie
@zukosmadre
it’s either “luxuries” (heavy on the eye roll) or go hungry and those are choices people literally alternate between every day. Cooking isn’t cheap either like ??? 🙃 The ableds cannot conceptualize this.
Was worried about using my cane at an appointment for something unrelated (can someone explain this insecurity? tf)
During the evaluation she said “oop! You should be a lot stronger than this” and “I can see why neuro recommended this” lol so it ended up being quite validating
@ManuSmriti2018
No because im a commoner in Texas. Im also not keeping any Jews hostage so the second question does not apply to me. I don’t really know why you’re asking these questions but I hope I answered them.
@DeafOn4Wheels
I feel like I am on the very light end of this spectrum. I’m HoH, but I have significant weakness in my arms and after too much use, my hands close up. Although these days I have no one to sign with anyway.I can empathize but I’m a long way away from how frustrating this can get.
Lyrica is a god send for me . I felt like getting dirty so I took care of some overgrown grass that was spilling over to the concrete. It felt fucking amazing. Haven’t done something like that in years
At one of my ER visits for post surgical complications, I found out I have multiple cysts on my kidneys and abnormal tissues in my liver. Should be fine right? I’m not in a medical death spiral right?
#neisvoid
From someone on Tik Tok “Our neighbor just had a total knee replacement. No pain meds. He’s at the ER on Xmas Eve as he is suicidal from the pain.” This country is making people who don’t have mental health issues want to die bc we don’t treat pain. Disgusting.
I keep choosing not to k-ll myself. It’s fucking hard lol. The thing that kept me here the most was thinking of how I’d hurt my parents. Turns out they wouldn’t have cared.
I’m so happy to be out as a pothead with my family. After years and years they are finally seeming to be fine with it and even a little interested in trying it
@chillax_chill
@sarasmasoud
What is a society made up of 50% children who cannot do anything without israeli permission supposed to do with “16B$”
Money’s value is what you can buy with it. They cannot buy anything with it. It is worthless.
Not very chill of you. Learn how to shut up
The universe has, on a few occasions, presented me sick, dying or passed creatures to comfort and care for. It is an honor and privilege that I take seriously.
I found this bee while gardening. No interest in sugar water. I brought him in to finish his life cycle here in peace.
I wonder if I really have high BP or if it’s just me being in pain. Having a mental health diagnoses on top of physical ones means everything is written off as anxiety
Got so stuck in my body I forgot it could be pretty. I didn’t realize I wasn’t loving myself enough. I deserve more than health care - we all do - and I’m going for it
My boss is neurodivergent and she gets me and I get her and I am THRILLED like we started our one on one with a Buffy reference and ended with warm fuzzies about needing fuck around time to make good work. She’s the same 🥺
@IsabelC18904528
@eggyonline
My legs look like this a lot, but only when standing. Blood pooling is the term I’ve heard before? Best of luck to you. ♥️