Mojoroxy 💛🦋#longcovid
@roxy_mojo
Followers
13,437
Following
14,349
Media
3,772
Statuses
52,773
Blessed Be 🌕 #longcovid since 3/2020 #MECFS #4yearsurvivors
between worlds 🌊 🌙
Joined September 2017
Don't wanna be here?
Send us removal request.
Explore trending content on Musk Viewer
Arlington
• 560715 Tweets
All Out
• 527552 Tweets
Se o Twitter
• 340559 Tweets
Colorado
• 101166 Tweets
#CrisMorenaDay
• 97456 Tweets
Alexandre de Moraes
• 88589 Tweets
Pope
• 47856 Tweets
Valência
• 46209 Tweets
Vatican
• 44580 Tweets
De La Cruz
• 35896 Tweets
Fever
• 30065 Tweets
Bahia
• 28323 Tweets
Fireboy
• 28210 Tweets
#ラヴィット
• 27843 Tweets
lali
• 26863 Tweets
#AEWDynamite
• 24362 Tweets
NENA
• 24356 Tweets
Se o X
• 20086 Tweets
joaquin
• 19182 Tweets
Xandão
• 17498 Tweets
焼肉の日
• 14779 Tweets
Kaio Jorge
• 12215 Tweets
Bluesky
• 12102 Tweets
Adeus Twitter
• 11760 Tweets
My 8 year old son has Down syndrome and has extremely limited speech. Today he asked me for “kissies” for the first time. Best day of my life.
695
642
22K
Isn’t glass actually recyclable? And it doesn’t leave our bodies full of microplastic and wreck the environment? No more plastics. Go back to glass for everything except medical lifesaving equipment.
123
616
5K
@BuzzFeed
Then why didn’t you stop the show when the ambulances were coming into the crows as you kept performing ?
12
28
2K
So when we discuss the cognitive dysfunction of
#longcovid
we should be clear. It’s not a “did I get the mail yet, did I turn off the lights” kind of thing. It’s a - I have an advanced degree and I can’t read and comprehend a text, kind of thing. like waking up on another planet.
52
362
1K
My former student and now friend, an epidemiologist, has
#longcovid
now. Diagnosed with “massive systemic inflammation”. Shes been trying to exercise her way out of it. Now she’s toasted. She’s 27 years old. 💔
208
257
1K
@donwinslow
@GovChristie
I’m a mom of four. One of my kids has Down syndrome. He had open heart surgery. Another has asthma. Two are under age 4. I have high risk kids. And when I got pneumonia and covid the hospitals weren’t taking people unless they were at deaths door. I had to quarantine at home.
33
363
1K
Guys. Narcissistic parents never grow up do they. They get older. But they don’t mature.
85
47
990
Are we ever going to be safe from Covid again. Ever? Seriously?
427
55
990
Guys- I got a job! Never ever thought this was possible after Covid! I will be working mostly from home. Last year at this time I was in a wheelchair and bedbound. Healing is possible. We may not be what we used to be- but we can be a new thing! Have hope friends ♥️
#LongCovid
70
58
873
#longcovid
fatigue example - my arms are too weak today to hold my toothbrush up. So I brush while seated. With my arm supported on the countertop. And an electric tooth brush. Fatigue isn’t a big enough word. It’s devastating.
56
119
762
Hey
#longcovid
- went to the ER for extremely low blood pressure and left with the knowledge that I have liver lesions. Doc said fairly common in
#postcovid
patients. If you have any symptoms go get checked out. 💜💕💕🥰
40
220
729
Woke up to this. This is
#LongCovid
. It’s like someone rewired my immune system and every switch sets off the alarm. We need help. I have had this disease for 29 months and not getting better. Help us! Please!
#MedTwitter
#MECFS
64
158
694
After 38 months of dealing with
#longcovid
I want to share a tip for newbies. If your legs feel like they are buzzing, vibrating, or really sore and achy- it’s time to stop immediately, get some electrolytes and rest. It’s an indicator you have overdone it-PEM is otw w/o rest. ♥️
24
114
691
#Dentists
- if you want to grow your practice, become
#longcovid
literate and create a safe office for LC patients to get work done. You will be busier than you can imagine.
16
143
672
My oldest son just received a full scholarship to a big 10. He has had a tough row to hoe, and he is also Autistic. I’m so proud of this kid.
49
10
557
I want to give a word of encouragement for my
#longcovid
battle buddies. It’s been 40 months since I got sick. I was severe- bedbound- for most of that time. I went from super healthy to unable to eat or shower or walk. But- I’m healing. It’s slow. But it’s real. I want to
14
38
527
We watched “home alone” today. I couldn’t stop looking at the furniture. Remember when most folks had real wood furniture? Even when it was old or out of style it polished beautifully and looked nice. Now we all have resin and particle board. I miss real wood. And quality.
50
34
520
I used to wonder why I got
#LongCovid
when friends and family seemed to recover so fast. Now we know- their damage was just hiding. No one escapes without major damage. Time will tell. It’s so heartbreaking
#mask
29
79
474
Medical gaslighting is equivalent to medical malpractice. It should be treated as such.
11
120
480
@Wiscogirlanita
@MollyJongFast
RIGHT!! How heart weary must we be as a nation that we are casually discussing Our elected officials raping our kids- and not in some pretend pizza basement ! For real. This is insanity
2
37
456
Kiddo (18) had Covid 3/4 months ago. Now she is having so many gastro issues. Vomiting/upset/lack of appetite/constipation etc. please someone who has gastro
#longcovid
give me a quick and dirty of how to help her
113
101
461
It will be 4 years of
#longcovid
for me next week. Looking to find others in the
#4yearsurvivorsclub
. Where are you, friends? And how are you getting on?
#firstwave
130
102
455
Coming out of a hard crash with
#longcovid
. Hard crash = using wheelchair 24/7 Can’t eat. Spontaneous vomiting. Extreme pain everywhere. Intense migraine. Increased cognitive probs. speech loss. Tremors.Temp over 102.This is reality for
#LongCovid
. We need help. 27 months-
41
89
438
Every day since 3/16/2020. Do you know what constant fever feels like? No break- for 27 months. Don’t. Get.
#LongCovid
24
76
374
@nap___queen
Ok. I got you. I have had 4 kids. 2 of them I nursed over a year. The third had a heart defect and couldn’t. The 4th was losing weight and I couldn’t produce enough despite pumping, herbs, tears 💔. Cut to now- there is zero difference. FED is best. Fed. No mama guilt. Just hugs
3
10
366
I wish there was a
#LongCovid
hospital, where we could go, get iv fluids, do the many scans and blood draws and exams- without needing to spend energy on getting back and forth to many apps, etc.Then after week of testing, a week to recover while waiting 4 treatment plan.
25
45
361
Do yall get the “muscle failure” feeling with
#PEM
? Like even holding my phone makes my arms feel like I just did a super set of pull ups. Feels like my muscles are made of ashes.
#muscleweakness
doesn’t describe it.
#longcovid
#Moonshot
52
28
349
Hey
#LongCovid
! I have good news today! Went to
@MayoClinic
to establish w/new cardio. Good things!
1: doc immediately put on mask when he saw mine.
2: he spent 45 minutes talking w/me!
3:SAID THIS! “Looks like you have post-viral dysautonomia and POTS from Covid” y’all-IYKYK🤗
20
36
342
I’m not going to any more doctors. They have no answers. They can tell me what broke me - but have no way to fix me.
#LongCovid
is a fucking soul killer.
36
32
331
Hey
#longcovid
- do y’all ever get weakness in your neck/base of neck that feels like it’s too hard to hold up your head? Or like you have been using your neck to lift weights?
110
35
342
Has anyone else with
#LongCovid
had an immediate vision change? One minute I was fine and the next everything looks like a lens with vaseline and some double vision.
89
36
337
This is
#longcovid
#dysautonomia
. Imagine your bodies units and outputs are all mixed up and you have no control. You may start shaking with cold, sweating, run fevers, forget to breathe, have irregular heartbeat. Imagine this everyday for over four years.
#4yearsurvivors
107
58
331
I just got a call that my cardiologist has referred me to the heart failure clinic 😬💔😕
#LongCovid
53
32
324
Who’s researching the link between hormones and
#MECFS
.Many of us have drastically worsening symptoms during our periods.Our biomarkers change. Our vitals shift. It’s like having a week of severe ME.There’s got to be useful information there regarding how ME works.
#LongCovid
41
44
326
My 15 year old was just assaulted by trump supporters. She was skateboarding in our small neighborhood and saw a trump sign in the road. She picked it up and was jumped by adults in a truck with trump stickers. They grabbed and tore her shirt told her she’s going to jail
123
140
289
Living with an illness that the world is tired of thinking about is absolutely exhausting. We are not the enemy.We are just like you. We are trying to warn you. But the world is Covid weary. So instead of fighting the war-they are fighting the warriors.
#longcovid
#4yearsurvivors
12
88
320
I’m at a point where I just have no more energy to research or hypothesize or even follow up with docs. My soul is tired. My body is broken. I can’t heal me.
#LongCovid
27
21
313
Every day. Since 3/16/2020. A fever every day. Think about that when you decide to take your
#mask
off. It’s not worth it.
#longcovid
#fblc
14
52
303
Can we just buy the f’ing anitvirals ourselves?
#longcovid
. Can someone who lived through early days of AIDS tell me how to do this? I fear that time is of the essence… and it’s been over 4 years.
24
37
295
After 35 months of bedbound
#longcovid
- I finally have a doctor who uses evidence based treatment and I’m finally getting IV infusions without having to pay OOP. This doc is using my insurance as it should be- and isn’t afraid to prescribe treatments that actually help.
#POTS
17
18
281
Since I can cook from a wheelchair- I have made a focused effort the last month to make food memories for my kids for when I am dead. Like Swedish death cleaning except not. Tonight’s dessert is puff pastry with crème pat, and chocolate ganache.
36
13
292
Laying in bed. HR 96 BPM. Oxy is 81%. Blood pressure is 76/40. I’m on oxygen. I have IV fluids. I can’t believe back to this after four years of clawing my way out. I don’t know if I can do this again y’all.
#LongCovid
42
31
289
Welcome to Texas. Where you can’t buy a bottle of Scotch on a Sunday, but any moron with a pulse can buy a gun.
12
64
266
Hey
#longcovid
#mecfs
has anyone who is still able to read and comprehend, read this book? Thoughts?
30
38
286
I got sick March 16, 2020. I was my docs first
#covid
patient. No one knew what lay ahead with
#longcovid
. Tomorrow starts year 5 for me. Oxygen, IV’s, and wheelchairs took the place of running, playing with my kids and living my life. 4 years bedbound.
#LongCovidAwarenesDay
25
97
277
Wow. My ears aren’t ringing. First time in 2 years
28
7
267
Long COVID Linked to Mitochondrial Damage in Multiple Organs
6
91
266
Anyone else find that they forget to breathe? Like accidentally holding your breath? Or find themselves in some weird shallow breath patterns? New things emerging in year 4 for me.
#LongCovid
76
12
256
My sweet senior dog died last night. Rest in peace Jumpy. He was a very good boy.
66
3
261
The school where I am not sending my kids just sent me a second covid email of the day. Since 5 pm tonight they got another 140 cases. From 5-10 pm. There were 3 cases last week. Now there are over 500. 💔
#COVID19
#cancelschool
#Delta
#mask
#vaccinate
14
111
247
I’m not going to allow my story to end with
#longcovid
. This is a chapter. Not an Epilogue. I decide my life. And it will not end this way. Period.
18
12
247
@ahandvanish
I got sick March 2020. I am on oxygen now and in a wheelchair. I’m in my early 40’s. I was a runner. Now I can’t even shower without help. Life and death aren’t the only awful outcomes.
#LongCovid
4
70
244
Welcome to Texas- where I got a $1600 electric bill. We keep it on 73-74. 🤷🏻♀️
68
65
210
It breaks my heart to read the bios of my fellow
#LongCovid
patients. Filled with words like “former profession, I used to love, previously enjoyed.” If you have, or support those with
#LongCovid
#longhauler
drop your handle below. I want to connect with all of us.
#FBLC
45
31
216
Dear world- my barely verbal 7 year old with Down Syndrome just said “mama, I love you so much!” right out of the blue! I know it may be echolalia - but that will be me you see walking on sunshine for the rest of the day (life)!
#trisomy21
#downsyndrome
#extrachromiehomie
#SLP
19
10
214
Why aren’t classes in
#longcovid
being included as Medical Continuing Education requirements?
20
38
206
I can’t handle being sick for much longer. If tears were the cure we would all be well 💔
#LongCovid
30
16
200
@darafaye
Here’s what I do know. People who have high character, who aren’t bigots, racists, misogynists etc- they don’t hang out with people who are. Joe hangs out with info wars dude. That’s a huge red flag.
0
13
185
Here’s what medical trauma and gaslighting do. Yesterday my oxygen hit low 60’s. For hours. I decided to take my chances at home bc I refuse to pay hospital bills for gaslighting anymore after four years of crap. This is not good. Medicine- please do better.
#longcovid
14
34
200
My new state has an entire department dealing with Long Covid. They invite patients to sit on the board. They have resources for daily life assistance, med care, mental health. It makes me literally cry to know they see us
#longcovid
#Minnesota
11
38
198
Weekly IV infusion has done more to help me be quasi-functional than ANYTHING! Sometimes I get extra stuff in it/ but just a liter of electrolytes once a week makes a huge difference! Docs please prescribe this easy intervention where possible!
#longcovid
#pots
#Dysautonomia
26
23
189
I would like to raise a complaint to the
@ACLU
as a parent of a child with special needs. Having
@mtgreenee
on
#Education
committee when shes been seen using slurs against people with
#specialneeds
and
#learning
differences is discriminatory against
#children
with
#disabilities
.
4
106
185
83 year old mother in law come over. Took one look at her and said “you have covid”. Test agreed. Now we are all exposed again. And she is sick. At 83. With rheumatoid arthritis. She had never caught it so far. She’s boosted and masks. Watch your sweet ass folks.
#COVID19
32
22
193
One of the shittiest parts of
#LongCovid
is when you are deeply sad, but you can’t have a good deep cry, bc you know that getting upset or crying will trigger PEM and another trip to hell. I hate this part
#LongCovid
11
19
191
My unvaccinated 76 year old mother told me that she doesn’t have Covid. She just has omicron and that’s no big deal 🤦🏽♀️Bc the news. They need to stop spreading deadly lies.
10
22
188
Just want to share something positive. I don’t know how- nor how long it will last, but right now I feel really good. I had a wonderful evening. Very little pain and more energy than I have had in years. I’m so grateful for these micro rays of hope. Every moment is a gift.
#LCME
23
6
186
Best. Thing. I. Ever. Bought. Sweet lord.
#longcovid
yall need to check this out. Have it residing over the coathanger area and I’m just so happy.
31
19
184
So many people get left by partners, families and friends when this disease hits.
#mecfs
#longcovid
9
25
183
I just got sleep study results. Turns out I stop breathing a minimum of 23-27 times an hour. For more than 10 seconds each time. I’m getting a CPAP. Never expected that at this age. But
#LongCovid
had other plans. Glad to have hope for some relief maybe.
14
24
173
@Amos5210
I did. I was born and raised in the guns, Jesus, babies culture. And I broke free when I realized it was oppression. Same for my brother. 💜 granted we were young adults at the time- but there is hope.
1
4
173
This is just a screaming into the void tweet- but FFS I have had a %#%% fever every day for 20 months. My eyes burn. My skin hurts. Can someone please please please help people with
#LongCovid
I can’t take it anymore. 🔥🤬
31
30
176
@dysautonomian
Dude/ I have 2 disabled kids. One is severely disabled and requires 24/7 care. I myself am disabled. This is about systemic change. Not you. Please stop
0
4
174
What am I going to do. This is my heart rate - on beta blockers. I was in my bed and puttering around a bit today. This is four years after infection. This is
#longcovid
. I used to run for miles and never hit that heart rate. Now going to the bathroom hits 150’s.
29
34
174
@CovidSolidarit1
I think that is the case. I have always believed
#LongCovid
is the disease.
#COVID
is the beginning. No one is unscathed.
9
18
173
There are no words for
#LongCovid
fatigue. It’s worse than pregnancy exhaustion. Worse than new parenthood. Worse than the worst jet lag. You physically can not move your muscles. Can’t speak. It’s like being trapped in cement.
September - November 2021
Exhaustion sets in to a level I’ve never ever experienced I’m sleeping 6hours some days and still sleeping through nights. I cannot wake up and it’s impossible to move. I feel like I’m operating at 5%
1
11
213
10
36
174
When your oxygen sats continue to drop into the low 80’s, every day, two years post infection, and nothing helps- and no one can fix it- that’s
#LongCovid
for me.
19
20
167
I’m not trying to brag- but I just took a whole shower, standing up, unassisted- AND- I didn’t lose handfuls of hair when I washed it. First time in 19 months.
13
7
168
Today is my coronaversary. On this day in 2020 I got sick. I never got better. Now I, and so many others, are beginning our third year of debilitating illness. Don’t take the risk.
#LongCovid
10
27
169
@TheRickWilson
As a person who lived in Miami and watched said girlfriends pay for multiple townhomes, condos, etc with literal suitcases of cash (saw this with my own eyes) as a way of laundering funds - I totally agree. Shut. It. Down.
2
48
162
If you get
#covid
please take a lesson from
#longcovid
. Rest. Rest when you feel like you are better. And rest when you are used to pushing yourself. If there is a chance to help prevent longcovid- take it. Rest. Rest. Rest.
5
48
164
@DaniBeckman
I lost ability to speak and still struggle here in the beginning of year 5. Trying to respond to texts left me in tears and stuck. I still don’t have my smell back. My eyes are now misaligned and don’t focus the same. I can’t remember how to do anything. It’s brain damage.
13
23
168
To all my
#longcovid
friends who are relatively new to the struggle - I want to encourage you. This is a dynamic disease. It changes. I got sick early 2020. I have had long periods of being completely bedridden, unable to even lift my arms to eat, and recently, periods where
3
20
167
@_TRAV23
I am a “long hauler” in covid land. I got it- and was very very sick. I now test negative- but I still have a fever and have for 100 days. That’s hard on a body. I’m Still not ok. But testing negative and grateful to be alive .
8
3
155
One of my former students reached out today. She’s now working at Johns Hopkins in epidemiology and brain based treatments. She was hopeful about
#LongCovid
research. Lots of great minds working for us yall. Stay hopeful. 💜 we have come this far. We may as well walk together.
5
13
162
@D_Bone
@adamsmomof4
Yep. This week I was informed I have myocarditis, systolic heart failure, 40% lung capacity. And of course POTS and all the others. Docs need to really catch up. We need help.
10
18
158
I can’t take this pain much longer. I have taken all the pills, smoked all the smoke, edibled all the things, distracted myself, binaural beats, meditation, lidocaine - and the pain goes on. I’m tired. I’m done.
#LongCovid
32
12
160
@varindersingh24
Longcovid. The death of my first husband and what it did to my kids.finding out my other son has a serious life threatening health prob, And watching the nation fight for a man who mocked people with disabilities.
1
6
150
Does it take y’all hours after waking up to become functional? I swear it’s like I wake up mostly dead.
#LongCovid
24
8
152