IleneRuhoyMDPhD
@RuhoyMD
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Neurologist for chronically ill. #NeuroEDS Medical Director https://t.co/e5RMMYHTZT pre order https://t.co/naPotyBVzu
Seattle, WA and everywhere
Joined September 2019
Have definitely noticed improvement in endometriosis pain in my patients when I treat their migraines with cgrp antagonists. Interesting to note a common denominator of the mast cells. #mcas
Recent mouse studies indicate that FDA-approved CGRP blockers might offer a new treatment option for a condition affecting millions.
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RT @DrMariaNeira: Air pollution and brain damage: what the science says. Epidemiological studies have linked dirty air to dementia and othe…
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RT @sibylle_berlin: This is huge: What a study, never saw something similar. And certainly not in Germany. Thx @RuhoyMD @jeff_says_that Dr.…
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RT @karenlubell: New study from Ruhoy and Bolognese et al that examines the neurosurgical diagnoses for those with hEDS over 2014-2023. Fa…
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RT @BigginsSniggib: Insights: 1. Craniocervical instability is clearly downstream of advanced hypermobile EDS, often neccesitating surgica…
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My galleys to my first book. Invisible No More. Out in June by @StMartinsPress Everyone deserves to be seen, heard, respected, and cared for.
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Add poorly understood by many. Not necessarily easily treated with antihistamines.
Mast Cell Activation Syndrome (MCAS) 1. Undersuspected 2. Underdiagnosed 3. Undertreated 4. Underestimated as a potential significant contributor to the complex presentation of ME/CFS and LC
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RT @Dysautonomia: Tremulousness or internal tremor can be a symptom of elevated sympathetic tone, often seen in #POTS. Many #LongCOVID pat…
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Great thread. CTD such as EDS patients often have improved POTS following VCS intervention. VCS can possibly occur due to outer lining of vessel being CT and more easily compressible by even slightest external mechanical compression compounded by other structures being “out of place” from poor structural architecture.
Vascular Compression Syndromes (VCS) in POTS patients In my experience, VCS are present in ALL patients with POTS, and are usually multiple. For the purposes of this thread this also applies to hEDS and trifecta patients as well. So what is a VCS? A 🧵
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@walkinagoodway @sibylle_berlin Yes. The patreon page is still open. We are planning to do our live sessions on the patreon and also have some interviews planned for 2025.
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@keelyvalentine @pamelarbishop @ShaneyWright No one is forgotten. So many patients, increase in number due to LC, and one surgeon. But we are working on solutions.
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@NeurologistMom Junior neurologists are being trained with an excessive focus on imaging. This issue is multifactorial—not enough time to conduct detailed PE or dedicate to teaching. (As your neighborhood friendly neuroradiologist), I must stress how limited imaging can be in many situations.
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