Kim Gold
@kimberlygold
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Data privacy, cyber, AI lawyer in pharma/healthcare/biotech | Chief Privacy Officer | Mom | ✡️🎗️🇺🇸 🇮🇱🦁| views my own/not legal advice
NJ 🇺🇸
Joined April 2009
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About me:
🔥I’m Chief Privacy Officer at a biopharma company. As CPO I run the privacy program, manage privacy compliance for the org, and lead a team of privacy lawyers and privacy compliance professionals
⚖️ How did I get into privacy? I started my legal career as a
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Answering as a current in-house client and former biglaw partner:
It truly is about building relationships, but I'm not talking about going out to networking events and conferences and giving elevator pitches to everyone you meet. I'm talking about building relationships every
Ok, senior attorneys, I’m ready. How does one Rainmaker?
(No but in all seriousness - any biz dev tips for current midlevels who want to get where you are?)
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Yesterday the California Assembly passed the “Delete Act,” which would allow CA consumers to remove their personal data from data brokers’ databases with a single request on a “one-stop shop” website.
Read more about the Act here:
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Privacy lawyering is so much more than writing privacy policies. It’s also:
-Strategic counseling on AI, marketing programs, research, and other initiatives that involve data
-Partnering with the business to come up with creative solutions
-Giving guidance on risk and impact
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@trestiffany11
I have about 4 of the one on the right, all over different parts of the house.
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The California Attorney General just announced a $93 million settlement against Google based on location privacy practices.
The complaint alleges that Google falsely told users that if they turned off the “Location History” setting, Google wouldn’t store their location data.
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A robin recently built a nest on top of our porch light and laid four eggs 😍
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Big privacy news: TikTok was fined €345 million ($368M) for allegedly violating European privacy law in its handling of children's data.
European regulators found that TikTok infringed the GDPR's principle of fairness when processing personal data relating to children ages
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Yes.
I married a man I DM’d.
On MySpace.
In 2006.
Still going strong 17 years later.
cc
@michaelgold
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Should Congress update HIPAA?
Congress is asking for feedback on improving health data protection in the US while balancing medical research needs.
Health data collected through newer tech like wearables and health and wellness apps is often not protected under the almost 30
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@svershbow
I used to take 3 trains to get from Lincoln Square to my old office in Midtown East. Half the time I’d just walk.
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@LizCGil
Can I answer as a client in terms of what leads me to hire an outside attorney? Maybe that’s for a separate thread 👍🏻
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Publicly available personal data - like data on social media platforms - is still subject to privacy laws in most parts of the world and has to be protected
A bunch of privacy regulators came together to reiterate this point in a joint statement today ⬇️
Data protection and privacy Authorities have released a joint statement addressing the issue of data scraping on social media platforms and other publicly accessible sites.
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Presentation skills are so key for lawyers.
I gave two hours of internal presentations today on very short notice.
But I never had any formal training in public speaking.
I see an opportunity for more focus on teaching these skills in law school and in practice.
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There's been a ton of activity this week around AI regulation in the US.
Here's a new proposed bipartisan framework that would establish independent oversight/registration of AI systems, transparency, and legal accountability for harms:
And today there
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This looks like a great (free) webinar if you're looking to learn more about AI and privacy/cybersecurity issues.
Topics include:
• Bias, hallucination and security issues, including injection attacks
• Developments in US law regulating AI
• European Union AI Act
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@LizCGil
Now that I’m in a position to hire outside counsel, I only work with the lawyers who treat everyone, including associates, with respect.
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@Drew_Morris
Agree that experienced paralegals provide more value than 1st year associates…though if firms billed based on actual value delivered they wouldn’t bill by the hour anyway.
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@NiklausFuller
3 months? It honestly takes like 3 days with the “oh crap” method someone recommended here. But you have to stay home for those 3 days. I think we did it over a long weekend. There will still be some accidents for awhile but you’ll get mostly there.
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@schizesq
Lol maybe it was intended to be both? I can’t get it out of my head that it was supposed to be about the suits they wear 😂
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BREAKING: USPTO Says AI-Assisted Invention Patents Hinge On Humans
"While AI-assisted inventions are not categorically unpatentable, the inventorship analysis should focus on human contributions, as patents function to incentivize and reward human ingenuity."
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The Colorado AI Act has been signed into law, becoming the first comprehensive AI regulation in the U.S. It goes into effect February 1, 2026.
The law requires developers and deployers of "high-risk" AI systems to use reasonable care to avoid algorithmic discrimination.
There
BREAKING: THE COLORADO AI ACT IS SIGNED BY GOVERNOR POLIS, becoming the first comprehensive AI law in the U.S. Thrilled to announce this historical milestone in shaping AI governance and mitigating the risk of algorithmic discrimination.
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BREAKING: Executive Order on Preventing Access to Americans’ Bulk Sensitive Personal Data and United States Government-Related Data by Countries of Concern via
@whitehouse
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👀
"The notice-and-choice regime we’ve lived under these last thirty years has been great for the lawyers who draft these privacy policies. What it has not done is actually protect consumers’ privacy."
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This. Exactly this.
Just tell them you care. What I can tell you is most Jewish people I know are extremely distressed right now. I am personally really struggling and the fact that a lot of people have reached out to me means a lot.
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Looking to learn more about privacy?
Here are 3 amazing places to start:
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Here's a good reminder that commercial emails in the US have to meet pretty specific requirements.
The FTC just settled with Experian for $650,000 over claims that Experian violated CAN-SPAM for failing to include the required opt-out info and unsubscribe link at the bottom of
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An updated HIPAA Security Risk Assessment (SRA) tool was just released.
The tool is designed to help companies with HIPAA obligations conduct a security risk assessment as required by the HIPAA Security Rule.
Version 3.4 is available here
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@mindfullyemily
A partner I worked for would sometimes email me with just the words “please see me.” You can imagine the gut response yet it was never that bad. Sometimes he just wanted to sit down and gossip 😂
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I'm speaking on a webinar next Wednesday, May 15, on the regulation of data collected by digital health technologies.
CLE credits are available.
Registration link:
cc:
@ResearchWrigley
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Here is a direct link to the bill. The bill link on the page linked above seems to take you to the Pharmacy Law. They should prob fix that🤣
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@RobertFreundLaw
@SAOliver_Atty
@Notion4Lawyers
@titlelawyerjoe
@shaydeofgold
@bradford_hardin
@mindfullyemily
@brianpslough
@rlj_law
@LizCGil
@DietCoke_Esq
@SMB_Attorney
@Biglawnetwork
@Chris_Schuering
@Clevy_Law
@investing_law
@strowhiro
@Managermethod
@JonahPerlin
@cecexie
@Lawyer4Deals
@FloridaManEsq_
@aledalton
@heyitsalexsu
@theraleighwill
@ItsMattsLaw
I became more active on here only about a month ago but I’m enjoying the engagement and community 😊
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@girdley
I’d add privacy to the list! You touched on cybersecurity but data privacy is also a growing field and there are a lot of opportunities that don’t require a law degree. Local requirements are complex, providing an opportunity to gain deep expertise in an area that is increasingly
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15 states are urging Congress to remove preemption language in the current draft of the American Privacy Rights Act (APRA): "Congress should adopt a federal baseline, and continue to allow states to provide additional protections for consumers residing in their jurisdictions."
We’re urging Congress to ensure the American Privacy Rights Act sets a floor, not a ceiling for privacy protections across the country.
CA is at the forefront of privacy protections and the states must retain the ability to respond to privacy concerns as tech rapidly innovates.
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How about we don't use passport number as a security question.
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Free event this Thursday on AI and Privacy:
- What the current AI hype is about and what are the main counter-arguments;
- Why the "Stochastic Parrots" 🦜 paper caused so much buzz in AI circles and what we can learn from it;
- How AI dataset development works and what the
🔥 Interested in AI? There are 1840+ people confirmed, join us live on Thursday:
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Federal Trade Commission (
@FTC
) has published online guidance about topics like consumer and children's privacy:
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The
@FTC
is definitely paying close attention to the collection and use of precise location data.
Here, FTC is banning a company from selling or licensing precise location data, to settle allegations that the company didn't fully inform consumers and obtain consent to collect
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@DanielSolove
@paulohm
Great article and I agree. The privacy profession is in such high demand and it’s also one of the hardest areas of law to learn because of the complexity and constant changes. I hope more schools add privacy to their curriculum.
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The Network Advertising Initiative
@NAI
is recommending that ALL companies - including those outside the healthcare industry - understand rules governing sensitive health data.
“Even companies whose business models do not fit squarely in the health space or do not work directly
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In case you’re wondering about the nerd level of privacy lawyers, my privacy friends are sending around Cookie Monster GIFs as we chat about website cookies
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In short, companies can't materially change their data practices and notify consumers after the fact.
AI (and other) Companies: Quietly Changing Your Terms of Service Could Be Unfair or Deceptive
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More than 100 data protection and AI experts are calling for the EU AI Act to include a fundamental rights impact assessment requirement. The proposal asks that the assessment be consistent with existing assessment requirements like DPIAs under GDPR.
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Answering as a current in-house client and former biglaw partner:
It truly is about building relationships, but I'm not talking about going out to networking events and conferences and giving elevator pitches to everyone you meet. I'm talking about building relationships every
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Well this is a new one.
I get a lot of sales outreach on LinkedIn.
Some offer privacy-related solutions.
Some are irrelevant to my practice.
Like one I received today. But it got my attention.
I saw that I’d received a GIF from a connection I didn’t know. I was
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Important update for those of us who work on clinical research privacy
FDA took nine years to finalize the informed consent guidance it released as a draft in 2014—and then didn't address potential harmonization changes from the Common Rule.
reporting by
@nyahphengsitthy
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This is sick.
Jewish man: my family and I do not feel safe as Jews in San Francisco
Audience members behind him: making pig noises
Are we in Germany 1939 all over again?
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Answering as a current in-house client and former biglaw partner:
It truly is about building relationships, but I'm not talking about going out to networking events and conferences and giving elevator pitches to everyone you meet. I'm talking about building relationships every
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Another FTC settlement with a healthcare company, here a genetic testing company, over privacy and security claims.
FTC is ordering 1Health to pay $75,000, instruct 3rd party contract labs to destroy all consumer DNA samples > 180 days, stop sharing health data with 3rd parties
FTC finalizes order with over charges it failed to protect privacy and security of DNA data and unfairly changed its privacy policy:
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@LizCGil
Now as in-house counsel I straight up ask the firm who will get origination credit or tell them who I think should get the appropriate credit
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This looks like an interesting (and FREE) webinar on health apps and increased regulatory scrutiny by FTC
Topics include:
• Federal privacy and security regulation trends
• When a company is subject to the FTC Health Breach Notification Rule
• Things to consider to ensure
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Notified of a potential data breach on a Friday afternoon or before a holiday weekend.
When a pile of discovery hits my inbox at 4:59pm before a holiday weekend
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Bookmarking to see how long it takes for the 9yo to get around the controls established by a guy with a Master’s in Computer Science.
My 9yo just showed me he can search for "youtube unblocked" to break through the rudimentary filtering controls on our network.
Time to get creative :)
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@Drew_Morris
It helps when they're introduced and someone explains that they are on the call because they are supporting the matter.
It also helps if it at least looks like they're taking notes🤣
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@mindfullyemily
I see a lot of shock in response to your thread but this is exactly how I billed for 12 years in BigLaw.
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@freelancelawmom
@strowhiro
I barely made it an hour on friday before breaking down and texting her to try and get the news early 😂 🤐
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International Association of Privacy Professionals
@PrivacyPros
(IAPP) has a wealth of information incl. privacy news updates, training, and other info:
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Privacy experts are seeing more and more data sharing partnerships in the research context.
Read more in
@futureofprivacy
’s recently published Report, Data Sharing for Research: A Compendium of Case Studies, Analysis, and Recommendations.
Dive into the world of responsible
#data
for
#research
with FPF's new report by
@SheaSwauger
&
@MarjorySB
!
In case studies with leading companies and researchers, the paper examines the benefits and considerations required for research partnerships.
🔗:
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I asked ChatGPT for help with this one. Here's what it came up with:
"Do you have a lawyer? Because you just stole my heart and I might need to take legal action."
"If being sexy was a crime, you'd be guilty as charged!"
"Do you believe in love at first sight, or should I walk
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FTC is hosting a 1/2 day virtual Tech Summit next Thursday focused on AI.
The event is open to the public and the agenda is now posted:
• Welcome remarks by the Office of Technology
• Remarks by Chair Lina M. Khan
• Panel 1: AI & Chips and Cloud
• Commissioner Slaughter
1. Just announced! Speakers for the FTC Tech Summit on 1/25. Panelists from academia, civil society, government, and industry will examine the layers of tech that support AI: computational infrastructure, data and models, and consumer applications. 1/4
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@montezumachavez
Yes and I'm reading the exemptions. Looks much more limited than CCPA/CPRA exemptions.
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@freelancelawmom
@FloridaManEsq_
@strowhiro
I think we have established that lawtwitter has absolutely zero patience.
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