Final Year Psychology Student @ Loughborough University 🎓 || AuDHD&MH🧠||Lived Experience Co-Trainer/Support Worker/Governor
@cwpnhs
|| all views are my own💜
I don’t think anything will beat this week, I’m so truly proud of myself. Thinking of me 2 years ago who was so lost and saw no future, to now - in my final year of uni, speaking at RCPsych, invited to TheRoyalFoundation event etc… hard work and determination paid off🥹
2 years ago today I visited uni with staff from the ward I had been on for nearly a year. Today I am sat in my uni halls working on my dissertation with graduation in sight later this year. I also accepted my masters offer yesterday🥹
My determination is paying off ❤️ 👩🎓 🎓
Back in ma lil uni room and feel like it’s back to some normality
12th March I ended up in a&e
12th April I had my mhaa
12th May I am back in the Loughborough bubble💜💜
I won
@CaraLisette
ED Recovery Journal in
@thefobpodcast
3rd bday giveaway and it couldn’t have come at a better time🥺 going to work through some of this today as life is pretty 💩 atm
Today we attended the last learning set for the Demand Capacity & Flow QI collaborative at RCPsych.
I have been able to input from a LEx perspective and have learnt so much over the 18 months.
I am proud of CNS for the work they continue to do around DCF.
@cwpnhs
Fab 3 days with
@NikkiParry1
@BeWellLearning
train the trainer for Oliver McGowan Tier 2 Training
@PaulaMc007
.
Excited to be able to deliver this invaluable training in the near future as an autistic expert with lived experience.
@cwpnhs
We filmed an exciting Christmas special podcast yesterday with
@Dietitian_MH
, a consultant dietitian from LSCFT. It was such a lovely chatty episode where we shared some of our tips for dealing with Christmas (&any holiday). Can’t wait for everyone to hear it next month.
Today was a day where I have felt so genuinely proud of myself.
Stepping foot back into a ward, but this time as a ‘professional’. It was a firm reminder of the progress I have made over the past 3 years.
I don’t think the person I once was would quite believe where I am now❤️
@thefobpodcast
My changing body 100%, but looking back it’s due to the fact my struggle was no longer ‘visible’. My sick body was my way of communicating I wasn’t ok. I didn’t know how else to communicate, it all makes sense since my autism diagnosis. Communication was always difficult for me.
My part B psych results got released today and I’m so pleased I got a 2:1, even after getting too overwhelmed&leaving my sem1 exams (I’ll be resitting). 5 years of uni and this is the first year I’ve not ended up in hospital. It shows with hard work&determination, it’s possible🥰
Life really does do a full 180 sometimes! I’ve just had my interview to be on the bank as an IP clinical support worker and I’ve got the job! 🤩
So over the moon to get even more involved with
@cwpnhs
and one step closer to mh nursing after my psych degree! 🧠
Should be graduating tomorrow so instead of feeling sorry for myself, I’m spending a few nights in London w/mother to see Mamma Mia The Party tomorrow night!!
This time next year will be my time 👩🎓 🤞🏻🤞🏻🤞🏻
If anyone has any advice it would be much appreciated … how do I communicate with nurses/drs on a general ward as someone who is autistic. I’m presented with so many options and decisions but can come up with an answer. I sometimes just cannot speak and shut down.
I think things are actually moving in the right direction!! I’ve not had a serious hypo for around a week, I’ve got my leave, tube is not being used near as much, but most importantly - I’m still trying my hardest knowing that I have a life still waiting to be lived🩷
Took note from the selfie king himself
@TimWelchCWP
- fab day at the big book of best practice and annual members meeting, celebrating CWP best practice over the last year
NHS ‘care’ is such a postcode lottery - after reading my medical notes from my general hospital stay, I have never been so relieved to be back in Cheshire.
There’s so much I want to say but I have no words to describe the way I feel about how everything was dealt with.
What an amazing team!
I believe they are going to be so beneficial to keep people in area (which I’m a big advocate for) and reintegrate SU’s back in area
After meeting MHIST a few months back to speak in one of their meetings, I could see what an amazing asset they are to CWP👏🏼
"We work really closely and intensively with people who access the service. The people and their families are able to get to know the practitioners and work on goals that are important to them."
Learn more about our mental health intensive support teams in the video below 👇
The time has come to move out of my second home❤️🖤. This is a proud moment-I’ve never moved myself out of uni before due to being in hospital and my parents having to do it for me🥹. I’ve done a whole year without having to leave once, first time in 5 years 💪🏼 2nd yr over nd out
What an amazing few days.
I am so grateful to have had the opportunity to attend BIGSPD this year.
Such a thought provoking, inspiring, and insightful few days.
It was amazing to hear from so many incredible people within this field and the different work/research going on.
Definitely starting to feel like myself again. Despite being discharged with no plan- im so grateful for the ppl doing what they can so I never have to end up back in general. Im quite a pro @ bouncing back. Im holding onto all my reasons to push through & get enough nutrition.
THIS! A reply of ‘I’m a psychiatrist’ to the question ‘do you understand autism’ isn’t a valid answer imho. Everyone is so different with different experiences. Maybe try and understand from the persons perspective before making assumptions.
I still haven’t really processed the past few months yet.
I went to say bye to my cco today as I returned home when I left hosp again on Fri.
Sadly I have put uni on hold again which I will be doing from home next year. I’m so sad that my uni experience ended this way.
I often spend time thinking about all I have achieved since discharge from an OOA placement (after many admissions).
I always think, being discharged is like after passing your driving test, you learn and flourish the most once you put the skills learnt into action *yourself*.
Day3 back @ uni and feeling v grateful for community support😌had a productive appt with my cco & had a supportive appt with the gp who I saw the day I went to hospital. I’ve come out having so many nightmares and flashbacks, but been doing lots of self care-treated myself to 💅🏼
This is what ‘going out into Manchester’ looks like with me. Not had a sip of alcohol since January 27th, give me caffeine instead😂
I’ve actually loved the fact I have now seen you can have a good time AND be sober. Call me boring🤷♀️but I’ll be waking up fresh as a daisy tomo
@Lara_Fergie99
@elysiumcare
I was here for 12 months, I ended up discharging myself - I reached BIP (50 I think). Went home every week, went on leave every day, was living in the flats but still the discharge was AMA as the dr said I didn’t go in the community enough😶 I knew it was the right time …
End of an era 2018-2024.
Moved out of Bakewell today. I have many mixed emotions but it’s definitely a reminder of the journey over the years.
I’m going to treasure Bobby bear forever (thank you so much
@DrKKalawsky
)
What a fab few days - I managed to switch off completely and enjoy being in the moment. It was well needed. Back to reality in the morning feeling refreshed ❤️🩹
Fab catch up tonight discussing how the past 6 months of DBT graduates group has been going. Very proud of the work we have put in to get this going for not only ourselves but the future of DBT graduates
@CaitlinColSco66
The Big Book is back! Download your copy of our Big Book of Best Practice 2022/23 - packed full of innovative and inspiring best practice case studies from across the Trust.
🌐 Visit:
#BBBP23
I had a brilliant day talking about Reasonable Adjustments on the ASC PGCert at Chester University today.
Reasonable adjustments are so so important - it can be detrimental for a person when they are not put in place.
I can’t lie, the last few days seeing my uni’s graduations posts have been hard. I should’ve graduated last year however I was in hospital for the majority of my 2 year LOA
I just keep reminding myself how much I’ve achieved since discharge & next year that will be me graduating
@Lara_Fergie99
@elysiumcare
There is a fine line of staying somewhere beyond necessary and the frustration. It was the best decision I ever made as I had never thrived as much as when I did on discharge and proved them wrong. I also saw far too often people having a blip and struggling to build BIP up again
Massage booked for tomorrow ✅
Massive challenge as I hattteee being touched however, the pain/tension in my neck and shoulders needs sorting 😅and after all pay day = treat yo self.
We have some exciting news… the first episode of the Empowered ED NW podcast is out!
@GeorgiaPalfrey3
and I are so delighted to host this ED podcast with the help of Dave. Our first guest is Fiona Jenkins - many more exciting guests to come
@cwpnhs
A year ago today (well yesterday now) - I made the decision to cut alcohol out of my life. It was the best decision I ever made. I’m not a bore😅- I just realised what is important to me and the steps I need to take to reach my goals (alcohol didn’t fit into either category)❤️
This week has been none stop. Moving back to uni Monday, tiktok shop event Tuesday, office -> training -> Birmingham Wednesday, PENNA’s Thursday, meetings & back to uni for appts Friday. I’m exhausted to say the least😅
A well needed escape! I'm finally where I feel most at home❤️
No access to emails, no access to teams- just focusing on being in the moment and taking a break in the sunshine (and shopping malls)
Well today we filmed something super exciting and I can’t wait to share it with everyone and I know
@GeorgiaPalfrey3
will be feeling the same!! 👀👀what could it be 🎙️ 🤔
@Shrink_at_Large
The ‘label’ can be changed over and over but the struggles stay the same for the individual
No matter what the ‘label’ is, if people don’t get access to the right support the name doesn’t matter
Consistency,validation,connection etc (basic needs) is needed over a new ‘label’
Alongside the content, a real highlight for me was how it didn’t feel like ‘us’ and ‘them’. There was lots of acknowledgement of how important the LEx voice is.
It was also incredibly inspiring to hear from others with LEx and the work they’re doing (esp
@melanieanneball
- wow)
My hair was looking brassy so I put my usual toner drops in my conditioner to tone it down but my adhd got the better of me and I got distracted… I left it on for over an hour instead of 10-30 mins, now I have very purple hair😳🫣I’m laughing but I wanna cry😂😂
Sometimes I wonder why I work so hard to positively influence the system.. the past 5 weeks have taught me a lot.. my views have been consistently dismissed and drs who have never met me have come to conclusions so far from the truth.. having insight is both a blessing & a curse.
Very relieved to be in bed after a long interesting day at an NHSE workshop in London. This was a very fancy hotel (which meant lunch was lush😅)
@EDysregAutism
Reminded of one of my favourite days whilst I was sat at work today (thank you
@DrKKalawsky
for sending this to me). So lovely to be recognised for some of my achievements ❤️
@lborouniversity
What a fantastic day to mark
#WorldMentalHealthDay
with The Royal Foundation & The Mix ‘Exploring Our Emotional Worlds’ definitely a day I will never forget❤️
@sarahpsyc
Thanks Sarah. Im going to write things down when I have normal blood sugars and can think. They havent asked about RA but will look at our checklist tomorrow. Im also going to ring the autism team in the morning to see if they can help too. I’m just seen as being difficult atm
@veggiebrekkie
When ive been able to verbalise I have spoke to nurses about it but I still feel I’m misunderstood but I think I am going to write it all down when I am in the right headspace (not a hypo) - thank you
Fab day at
@lborouniversity
get ahead @ lboro event today. I wish this event was around when I was about to start! So nice to talk about my experience of getting support @ uni, I don’t know a more supportive uni 💜
First day in a while I’ve felt a bit more me, cannot wait to go outside and get some fresh air with a nice coffee. The past week has been a huge blur😖just want to feel physically better now🙏🏻
For my final year dissertation I am looking at young adult's experience of peer interactions about body weight and shape
If any 18-30 year olds wouldn't mind answering this short questionnaire and/or share it with friends & family, I’d be very grateful
Everyone in my life and support network have been incredible through this really rubbish, anxiety provoking time.
Keeping my graduation in mind, I know I need to build my strength back to complete my cw and diss!
So grateful for everyone atm - iykyk❤️
You could say I’ve had a productive day 🙈not in a ‘practical’ sense but I’ve got a lot of rest in which I think has been well needed.
So sad to be back in a hospital but I know this is what I need physically at the moment 😢
hard being far away from friends/family tho
Rotten night, sent for xray at 1am to find my tube was wayyyy too far into my stomach. Didn’t get to sleep until 3am - I think a lot of caffeine is needed today (in moderation I guess) parents are bringing my gazillion parcels I’ve ordered tho😅🫶🏼 need the dopamine.
Been feeling a bit meh today (tired and hungry probably added to it lol) so I went to aldi after work, I blame
@DrKKalawsky
for this damage to my bank😂 - my love for aldi dooopes is well known😂 but now I feel better so swings n roundabouts😂
Today marks 15 months of freedom since my last admission. It feels v surreal looking back as I was at constant war with myself
Considering I had to leave AMA, I think it’s pretty fair to say I’ve proved a lot of people wrong. I’ve achieved things I once never saw possible
#proud
First cry of uni happened within 5 minutes of arriving ✅😂
One little comment completely threw me off today. My autistic lil brain was so overwhelmed - mixed with coming off one of my meds. But… I’m proud of how I managed. Reminding myself not to be ashamed of my reactions❤️🩹❤️🩹
@JemimaCamhs
Thank you lovely! I’ve not had one since 2018 😬 but after talking to
@sarahpsyc
the other day it made me think about giving it another go x
#selfcare
😅❤️
I so wish this was more commonly understood! I had such an awful experience due to someone not understanding. Imagine being pulled into a room by a professional to have a lecture about my facial expressions - how humiliating, I was distraught.
@mellovescake
@NHSEngland
🥺🥺🥺leading to prolonged unnecessary hospital admissions which could be avoided. It’s almost like a past history of PD is an exclusion criteria 🙄🙄 even when there is no present evidence of sh or si. Or is it someone with autism is ‘too complex’🙄🙄
I mean this weather is lovely, but having the window open has meant daddy long legs, wasps, spiders, moths, you name it… are living RENT FREE in my humble abode. I’ve been bit on my neck (how😫), shoulder, and back… where is autumn please 🙏🏻 😂
@sarahpsyc
@JemimaCamhs
It was the best half an hour! Definitely needed, she said I had so much tension at the top of my back/neck 😬😂. 100% going back again for another soon, she was really accommodating too. Thank you for mentioning it 😅💕
@mellovescake
@Lara_Fergie99
@elysiumcare
Don’t forget the fact the clinical psychologist pulled me in a room 1:1 to discuss how i need to think about my facial expressions as they make me unapproachable- she could have just read my autism report….
Time to put these notes down as I don’t need other peoples interpretations to help guide me into MY future. I don’t need their validation. I am more than my historic diagnoses.
I may have been physically unwell for a few months but that isn’t going to define my present/future.
@iridescent0star
Hello , hi , I’m way way past my ‘target’ set in treatment and much much happier than I was at ‘target’ weight. Set point is where YOUR body is comfortable not one set out by society☺️💕