IBD India
@ibd_india
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A registered non-profit working to address the unmet needs of persons with Inflammatory Bowel Disease (IBD) in India #ibdindia #makeIndiaIBDaware
Joined May 2022
Dear HCPs, To avail printed copies of our newsletter (Hindi & English editions) for distribution in your clinic, please fill the following form - Hindi Edition Link - Both English & Hindi editions are available on our website.
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RT @CCYANetwork: In the latest EFCCA Magazine, CCYAN alum @nikhil_jayswal_ shares his journey of living with #IBD in India—an experience th…
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"It's important to ensure the involvement of local patients & patient leaders, who often get overlooked. We encourage doctors to collaborate directly with their own patients ... meaningful progress requires a strong, community-based approach." Read more -
Much thanks to EFCCA for covering my journey as a patient and a founder/director @ibd_india in their Feb 2025 magazine. And extra thanks for producing one of the most accurate version of my story. Page 32 at
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With great pride, we are excited to share that 3 of our community members - 2 from 🇮🇳, 1 from 🇧🇩, have secured the 2025 @CCYANetwork fellowship. Additionally, we have now worked with 11 patient & caregiver speakers, from all corners of 🇮🇳 in the past 2 years. #makeIndiaIBDaware
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RT @Bealoquebea: Understanding the complexity of chronic illnesses is no easy task I created this figure with insights from patients to sh…
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IBD India Newsletter - Q1 2025 Issue - available in both Hindi and English now! Translations into Hindi and other regional languages will make it possible for patients to understand their condition and help others understand it as well. #makeIndiaIBDaware
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IBD India, in collaboration with Multifly Lifestyle - an award winning accessible fashion startup, has created locally manufactured ostomy innerwear for ostomates. #ostomy #makeIndiaIBDaware
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RT @IldikoMe: In 2025, as an IBD community, let’s resolve to stop waiting for perfect data, or perfect funding, or building the perfect car…
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@drkeithsiau We can help him get a second opinion from our advisors, who lead IBD care and research in India.
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RT @propelacure: The global burden of #IBD is staggering. With rising incidence rates, especially in newly industrialized countries, IBD ha…
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@AkshayiWeb The issue of lack of insurance concerns many chronic and rare disease communities, as well as persons with disabilities in India. There are ongoing attempts to provide some benefits to persons with IBD via PMJAY. Extensive policy advocacy is required for greater change.
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@AkshayiWeb @ibdesis Thank you raising these points Akshay. There are many reasons why these things haven't happened yet. A lot of work needs to be done locally to bring this change. Greater advocacy and patient empowerment at the grassroots level is important. Lack of data is another hindrance.
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RT @ICHOM_ORG: At ICHOM, patients are our most important partners. Through our Patient Partner Alliance, we're shaping a future where healt…
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RT @bottomlineibd: #CrohnsAndColitisAwarenessWeek Day 7 A few observations from me on 25 years living with #IBD: 🔸Hope is the most poten…
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RT @bottomlineibd: #CrohnsandColitisAwarenessWeek Day 5 #IBD patients - did you know that 30-40% of people with Crohn's and UC also have…
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Pain in IBD is a much neglected aspect. Thank you @vandana_midha for consistently speaking about it in various conferences.
@vandana_midha from @DMCH_Ludhiana with a masterclass 👏👏 on approach to skeletal EIMs in #IBD
#ISGCON24 Key slides below 👇
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Day 2 - Crohn's and Colitis Awareness Week #CCAwarenessWeek #makeIndiaIBDaware #CrohnsandColitisAwarenessWeek
December 1st - 7th is Crohn’s & Colitis Awareness Week!💚 Crohn’s disease, ulcerative colitis, and microscopic colitis are all conditions that affect the bowel. Not everyone will experience the same symptoms, but the impact on people’s lives can be significant. (🧵1/5)
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