Eileen Davidson - Rheumatoid Arthritis Advocate
@chroniceileen
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Rants @CreakyJoints Blog Research Partner @Arthritis_ARC Ambassador @ArthritisSoc Staff @IfAiArthritis Host @Arthritis_SHYVR
Vancouver, British Columbia
Joined October 2014
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Nine years ago I realized there was something seriously wrong with me.
I was constantly tired, no matter how much coffee or water I drank or the healthy foods I ate. No matter how many hours of sleep I got or how many hours of work I reduced. Resting for too long would cause
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October 16th-22nd is
#InvisibleDisabilitiesWeek
!
Remember, not all
#disabilities
are visible.
Not all illnesses are limited to one symptom.
Not all disabilities only impact the elderly either.
Anyone, any age can have an
#InvisibleDisability
no matter how healthy they look.
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The best thing that happened to me in 2021... I adopted a lion cub.
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My American College of Rheumatology patient perspectives poster has been ACCEPTED!!!!!
YAY!
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February 2nd is
#RheumatoidAwarenessDay
- in this
@CreakyJoints
essay you will find me discussing what people don't understand about this disease but need to.
Please share to shine a light on RA.
#Arthritis
#RheumatoidArthritis
#ArthritisIsSerious
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I haven't painted in years. Surgery gave me the opportunity to sit and give it a shot again, with arthritic hands. It felt nice.
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I recently saw a
#Rheumatologist
suggesting patients to stay away from blogs. I am a
#RheumatoidArthritis
patient with a blog.
I understand why someone needs to be cautious when looking up information online but you will not be able to stop your patients from searching for more
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I GOT THE COMMUNITY ACTION GRANT from
@ArthritisSoc
!! Time to create a little something special for my local
#Arthritis
community.
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1
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I went for my first job interview since
#rheumatoidarthritis
landed me on
#disability
5 years ago. I was hired on the spot. It's important to adapt when life gives you challenges. It might be only one day a week in a hair salon as a receptionist but it fits my life now.
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Seven years ago today I stopped working due to intense pain and fatigue. A month later I was diagnosed with rheumatoid arthritis. I was 29. RA is one of the best (and worst) things that ever happened to me because of the lessons it taught me and who it has shaped me into today.
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I have been seeing these
#WhatYouDontSee
photos going around Instagram and I love them so I had to take part! Remember there is only so much of an iceberg you can see. Take part and make
#invisibleillness
visible.
#ArthritisAwarenessMonth
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Well.... It's not everyday I receive an invitation to speak at the American College of Rheumatology Convergence, but I just got one. I'm floored. Oh wow. I'm going to Washington DC in November!
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Since Being Diagnosed with
#RheumatoidArthritis
, I Always Feel Like I Have the Flu. Here’s What I’ve Learned About
#Malaise
.
My latest with
@CreakyJoints
#ChronicIllness
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Saw my rheumatologist yesterday where I am told my bloodwork is perfect, however my large ankles and other swollen joints say otherwise. Hello prednisone.
Was nice to hear her say "We don't need to go by the bloodwork, we will go by how you feel".
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February 2nd is
#RheumatoidArthritisAwarenessDay
Today creates awareness, promotes advocacy, education, research, innovation and understanding of rheumatoid arthritis. It makes those struggling with the disease feel less alone, seen and heard.
Learn more
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All the feels because I got an email from my
#rheumatologist
saying "I have been referring a lot of patients to your website. It is quite impressively laid out. You are addressing the needs of the
#Rheumatology
community."
Too legit to quit.
#patientadvocate
#rheumatoidarthritis
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Telling anyone they are too young to live with a condition is more inflammatory than it is reassuring or supportive.
My latest with
@CreakyJoints
- Please Stop Telling Me I’m ‘Too Young’ to Have Arthritis
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Today is
#RheumatoidArthritis
Awareness Day. Find out more as a
#rawararrior
explains what the debilitating disease actually is.
#RheumDay
@CreakyJoints
by
@chroniceileen
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I spoke loud and clear, disabled, immunocompromised and chronically ill lives matter, our freedom and safety matter. Adrenaline fueled me. I was there for my community.
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I had a guy on a dating app shame me because I haven't cured my chronic illness yet. He said I don't have enough belief or strive, anything can be cured, even cancer.
🤣😂🤣
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It is mandatory if I have one of these a selfie must be taken. Last day of the Canadian Rheumatology Association annual scientific meeting! Proud to be here representing the
@Arthritis_ARC
patient advisory board. I have been to over 10 annual scientific meetings between the
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I had a researcher ask me yesterday the negative side of being a patient partner in research. I went on a huge rant that felt good to get off my chest.
Patients are not a flavor of the month and not there to line your pockets. We deserve a spot at the table and equal respect.
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Considering some of the medications to treat
#RheumatoidArthritis
are also being used to treat the sickest
#COVID19
patients I hope reminds and informs some people that
#arthritis
is no joke and a very serious
#ChronicIllness
.
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Hiking has become a victory over
#RheumatoidArthritis
. I am proving to myself & others that I will not let rheumatoid arthritis win; that with a few adaptations I can still live and enjoy life
@CreakyJoints
#ArthritisAwarenessMonthh
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The
#COVID19
pandemic might seem like it is coming to an end but you see, my status as someone who is
#Immunocompromised
is going nowhere.
We still need your help in keeping us safe.
@CreakyJoints
#ChronicIllness
#HighRiskCovid19
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That feeling when you have
#RheumatoidArthritis
and finally find a pair of boots that don't kill your feet after an hour! And they're great for the rainforest that Vancouver is.
Buying footwear with
#Arthritis
is a nightmare. An expensive nightmare.
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When I was first diagnosed with
#Arthritis
I felt alone but thank you to all those
#FiercelyFightingArthritis
on this
#WorldArthritisDay
with me, we are not alone. My heart is full. Thank you x1000000.
@CreakyJoints
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@adfurlan
That pain is more than a symptom. It's debilitating, life changing and frustrating.
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Talk about surreal! I've had both CNN and CBC reach out to me for interviews in the last 24 hours. Granted the stories don't get pushed for breaking news, I'm excited to share when they are published.
#HighRiskCovid19
#RheumatoidArthritis
#Immunocompromised
#InvisibleIllness
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My abstract for the Canadian Arthritis Research Conference has been accepted and I will be an oral presenter on the preceding Research Presentation Days (March 25, 2024)! This was my first time writing an abstract like this so I am proud that it got accepted! <3
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I got an early Christmas gift because our covid-19 are increasing and I am not so keen on the gym anymore but I need to stay moving. I am one happy arthritic girl.
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Chronic illness, unfortunately, comes with its fair share of chronic opinions.
Thank you
@CreakyJoints
for giving me a platform to say this one.
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That's my name!
It was a huge honor to be one of three patient perspectives (with
@debconstien
) during this important steering committee with
@ACRheum
#RheumatoidArthritis
#PatientEngagement
#Rheumatology
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Today 8 years ago I had to quit my job because I fell sick. One month later I was diagnosed with rheumatoid arthritis.
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I did it! I got to represent the patient voice at
#ACR19
! What an amazing experience! If I ever thought I would be doing something like this when I was first diagnosed I didn't see it but I found my resilience. Thank you
@Arthritis_ARC
for sending me here!
#rheumatoidarthritis
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38 times around the sun now!
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Who am I & why am I attending
#ACR22
?
Because I am a
#PatientPartner
in
#Research
!
I can't fit all that I do in a tweet so this explains my advocacy.
Thanks to
@ACRheum
@CreakyJoints
@Arthritis_ARC
@IFAiArthritis
for supporting my way to Philadelphia & with presenting ❤️
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Yesterday I helped push a man in a heavy electric wheelchair up a hill to his bus stop because his wheelchair stopped working. He told me he sat there for an hour because no one would stop and help him even though he was trying to flag people down, I was the only one who stopped
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Bought me a sweet vintage bike with the money I earned being a patient partner in research. This is why you pay patient partners, it helps us live healthier lives.
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To every man who does not see me as date-able because of my
#InvisibleIllness
: 1 in 4 women in Canada get
#arthritis
so honestly good luck finding one who's life doesn't get affected by any of the 100 or more forms, at any age.
#DisabledPeopleAreHot
#RheumatoidArthritis
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I know people say it's 80% diet but I'm going to say for me 80% was falling in love with
#exercise
and learning how to with
#rheumatoidarthritis
. It is painful to exercise and
#arthritis
is a difficult disease to treat. It was a journey that had to move at arthritic speed.
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@nytimes
What a joke... It's 2021, cannabis can help many people in pain... I bet running like that leaves her in some pain, where is the compassion?
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After one year on the waitlist, today I finally get to see a Pain Specialist ❤
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Doctor who did my LEEP called to say all precancerous cells were removed, no sign of disease, and I'm good for 6 months until my next colposcopy. Hope to keep it that way! Thank you
@BCCancer
for sending reminder letters so this was caught early.
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#Arthritis
community!
Have you seen what
@CreakyJoints
and I have come up with for
#WorldArthritisDay
tomorrow October 12th?
Find out how you can create your own
#ArthritisAwareness
by telling the world how you are
#FiercelyFightingArthritis
Details:
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I did it! I sent in my application for a Community Action Grant from The Arthritis Society in hopes to create a little magic for my local
#Arthritis
community. I put a lot of time and passion into this, please wish me luck!
Now to catch up on everything else....
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While there's concern for the elderly catching
#coronavirus
, there's another
#HighRiskCovid19
group that has nothing to do with age.
#Socialdistancing
will save their lives
#covid19
#invisibleillness
#immunocompromised
#immunosuppressed
#StayTheFHome
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Think
#rheumatoidarthritis
is just joint pain? Think again.
‘Basically, it’s like running a marathon with the flu while in an existential crisis.’
For
@CreakyJoints
by
@chroniceileen
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My 8 year old son was showing me a train station he's making out of construction paper & pointed out to me the spot for disability parking. I don't think some city planners in their prime even consider that!
Future architectural engineer with a mind for inclusion in the making
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I made a reel for
#InvisibleDisabilitiesWeek
- Remember that a disability can be invisible no matter how severe or debilitating.
#InvisibleDisability
#Disability
#Disabilities
#RheumatoidArthtritis
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Don't let my looks or age fool you, I am
#HighRiskCovid19
because I live with
#invisibleillness
#rheumatoidarthritis
. The disease and medications make me
#immunosuppressed
so it is hard for me to fight off infection like
#corornavirus
#covid19
.
So please
#WashYourHands
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Come find my patient perspectives poster in the poster hall 9-11 am
#ACR23
. Support your patients here too!
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I always find it exciting to see my name in a medical publication! Working on a patient perspective essay for this topic including more research from
@Arthritis_ARC
on how the pandemic has impacted us with rheumatic diseases.
📖 -->
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How You Can Support Someone with a
#ChronicIllness
(and Some Real Advice on How *Not* To)
Hint: Start by avoiding
#Ableism
and
#ToxicPositivity
.
@CreakyJoints
#RheumatoidArthritis
#Arthritis
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Now that
#ACR22
is over for the year and planning for next will be on the way I just want to flag someone needs to put together a session involving sleep, fatigue, cognitive dysfunction and mental health in inflammatory arthritis. And yes I want to talk about all 4.
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Can now extremely proudly say I have now attended in person the Canadian, American and European rheumatology conferences in person.
Have attended all online but in person is a totally different experience.
The girl who was diagnosed 8 years ago would be proud.
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Not bad for a girl with rheumatoid arthritis.
It's my favorite time of year! This will be a flower bed.
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Rheumatoid arthritis is serious. If you have it, you need to take it seriously. If you love someone who with RA, you need to understand what they’re living with every day.
@CreakyJoints
#RheuamtoidArthritis
#ChronicIllness
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#Beauty
comes from within. Just like my
#InvisibleIllness
.
#DisabledPeopleAreHot
#ButYouDontLookSick
#RheumatoidArthritis
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Today was the
#WalkforArthritis
across Canada and I had the honor to tell my story with
#rheumatoidarthritis
in
#Vancouver
! You better believe
#ArthritisWontStopMe
!
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Greatest purchase of my life. Booties and mittens ice packs. Thank you Amazon.
#RheumatoidArthritis
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Time for my first
@ACRheum
#ACR19
thanks to
@Arthritis_ARC
! You can find me giving the patient perspective for Strength Training for People with Rheumatoid Arthritis: Barriers, Facilitators and Tailing Considerations and No More Counting Sheep: Evidence-Based Sleep Management!
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October 17 - 23 is
#InvisibleDisabilitiesWeek
by
@InvDisabilities
. This week is a time to reflect on how someone may look healthy but inside they might be dealing with a
#ChronicIllness
or
#MentalHealth
struggles.
#Arthritis
is a common
#InvisibleDisability
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Starting this medication today for my
#RheumatoidArthritis
. Please don't ever call my disease not serious without knowing stuff like this.
#ArthritisIsSerious
#ItsNotJustJointPain
#AutoimmuneDisease
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Gave a speech tonight on living with an invisible disability and received this pretty plaque.
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October 16th-22nd is
#InvisibleDisabilitiesWeek
-
A week to reflect on how not all
#disabilities
are visible. Anyone can look like they are OK yet inside are struggling with one or more debilitating conditions.
This is
#WhatYouDontSee
when looking at me.
#InvisibleDisability
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Completed a dream and a goal of mine today! I presented my first patient perspectives poster and with some other really cool advocates crushing it.
#ACR22
#ArthritisResearch
#GoWithUs
@CreakyJoints
@IFAiArthritis
@Arthritis_ARC
Brava! We're so proud of your
#ACR22
#PatientPerspective
posters
@realcc
@SKDowling
@theYoungFace_RA
@chroniceileen
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Yesterday in the sauna an 80 year old woman told me RA isn't a chronic illness and all I need to do is drink ocean water.
#WTF
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The Arthritis Society asked me to write a letter as if I was writing a friend to tell them about my arthritis diagnosis for a project. Thought what I had to say was informative so I am sharing.
Dear Friend,
Nine years ago I was diagnosed with rheumatoid arthritis. My life has
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Why am I at
#ACR23
? I'm not a researcher or doctor. I am someone with a lot of lived experience. I am very involved in research, awareness and advocacy!
Find me presenting a Patient Perspectives poster Sunday.
Learn more about what I do & who I am at:
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According to Steve, if I think positively, my
#RheumatoidArthritis
will be OK.
It's not OK to leave comments or message people like this, but they are surprisingly common.
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I asked my 8 year old son what his favorite memory in life is and his response was not what I expected (Christmas or Birthday) - he said the 2019 Walk For Arthritis
@ArthritisSoc
is his favorite memory in life so far. He liked being on stage with me and seeing me speak. My hero
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Chronic illnesses are like chips, you can't have just one and they like to come with friends. It seems I am facing a new diagnosis to do with a nerve disorder. I've been sent to a neurologist to find out what these mysterious new symptoms might be. Potentially polyneuropathy.
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"I have not gotten sick with the coronavirus - but the pandemic has wreaked havoc on my well-being in considerable other ways. "
Sound familiar at all?
My latest with
@CreakyJoints
.
#Coronavirus
#Covid19
#ChronicIllness
#RheumatoidArthritis
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Great news this morning, I am being sponsored to attend the
@ACRheum
#ACR21
conference in November as a patient reporter for
@CreakyJoints
! I wish it was in person but eager to learn more about rheumatology!! Can't wait!
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Would you think this would be chic if you were diagnosed with any of the 100s of illnesses that require consistent IVs? Would you think our medicine is for seeking attention? Would you think it's artistic if you had family and friends look the other way?
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Living with
#invisibleillness
can cause a lot of drama for us when people have it in their head you have to look sick in order to be sick or
#disabled
. Not all
#disabilities
or illnesses are visible. There is more to illness than pain or the inability to walk.
#ButYouDotLookSick
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'This virus doesn’t have to mean a death sentence for autoimmune patients. You can get sick and still be ok.'
#Highriskcovid19
#immunosuppressed
#coronavirus
#covid19
@CreakyJoints
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Janssen covered my expenses to attend
#HealtheVoices22
@healthevoices
. It took 30 plus hours to get to Philadelphia but worth it to be around other patient advocates This conference is a breathe of fresh life for me.
All thoughts & opinions shared are my own.
#Sponsored
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Happy 8 year diagnosis of rheumatoid arthritis anniversary for me! I've kicked ass at having this shitty disease. 🥳🥳🥳🥳🥳🥳
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What Does
#RheumatoidArthritis
Really Feel Like? The 10 Descriptions You Won’t Read in an Office Pamphlet
First: Rheumatoid arthritis is not just ‘arthritis.’
@CreakyJoints
#Arthritis
#ArthritisAwarenessMonth
#RheumatoidArthritis
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I am nearing 36 so up how creaky I feel since writing this one. Arthritis isn't an old person's disease but sure does make one living with it feel older than they are. Read to find out why.
@CreakyJoints
#ArthritisAwarenessMonth
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You listening
#RheumTwitter
? Don't say "Oh" when I say I am a patient here. Patients can be experts too. Our voices and perspectives are equal.
#ACR22
Great work by
@ChronicEileen
for
@CreakyJoints
at
#ACR2022
Patients can play important roles in health research at all levels.
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Patients can be experts too. It's however up to us to learn about our conditions because doctor appointments are often rushed and short. There's so much to living with a
#ChronicIllness
like
#RheumatoidArthritis
Resources like
@CreakyJoints
@Arthritis_ARC
and
@ArthritisSoc
help
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I tried
#Acupuncture
yesterday, it was marvelous but the practitioner told me I was too young to live with RA/OA
#Arthritis
. I am tired of hearing HCPs tell me this, it is something I've heard way too many times at all types of appointments.
#DoYourResearch
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Not bad for a girl with
#Rheumatoidarthritis
. My best day yet since monitoring my physical activity and symptoms. 12.22miles/19.666km 💪🦵
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Holy crap. I am a
#WEGOHealthAwards
finalist in two categories. Instagram and Patient Leader Hero.... I am at a loss for words!
Congratulations to everyone nominated and the finalists!
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Who am I and why will you see me at
#EULAR2023
in Milan, Italy?
Because I am a busy patient advocate & writer with a love for
#ArthritisResearch
&
#Rheumatology
Thank you
@IFAiArthritis
for sponsoring me with their
#GoWithUs
program
Looking forward to meeting many of you!
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My main message is that
#RheumatoidArthritis
fluctuates, I need exercises for good days, bad days and the in between days. Also that there should be a focus on helping us navigate other symptom than just joint pain - I'm talking
#Fatigue
and
#BrainFog
. It's so hard to exercise
Talking to
#Physiotherapy
students from UBC today (Thanks
@LLi_1
) about movement and
#RheumatoidArthritis
. I enjoy being able to educate our future care providers on the realities of living with this disease and how I manage it. Physiotherapy is such a critical role in our care
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When I moved in to this house just over a year ago it was a party house. All the garbage was left behind for me to clean up but now I can admire the change from garbage to garden.
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