penny #ME🕊️🕊️
@TheOldLostRoad
Followers
2K
Following
136K
Statuses
23K
31yrs severe #MECFS. Left/Green. Hermit outcast. Trying to care for my adult daughter unsupported which isn’t possible. Sad deteriorating shouting into the wind
U.K.
Joined May 2016
No one who doesn’t have #MECFS will understand how life crushing it is. The endless blood sucking, death like weakness and emptiness. The endurance. Not family, not the GP, not the receptionist, the social workers, the home carer no one no one no one. It’s unimaginable.
8
53
379
RT @premnsikka: Billionaires become rich by renting out damp, mouldy substandard homes. Tenants suffer health hazards and increase pressur…
0
347
0
RT @TomKindlon: Press release for Australian research (funded by ME Research UK): Large hippocampus detected in Long COVID and ME/CFS pati…
0
5
0
RT @NickyProctor: 👇 Please DM me your name, postcode and short descriptor if you would like to sign @mediumwhite letter calling for researc…
0
2
0
RT @KatyBruce108: "Cuts to disability benefits would be catastrophic. Join @scope and add your name to show the Government we will not tol…
0
4
0
RT @MEResearchUK: Amazing news, this #DonationDay ME Research UK has received this quarter's donations! Thank you to everyone who supports…
0
2
0
RT @reviewwales: Eyes to the skies: the Snow Moon rises this week! 🌕❄️ Folklore tells us that the February full moon is so-called because o…
0
25
0
RT @MEresearchzone: *Doctoral thesis* "What is the psychological and educational impact of being an emerging adult living with ME/CFS? A qu…
0
3
0
RT @mediumwhite: A ME/CFS Delivery Plan which fails to deliver on research funding fails people with ME and Long Covid. We cannot accept…
0
21
0
RT @MEResearchUK: Next month ought to see the publication of the government's Delivery Plan on ME/CFS but with the sacking of the responsib…
0
6
0
RT @NickyProctor: I will definitely be signing this! Thank you @mediumwhite for using your energy to write this. If you want to sign thi…
0
2
0
RT @mediumwhite: A ME/CFS Delivery Plan which fails to deliver on research funding fails people with ME and Long Covid. We cannot accept th…
0
24
0
RT @NGSOpenGardens: 📷️East Lambrook Manor Gardens, Somerset The quintessential English cottage garden created by C20 gardening legend Mar…
0
85
0
RT @RorPreston: Chart from @wecrunchme showing just how low the NIH funding level is for ME/CFS & Long Covid compared to disease burden 🔍…
0
26
0
0
13
0