501c3 charitable organization advocating for research & education for
#IBD
patients & HCPs of
#SouthAsian
origin to ⬇️ disparities & ⬆️ treatment access
Speakers announced! 📣
Thrilled to host a NETWORKING RECEPTION at
#ACG2024
with a
#SouthAsian
twist on Oct 26th - right across from the convention center 🎉
Entry is FREE 💥💥
Register today:
Happy
#WorldIBDDay
from the SAIA/
@ibdesis
team!
Today we join hands as patient advocates and healthcare providers to encourage our fellow
#IBD
family around the world to
#BreakTheSilence
& say
#GameOverIBD
!
Teamwork makes the dream work! Join us today in breaking the silence!
#SouthAsian
representation comes to
@MondayNightIBD
!
We are so proud to introduce the South Asian IBD Alliance (SAIA) through an impt conversation on
#MondayNightIBD
on unmet needs in the
#SouthAsianIBD
community!
Join us between Jan 29th & Feb 2nd on Twitter to learn more!
SAIA is proud to announce
@P_DeepakIBDMD
@drvishal82
& Dr. Chetan Arora
@iitdelhi
were awarded Global Health funding for important
#SAIA
research: developing AI models to distinguish GI TB from
#Crohns
.
This is a big challenge worldwide & we're excited to be spearheading it!🙌
✨Meet our Board of Directors ✨
@IBDimmunology
is a leading gastroenterologist specialising in IBD! He is currently Assistant Professor,
@UMichGIHep
!
Dr. Shrinivas is SAIA's Director of Partnerships!
Learn more about Dr. Shrinivas here 🔽
SAIA in the press!! 🗞 This time...wait for it...in
@nytimes
!!
In conjunction w/
@CrohnsColitisFn
's We Can't Wait App, nonprofit partner SAIA was featured via
@ownyourcrohns
in Sunday edition of The New York Times!
Read the online article here:
#EidMubarak
🤲🏽 from SAIA/IBDesis families to all who celebrate 🌙📿
We wish you and your loved ones a happy and peaceful
#Eid
that brings you closer to your faith 🙏🏽
SAIA partnered with
@crohnscolitisfn
&
@improvecarenow
on a key resource on fasting with
#IBD
during Ramadan.
Thanks to SAIA's team of patient advocates & clinicians for developing this resource.
We hope to enable IBD patients to observe Ramadan & manage their health 🤲🏽📿
✨Meet our Board of Directors ✨
@drvishal82
is a gastroenterologist specialising in GI Tuberculosis & IBD. He is Associate Professor at
@gi_pgi
, India!
Within SAIA, Dr. Vishal is a Director of our Research Committee!
Learn more abt Dr. Vishal🔽
Have you checked out
@AmCollegeGastro
magazine's winter edition? ❄️
Featured on ACG mag's cover is
@ownyourcrohns
sharing how SAIA started & what we envision for the future of
#SouthAsianIBD
care as the 1st patient-clinician led org in the
#IBD
space!💥
SAIA reppin' at
@ibdgirls
' gala last weekend in Philadelphia! As a GWG partner, SAIA was proud to have Dr. Nandi
@fitwitmd
emcee the event & Tina
@ownyourcrohns
partake in the festivities.
Thank you to GWG for all the work you do to empower women living with
#IBD
& an
#ostomy
!
Hot off the press! 🗞
Thanks to
@aga_gastro
@aga_cgh
for publishing our commentary comparing access & costs of
#IBD
care between
#SouthAsia
& the West.
We at
#SAIA
are thrilled to turn these barriers into opportunities for better care as IBD grows 🌍
SAIA's inaugural CME event at
#DDW
is almost here!
Meet our stellar panel of patient advocates & clinicians from around the 🌏!
Join us on May 6th as we discuss strategies to enhance
#SouthAsianIBD
care!
Register to attend in-person/virtually here:
Not all heroes wear capes. Some wear white coats, scrubs & stethoscopes! 👩⚕️ 🩺 👨⚕️
We at SAIA thank our physicians for their dedication to patient care day in and day out. Bless you all for being the healthcare heroes that you are! 💪🏽🙌🏽🙏🏽
Over the last few months, many
#SouthAsianIBD
pts have passed away. We offer our condolences to their loved ones 🙏🏽
Recognising that cultural stigma was a major barrier, we commit to bridging these gaps & normalising IBD treatment.
Mortality from IBD is unacceptable in 2022🙏🏽
It is SAIA's 1st anniversary🎇!
Over the next few weeks, we introduce SAIA's Board of Directors who are key in bringing the org alive!
Here's to many more years of shattering the stigma, minimising disparities & improving access to care for all!
Join us to celebrate SAIA!
✨Meet our Board of Directors ✨
@ibdseb
is Professor & Lead Clinician at Hull University Teaching Hospitals. He leads an integrated IBD Unit (
@IbdHull
)
At
#SAIA
, Prof. Seb is a Director of our Research Committee!
Learn more abt Prof. Seb ⬇️
You're invited to SAIA’S inaugural CME symposium in Chicago!
Join us Sat 6 May after Day 1 of
#DDW
for a groundbreaking event w/ leading clinicians & advocates re the cultural barriers the
#SouthAsianIBD
community faces.
Register in-person or virtually:
SAIA Board member in the news!
@AmerMedicalAssn
recently featured SAIA's very own
@ibdtweets
for his hard work in battling denied prior auths for patients on advanced therapies.
We thank Dr. Tauseef Ali for his staunch
#advocacy
for
#IBD
patients!
Team SAIA at
#ECCO2024
! 🎉
Excited to announce a groundbreaking poster presented last Friday:
#IBD
in
#SouthAsia
is similar in disease severity & complications as IBD in the West. We need URGENT access to meds in the region.
Check out the abstract: 💫
SAIA partnered with
@crohnscolitisfn
&
@improvecarenow
on a key resource on fasting with
#IBD
during Ramadan.
Thanks to SAIA's team of patient advocates & clinicians for developing this resource.
We hope to enable IBD patients to observe Ramadan & manage their health 🤲🏽📿
Day 6
#CCAwarenessWeek
SAIA repping in Mumbai India!
Director of Patient Advocacy, Madhura
@rebelliousgut
, spoke at the 1st of its kind advisory meeting on advancing
#clinicaltrials
& research in 🇮🇳!
Time to create change & bring more meds to patients who need them in
#Asia
!
📢 SAIA's Membership is now open 📢
We cordially invite healthcare providers, patients & caregivers to join SAIA as members 🙏🏽🙏🏽
Learn more about membership & sign up here to become a member of SAIA here:
We hope to welcome you all to the SAIA family!
We’re bringing
#Desi
back! 💃🏽
This
#CCAwarenessWeek
Dr Neil Nandi and Neha Shah, RD, bring you ‘How to Eat Desi with IBD’ on Instagram LIVE! 🥦🥕
Join us on on Fri, Dec 2nd at 8am PST/ 11am EST/ 4pm BST/ 9pm PKT/ 9:30pm IST for this important event!
✨Meet our Board of Directors ✨
@P_DeepakIBDMD
is an Associate Professor & Director of Clinical & Translational Research at
@WUGastro
@IbdWustl
!
Dr. Deepak is SAIA’s Vice President & plays a key role in our various research initiatives!
Learn more about Dr. Deepak here!
SAIA's
#IBDClub
is thrilled to host its second session!
@abdullahaabbasi
, ST-6 GI Fellow, The Royal Wolverhampton NHS Trust, reviews predictors of anti-TNF treatment failure through the PANTS study. Access here:
Join us on Friday, Nov 4th at
@ibdclub
!
#RamadanMubarak
to all those who observe Ramadan! We at Team SAIA hope that this holy month brings those who observe
#Ramadan
closer to their faith 🤲🏽📿
Today, we embrace a
#NewYearResolution
from
@NMH_SHanauerMD
at
#AIBD2023
& emphasize that non-response to medication isn't a personal failure on an
#IBD
patient's part 💥
Let's lift any shame & blame and pave the way for innovation in pursuit of effective therapies & surgery 🙏🏽
As
#SouthAsians
, there is distinct pressure to pursue higher education. How do we achieve our dreams living with
#IBD
?
SAIA is proud to partner w/
@ImproveCareNow
on a FB Live session "Higher Education with IBD: Achieving your Dreams."
Join us on Aug 27:
SAIA makes its debut at
#DDW2022
! 💥
Just 10 months ago, we decided to build an alliance. This past week, we were thrilled to be in-person at
@DDWMeeting
!
As the 1st patient-clinician led org in
#IBD
, we look forward to serving the community & bringing forward change! 🙌🏽
✨Medical Hero Spotlight✨
SAIA's/
@ibdesis
' very own
@rebelliousgut
was featured as part of
@CISCRP
's Medical Hero Spotlight series!
Read on to learn more abt Madhura's journey with
#IBD
, patient advocacy & her hopes for
#SAIA
here:
**BIG NEWS**
Congrats to
#SAIA
board member,
@ibdtweets
, on the publication of Crohn's & Colitis for Dummies!
@ibdgijami
@IBDMD
#IBD
Patients &
#Caregivers
, don't miss this opportunity to grab your copy and start living your best life!
We at SAIA are excited to announce we have been selected as the winner of the
@Lyfebulb
@bmsnews
Innovation Challenge in the nonprofit category! 🏆
It is an immense honor to accept the Impact Award for $25,000 to help advance our cause in our
#SouthAsianIBD
community 🙏🏽
Our-cofounder
@ownyourcrohns
repping
#SAIA
at
#PatientsasPartners2022
!
Sharing her powerful pt experience & chairing a track on Decentralized Clinical Trials, Digital Health & Data Return, Tina embodies the diverse representation we wish to see in the
#clinicaltrial
arena 💥🙏
📢
#IBD
Clinicians & Patients 📢
SAIA is hosting an important talk on J-Pouch surgery & management!
Moderated by
@IBDimmunology
, the talk features Dr. Ajit Sood of
@CCF_IN
,
@GKochharMD
w/ lived experience from
@ownyourcrohns
!
Join us on 27th Feb:
Big news, folks! 🎇
SAIA is joining hands with
@IbdClub
to bring you the latest & greatest in research heralded by the
#SouthAsianIBD
community!💥
Stay tuned for upcoming dates for SAIA's IBD Journal Club! Join us monthly as we bring forward excellence in the field of
#IBD
!
*NEW PUBLICATION in
@jgijournal
*
@ownyourcrohns
describes her journey w/ several bouts of CDI while navigating a challenging course of
#IBD
:
SAIA is proud to have our patient advocates consistently raise the bar to advance clinician knowledge & care 👏
So proud of SAIA's phenomenal President
@ownyourcrohns
as she graduates with an MPH from
@IcahnMountSinai
@Icahn_MPH
today!
Her passionate leadership steers SAIA & moves the needle of care for
#IBD
patients globally
Keep shining, Tina💫💫👏🏾👏🏾
Happy International Women’s Day from Team SAIA/
@ibdesis
! Let’s continue to work towards achieving gender equity & ensuring female rights!
#InternationalWomensDay
We are partnering with
@CrohnsColitisFn
& many other orgs in the community to conduct an IBD Prevention Survey 🫶🏽
If you or a family member has
#IBD
, we want to hear your opinions re preventing IBD 👌🏽
Please participate in a quick survey here: ✍🏽
Eid Mubarak to all those who celebrate 🤲🕋
SAIA/
@ibdesis
&
@IbdClub
hope this
#Eid
brings you and your loved ones lots of happiness and good health.
For our fellow
#IBD
patients who may be struggling at this time, the SAIA/IBDesis family is here to support you!
SAIA is thrilled to host Dr. Vineet Ahuja (
@aiims_newdelhi
) as our clinician expert speaker to open Season 2 of our Patient Education Series!
We are gearing up to
#BreaktheSilence
& destigmatize
#IBD
medication💥🎉
Join us on June 17:
Identifying psychosocial challenges & solutions and touchpoints to elevate QoL for patients through the IBD journey!
SAIA's President
@ownyourcrohns
&
@IBDPassport
moderated an impt breakout session on IBD treatment & management!
#UninhibitedSummit
#YearinReview
2022 was huge for SAIA!
We received 501(c)(3) status, hosted many patient education events & professional development initiatives, published 3 patient-centric articles & much more!
We are excited to grow in 2023!
Thank you for your support & partnership 🙏🏽❤️
#Ramadan
is the 9th month of the Islamic lunar calendar & is observed by Muslims worldwide to honor their faith through fasting, praying & other practices.
We hope this month of Ramadan is spiritually rejuvenating 🤲📿
#RamadanMubarak
#Ramadan2023
We at SAIA /
@IBDesis
are so excited to announce the launch of our very first newsletter! 🥳
Our newsletter is filled with information about our recent research studies, patient education talks, and upcoming events!
Click here to read our newsletter:
Day 7
#CCAwarenessWeek
Thank you, everyone, for joining us this past week for Crohn's & Colitis Awareness Week!
Today's reel is an expression of our gratitude in helping us
#BreakTheSilence
for diverse
#IBD
warriors. Let's continue to amplify stories & destigmatize IBD!
SAIA is expanding! Calling interns from all over the 🌏! This is an opportunity you don't want to miss!
Check out the specs & let us know if you have any questions!Otherwise, please go ahead & apply! We can't wait to work with you!
Full description here:
Team
#SAIA
rocking it at the 39th Annual Pakistan Society of Gastroenterology Conference of 2023 in Lahore, Pakistan!
#PSG2023
@39th_psg2023
We at SAIA couldn't be prouder to put our best foot forward in representing and improving care for the
#SouthAsianIBD
community!
Team SAIA /
@ibdesis
/
@IbdClub
wishes you a
#HappyNewYear
! We hope 2023 brings you all good health & joy!
2022 was a big year for us and we are truly thankful for your support 💜💜
In 2023 & beyond, we will continue to work hard to improve
#SouthAsianIBD
care 🙏🏽🙏🏽
SAIA's
@ibdclub
is thrilled to host its inaugural session!
@chiragtpatel90
, GI Fellow (PGY-5), Oklahoma State Univ, reviews long-term data from the TAILORIX trial. Access the article:
Join us on Friday, Oct 14 at
@ibdclub
for this important discussion!
SAIA's 1st patient-clinician Live is here! On the occasion of World Ostomy Day
@FITWITMD
&
@ownyourcrohns
will host an imp discussion w Dr Govind Nandakumar, Aisha Islam, Pie Patel & Saravanan Nagappan on
#SouthAsian
concerns on life w an
#ostomy
! Join us:
Team
#SAIA
at
#CCCongress23
!
Some of our board & team members including our newest patient volunteer participated in the Crohn's & Colitis Congress at Denver, Colorado last week!
SAIA is proud to endorse the Congress & thrilled to move the needle forward on
#IBD
care!
Today, on
#MLKDay
, we at SAIA stand in solidarity of our brothers and sisters of various minority groups who face healthcare disparities. We will continue to work towards
#healthequity
for a better future for all ✊🏿✊🏾✊🏽✊🏼
SAIA was glad to be part of
#IBDConclave24
organized by
@kirankpeddi
! The 2 day conference included
✅ Talks & clinical case discussions
✅ A hands-on
#IUS
workshop
✅ A patient support forum led by
@ibdesis
We're proud to help elevate care for the
#SouthAsianIBD
community
✨ New Board of Directors Announcement ✨
@sabpeds
is a leading pediatric IBD specialist & medical director of the IBD program at
@ucsfchildrens
Dr. Sabina is the Director of SAIA's Multidisciplinary Care Committees & coordinates many initiatives across
#SAIA
.
More below ⬇️
SAIA is honored to be named a 'finalist' in the nonprofit category of the
@Lyfebulb
@bmsnews
Innovation Challenge coming up on January 25th!
We congratulate other nonprofit finalists
@PediatricIBD
&
@OpenBiome
and look forward to participating in person!
Happy Diwali & Bandi Chhor Divas to all who celebrate! We at
#SAIA
believe that cultural sensitivity & understanding is key to better, more informed
#healthcare
. One step in this direction is understanding the impt of
#SouthAsian
festivals! More here:
On our
#mentalhealth
&
#IBD
talk now:
1.
@DrAnjaliPandit
sharing why it’s important to discuss disclosure to family & friends with patients & how
#stigma
of IBD affects patients & their families in the community.
2. Dr. Taft sharing how it’s important to recognize there are