Sammy Ashby
@SammyatSUDEP
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SUDEP Action CEO, Lead for SUDEP & Seizure Safety Checklist & EpSMon epilepsy tools, Migraine Advocate, ACEVO member & Wantage Literary Festival Volunteer
Wantage, Oxon
Joined October 2014
We know this time of year can be extra tough when you're bereaved. So please don't forget the @SUDEPAction team are here for you if we can be there to help, listen and give you space to remember your loved one đź’ś
Our support line is open through the run-up to Christmas. We know that this time of year is difficult for many and it’s important to know there is no right or wrong way to grieve. You're not alone, we're here to help. Call 01235 772852 or email support@sudep.org #epilepsy
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RT @SudepAction: Represent SUDEP Action for the Edinburgh 10K! This run takes place on 24th May 2025 with a minimum sponsorship of £200.…
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RT @SudepAction: Join us on 7th June 2025, St James's Church (Piccadilly), to honour someone special - our Memorial Service is an opportuni…
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💜🧡
Jill Richards got married last month to her partner, Noel, in a “SUDEP Action wedding dress” of purple & orange as a tribute to her son who died from #SUDEP aged 27. “I let our guests know why those colours were chosen, wanting to keep Laurence & the charity in people's minds.”
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RT @SudepAction: What is Purple Day? Purple Day is the international day of #epilepsyawareness 🌎 It was founded to increase global awaren…
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RT @SudepAction: “Although it won’t bring a loved one back, it could save someone else from suffering in the same way.” The Epilepsy Death…
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RT @SudepAction: If you are missing someone in the lead-up to Valentine’s Day, know that our support team is just a call or email away. Ca…
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RT @SudepAction: You’re invited to our Memorial Service 2025 to commemorate all those with #epilepsy who have died. This service is for e…
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RT @SudepAction: “The view now is that valproate is thalidomide. It’s really not. Thalidomide was used for nausea in pregnancy. It wasn’t a…
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RT @SudepAction: Will you support SUDEP Action for Purple Day 2025? Purple Day is fast approaching on 26th March as the international day…
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The @SudepAction memorial service returns in June. A special event to remember, alongside others who are bereaved, those who have died too soon due to epilepsy / SUDEP. Bookings are now open. Anyone attending has the chance to help shape the event. We hope you can join us 💜🧡
You’re invited to our Memorial Service 2025 to commemorate all those with epilepsy who have died. The service will take place on 7th June 2025 at St James’s Church, Piccadilly in London and will start approximately at 11am. Book today: #SUDEP
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Fantastic news that more attention is going to be placed at a national level on Neurology services and those living with the condition! About time! We @SudepAction look forward to supporting the @NeuroAlliance with this over time.
Launched: UK-wide government neuro forum. The UK Neuro Forum will hold formal meetings across the Department for Health and Social Care, NHS England, devolved governments and UK Neurological Alliances. Learn more #BackThe1in6
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RT @SudepAction: Why do we hold coffee club meetings? Epilepsy deaths are often sudden and unexpected, so connecting with others may help…
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RT @SudepAction: Have you lost a friend to epilepsy? Talk to our support team. Call our support line on 01235 772852 or email in at suppor…
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This is such a beautiful, personal event to remember anyone who has died due to epilepsy or SUDEP. We hope you will join us 💜🧡 #GoneButNeverForgotten #AlwaysInOurHearts
Something special is coming soon – our Memorial Service is returning for 2025. Our service brings people together who have experienced an #epilepsy-related death as an opportunity to honour someone special. Next Tuesday, bookings will open and more info will be available. 🌸
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RT @SudepAction: Could you run the Hyde Park 10K this March for SUDEP Action? The run takes place on 15th March and has a minimum sponsor…
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RT @SudepAction: Add to our community of over 400 created tributes dedicated to those lost to epilepsy. MuchLoved offers a heartfelt, user…
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RT @SudepAction: We've submitted evidence to the APPG calling for the Government to act fast to prioritise people with #epilepsy and others…
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RT @SudepAction: Izzy Cross is running the Newport Half Marathon in April in memory of her friend Olivia. “Liv taught me many things in l…
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RT @SudepAction: SUDEP Action is continuing to work with the family of Charlie Marriage, who died from #SUDEP in June 2021 after spending t…
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RT @SudepAction: Did you know that you can donate to SUDEP Action via the sales of your workplace products and sales? Sign up is free throu…
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