SUDEP Action
@SudepAction
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Dedicated to raising awareness of epilepsy risks & tackling all #epilepsy deaths including #SUDEP Get in contact: [email protected]
Wantage, Oxfordshire
Joined December 2009
Home alone? Stay #epilepsysafe Stay hydrated, know your risks and remember to take your medication. Learn more about epilepsy safety: #seizureaware #epilepsy #epilepsyawareness
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Don’t miss out on the exciting things to come – join our mailing list today! Just head to: #SUDEP #epilepsy #epilepsyawareness
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Jill Richards got married last month to her partner, Noel, in a “SUDEP Action wedding dress” of purple & orange as a tribute to her son who died from #SUDEP aged 27. “I let our guests know why those colours were chosen, wanting to keep Laurence & the charity in people's minds.”
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What is Purple Day? Purple Day is the international day of #epilepsyawareness 🌎 It was founded to increase global awareness of epilepsy and spread information about the condition: Support SUDEP Action for #purpleday by sharing our posts!
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“Although it won’t bring a loved one back, it could save someone else from suffering in the same way.” The Epilepsy Deaths Register is a single point for reporting all epilepsy-related deaths. We urgently require your help to gather vital information:
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Martin Potts is running the Bath Half in memory of his partner’s younger sister, Lisa, who was lost to #SUDEP. "If I can do something to help raise awareness and raise a little money along the way to help support SUDEP Action then it's a positive."
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You’re invited to our Memorial Service 2025 to commemorate all those with #epilepsy who have died. This service is for everyone and we welcome people of all faiths and non-faith backgrounds to join us. Bookings close 28th Feb:
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Last December, a charity football match was held in memory of Ryan Goodman. “Whether it was his infectious laugh, his cheeky humour, or his endless love for football, he had a way of lighting up any room.” They raised a grand total of £861.65! #SUDEP
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@NewStatesman @hannahsbee @hannahsbee An important and sensitive issue; but this is a balanced and well written piece.
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“The view now is that valproate is thalidomide. It’s really not. Thalidomide was used for nausea in pregnancy. It wasn’t a life-saving medication for people with epilepsy.” - Jane Hanna, our Director of Policy & Influencing. #SUDEP #epilepsy @hannahsbee
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You’re invited to our Memorial Service 2025 to commemorate all those with epilepsy who have died. The service will take place on 7th June 2025 at St James’s Church, Piccadilly in London and will start approximately at 11am. Book today: #SUDEP
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Why do we hold coffee club meetings? Epilepsy deaths are often sudden and unexpected, so connecting with others may help you gain answers to questions. For more info, email info@sudep.org #SUDEP #epilepsy #sudepaction
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Could you challenge yourself with a skydive this year? Book a skydive today! There is a booking deposit of £70 and a fundraising minimum of £325 to raise before you jump 🪂 To book your 2025 challenge, head to: #SUDEP #epilepsy #seizureaware
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