“Although it won’t bring a loved one back, it could save someone else from suffering in the same way.” The Epilepsy Deaths Register is a single point for reporting all epilepsy-related deaths. We urgently require your help to gather vital information:

If you are missing someone in the lead-up to Valentine’s Day, know that our support team is just a call or email away. Call our support line on 01235 772852 or email in at support@sudep.org #SUDEP #epilepsy

Martin Potts is running the Bath Half in memory of his partner’s younger sister, Lisa, who was lost to #SUDEP. "If I can do something to help raise awareness and raise a little money along the way to help support SUDEP Action then it's a positive."

Could you consider Regular Giving to SUDEP Action? £2 a month could provide EpSMon to someone living with epilepsy 📲 Support our vital work with those bereaved by and living with epilepsy: #SUDEP #epilepsy

You’re invited to our Memorial Service 2025 to commemorate all those with #epilepsy who have died. This service is for everyone and we welcome people of all faiths and non-faith backgrounds to join us. Bookings close 28th Feb:

Last December, a charity football match was held in memory of Ryan Goodman. “Whether it was his infectious laugh, his cheeky humour, or his endless love for football, he had a way of lighting up any room.” They raised a grand total of £861.65! #SUDEP

@NewStatesman @hannahsbee @hannahsbee An important and sensitive issue; but this is a balanced and well written piece.

“The view now is that valproate is thalidomide. It’s really not. Thalidomide was used for nausea in pregnancy. It wasn’t a life-saving medication for people with epilepsy.” - Jane Hanna, our Director of Policy & Influencing. #SUDEP #epilepsy @hannahsbee

Will you support SUDEP Action for Purple Day 2025? Purple Day is fast approaching on 26th March as the international day of epilepsy awareness. Get in contact with our fundraising team for ideas on how to spread the word about #epilepsy! Email us today at fundraising@sudep.org

You’re invited to our Memorial Service 2025 to commemorate all those with epilepsy who have died. The service will take place on 7th June 2025 at St James’s Church, Piccadilly in London and will start approximately at 11am. Book today: #SUDEP

Represent SUDEP Action for the Edinburgh 10K! This run takes place on 24th May 2025 with a minimum sponsorship of £200. Sign-up before 1st May! Get in contact with fundraising@sudep.org #SUDEP #epilepsy

Why do we hold coffee club meetings? Epilepsy deaths are often sudden and unexpected, so connecting with others may help you gain answers to questions. For more info, email info@sudep.org #SUDEP #epilepsy #sudepaction

Have you lost a friend to epilepsy? Talk to our support team. Call our support line on 01235 772852 or email in at support@sudep.org #SUDEP #epilepsy

Could you challenge yourself with a skydive this year? Book a skydive today! There is a booking deposit of £70 and a fundraising minimum of £325 to raise before you jump 🪂 To book your 2025 challenge, head to: #SUDEP #epilepsy #seizureaware

Something special is coming soon – our Memorial Service is returning for 2025. Our service brings people together who have experienced an #epilepsy-related death as an opportunity to honour someone special. Next Tuesday, bookings will open and more info will be available. 🌸

Could you run the Hyde Park 10K this March for SUDEP Action? The run takes place on 15th March and has a minimum sponsorship of £200. The deadline date for sign-ups is March 7th so email fundraising@sudep.org today for more information! #SUDEP #epilepsy #hydepark10K #london

Add to our community of over 400 created tributes dedicated to those lost to epilepsy. MuchLoved offers a heartfelt, user-friendly platform where memories of those lost can be cherished and celebrated. Create a tribute today: #SUDEP #muchloved

We've submitted evidence to the APPG calling for the Government to act fast to prioritise people with #epilepsy and others at risk of sudden death - with two coroners recently raising red flags that deaths in young people were avoidable. #SUDEP

Izzy Cross is running the Newport Half Marathon in April in memory of her friend Olivia. “Liv taught me many things in life and although this is a lesson I’ll never be able to wrap my head around, she taught me how special life is.” #SUDEP #epilepsy

SUDEP Action is continuing to work with the family of Charlie Marriage, who died from #SUDEP in June 2021 after spending two days trying to get his anti-seizure medication via NHS 111, his health centre and local pharmacy. Read more: #epilepsyawareness