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Lupus Foundation NE Profile
Lupus Foundation NE

@LupusNE

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To educate and support people with lupus, promote awareness and fund scientific research that will lead to better treatments and ultimately a cure.

New England
Joined November 2012
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@LupusNE
Lupus Foundation NE
20 days
Its important that Granite State regulators take a long look at how some hospitals extract maximum profit from patients. “revenue cycle management companies,” like the one deployed by Covenant and St. Joseph in Nashua, put the bottom line over patients
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@LupusNE
Lupus Foundation NE
20 days
With the announcement of 15 drugs subject to #IRA price controls last week, @CMSgov and the federal government are doubling down on a flawed policy that affects Granite Staters @weworkforhealth @SenatorHassan @SenatorShaheen @RepGoodlander @RepChrisPappas
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@LupusNE
Lupus Foundation NE
21 days
It’s a sad reality for some of the most vulnerable patients who depend on the 340B program, which, unfortunately, is quickly turning into a hospital markup program. Worth the read. @SenatorHassan @SenatorShaheen @RepGoodlander @RepChrisPappas
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@LupusNE
Lupus Foundation NE
2 months
We are disappointed to learn the latest proposal does not include the #MCEDAct despite nearly 400 bipartisan cosponsors + 500+ advocacy orgs @SpeakerJohnson @RepJeffries @SenSchumer @LeaderMcConnell @SenatorHassan @RepChrisPappas @SenatorShaheen @RepAnnieKuster
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@LupusNE
Lupus Foundation NE
2 months
400 members of Congress, 500+ organizations from across the US, and ONE historic chance to change the future of cancer detection. #MCEDAct is going before Congress. @WhipKClark @RepRichardNeal @RepMcGovern @RepLoriTrahan @RepStephenLynch @USRepKeating @RepAuchincloss @RepMoulton
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@LupusNE
Lupus Foundation NE
2 months
Nearly 400 members of Congress, 500+ organizations from across the country, and ONE historic chance to change the future of cancer detection in this country. The #MCEDAct is going before Congress. @SenatorHassan @RepChrisPappas @SenatorShaheen @RepAnnieKuster
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@LupusNE
Lupus Foundation NE
2 months
@RepBuddyCarter
Buddy Carter
2 months
.@realDonaldTrump on the need for PBM transparency & accountability: “We’re going to reduce prices, because the middleman makes more money than the drug companies. There's a middleman that nobody even knows who they are."
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@LupusNE
Lupus Foundation NE
2 months
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@LupusNE
Lupus Foundation NE
2 months
Every day inaction hurts patients. Congress must implement rebate pass-through & delink #PBM fees from drug costs to stop inflated prices #PBMReformNow@RepRichardNeal @RepMcGovern @RepLoriTrahan @RepAuchincloss @RepKClark @teammoulton @RepPressley @RepStephenLynch @USRepKeating
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@LupusNE
Lupus Foundation NE
3 months
The CAR-T cell therapy has left patient Talaya Reid medication and symptom free.
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@LupusNE
Lupus Foundation NE
4 months
Thanks to @RepAnnieKuster, the NH delegation and staff for meeting with #MCED supporters and state leadership from @EnglandHealth @ACSCAN_NH so we could drop off support letters. We’re close to getting #MCED passed this year! @SenatorHassan @RepChrisPappas @SenatorShaheen
Tweet media one
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@LupusNE
Lupus Foundation NE
4 months
New @IQVIA_global research confirms what many warn and fear: #IRA price controls on #Medicare medicines will lead to small savings for some patients and even higher costs for others. @SenatorHassan @RepAnnieKuster @RepChrisPappas @SenatorShaheen
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@LupusNE
Lupus Foundation NE
4 months
Recent congressional hearings have highlighted the significant role that #PBMs play in the rising costs of medications for both consumers and employers. #PBMReform @SenatorHassan @RepAnnieKuster @RepChrisPappas @SenatorShaheen
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@LupusNE
Lupus Foundation NE
5 months
Great op-ed in the @NewHampJournal today. Policymakers should prioritize #PBM reform, not undermine the #IntellectualProperty system that brings hope to millions of #patients praying for cures. @SenatorHassan
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@LupusNE
Lupus Foundation NE
5 months
Granite State patients deserve a healthcare system that works for them, not #PBM middlemen. CLEARLY, these conglomerates need oversight. Thank you to @A_Ciaccia, great insights! @SenatorHassan @HELPCmteDems
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@LupusNE
Lupus Foundation NE
6 months
Thank you @RepAnnieKuster and @SenatorHassan! Your staff is amazing. We applaud your commitment to advancing #MCED legislation and prioritizing early cancer detection (H.R. 2407/S.2085) policy. Let’s be the cure and pass MCED this year!
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@LupusNE
Lupus Foundation NE
6 months
The New England medical & #Biopharma community has pioneered healthcare innovation, made possible by #IPRights and patent protections. Policymakers should safeguard, not undermine the #IntellectualProperty system. @SenatorHassan @SenatorShaheen
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@LupusNE
Lupus Foundation NE
6 months
Health system consolidation isn't reducing costs or improving care as promised. @bethisraellahey's $400M expansion plan could make Granite Staters foot the bill for Massachusetts growth. NH must demand accountability!
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@LupusNE
Lupus Foundation NE
6 months
The full Senate should act immediately on @SenatorHassan’s SITE Act to ensure hospital billing transparency for patients!!! 
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@LupusNE
Lupus Foundation NE
6 months
The first round of @CMSGov’s #Rx price setting is not to be celebrated, especially when lifesaving innovation suffers. R&D programs for key treatments and cures took a step back b/c of this. Despite @POTUS’ claims, #patients pay the price for the #IRA.
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